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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 days ago Apply Now

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Damilola Taylor Trust, Multiple Locations (Hybrid)
25,920 FTE
We are looking for an experienced, self-directed administrator to enable the smooth functioning of the Trust, improving its effectiveness
Posted 1 week ago Apply Now
William Merritt Disabled Living Centre, Rodley (On-site)
£24,784.5 - £26,227.5 per year
Posted 6 days ago
First Give, London (Hybrid)
£16,817 (£28,028 FTE)
We are seeking an enthusiastic, proactive and motivated administrator seeking a varied part time and flexible role at a growing charity
Posted 1 week ago
Institute of Conservation, London (Hybrid)
£28,000 - £31,000 per year
Posted 2 weeks ago
Primary Science Teaching Trust, Bristol city centre (Hybrid)
£24,370 per year
Posted 1 week ago
Closing in 3 days
Harris Hill Charity Recruitment Specialists, Rugby (Hybrid)
£15 per hour
Posted 1 week ago Apply Now
Middlesex Tennis, Remote
£12,800 per annum (£32,000 full-time equivalent)
Posted 2 days ago
Independent Society of Musicians, Multiple Locations (Hybrid)
28 hours per week – Circa £45K pro rata
The ISM is now looking for a highly experienced Administrator and Secretary to work alongside the Chief Executive.
Posted 4 days ago
Closing in 7 days
Mark Evison Foundation, London (On-site)
£30,000 - £35,000 per year
Do you want to have a significant impact on the personal development of 17-year-olds in state schools across London?
Posted 6 days ago Apply Now
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Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.