Welsh Steering Committee Member

Our challenge

Brain tumours do not discriminate. They can strike anyone, at any age and they strike quickly. The Welsh Steering Committee is a voluntary group connected to The Brain Tumour Charity that will help drive policy, campaigning and influencing work in Wales, with the support of The Charity. The Committee aims to represent the views of the brain tumour community in Wales and acts as a solution-focused advisory board, helping to shape and achieve agreed meaningful change.

The Committee will play a key role in setting direction and influencing priorities in Wales, ensuring that the voices and experiences of those affected by brain tumours are heard by decision makers and reflected in policy. An ambitious and dedicated group, the Committee works together to identify and deliver key priorities over the 2-year tenure of this group.

How can you help?

We are seeking new members with a range of experiences, perspectives and skill sets that can help drive the Committee’s ambitions and strengthen it’s impact across Wales. Your contribution will include attending Committee meetings providing valuable insight and input, as well as:

• Helping set the strategic direction and influence priorities for The Charity in Wales.

• Engaging with politicians, policymakers and health decision makers across Wales.

• Supporting campaigning and influencing activities at local and national levels.

• Representing The Charity as an ambassador at events conferences and stakeholder meetings.

• Contributing to the drafting of letters to ministers and other key decision makers.

• Assisting with developing parliamentary questions and briefing materials.

• Contributing to blogs articles and other public facing content.

• Supporting social media and media opportunities and awareness raising activities.

• Sharing personal professional or lived experience to inform the Committee’s work and priorities.

• Helping ensure the voices of people affected by brain tumours are heard across Wales and beyond.

What impact will you have?

As a member of the Welsh Steering Committee, you will play an important role in helping improve outcomes for everyone affected by brain tumours in Wales. You will be part of a passionate group working to influence policy shape services raise awareness and advocate for meaningful change.

We’re looking for

We welcome applications from people with a wide range of backgrounds, experiences and expertise. You don't have to meet every item on the list of expectations and if you believe you have skills, experience or perspectives that could help the Committee achieve change, we would love to hear from you! The Brain Tumour Charity is committed to promoting diversity and inclusion in all aspects of our organisation. We particularly welcome applications from individuals belonging to minority ethnic groups, LGBTQ+ communities, people with disabilities, and other underrepresented communities. We are particularly interested in hearing from people with:

• A personal experience of being affected by a brain tumour in Wales either as a patient family member friend or carer.
• Clinical expertise and experience supporting people affected by brain tumours. 
• Research experience within healthcare academia or related fields.
• Experience working in Welsh public affairs policy or government relations. 
• Experience working within commercial health or life science sectors.
• Communications PR or media experience.
• Experience in campaigning advocacy stakeholder engagement community organisation.
• A passion for improving outcomes for people affected by brain tumours and a willingness to share insights knowledge or lived experience. 

What can you gain from volunteering?

• Use your existing skills and experience while developing new knowledge and policy campaigning influencing and stakeholder engagement.

• Build valuable relationships with people across the brain tumour community healthcare sector and public policy landscape in Wales.

• Join a passionate supportive team committed to driving positive change.

• Experience the satisfaction of making meaningful contributions to the lives of people affected by brain tumours.

Time commitment

The Committee will meet once every second month. Meetings will be mainly virtual with occasional in-person meeting held with advance notice. Meetings are around 90 minutes long.

Practical considerations

You will receive a full induction to The Brain Tumour Charity and any specific training for the role, as well as ongoing direction from one of the team, who will be your key contact. We carry out reference checks for all individuals who will be

volunteering with us on a regular basis. Volunteers will be required to complete some internal data protection and disclosure documentation before commencing the role. Volunteers must be over 18. We encourage volunteers to claim for any reasonable expenses that are incurred in the course of their volunteering with The Charity. Find out more in our Volunteer Expenses Policy.

Need support with the application process?

We are committed to being inclusive and recognise that there may be a number of ways we could support you

through the application process. If there’s any adjustments we can make to help you fully engage in the process, don’t hesitate to let us know by getting in touch with the Volunteering Team

Interview date: Week commencing 16 November 2026.