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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 day ago Apply Now
Top job
The Christie Charity, Withington (Hybrid)
£58,700 per year
Charity Financial Controller at The Christie Charity
Posted 6 days ago Apply Now
Top job
Alder Hey Children's Charity, Liverpool (Hybrid)
£26,848 - £31,439 per year
Philanthropy Assistant role supporting events, donor visits, mailings, research and CRM admin at Alder Hey Children’s Charity.
Posted 1 day ago Apply Now
Top job
Alder Hey Children's Charity, Liverpool (Hybrid)
£39,428 - £50,450 per year
This is an exciting opportunity to join a growing Grants & Impact Team, overseeing grant giving and grant management processes.
Posted today Apply Now
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The Royal Marsden Cancer Charity, Chelsea (Hybrid)
£40,000 - £45,000 per year depending on experience
A fantastic opportunity to help shape the future of The Royal Marsden Cancer Charity's brand at a pivotal moment.
Posted 1 day ago Apply Now
Top job
The Honeypot Children's Charity, Southampton (Hybrid)
£38,000.0 - £40,000.0 per year
This role will focus on community and corporate relationships to generate income, maximise opportunities and raise awareness of Honeypot.
Posted today
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Alder Hey Children's Charity, Liverpool (Hybrid)
£35,032 - £39,826 per year
Senior Philanthropy Fundraiser role securing major donor support and building long-term partnerships for Alder Hey Children’s Charity.
Posted 1 day ago Apply Now
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Closing in 3 days
Portland Charity, Mansfield (On-site)
£57,763.8 per year
Financial Operations Manager
Posted 1 day ago
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Great Ormond Street Hospital Children's Charity, Bloomsbury (Hybrid)
£50,534 per year
Are you an experienced public affairs professional who wants to help shape policy that improves the lives of seriously ill children?
Posted today
Top job
The Honeypot Children's Charity, Newtown, Powys (Hybrid)
£38,000 - £42,000 per year
This role is about building strong, long-term relationships that support sustainable fundraising and help extend the reach of our services.
Posted today
NW Hearts Charity, Remote
£42,000 - £45,000 per year
We are looking for a dynamic and inspirational leader with considerable experience in a people focused environment.
Posted 4 days ago Apply Now
Frimley Health Charity, Camberley, Surrey (Hybrid)
£79,163 - £90,880 per year
Posted 2 weeks ago
Generate York, Remote
£36,000 - £40,000 per year
Posted 1 week ago
Scotland's Charity Air Ambulance, Multiple Locations (Hybrid)
£29,000 - £31,000 per year
Seeking a highly motivated, focussed and committed individual to support the growth of SCAA's corporate partnerships programme.
Posted today
Page 1 of 81
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.