Advisor and volunteer coordinator jobs

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.

This is an exciting opportunity to lead and strengthen IRMO’s Volunteer Scheme as part of our Education, Training and Employment (ETE) programme. Volunteers play a vital role in achieving IRMO’s mission, and this position is central to ensuring that our volunteer initiatives both empower community members through meaningful work experience and enhance IRMO’s capacity to deliver impactful services to the community.

The Volunteer Scheme Coordinator will be responsible for managing all aspects of volunteering at IRMO — from recruitment and training to ongoing support and development. They will champion volunteering internally and externally while fostering opportunities for volunteers to learn, grow and make a tangible difference in the lives of others. Working closely with the ETE Programme Manager, the post will also be expected to develop partnerships and volunteering roles that support IRMO’s vision, values and strategic objectives.

Could you be our new Service Manager?

Who we’re looking for

Are you dynamic and resourceful? Are you motivated by helping people to help themselves? Can you enthuse a volunteer team to support people experiencing complex and emotionally demanding issues? We’re seeking a Service Manager to maintain and develop our remote services from our office in Nottingham. 

You will be an excellent communicator, as well as a practical, well organised and hardworking individual, preferably with experience in the voluntary sector or equivalent transferable experience.

Reporting to the Head of Service Delivery, you will be responsible for recruiting, training and supporting volunteers to deliver a service to Litigants in Person, facilitating day-to-day operations, and building and sustaining relationships with key contacts at our partner university and the national court service, as well as providing line management to our Volunteer Support Coordinator.

This post is funded by The National Lottery Community Fund

You’ll take pride in delivering excellent customer service while ensuring your team’s activity is prioritised and in line with organisational objectives. 

Alongside the Head of Marketing & Communications, you’ll play a key role in planning and prioritisation for the wider Comms team, using your detailed stakeholder understanding, audience insight and market research to inform team plans. You’ll also work to support the group and individual hospice brands, working with your team and the Head of Marketing & Communications to develop the brand strategy and ensure appropriate application of our visual identity, as well as delivering brand awareness activity as needed.

Essential criteria

With the support of the Campaigns & Brand team, to deliver and manage key marketing and communications projects, campaigns and activity from inception to completion, across all available channels.

Provide line management for the Account Executives, Marketing Manager and Design & Brand Manager.

Lead the Account Executives in supporting stakeholders from across the three hospices with their communications needs, ranging from campaign planning and execution to supporter communications, patient information and ad hoc requests.

Take, develop and interrogate marketing and communications briefs from colleagues across the hospices, supporting the Account Executives with delivery against these briefs, planning resources and identifying pinch points.

Devise, develop and maintain briefing and delivery processes to ensure the efficient and effective running of the team.

Meet regularly with key department managers, building strong relationships and developing schedules for projects and activity.

Support the Head of Marketing & Communications with the annual and ongoing planning cycle, to ensure a clear overview of activity across the wider team.

Lead on more complex projects or campaigns as needed, including activity that supports brand awareness and fosters recognition, understanding of what we do, and support in our communities.

With the support of the Marketing Manager, build and maintain our market research and audience insight that supports the Account Executives and wider Marketing & Communications team in their delivery of appropriate strategies and messaging.

About us

Southern Hospice Group is the largest group of hospices in Sussex and one of the largest in the UK. We are committed to providing exceptional and compassionate care to adults, children and their families across Sussex. Bringing our teams and resources together as one organisation means we can focus on new and exciting visions and plans for our people and patients and provide even greater opportunities for our workforce. 

St Barnabas House provides specialist palliative care to adults in the Worthing, Adur, Arun and Henfield areas through a range of services, including in-patient care and community living well services.

Chestnut Tree House is the children’s hospice for East and West Sussex and South East Hampshire, providing specialist palliative care for children and young people with life-limiting conditions. 

Martlets provides essential care to people affected by terminal illness in Brighton and Hove and surrounding areas. Our expert teams provide the very best care and support, helping patients and their loved ones to live life to the full during the precious time they have together.

We warmly welcome applications from all sections of our community. We also invite applications from suitably experienced people for all industry sectors who can demonstrate the skills, ability and enthusiasm to work with a people-centric organisation like ours.

We are seeking a highly experienced and strategic safeguarding specialist to be our Diocesan Safeguarding Officer (DSO) to lead safeguarding across the Diocese. Effectively as Head of Safeguarding, this is a senior leadership role with independent authority of the Diocesan Bishop, responsible for the professional oversight of safeguarding children, young people, and vulnerable adults. 

The Head of Safeguarding provides expert guidance, manages safeguarding concerns and allegations, and ensures the implementation of national safeguarding standards. You will lead a dedicated team, collaborate with senior clergy and external agencies, and ensure that safeguarding is embedded in every aspect of diocesan life. 

Some of the key responsibilities of the role include:  

Culture, leadership, and Capacity 

• Lead the development and implementation of the diocesan safeguarding strategy. 

• Work closely with the Bishop of Guildford, Cathedral Dean, Diocesan Secretary, and senior clergy to promote a culture of safeguarding excellence. 

• Support the Independent Chair of the Diocesan Safeguarding Advisory Panel (DSAP), ensuring effective governance and oversight. 

• Oversee diocesan responses to audits, quality assurance, and Safeguarding Practice Reviews. 

Prevention 

• Implement the Church of England’s Safeguarding Code of Practice across the Diocese. 

• Provide expert safeguarding advice to clergy, parishes, and the Cathedral. 

• Ensure safer recruitment practices are followed across all diocesan bodies. 

• Develop and oversee the diocesan safeguarding training plan in line with the Church of England’s Learning and Development Framework. 

• Ensure training is high-quality, legally compliant, and regularly reviewed. 

Recognise, Assess and Manage Risk 

• Lead and coordinate all safeguarding casework within the Diocese, ensuring that work is completed as required by Church of England Managing Safeguarding Allegations Code of Practice, and statutory guidance and legal responsibilities.

• Participate in Case Management Groups, supporting the chair to ensure proper case management and ensure lessons learned are shared with DSAP. 

• Collaborate with senior leaders to report Serious Safeguarding Incidents to the Charity Commission. 

Victims & Survivors 

• Coordinate responses to disclosures of abuse, ensuring timely and compassionate support. 

• Implement the House of Bishops’ policy on responding well to victims and survivors. 

Learning, Supervision and Support 

• Work collaboratively with the National Safeguarding Team and other Church of England Safeguarding Officers, attending national safeguarding events and activities as required. 

• Engage in continual professional development, including ensuring that the requirements of the National Safeguarding Learning and Development Framework for Diocesan Safeguarding Officers are met. 

General 

• Lead and develop the safeguarding team, fostering a culture of collaboration and reflective practice. 

We are looking someone who has: 

• Proven leadership and strategic planning skills. 

• A professional qualification or equivalent experience (e.g., in social care or criminal justice), with current professional registration where applicable.

• In-depth knowledge of safeguarding legislation, policy, and best practice. 

• Experience of leading/facilitating/influencing organisational culture change to develop good safeguarding practice and healthy safeguarding cultures.

• Experience in managing complex safeguarding casework and risk assessments. 

• Experience working with victims, survivors, and perpetrators of abuse. 

• Strong interpersonal and communication skills, with the ability to influence and challenge constructively. 

• Familiarity with Church of England safeguarding frameworks and governance structures. 

• Commitment to the values and mission of the Church of England. 

Please refer to the attached Job Description for full details of the Head of Safeguarding 

Benefits of the role include: 

• Competitive salary within the Charity Sector 

• A 10% non-contributory pension 

• Life assurance provision of 3x annual salary 

• 25 days annual leave per year, plus bank holidays 

• An employee assistance programme 

• Learning and development opportunities 

Ready to Apply? 

Submit your CV along with a detailed supporting statement (cover letter), outlining how you meet the essential and desirable criteria in the person specification. The supporting statement is an essential part of the application process and thus a failure to provide this information will mean that the application will not be considered. 

This role is subject to an Enhanced Disclosure and Barring Service (DBS) in accordance with our Safer Recruitment Guidelines. 

The Diocese take our responsibility for the safeguarding of children and adults seriously. Our recruitment processes reflect this commitment. 

We take your privacy seriously. To understand how your personal data will be processed during the recruitment process, please read our Candidate Privacy Notice before applying 

We believe that diversity is a strength. We actively welcome and encourage applications from candidates of all backgrounds and identities, particularly those who identify as female, younger, of a UK Minority Ethnic/Global Majority Heritage, or disabled, as it is essential that we reflect the diversity of the communities we serve. 

Please note that if you are shortlisted and are unable to attend on the interview date, it may not be possible to offer you an alternative date.