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Job Purpose

Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.

Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.

You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.

As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.

You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.

As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.

Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.

Key Duties

• Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
• Assist the project's management team and other team members with meeting scheduling and diary coordination
• Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
• Prepare, format and proof-read governance documents and papers
• Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
• Provide administrative support for project events - from planning and logistics through to on-the-day support
• Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
• Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
• Support coordination between internal teams and external partners, including research and funding partners
• Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
• Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
• Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
• Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team

Person Specification

Essential skills and experience

• Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
• Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
• IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
• Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
• Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
• Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
• Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
• Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
• Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential

Desirable skills and experience

• Experience providing administrative support for scientific or research-related projects
• Experience writing and communicating with non-specialist or general audiences

Lead change. Shape policy. Amplify the voices of bereaved families.

Child Bereavement UK is looking for an accomplished Head of Policy & Research to lead our evidence and policy agenda at a pivotal time for the charity.

You'll bring a strong track record of leading policy and research activity, developing influential partnerships, and translating evidence into meaningful change. With an established understanding of the policy landscape and the credibility to engage senior stakeholders across health, social care, government and the voluntary sector, you'll play a key role in shaping policy and practice for bereaved families across the UK.

You'll lead our research programme, develop evidence-based positions, build strategic partnerships, and ensure the experiences of bereaved children, young people and parents bereaved of a baby or child are reflected in policy and practice across the UK.

We're looking for someone who:

• Has experience and established networks in policy and research.
• Can translate complex evidence into compelling recommendations for change.
• Is an exceptional relationship-builder, communicator and strategic thinker.
• Is passionate about improving outcomes for bereaved children, young people and parents.

This is a rare opportunity to shape national conversations, influence decision-makers and ensure lived experience is at the heart of policy and practice.

Please note, the role will involve regular travel to London based conferences, events and network meetings as required, plus occasional travel to team meetings in Birmingham.

Join us and help create lasting change for bereaved families across the UK.

Motivated to make a difference and connect communities through sport, you'll be a proactive natural connector who thrives on helping others succeed. With effective communication and organisational skills, you'll confidently support grassroots groups and build lasting impact across the South East. Join Sported as a Regional Delivery Officer and you could be playing a vital role in the heart of our Field Team.

About the role

As the key contact for Sported groups across Berkshire, Hampshire and Surrey, you'll play a vital role in helping community led organisations grow, become more sustainable and maximise their impact. You'll build effective relationships with these groups, understand their challenges and opportunities, and connect them to the support, resources and funding they need to thrive. This involves welcoming new groups to our network and supporting existing ones to develop.

Working closely with colleagues, volunteer consultants and partners, you'll help deliver projects and programmes that strengthens and develops them and creates positive outcomes for people and communities. You'll also contribute to volunteer engagement, partnership development, grant administration and project evaluation, while ensuring accurate records and data are maintained across your area.

 About You

Are you passionate about the power of sport to strengthen communities and change lives? We're looking for someone who is enthusiastic about supporting grassroots organisations, ideally within sport (but please still apply if not in the sport sector), and who shares our commitment to inclusion, equality and positive social change.

You'll be a confident relationship-builder with a proactive, solutions-focused approach and the ability to build trust with a wide range of people. Organised and able to manage competing priorities, you'll be comfortable working independently while contributing to a collaborative remote team. You will  also possessing a working knowledge of Microsoft 365 and have experience of database management. 

Apply to be part of our team

Benefits 

Joining Sported means becoming part of a passionate, supportive team dedicated to ensuring there are opportunities for everyone, improving health and wellbeing, ensuring communities are empowered. We believe in creating a positive environment not only for the people we support, but also for our colleagues. That's why we offer flexible, home-based working, generous annual leave, a pension scheme, wellbeing support, and opportunities to give back through paid volunteering days. With paid study leave, wellbeing days, and ongoing learning and development opportunities, you'll have the support you need to grow professionally while maintaining a healthy work-life balance. At Sported, you'll be part of an organisation where your contribution truly makes a difference.

Act with Integrity. Champion Inclusion. Transform Together. Drive Change.

We actively encourage applications from people of all backgrounds, particularly candidates from ethnically diverse communities, LGBTQ+ communities, disabled people, and those with lived experience of tackling inequality. We believe diverse voices are essential to creating meaningful and lasting change.

Please see the job pack, where you’ll find details of roles and responsibilities, and required skills and experience.

The closing date for this role is 9am on 21st August

Sported is an equal opportunities employer, and we warmly welcome applications from people of all backgrounds. We particularly encourage applications from ethnically diverse, LGBTQ+ and disabled communities, as well as people with lived experience of tackling inequalities, because we value the insight and strength that diverse voices bring to creating meaningful change.

We want you to feel comfortable and supported throughout the recruitment process. If there is anything we can do to help make the process more accessible for you, please let us know.