Trustees Volunteer Roles
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The Generation Trust, based at Guy’s Hospital in London, seeks new charity trustees to support its mission of advancing scientific research and translating discoveries into clinical practice.
The Generation Trust was created in 1982 with the aim of raising funds to invest in genetic research, with a particular focus on the work of expert scientists in the Department of Medical and Molecular Genetics at Guy’s Hospital, London. Initially the charity raised about £2m and it currently has reserves of £700k. The charity has provided early support for a number of projects leading to better understanding of a number of disabling and life changing conditions.
The science of genetics continues to make exciting and rapid advances in the knowledge of human disease, helping to inform diagnostic practice and to develop new treatments.
The Department at Guy’s has played a key role in helping to move scientific knowledge ‘from bench to bedside’ in the NHS, advancing new methods of preventing or treating a range of life-changing and disabling conditions in both children and adults.
Modern DNA sequencing techniques at Guy’s have advanced understanding of the molecular origins and characteristics of breast cancer, leukaemia, inflammatory bowel disease, psoriasis and Huntingdon’s Disease as well as some of the rarer genetic diseases in children.
Funds raised by The Generation Trust have been used to invest in the early careers of the Department’s brightest young scientists, in PhD students or post-doctoral fellows, in pilot studies to ‘prime the pump’ for successful major grant applications and occasionally in capital projects to enhance the facilities of this world class research centre.
At the end of 2023, the Trust had reserves of about £700,000. The founders of The Generation Trust now hope to find the next generation of charity trustees to succeed them. We aim to recruit a small group who between them will have an interest in or, at least, a curiosity about the development of health science, cell biology, bio-informatics, DNA sequencing and genome analysis.
To sustain and grow the Trust we would like to add some expertise in investment management, charity governance and, ideally, access to wider networks of potential financial support in the City of London and elsewhere.
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We are specifically seeking trustees with experience in the following areas:
- Income Generation
- Governance
- Finance
- Marketing and PR
A LITTLE ABOUT PANS PANDAS UK
PANS and PANDAS are complex neuro-psychiatric conditions which are frequently misunderstood and misdiagnosed. PANS PANDAS UK are the only charity in the UK working to improve outcomes and ensure brighter futures for people affected by PANS and PANDAS.
We provide support and information to families and work tirelessly to inform medical practice by raising awareness at government levels, engaging with medical Royal Colleges and the NHS. In addition to this we work closely with health, social work and educational professionals as well as our European and International peer organisations.
We are a small group of trustees who are located around the UK. We work from home and have a warm, supportive, and positive culture. If you would like to join our friendly team, please download our Trustee Job Description.
Please submit your CV and a covering letter outlining your suitability for the role of trustee.
Please focus on the professional skills you can bring to the role, and your motivation for being considered for a trustee position with this unique charity.
The client requests no contact from agencies or media sales.
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This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
Background
Thyroid UK is a charitable company working primarily within the United Kingdom. Formed in 1998, we became a company limited by guarantee in 2007 and in 2008 we became a registered charity.
The provision of quality information for people with both diagnosed and undiagnosed thyroid disorders is the primary concern of Thyroid UK, and we work effectively in this field through dialogue with NHS departments, networking with other voluntary organisations, and providing services directly to patients.
We are a small charity, with just three permanent employees, plus contract staff, but we have a wide influence, and provide a great deal of support to our beneficiaries, within the UK and abroad. The charity’s annual income in 2023 was £96,900.54 with the majority of that income being spent on both running the charity and conducting campaigns and activities to support our beneficiaries.
The Thyroid UK Board of Trustees is a diverse group of 7 individuals, including the CEO, a Chairperson, Deputy Chair and this Treasurer role.
Role
We are looking to fill the position of treasurer for our Board of Trustees. Working with the CEO and Finance Manager, this role monitors the financial administration of the charity and reports to the Board of Trustees on its state of financial health, in line with best practice and in compliance with the governing document and legal requirements, to provide the board with the confidence and knowledge to better make operational and strategic decisions.
The ideal candidate will have experience of finance or finance management, preferably including some experience in a small company or charity.
Time requirement
The role will require a time commitment of an average of 1 to 2 days per month, with more time required in some months than others. This includes three planned board meetings of approximately 3 hours (two held online and one held in London with the option to join remotely, if needed) and the Thyroid UK AGM.
The Treasurer should be available to support the CEO, Chair and fellow trustees between board meetings, including taking responsibility to deal with issues which may arise, and have one-to-one meetings with the CEO and Finance Manager before board meetings.
Term of office
The Treasurer’s term is two years, following which the trustees may re-elect the position for a further one or two term(s).
Remuneration
Thyroid UK is a charitable, not-for-profit organisation. Trustee roles are not remunerated. However, reasonable expenses for travel can be paid for those not living in London.
Key Responsibilities
· Liaise with CEO and Trustees to ensure the financial viability of the organisation’s strategy, advising on the financial implications of Thyroid UK’s strategic plan
· Present Thyroid UK’s financial position and broader context at Trustee meetings, and oversee the production of an annual budget.
· Ensure that the Board of Trustees is aware of its financial duties and responsibilities and the need to comply with all legislation, and take a lead in interpreting financial data to fellow board members.
· Provide oversight and guidance where necessary of accounts prepared for funders and relevant statutory bodies.
· Oversee the appointment of an independent examiner of the accounts and review the appointment on a regular basis.
· Act as counter signatory on charity cheques and some applications to funders, approve payments on banking systems, and spending approval in accordance with financial management processes.
· Work in partnership with the CEO/Finance Manager in executing their responsibilities and achieving their financial goals.
· Ensure that all financial policies, procedures and the appointment of external financial advisors are reviewed on a regular basis.
Person Specification
In addition to fulfilling the experiences, skills and attributes of a trustee, a treasurer must also have:
1. Knowledge and experience of accounting and audit practices in the UK as they apply to companies and charities
2. Be able to interrogate and interpret financial statements
3. Communicate financial information in a meaningful and understandable way to the Board
4. Strong working knowledge of any accounting software
5. Strong attention to detail
Submit your interest by sending us the completed application form, your CV and a short cover letter.
The client requests no contact from agencies or media sales.
The Treasurer is a key role supporting Trustees and Committee Members by ensuring the finances of the KPA are properly managed in line with Charity Commission reporting, accounting and financial governance requirements.
GSTTKPA is going through an exciting period of change. As a result, we are seeking to recruit new Trustees to support our ambitious and innovative change programme, so we can continue to achieve the aims and objectives of the charity.
For this role, we are seeking a qualified accountant with charity experience to be both our Treasurer and a Trustee.
The role requires someone with commitment, enthusiasm and a good understanding of the challenges and opportunities associated with being a kidney patient. You will have a commitment to equality; celebrate diversity and be responsive to the needs of different groups and individuals within society.
The client requests no contact from agencies or media sales.
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This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
GSTTKPA is going through an exciting period of change. As a result, we are seeking to recruit a new Chair to support our ambitious and innovative change programme, so we can continue to achieve the aims and objectives of the charity.
The Chair role provides leadership to the organisation and the Trustee board by ensuring that everyone remains focused on the delivery of the organisation’s charitable purposes in order to ensure that GSTTKPA moves forward and continues to benefit kidney patients in the future.
The Chair will also need to set the strategy for the charity for the next few years which is vital for ensuring that our work and goals are in line with our vision. Just as importantly, the new post holder must understand that all the Trustees have a collective responsibility. This means that the Chair and the other Trustees must always act as a group and not as individuals.
As a Trustee, the new Chair must have a commitment to equality; celebrate diversity and be responsive to the needs of different groups and individuals within GSTTKPA and the wider community. In return, the successful applicant will join a warm and friendly team that works collaboratively to support each other as well as our kidney patients.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
GSTTKPA is going through an exciting period of change. Therefore, we are seeking to recruit a new Company Secretary to support our ambitious and innovative change programme, so we can continue to achieve the aims and objectives of the charity.
The role of Company Secretary is a key and important Trustee position on the Board. The Company Secretary will support the Chair and Vice Chair by ensuring the board functions smoothly. The Company Secretary will also have the opportunity to assist with activities and initiatives that are funded by GSTTKPA.
Trustees play a vital role in making sure that GSTTKPA achieves its core purpose. They also ensure that the charity has a clear strategy andthat our work and goals are in line with our vision. Just as importantly, all the Trustees have a collective responsibility. This means that trustees always actas a group and not as individuals.
As a Trustee, we also require the successful applicant to have a commitment to equality; celebrate diversity and be responsive to the needs of different groups and individuals within GSTTKPA and the wider community. In return, the successful applicant will join a warm and friendly team that works collaboratively to support each other as well as our kidney patients.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
Background
Thyroid UK is a charitable company working primarily within the United Kingdom. Formed in 1998, we became a company limited by guarantee in 2007 and in 2008 we became a registered charity.
The provision of quality information for people with both diagnosed and undiagnosed thyroid disorders is the primary concern of Thyroid UK, and we work effectively in this field through dialogue with NHS departments, networking with other voluntary organisations, and providing services directly to patients.
We are a small charity, with just three permanent employees, plus contract staff, but we have a wide influence, and provide a great deal of support to our beneficiaries, within the UK and abroad. The charity’s annual income in 2023 was £96,900.54 , with the majority of that income being spent on both running the charity and conducting campaigns and activities to support our beneficiaries.
The Thyroid UK Board of Trustees is a diverse group of 7 individuals, including the CEO, a Chairperson, Deputy Chair and Treasurer. Our board members have a collective responsibility. This means that our trustees always act as a group and not as individuals.
Our trustees play a vital role in making sure that Thyroid UK achieves its objectives. They oversee the overall management and administration of the charity. They also ensure that Thyroid UK has a clear strategy and that our work and goals are in line with our vision. Just as importantly, they support the executive team to enable Thyroid UK to grow, thrive and achieve its mission.
Role
We are looking for a trustee who will support and provide advice on Thyroid UK’s purpose, vision, goals and activities. Their duties include:
· Approve operational strategies & policies and monitor/evaluate their implementation.
· Review/approve Thyroid UK’s financial plans, statements and budgets, and evaluate progress.
· Ensure the effective and efficient administration of the organisation.
· Ensure that key risks are being identified, monitored and controlled effectively.
· Support Thyroid UK’s CEO in the exercise of their delegated authority and affairs.
· Hold the chief executive to account for the effective management and delivery of the organisation’s strategic aims and objectives, where appropriate
· Keep abreast of changes in Thyroid UK’s operating environment.
· Contribute to regular reviews of Thyroid UK’s own governance. Attend board meetings, adequately prepared to contribute to discussions.
· Use independent judgment, acting legally and in good faith to promote and protect Thyroid UK’s interests, to the exclusion of their own personal and/or any third party interests.
· Contribute to the broader promotion of Thyroid UK’s objects, aims and reputation by applying your skills, expertise, knowledge and contacts.
As a small charity, there will be times when the trustees will need to be actively involved beyond board meetings. This may involve scrutinising board papers, leading discussions, focusing on key issues, providing advice and guidance on new initiatives, presenting externally, or other issues in which the trustee has special expertise.
Time requirement
The role will require a time commitment of an average of 1 to 2 days per month, with more time required in some months than others. This includes three planned board meetings of approximately 3 hours (two held online and one held in London with the option to join remotely, if needed) and the Thyroid UK AGM.
Term of office
The term of a thyroid UK trustee is two years, following which the Trustees may re-elect the position for a further one or two term(s).
Remuneration
Thyroid UK is a charitable, not-for-profit organisation. Trustee roles are not remunerated. However, reasonable expenses for travel can be paid for those not living in London.
Key Responsibilities
We are looking for people willing to bring energy, enthusiasm and commitment to the role, and who will broaden the diversity of thinking on our board. You do not need previous governance experience – we will provide a full induction and training.
Personal skills and qualities
· Willingness and ability to understand and accept responsibilities and liabilities as trustees and to act in the best interests of the organisation.
· Ability to think creatively and strategically, exercise good, independent judgement and work effectively as a board member.
· Effective communication skills and willingness to participate actively in discussion.
· A strong personal commitment to equity, diversity and inclusion.
· Enthusiasm for our vision and mission.
· Willingness to lead according to our values.
Apply by sending us your CV and application form with a short covering letter
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Our system keeps your personal information hidden until the recruiter contacts you.
Willow is special. We help make precious memories in the toughest times.
Our team works hard to provide fun-packed Special Days or quiet breaks, a chance to meet heroes and legends, or the opportunity to fulfil a lifelong dream. In the toughest times, Willow creates tailored experiences that give people a boost and bring families closer together. We are the only UK charity that supports seriously ill 16 to 40-year-olds, creating magical moments which become shared memories that last a lifetime.
Since Willow was founded in 1999, we have provided more than 20,000 Special Days, Special Breaks and Special Treats, but we see this as only the first part of Willow’s journey and a base for further growth. We currently provide around 1,000 treats, days or breaks each year which means that we only reach a small percentage of those who would benefit from our services. We would love to be able to do more.
This is a pro bono appointment which brings rewards and if you would like to make a difference in our world, this is a great opportunity to bring your skills, knowledge and experience to help us deliver on our mission.
Travel expenses directly incurred in our roles as Trustees on official business can be reimbursed. Board and Committee meetings are held in person or remotely with in person meetings normally held in London.
Trustees are appointed for an initial three-year term with the opportunity to extend for a further two, three-year periods.
The time commitment is to attend 4 Board meetings a year plus relevant committee meetings. There are always opportunities to become more involved with specific projects, and trustees are strongly encouraged to attend at least 1 Willow fundraising event each year.
Specifics about the role
Willow seeks to appoint 2 new Board members as part of our succession planning. We are keen to hear from candidates who have skills or expertise in the following or similar areas:
- Worked as a senior fundraiser in a charity with a range of public fundraising methods, and are used to setting targets and reviewing the effectiveness of different streams of income. At Willow, you will help to scrutinise and enhance our fundraising strategy and may have experience of data insight and interrogation;
- Served on, or supported a range of charity boards and are familiar with charity regulation, including the Charity Commission, HMRC and the Fundraising Regulator. We anticipate that you will join Willow’s governance committee and perhaps serve as a future Chair or Deputy Chair
- A Senior Leader (CEO, Executive Director, Fundraising Director) from the Charity sector, with particular expertise in fundraising and the use of technology to engage supporters
You will be joining a dedicated team of Trustees. We currently have 10 board members with a variety of backgrounds and experience including finance, investments, fundraising, PR and communications, management consultancy, events, and legal. Our trustees work closely with the Chief Executive, leadership team and senior members of the team.
The client requests no contact from agencies or media sales.
CMTUK supports people living with the group of neurological conditions known as Charcot Marie Tooth Disease (CMT). The board is seeking members to enhance the board and is keen on increasing its diversity.
Who we are
CMTUK supports people living with Charcot Marie Tooth Disease and related conditions. It is a small charity with four part time members of staff, based in Christchurch, Dorset. Trustees are from across the UK.
The role
The CMTUK board meets 5 times a year, these are mostly online with at least one of these meetings in person, usually the evening before the annual conference (This has been during April/May in West Midlands). Trustees may be based anywhere within the UK (travel/accommodation to meetings is reimbursed if required).
The CMTUK board is seeks new trustees who will be active within the board and willing to sit on at least one committee (finance, communication, youth, research, strategy). The board is particularly interested to receive applications from those with experience of health / law.
As a prospective trustees you should be non-judgemental and able to work as part of a team, communicate effectively, and use your skills and experience to inform decision making and benefit the charity.
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This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
We’re looking to recruit volunteers to join our existing multidisciplinary management committee. Do you have experience in any of the following areas and want to help make a difference:
- Lived experience
- Academics
- Corporate
- Psychology
- Psychiatry
- Counselling
- Social work
- Mental health nursing
- Occupational therapy
Yes? We’d like to hear from you.
Overview of committee:
knus Multidisciplinary Management Committee (MDMC)
The committee will be responsible for directing the activities of knus, ensuring growth and efficiency and achieving the objectives for which it was set up.
The committee will:
- Set the strategic direction to guide and direct the activities of knus - ensuring growth and positive impact;
- Ensure the effective management of knus and it’s activities; and
- Monitor the activities of knus to ensure they are in keeping with the founding principles, objectives and values
The team will be multidisciplinary incorporating volunteer committee members from all backgrounds. For example, those with lived experience, academics, corporate, psychologists, psychiatrists, counsellors, social workers, mental health nurses, occupational therapists, etc.
The committee members can bring in their own ideas and wealth of experience to shape the way knus moves forward.
Please note - all successful volunteers are required to pay the cost price of £20.60 for an Enhanced DBS check. If you've got a current Enhanced DBS on the update service, this cost will not apply.
You must be a UK resident to apply for this role.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
The Joshua Tree is looking for new Trustees!
To help The Joshua Tree continue to support families going through the most unimaginable times we need new people to join the Trustee board. We are looking to further strengthen our existing Trustee team with people who have the passion and vision to contribute in a holistic way but with a particular emphasis and skill set in Counselling (including safeguarding)
This is an exciting time to join our charity as we further develop our services and proposition. As a Trustee your contribution to the board and charity will help us succeed in our growth, whilst continuing to ensure our beneficiary families remain at the heart of everything we do.
This is a fantastic opportunity to make a real difference to all those who we support.
For more information, see our website
For an informal discussion about the role please contact our CEO, Richard Driffield
The client requests no contact from agencies or media sales.
Non-Member Trustee / Lay Trustee
We are looking for a non-member trustee to serve as a vital representative of the broader public within the UKKA governance structure. This role contributes diverse perspectives, ensures transparency, and fosters accountability in decision-making processes.
The person:
• Civic-minded
• Strategic and analytical thinking
• Communication skills
• Ethical integrity
While the non-member trustee may not possess specific knowledge or expertise in kidney care, their unique perspective and community-orientated approach will enrich the diversity of thought within the board of trustees and contribute to the association's overall success.
Time commitment: The non-member trustee will be expected to dedicate a certain amount of time each month to attend the Trustee Board Meetings (circa 3 online and 1 face to face meetings per year, plus monthly online meetings), attend or chair/co-chair other (sub) committee meetings, review materials, participate in discussions, and engage in association-related activities as necessary.
Term of office: Three years, with the possibility of extension by mutual agreement
The client requests no contact from agencies or media sales.
The Treasurer will oversee the financial and assurance matters of the charity in line with good practice and in accordance with the governing documnet and legal requirements. The Treasurer will report to the Board of Trustees at regular intervals about the financial health of the organisation to enable the Board to better make strategic decisions. The Treasurer will ensure that effective financial and other risk measures, controls and procedures are put in place, and are appropriate for the charity.
The Chair has the overall purpose of leading the Board, ensuring systems are in place to provide trustees with the support they need to carry out their role effectively and enabling trustees to fulfil their responsibilities for the overall governance and strategic direction of the organisation. This will be done in accordance with the relevant legal and regulatory guidelines/requirements.
Actively Interviewing
This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
About us
Lipodystrophy UK is a dedicated charity, set up to support people affected by Lipodystrophy. Lipodystrophy is a rare disease which affects the body’s ability to store fat under the skin. This can lead to metabolic complications including insulin resistance, diabetes, dyslipidaemia, heart disease, kidney disease, fatty liver disease and many others.
We are a small but growing charity and need help with our Trustee board, after some dedicated long-serving members have stepped down.
We’re looking for a socially-conscious individual to help support our goals. This will be a fantastic opportunity to gain experience as a Board member and Trustee, facilitating the growth of the charity in its continuous efforts to support patients and their families. We welcome anyone affected by Lipodystrophy, rare disease, or anyone who wants to help our vibrant community.
Your role
You’ll be required to:
- Attend quarterly Board meetings (virtually)
- Offer opinions and recommendations on charity projects and directions
- Support our actions through organisation of/support organisation of different projects, for example:
- Arranging the printing of information leaflets
- Being a point of contact to a collaborator/collaborating organisation
- Organising a patient support day, etc.
- Liaise with and advise fellow trustees and other volunteers regarding assigned projects/tasks, keeping the Board up-to-date with any related developments
- Maintain a flexible approach in line with community engagement
- Give regular updates (quarterly Board meetings and ad hoc, when required) to the other Trustees on the Board
- Ensure that the organisation complies with its governing document, organisation law, and any other relevant legislation or regulations
- Ensure that the organisation pursues its objectives as defined in its governing document
- Undertake, along with fellow trustees, actively to govern, direct and control the organisation through collective decision-making
We would also like to appoint a Trustee with relevant experience as a Treasurer. Additional responsibilities would include:
- Oversee the financial affairs of the organisation and ensure they are legal, constitutional and within accepted accounting practice
- Ensure proper records are kept and that effective financial procedures and controls are in place
- Monitor and report on the financial health of the organisation
- Liaise with and advise fellow trustees and other volunteers on all financial matters to ensure the financial viability of the organisation
- Make fellow trustees aware of their financial obligations and take a lead in interpreting financial data to them
- Produce or assist with the production of all necessary financial reports and returns, accounts and audits
- Regularly report the financial position at trustee meetings
- Appraise the financial viability of plans, funding applications, proposals and feasibility studies and advise the trustees accordingly
- Ensure that funds are properly expended in accordance with any restrictions placed by the donor
About you
You’ll be comfortable communicating with others, discussing the merits and disadvantages for different approaches. You will be comfortable suggesting ideas to support patients and willing to take on responsibility for different projects, as required (expect no more than a few hours commitment a month). It would be great if you had an understanding and/or a personal connection to Lipodystrophy and/or rare disease, or a willingness to learn about Lipodystrophy and its challenges. You must be sensitive to the difficulties experienced by the lipodystrophy community. To be considered for a Trustee role you will have:
- A friendly and cooperative manner
- The ability to communicate well with others
- Good organisation skills
- A passion to support our Lipodystrophy community
Additionally for the Treasurer position:
- Knowledge and experience of current fundraising and finance practice relevant to voluntary and community organisations
- Knowledge of bookkeeping and financial management
- Good financial analysis skills
Benefits to the successful candidate
- A real sense of purpose - you get to make a real difference to people affected by lipodystrophy
- Work with like-minded people
- Varied opportunities for creativity and development
- Flexibility to fit work in around your other commitments
- Development of a wide range of transferable skills that will boost your CV and be attractive to future employers
To apply
If you’re as passionate about community support, raising awareness and supporting rare disease communities as we are and you want to join us on our journey and help shape our future, we want to hear from you.
To apply please submit your CV and a short covering letter explaining your interest in joining Lipodystrophy UK and the relevant experience that you will be able to bring to the organisation.
The client requests no contact from agencies or media sales.