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About the role
We’re seeking a PPIE Manager to lead and strengthen patient involvement across mitochondrial disease research. As an equal partner in the LifeArc Centre for Rare Mitochondrial Diseases, The Lily Foundation leads the programme’s patient and public involvement strategy.
While the initial priority for this role is delivering the PPIE strategy for the LifeArc Centre, as a permanent member of the team, you’ll be responsible for building a sustainable involvement infrastructure that extends across all Lily Foundation research workstreams.
You’ll become a ‘patient expert’ who can bridge the gap between the patient community and the scientific world. You’ll be proactive in upskilling and empowering both patients and researchers, ensuring that lived experience remains the compass for future research.
Key responsibilities
Person specification
We’re looking for someone who blends a professional background with a genuine heart for our cause.
Essential knowledge and skills
Essential experience
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment. We particularly welcome applications from people with lived experience of mitochondrial disease or other rare conditions.
Closing date: Monday 11th May 2026
Interviews: W/c 18th May 2026
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The National Flood Forum (NFF) is seeking a dynamic, motivated individual for the role of Flood Engagement Officer for West Midlands. This is an exciting opportunity for someone passionate about working with communities, especially those at risk of flooding, to deliver community-based flood risk management solutions.
Key Details:
Role Overview:
The Flood Engagement Officer will support the West Midlands community engagement team, reporting to a Community Engagement Manager. Your primary responsibility will be to work closely with communities to support them in tackling flooding risks.
Key Responsibilities:
About You:
The ideal candidate will be:
You must also be a resident of the UK with the right to work in the UK.
About the National Flood Forum:
The NFF is a national charity founded by those affected by flooding, working to support and represent individuals and communities at risk. The organization focuses on empowering flood-affected communities to recover and improve flood resilience. The NFF encourages applications from individuals with lived experience of flooding, and from diverse backgrounds.
Application Process:
To apply, please submit the following:
This is a wonderful opportunity for those passionate about community engagement and flood risk management to make a tangible difference in people’s lives.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Community Outreach Worker
Reports to: Head of Policy and Campaigns
Location: Remote working
Salary: £35,000
Contract: 18 months fixed term contract
Hours: 35 hrs per week. Office hours are 9.00 – 17.00
About the role
We’re looking for an engaging, empathetic and self-reliant outreach worker to join our dedicated team working to deliver support and practical advice to a community that has suffered as a result of the biggest treatment scandal in NHS history.
This is an opportunity to work for an organisation with a 75-year track record of effective advocacy for our small community of people living with genetic and acquired bleeding disorders and their families. Most importantly, this role has the potential to directly improve peoples’ lives.
Around two thirds of our members are impacted by the contaminated blood scandal of the 1970s and 80s, which was recently investigated by the Infected Blood Inquiry. The resulting report in 2024 recommended improved health resources for people with bleeding disorders as well as compensation and support for those infected and affected by the scandal.
Although significant progress has been made, there’s a lot more to do. Many of the community feel isolated and with the Infected Blood Inquiry now closed there is a need for people to maintain and develop connections with others that understand what they have and continue to endure. It is vital that the community has a safe environment to express their views and seek help and support.
Part of the role will involve supporting the future generations of affected families ensuring they have the support and care they need to live their best lives.
Background and purpose
We are the only UK-wide charity for all those affected by a genetic bleeding disorder, a community of individuals and families, healthcare professionals and supporters.
For more than 75 years we have campaigned for better treatment, been a source of information and advice and supported people living with life-long conditions.
We want to ensure that everyone affected by a bleeding disorder:
Lives the best life that they can
Never feels alone or isolated
Feels empowered and confident.
We do this by:
Improving understanding about living with a bleeding disorder
Providing support at all life stages
Influencing and advocating on policy and access to treatment.
More than 40,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of the Haemophilia Society is free and open to all.
Key responsibilities:
Qualities, skills, and experience
Personal qualities
Other requirements
What we offer:
Competitive Salary
Generous Pension
Private Healthcare
Contribution Agile Working
25 days’ holiday (pro rata) plus an additional day for each year of service up to 5 years
The Haemophilia Society is an equal opportunity employer.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
This is an exciting opportunity to join GamCare as we continue to expand and develop our Online Support Services. To support this expansion, we are seeking an Online Support Team Leader to oversee and lead a growing remote team delivering vital digital support to individuals affected by gambling harm.
The role
You will be responsible for overseeing the delivery and development of GamCare’s Online Support Services, which currently include online appointments, email support, chatrooms and forums, and a self-guided online support programme.
You will lead a remote team of Online Support Practitioners within the wider Helpline service, ensuring consistent, safe and effective support is delivered across all digital channels.
Key responsibilities
·Managing the daily operational delivery of Online Support Services, ensuring high-quality support and adherence to agreed KPIs
·Providing line management for Online Support Practitioners, including supervision, team meetings, rota planning, and managing leave and cover
·Advocating for and promoting Online Support Services internally and externally to improve accessibility and awareness
·Supporting the ongoing reporting and evaluation of GamCare’s Online Services
·Identifying opportunities for service development and contributing to the design and implementation of improvements
About you
This is a key leadership role for someone with experience delivering support services to vulnerable or complex individuals, alongside experience of supervising, coaching, mentoring or managing staff or volunteers. You will also bring a strong commitment to person-centred, non-judgemental practice.
You will be a confident communicator, comfortable working collaboratively across the Helpline service, and able to balance operational leadership with empathy, support and clear decision‑making – particularly when managing complex or high‑risk contacts.
Strong IT skills are essential, including experience working with digital platforms, CRM systems or call-handling tools.
About Us
Founded in 1997, GamCare is the leading provider of information, advice and support for anyone affected by gambling harms. We operate the National Gambling Helpline, provide treatment for anyone who is harmed by gambling, create awareness about safer gambling and treatment, and encourage an effective approach to safer gambling within the gambling industry.
Benefits You Can Enjoy
·33 days basic annual leave entitlement per annum (pro-rated for part-time colleagues) including bank holidays which increases with service
·A generous Pension Scheme - we contribute 6% and you contribute 2%
·Discretionary company sick pay from day one of service
·Employee Assistance Programme – 24-hour support
For further details and to apply please click the apply button.
Closing date for applications: 10th May 2026.
This post requires a DBS check.
GamCare are committed to offering the best support to people affected by gambling harms, as such we welcome applications from candidates with lived experience.
GamCare is an equal opportunities employer and doesn’t discriminate based on race, religion, gender, age, sexuality, gender identification, or physical ability. We are only able to facilitate visa sponsorship in very limited circumstances, so candidates outside of the UK or who don’t have the right to work in the UK need not apply.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview
You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health.
You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life.
The role is home or hybrid based; member contact is predominantly via phone and video calls.
This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.
There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.
Benefits to working at Shine
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Reimbursement for HCPC registration
Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision.
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.
To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 18th May at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews (virtual): Thursday 28th May 2026
Please see full details of the job description and person specification below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 5,000 children and young people (0–25).
You will be delivering high-quality support and creating opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers. Supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community.
This role will focus on children and young people (0–25), you will be primarily working within the Children, Young People and Families team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members.
The role is home-based but you will be required to attend regular clinics in London including GOSH (Great Ormond Street Hospital). Other travel across Southern England including Bristol, Devon and Hampshire may be required. There will be occasional travel required across wider areas and nationally including attendance at events, conferences and meetings at our head office in Peterborough.
Benefits:
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some very occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role please email Gill Valentine, Deputy CEO, to arrange a convenient time for a call.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 17th May 2026 at 11pm
Interviews: Tuesday 26th May 2026 (Virtual)
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Please see full details on the Job Description and Person Specification document below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Do you have experience in supporting vulnerable adults and empowering them to move forward with their journey?
Walking With the Wounded (WWTW) supports those who have served in the British Armed Forces and their families, specialising in developing pathways to independence.
We currently have an exciting opportunity for a Veterans Liaison and Officer (VLSO) to join a team providing support to ex-armed forces personnel. You will be home-based, with a caseload spread across Hertfordshire and occasionally adjoining counties.
We are looking for a dedicated individual who will empower ex-service personnel to regain their independence after a period of Mental Health (MH) Crisis, supporting them to thrive and contribute to our communities. This role will join a team of existing VLSOs across the East of England as part of a wider collaborative team within NHS England’s Op Courage - the Veterans’ Mental Health and Wellbeing service, and will work with other service charities and local support services. You will be home based with daily travel around your local region to support your clients and build relationships in the community, whilst working as part of the wider regional WWTW and NHS clinical teams.
We are looking for a highly motivated self-starter with prior experience of working with vulnerable adults; an individual who can work independently to set priorities that accurately reflect the client’s needs. Your role will be to work with clients in the community (or their homes), facilitating intense support and analysing individual needs to create a support plan that will break down barriers to a successful stabilisation, whilst navigating their mental health pathway.
In return, we will provide you with the opportunity to demonstrate and develop your skills and career as a Veterans Liaison and Support Officer in a supportive, inclusive environment. In this role, no two days are the same and every day will bring new challenges. Internal training will be provided, and we encourage our staff to develop their own personal and professional skills.
For an informal discussion please contact Anne Germany 07935-065716.
Walking With The Wounded deliver employment, mental health & care coordination programmes to veterans & their families in collaboration with the NHS.
The client requests no contact from agencies or media sales.
The Charity and Our Vision.
For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces. We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035.
Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.
We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.
Role Mission.
To be an integral part of the delivery of Scotty’s new navigating entitlements casework (START) Programme, a single point of contact service designed to support anyone affected by military-connected bereavement.
This is a hands-on, and vital role within a brand new team. You’ll be the first step in ensuring that everyone in the bereaved military community receives compassionate, personalised, and well-coordinated support.
The key responsibilities of this role are:
Service Design & Delivery
Working closely with the Head of START, contribute to the planning and rollout of the START Programme
In many cases be the first port of call for Scotty’s families, and be a welcoming and inclusive contact for all those families
Implement the new service model, workflows, triage process and beneficiary journey
Ensure the service you deliver is trauma-informed, inclusive, and responsive to beneficiary feedback
Manage your own caseload with support from Head of START programme
Team Leadership & Development
Once your experience has grown, provide peer support to any further caseworkers joining the team in 2027 and beyond (depending on demand)
Ensure an ongoing focus on your own learning and development, always creating space for reflective practice
Ensure that you live the culture that reflects The Scotty’s Way and encourages your own personal growth
Be an active part of the wider Families team contributing to Daily Huddles and team plans and objectives
Collaboration & Partnership
Build and maintain, alongside the Head of START strong referral pathways with external organisations (military & non-military charities, NHS, social care)
Build your expertise on navigating entitlements for the bereaved community to ensure that Scotty’s families receive the best possible support.
Work collaboratively with other Programme teams to ensure consistency, shared learning & efficient internal referrals
Monitoring & Evaluation
Ensure that you are reporting consistently on beneficiary engagement, support outcomes, and follow-up actions
Work with your direct support to use evidence and insights gathered to adapt and improve the service over time
Ensure CRM records are complete, accurate, so they can be used to inform delivery decisions
Contribution to Charity-Wide Goals
Feed into cross-functional projects including Outreach, Fundraising, and Strategy
Act as a representative of Scotty’s at sector events or external meetings where appropriate
Support content development by sharing anonymised stories, insights, and themes
The 30-day goals for this role are:
Built a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction.
Worked closely with the Head of START and other programme Heads to understand the history of Scotty’s helping families navigate entitlements, including reviewing current and recent cases.
Become familiar with the key stakeholders, partners and organisations (including statutory, charitable and others) for casework in the START Programme.
The 60-day goals for this role are:
Built confidence and knowledge around the START programme aims and objectives, and the needs of Scotty families.
Supported the Head of START to implement the new casework programme and beneficiary journeys.
Built understanding of the processes that are in place to monitor the outcomes and impact of the new START Programme.
Contributed to the design of a light CRM for initial use in START casework.
Supported the development of and started to build understanding of the necessary processes and procedures for casework including safeguarding, triage, wait time limits etc.
Started the training plan for new START caseworkers.
The 90-day goals for this role are:
Supported the launch of the new START Programme alongside Scotty’s team members.
Welcomed the first families to Casework following the processes and framework that the Head of START has implemented.
Worked with the Head of START to set a clear plan for the remainder of 2026 and beyond for the START programme, establishing it as a quality Scotty’s service for families.
Starting to provide outcomes and data that enable the programme’s outcomes to be evidenced.
About You:
Must-Have
Experience in service delivery, casework, and personalised support services
Ability to work independently and manage a busy, varied caseload
A compassionate and person-centred approach to casework
Excellent organisational and communication skills
A clear understanding of safeguarding vulnerable adults
Nice-to-Have
Familiarity with military family life or bereavement support
Background in information, advice and guidance within the charity or statutory sector
An understanding of the importance of service co-design with users or lived experience groups
Additional Information
The role will require some evening or weekend work
Enhanced DBS check required
Travel will be required to events and team training days
The Scotty’s Way
At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:
Families Come First
Everyone a Supporter, Every Supporter a VIP
Love What You Do
Remember, Every Day
Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.
Closing date: 15th May 2026. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for an interview.
Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.
We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.
We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About the Role
This is an exciting and varied opportunity to join Arthritis Action at a pivotal time as we are in the process of developing our 2027-2030 strategy. As our Engagement and Events Co-ordinator (Devon and Cornwall), you’ll play a key role in expanding our reach and impact across the region, ensuring more people have access to our resources and delivering our programme of online events.
You'll engage with a wide range of communities and professionals and support the delivery of online groups and outreach projects. From working with underrepresented communities to helping us connect with more people living with arthritis to support them to self-manage their condition.
Key Responsibilities
Community Outreach & Engagement
Networking & Relationship Building
Events
General Duties
Person Specification
Experience & Skills
Criteria
Proven experience in community engagement or outreach: Essential
Strong project management and organisational skills: Essential
Excellent verbal and written communication skills: Essential
Proficiency with Microsoft Office and video conferencing tools: Desirable
Confident in group facilitation and public speaking: Essential
Ability to research and establish partnerships: Essential
Experience using a charity database: Desirable
Experience delivering training content: Desirable
Experience working as part of a small team: Desirable
Experience of working with volunteers: Desirable
Essential Personal Attributes
Location & Travel
This is a home-based role located within the Devon or Cornwall region. The post requires frequent travel throughout the region, and candidates must have access to their own vehicle. All reasonable travel expenses will be reimbursed.
What We Offer
How to Apply
Applications should be in the form of a CV and a covering letter explaining your interest in the role and how your skills and experience meet the requirements. Please include your email address, telephone number and location within the Devon/Cornwall region.
Deadline for applications: 8th May 2026 at Midday.
We may close applications early if sufficient interest is received, so we encourage early submissions.
Equality, Diversity & Inclusion
Arthritis Action is committed to building a diverse and inclusive workplace. We actively welcome applications from underrepresented groups and individuals with lived experience of arthritis or similar conditions.
Arthritis Action is an equal opportunities employer. We treat employees and applicants in the same way regardless of age, disability, marital status, gender reassignment, race, colour, nationality, ethnic origin, sexual orientation, religion, or belief.
In order to process the application we will require both a CV and cover letter.
Arthritis Action is a UK charity helping people with arthritis to live fuller lives with less pain.



The client requests no contact from agencies or media sales.
Job Title: Multiple Disadvantaged Worker
Location: Derby City
Salary: £26,701.36 per annum
Contract type: Permanent, Full Time
Hours: 37.5 hours per week
This is an opportunity to join Refuge as a Multiple Disadvantaged Worker to provide high quality practical and emotional support to survivors of domestic abuse and their children living in Derby City.
The Multiple Disadvantaged outreach Worker will provide high quality practical and emotional support to survivors of domestic abuse, with additional complex support needs, in accordance with Refuge’s philosophical principles. The post holder will inform the survivor on the options and support available, empowering the survivor to make decisions and achieve their goals to increase their safety, confidence and independence. The role involves working with a range of statutory and non-statutory agencies to advocate on behalf of survivors and promote access to services to meet their needs. The Multiple Disadvantaged Outreach worker will work within Derby City.
Please note that this post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.
Closing Date: 09:00am 5 May 2026
Interview Date: 20 and 21 May 2026
The client requests no contact from agencies or media sales.
About the role
Our exciting three year strategy sets out our ambitious goals to drive impact at scale for victim-survivors. We are now looking for an exceptional candidate to lead some of our financial services relationships and consultancy work and support SEA in its mission to raise awareness of economic abuse and transform responses to it within the financial services sector.
Working closely with colleagues across SEA, you will foster and maintain relationships across the financial services sector, seeking opportunities to generate income for the charity and supporting our Head of Financial Services to deliver lasting change and impact.
Together we can transform frontline financial services, in practice, product and process, and save lives.
About you
At SEA we put the lived experience of victim-survivors at the heart of all that we do, including our work with financial services firms. You will be a subject matter expert on customer vulnerability and financial services firms’ regulatory requirements, as well as having a thorough understanding of industry rules and good practice. You will combine this with experience of working with vulnerable customers, including victim-survivors and bring expertise on economic abuse to ensure this is embedded within financial services’ firms’ responses.
About SEA
We are the only UK charity dedicated to raising awareness of economic abuse and transforming responses to it. We work to save lives and stop economic abuse forever.
Our vision is a world in which all women and girls achieve economic equality and can live their lives free of abuse and exploitation. Not only surviving but thriving.
Our mission is to raise awareness of economic abuse and transform responses to it.
To achieve this, we must ensure that the policies and practices of financial services firms, domestic abuse support services, public services and government reflect the needs of all victim-survivors of economic abuse.
We are committed to centring victim-survivors in all that we do and broadening our understanding of the needs of survivors, particularly those who are marginalised within society. We work alongside the Experts by Experience - a group of victim-survivors whose voices and experiences shape our work.
Our primary focus is on influencing the women’s, public and financial services sectors, to create a model for improved support for victim-survivors of economic abuse, calling on government to facilitate these changes and work with them to improve their systems and practice.
What we offer
To apply
Please apply via our website
Applications open from 9 April and close at 11.59pm on 7 May 2026. Interviews will take place virtually, week beginning 1 June.
Direct applications only – no agencies please.
Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.
SEA is a Disability Confident Committed, and Kinship Friendly Employer.
The client requests no contact from agencies or media sales.