Volunteer regional family support coordinator jobs
Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
Specific Tasks:
1. Proactive Family Support
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Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
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Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear
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Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
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Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Advanced and End-of-Life Care Support
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Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care.
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Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
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Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing.
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Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making.
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Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations.
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Offer signposting to bereavement support and follow-up services for families after loss.
3. Wellbeing Tracking and Outcome Measurement
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Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
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Collaborate with families to co-create action plans and track progress
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Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
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Organise and deliver regional meetups (minimum one per quarter)
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Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)
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Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
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Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne
5. Stakeholder Collaboration
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Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
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Represent Action Duchenne in across your regions and build relationships with local networks
6. Administration and Reporting
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Maintain accurate records of all interactions and support provided
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Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
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Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
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New contact acknowledgement email: within 3 working days
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New contact follow-up call: within 7–10 working days
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Families contacted per week: 12–15 hours of direct contact
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Regional meetups: 1 per quarter
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Support groups delivered: 9–12 per year
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CRM data entry: within the same day of interaction
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Family outcomes tracked: via wellbeing questionnaire and action plan
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Number of families receiving end-of-life care guidance or resources per quarter.
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Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request.
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Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services.
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Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find the job specification, including required skills and qualifications below.
Application deadline: 22nd December at 9am GMT.
Registered Charity
11 - 20
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.
The client requests no contact from agencies or media sales.
Thank you!
Home-Merton is seeking an inspiring and strategic Director to lead our trusted local charity through its next stage of growth and innovation.
This is a rare opportunity to make a tangible difference for children and families — by strengthening our community presence, driving income generation, and ensuring every child gets the best possible start in life.
About Home-Start Merton – Making a difference to young families
We believe strong families make strong communities.
Our trained volunteers provide emotional and practical support to parents of young children, helping them navigate the challenges of early childhood and family life.
Operating across London borough of Merton, we are a small but vibrant, values-driven charity and part of the wider Home-Start network — one of the UK’s leading family support movements.
Our Charity Director Role
As Director, you’ll be both strategic leader and hands-on advocate, driving our fundraising and partnership agenda while overseeing operational excellence.
You’ll lead our talented team of employees, work closely with trustees, and represent our charity with energy and passion — ensuring we remain a visible and trusted voice for families across Merton.
Key Responsibilities
- Lead and inspire staff and volunteers to deliver high-impact family support services.
- Oversee service delivery, safeguarding, and operational compliance.
- Develop and implement a bold, diversified fundraising and income generation strategy.
- Build and nurture relationships with funders, corporates, philanthropists, and community partners.
- Act as a confident ambassador, raising the organisation’s profile locally and regionally.
- Work closely with the Board of Trustees on governance, strategy, and long-term sustainability.
About You
You are:
- Experienced in charity governance, financial management, and service delivery.
- A proven fundraiser and relationship builder who can secure sustainable income across multiple sources.
- A confident and inclusive leader who inspires and empowers teams.
- Skilled in partnership development and community engagement.
- Deeply committed to safeguarding, equality, and family wellbeing.
Why Join Us?
- Lead one of London’s most respected family charities.
- Shape our strategy for growth and sustainability.
- Join a passionate, values-led team and supportive board.
- Enjoy flexible, hybrid working.
How to Apply
If you meet most but not all of our criteria and are passionate about giving children the best start in life we'd still like to hear from you.
Apply via CharityJob or reach out to our Chair for an informal conversation.
Closing Date: Friday 12 December 2025
Home-Start Merton is committed to equality, diversity, and inclusion. We welcome applicants from all backgrounds.
The client requests no contact from agencies or media sales.
Thank you!
Prison Facilitator - HMP Bristol
Location: HMP Bristol
Department: Prison delivery
Salary: £16,964 per annum
Hours: 21 hours (3 days a week)
Contract Type: Fixed Term Contract
Do you want to join an organisation committed to addressing low literacy levels amongst people in prison?
Shannon Trust are delighted to be working with His Majesty’s Prison & Probation Service (HMPPS) to provide peer-led learning programmes at HMP Bristol. Working closely with the prison and their staff, people in prison, Shannon Trust volunteers and mentors, this post will lead the delivery and development of our prison-based reading and numeracy programme, maximising opportunities for people in prison to learn to read.
Ideally you will have some experience of prison settings underpinned by the ability to build relationships and personal qualities that include resilience, determination and a problem-solving approach.
This role is a fixed term role until 30th June 2026 with the opportunity to be made permanent subject to contract renewal.
The role will be prison-based. Employee benefits include a company contribution to pension scheme of up to 5%, 30 days holiday plus bank holidays, life insurance, paid volunteering days, discounts via Reward Gateway and an Employee Assistance Programme. The biggest benefit though is our culture – our people really want to work for the organisation.
We welcome job applications from people with lived experience of the criminal justice system and do not routinely ask for details of any criminal convictions. These roles do require prison security clearance, so we will need to ask for details of any relevant criminal convictions before an offer of employment is finalised.
Interviews are planned for week commencing 8th December
Benefits: Standard Shannon Trust: Employee benefits include a company contribution to pension scheme of up to 5%, 30 days holiday plus bank holidays, life insurance, paid volunteering days, discounts via Reward Gateway and an Employee Assistance Programme.
REF-225 133
Thank you!
Reading Specialist - HMP New Hall
Location: HMP New Hall
Department: Prison delivery
Salary: £16,964 per annum
Hours: 21 hours (3 days a week)
Contract Type: Fixed Term Contract
Do you want to join an organisation committed to addressing illiteracy amongst people in prison?
Shannon Trust are delighted to be working with His Majesty’s Prison & Probation Service (HMPPS) and G4S to provide peer-led literacy and numeracy programmes across a number of prisons. We now have the opportunity to provide a service at HMP New Hall. Working closely with the prison and their staff, people in prison, Shannon Trust Team Members, this is an exciting role leading on the delivery and development of creative and exciting literacy initiatives and an ambitious Reading Strategy at HMP New Hall, maximising opportunities for people in prison to learn to read.
Ideally you will have some experience of prison settings underpinned by the ability to build relationships and personal qualities that include resilience, determination and a problem-solving approach.
This role will be prison-based. Employee benefits include a company contribution to pension scheme of up to 5%, 30 days holiday (when full time) plus bank holidays, life insurance, paid volunteering days, discounts via Reward Gateway and an Employee Assistance Programme. The biggest benefit though is our culture – our people really want to work for the organisation.
We welcome job applications from people with lived experience of the criminal justice system and do not routinely ask for details of any criminal convictions. These roles do require prison security clearance, so we will need to ask for details of any relevant criminal convictions before an offer of employment is finalised.
This is a fixed term contract until 5th June 2026
Interviews are to be held on a rolling schedule.
Please note the vacancy may close early if we find a suitable applicant.
Benefits: Standard Shannon Trust: Employee benefits include a company contribution to pension scheme of up to 5%, 30 days holiday plus bank holidays, life insurance, paid volunteering days, discounts via Reward Gateway and an Employee Assistance Programme.
REF-225 026
Thank you!
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COMMUNITY HUB LEADER
Oasis Hobmoor, Wash Lane, B25 8FD
Full-time (40 hours per week, 1 FTE)
Contract: Permanent
Salary: £35,570 per annum
Opportunity
Oasis is looking for a Community Hub Leader who can combine an entrepreneurial flair and excellent leadership skills to lead Oasis Hub Hobmoor through the next phase of its growth.
We are seeking an experienced Community Hub Leader who will bring fresh vision, take the community on the next stage of its journey together as a movement and bring innovation as well as stability to the charity, which has become an anchor, and a place called home for the local community.
The post holder will lead the local charity – which over the last 8 years has grown considerably, in terms of staffing, income and projects (including food pantry and café, football training and teams, a wide range of adult education, advice and support, an array of community classes and holiday provision).
About us
Oasis Hub Hobmoor is a local charity situated in South Yardley, Birmingham, at the meeting point of three wards: Tyseley and Hay Mills, South Yardley, and Yardley West and Stetchford.
Our aim is to help create a local community where people of all ages and stages feel included, know they can contribute, and realise a deep sense of belonging. We are actively engaged in creating a community that is characterised by trust, safety, and opportunity.
Key responsibilities
This is a key role as you will be responsible for strategic oversight of the local charity, ensuring the youth and community work supports the work of the academy, working alongside other local Oasis leaders such as the Academy Principal, volunteers and members of the local community to develop a joined up local vision for the community.
Some of the specific duties of this role include:
· Establishment and coordination of a range of provision such as family support, holiday clubs, volunteering and community empowerment projects.
· Maintaining and building supportive working partnerships across the community and various groups.
· Leading strategic development (e.g. comms, income generation, MEL).
· Planning, resourcing and coordinating the community plan, measuring impact.
· Strengthening the local Oasis Movement.
About you
This is very much a relational and project management role. As such, the successful applicant will need to demonstrate:
· A strategic mindset, and experience of leading community delivery and growing projects.
· Innovative use of resources and budget management to maximise funding, with a track record of securing income.
· A thorough knowledge and understanding community work.
· An education to degree level or equivalent and /or relevant professional qualification.
This is a unique opportunity for a self-reliant and results-focused individual, who is looking to make a difference in this complex and high-profile field of work.
What we offer
· Flexible working practices which encourage innovation and fresh ideas.
· A supportive network and friendly team in a motivating working environment.
· A non-contributory defined benefit pension scheme with 7% employer contributions.
· 25 days holiday per year (plus Bank Holidays), rising to 30 days after 2 years of service.
· Employee wellbeing schemes such as Cycle to Work and an employee funded health cash plan.
Application process
For full details please go the Oasis UK charity website.
Closing date for completed applications is 9am Monday December 8th 2025. Stage 1 interviews will be held on either 10th or 11th December via Teams and the final stage will take place on Wednesday 17th December in person at Hobmoor.
Please send us your CV and cover letter.
To arrange a visit or an informal conversation about the role, please visit the Oasis Charity Jobs website.
We actively encourage applications from people of all ethnic backgrounds and minority and underrepresented groups. Oasis is committed to making a difference to the lives of the communities it works in, and as such you must show a willingness to demonstrate commitment to the values and behaviours which flow from the Oasis ethos.
The successful candidates must have the right to work in the UK. Oasis cannot assist with sponsorship or visas.
We are committed to safeguarding and promoting the welfare of children and young people. We expect all staff to share this commitment and to undergo appropriate checks, including enhanced DBS checks.
Oasis supports Equal Opportunities. Registered Charity No. 1163889
The client requests no contact from agencies or media sales.