Upload your CV
Save time when you spot your dream job. Upload your CV with ease.
Save time when you spot your dream job. Upload your CV with ease.
Add job titles:
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
English Heritage are seeking an outstanding Chief Executive Officer to lead the charity, which cares for over a million objects and hundreds of historic sites in every part of England. We care for the bridges and bronzes, gardens and gargoyles, stone circles and secret bunkers and everything in between. We are the only charity in the world which looks after a National Collection from our own earned income.
Our mission focuses on creating inspiring visitor experiences, preserving historic sites and collections for future generations and connecting people to places.
We have a world-class portfolio of heritage assets, diversified funding and a successful operating model and are supported by our hardworking employees, the generosity of our volunteers, a loyal membership of 1.2 million people, as well as donors and supporters.
The Board of Trustees, chaired by Tony Hales CBE, is seeking candidates for the role of Chief Executive Officer to join English Heritage and lead the organisation into its next chapter.
You will work with the Board and senior leadership team to ensure English Heritage delivers on its charitable objectives, including conservation, public benefit and financial security.
You will bring a strong track record of leading large, complex organisations operating across multiple sites and engaging diverse stakeholders. You will be able to demonstrate how you develop incisive strategies and then translate them into successful delivery. A collaborative team player, you lead with integrity and inclusivity, balancing the sensitivity required for managing conservation sites with the drive needed to attract income. An understanding of the value volunteers bring would be advantageous.
If you think you have the vision, skills and experience to take on such a fantastic opportunity, we’d love to hear from you. Please select the Apply button shown to be taken to our website, where you can submit your application.
The Sentencing Academy, established in 2019, has made significant strides in advocating for effective sentencing practices and enhancing the understanding of sentencing among professionals and the public. We are now looking for a visionary leader to join us as the Chief Executive Officer (CEO). This pivotal role will oversee the strategic direction of the charity, strengthening future sustainability and marking a new chapter in its mission to promote evidenced-based approaches to sentencing to help reduce re-offending, provide justice to victims and improve public confidence.
About the Role
This key position offers the chance to shape and develop the future of the Sentencing Academy and its commitment to enhancing sentencing practices and research in England and Wales. It is a leadership opportunity that involves executing a strategic plan that supports the charity's longevity. It is a role that not only focuses on organisational growth and influence but also emphasises the importance of operational compliance, financial health, and fostering strong relationships with key stakeholders and partners. The budget for 2026/27 is fully funded but there is a need to significantly widen the organisation’s funding base to ensure its sustainability beyond the current financial year.
About You
We are seeking a passionate, and experienced leader with a proven track record in the non-profit sector to join our team as CEO. You will have excellent communication and interpersonal skills, with an interest in sentencing and the wider criminal justice system. Your background will include strategic planning, governance, and financial management, with a strong ability to secure funding through grants and partnerships.
You will inspire and lead a diverse team, with expertise to build and maintain strong relationships, and represent our organisation in public forums and the media. As a forward-thinking leader you will demonstrate strong analytical problem-solving skills, and the ability to make sound decisions under pressure.
What We Offer
The post is offered on a 0.5 to 0.8 FTE basis (18.75 to 30 hours per week) on a permanent basis. An attractive package is offered alongside flexible hybrid working arrangements. The Sentencing Academy is currently a remote organisation although attendance at regular meetings in London will be essential. The salary for this post is £70,000 pro rata.
If you want to join the charity at this exciting period of its development and have the skills and experience we are looking for then please send us a copy of your CV and supporting statement (no more than two A4 pages) showing how you meet the criteria for this post and what you would bring to this role Closing date is 12th June 2026 at 5pm. Please tell us if there are any reasonable adjustments we can make to assist you in your application. Should you have any queries or questions about this position please contact Jon Bild (see supporting documents for contact details).
Claudia Jones organisation (CJO) Is looking to appoint a highly skilled Executive Director with experience of working in the Voluntary/Community sector to support the development of the organisation. This is a key appointment funded for 1year.
CJO is one of the few small Black lead charities in London, enhancing the quality of life for African Caribbean Women and Families. Founded in 1982 at the request of Caribbean women, CJO delivers family-centred services for women with children 0-16yrs, Gender- based violence support, connections for older people, health and wellbeing activities, counselling and therapeutic interventions to inspire and empower African Caribbean heritage women and families.
Reporting to the board of directors/trustees, the Executive Director will oversee the strategic and operational efficiencies of our programmes and staff. This experienced leader will not only understand the working of the voluntary/community sector but also have experience in developing and implementing a successful fundraising plan. Experience of hiring and managing staff is essential and establishing relationships with local community groups is a plus. Most importantly, the Executive Director should be highly effective in a Leadership role that requires clear communication skills and decisiveness. It is important that the post holder embraces our community -based broader philosophy of investment in our community.
Note: Considering the nature of work and focus of the Claudia Jones Organisation, the organisation considers the candidate’s race and gender, to be an occupational requirement in accordance with Paragraph 1, Schedule 9, of the Equality Act 2010. Black and ‘Minority Ethnic’ Women only need apply (Schedule 9, Part 1, 158 and 159 Equality Act 2010). We are an Equal Opportunities employer
Objectives of this role
Responsibilities
Required Skills and Qualification
Preferred Skills and qualifications
JOB SPECIFICATION
Essential
DESIRABLE
APPLICATION GUIDANCE
HOW TO APPLY
Candidates are asked to submit:
Closing Date & Time: 29th May 2026
Interview Date: Interviews are expected to take place in person On 08th June, 2026
If you have not received a response to your application within 21 days of the closing date you can assume your application has not been successful on this occasion.
Should you be successful, two satisfactory References from previous employers are required and an Enhanced DBS check.
CJO is an Equal Opportunities Employer.
All candidates must have the right to live and work in the UK.
We will only be able to contact shortlisted candidates.
Claudia Jones Organisation was established in 1982. Primarily the organisation supports and empowers women and families of African Caribbean heritage
The client requests no contact from agencies or media sales.
Why we’re needed
Across the UK, over 4 million children are currently living in poverty, driving increasing demand for essential items and support for families with young children. In 2024 alone, baby banks supported over 219,000 families, a 35% increase on the previous year.
And demand is outpacing supply. Many baby banks are being forced to turn families away.
Baby banks are community-led organisations that provide essential items such as clothing, nappies and equipment to families with young children experiencing poverty or crisis. They operate in diverse ways and often offer support and signposting in addition to the material goods, reflecting the needs of their local communities. Baby banks have grown rapidly over the past decade in response to rising levels of need. However, this growth has largely been organic and fragmented.
BBA exists to support, unite and advocate for baby banks: strengthening collective impact, unlocking national opportunities, and helping a fast-growing and diverse movement operate with greater voice, reach and resilience.
The Baby Bank Alliance (BBA) was co-founded by Purposeful Ventures, Save the Children UK, Little Village and the Bristol Baby Bank Network. Since its founding, BBA has built strong national partnerships, secured significant funding and goods for baby banks, and raised the profile of the sector through national media and corporate partnerships (including with organisations such as IKEA).
Currently incubated by Purposeful Ventures and Save the Children UK, BBA is now moving into its next phase: in Summer 2027 we will become an independent organisation and are on the journey to build the national recognition, scale and sustainability to meet growing need.
BBA continues to work closely with its co-founders and incubating partners, who are expected to remain important collaborators as the organisation transitions to independence.
The Opportunity
This is a rare opportunity to lead a high-impact organisation at a pivotal moment.
BBA’s achievements to date:
We are looking for a CEO who can:
Job Description
Initially, this role will be employed by Purposeful Ventures. Once BBA becomes independent, the CEO and other members of the BBA team will transfer to direct BBA employment under TUPE. Your terms and conditions of employment will remain unchanged.
What success looks like:
Organisational leadership: a small but highly effective central team, operating in line with BBA’s principles and with the needs of baby banks at the heart of decision-making.
Purpose of the Role
The Chief Executive Officer will lead the Baby Bank Alliance through its transition to independence and into its next phase of growth.
This is a unique opportunity to shape a growing national organisation — building long-term sustainability, strengthening partnerships, and ensuring BBA can continue to support baby banks across the UK.
The role is externally focused, with a strong emphasis on growing income, building partnerships and raising BBA’s profile, alongside leading a small, committed team. Working closely with the co-founders and incubating partners, drawing on their expertise and networks, will remain crucial in the transition to independence and beyond.
Key Responsibilities
Fundraising & Income Growth
Strategic Leadership & Independence
External Profile & Sector Leadership
Governance & Board Partnership
Organisational Leadership & Delivery
Safeguarding, Equity, Diversity & Inclusion
Financial Stewardship
Person Specification
Essential Experience
Essential Skills & Attributes
Desirable
The client requests no contact from agencies or media sales.
Over the past decade, our client has grown significantly with over £17m income targeted for 2026/2027 and a portfolio that reflects both scale and innovation. Founded in 2007 by King Charles III alongside a group of British Asian entrepreneurs and philanthropists, their ambition was to create a different kind of organisation, one that could combine entrepreneurial thinking, private sector partnerships and innovative finance to address poverty, inequality and injustice in South Asia.
They will now hire a new Executive Director, Fundraising and Communications, and Prospectus is leading the search.
Executive Director, Fundraising and Communications.
Permanent
£120,000
Hybrid with two days per week in the White City, West London office
Closing: Thursday 11th June 2026
The organisation are seeking a highly experienced senior leader who can drive forward the strategy across committed fundraising and communications teams and build a high-performing, insight-led function with clear accountability for income growth, focused on securing and scaling high-value funding across major donors, corporates, philanthropy and strategic partnerships. The postholder will be accountable for delivering and growing income against ambitious targets, with a particular focus on high-value and strategic funding streams. The postholder will lead a communications strategy that drives engagement, strengthens brand and directly supports fundraising and income generation.
The selected candidate will have a proven track record of securing and scaling high-value income, including major gifts, corporate partnerships and strategic funding relationships. You will be a self-start, a clear strategic thinker, and a pace-setter within an organisation growing and making enormous impact. Reporting to the Executive Director, you will work with trustees and other senior volunteers to enhance and drive forward high-level relationships for the organisation.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome candidates from a diverse range of backgrounds. Please let us know if we can help you with the application process in any way. We are more than happy to make any reasonable adjustments to enable all interested candidates to apply. If you have any disability and would like assistance with completing an application then please contact Ryan Burdock at Prospectus.
If you are interested in applying to this leadership position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call and/or meeting to brief you on the role. You’ll then have all the information you need to formally apply. We are looking forward to connecting with you soon.
Kaleidoscope Health and Care is looking for a chief executive to lead our consultancy business into its next decade.
Hello, we're Kaleidoscope. We are a consultancy of a different kind. We bring people together to create change that works, and over the past decade, we've helped hundreds of organisations do harder things than they thought possible. Our founder is moving on this summer and we’re looking for the person to lead our next chapter - someone who understands that how you build matters as much as what you build. We're employee-owned, and committed to being the kind of organisation we help others become. That's not a tagline. It shapes how we work every day.
A bit about the role
This is not a caretaker role. Over the past decade we’ve built something truly special: a kind, commercially serious, employee-owned consultancy that does exceptional work in health and care.
This role combines strategic leadership of the organisation with hands-on responsibility for its commercial sustainability, culture, and external relationships. You'll work alongside a talented, committed team, in a self-managing organisation to build our consultancy business aligned to our purpose and values as an organisation.
The salary is £95,882 to £106,010. Our preference is for full-time, but we will consider part-time at 30+ hours / week.
A bit about you
You'll know health, care and the public sector. Not just as a sector to work in, but one you care about. You'll be comfortable with the commercial realities of running a consultancy - P&L, resource allocation, business development. And you'll have the kind of presence and credibility that makes clients want to work with you and colleagues want to follow you.
We welcome applications from people of all backgrounds. We particularly encourage applications from people who are underrepresented in senior health and care leadership.
The application deadline is 8am on Friday, 12 June 2026.
Get in touch with us…
If you need any reasonable adjustments for the application process or have any specific questions.
There's a full candidate pack available, and an Ask Me Anything session at midday (12.00pm BST) on Thursday 21 May, open to anyone considering applying.
The client requests no contact from agencies or media sales.
Our client is a fantastic organisation that enables local people to support local causes, making grants to small charities and voluntary groups working in communities across Berkshire. They work with individuals, companies and other organisations to assist in delivering their charitable aims and develop longer-term strategic giving programmes.
For 40 years, they have championed local giving, building partnerships with like-minded people and organisations. Through their tailored philanthropy advice, they help to match their supporters’ aims with the many small, effective local charities offering solutions to local issues.
In recent years they have made grants in excess of £1 million per annum and the endowment fund has grown to £14 million providingsustainable future support for generations across Berkshire.
Chief Executive Officer
c£80,000 + benefits
Based in Berkshire, with travel and evening engagements. This role is Hybrid with 1-2 days a week working from home each week depending on commitments
This is a fantastic and unique opportunity for a new ambitious Chief Executive to lead the foundation into its next phase of growth in strategic philanthropy, with a clear emphasis on income generation, external engagement, and strategic expansion.
As the public face of the organisation, you will champion local philanthropy, build strong relationships with donors and partners to deliver effective support for the local community, and provide inspiring services for donors.
As a leading grant maker in the Royal County of Berkshire, they are committed to developing the financial support it already generates within the voluntary sector. Key responsibilities will include:
The successful candidate will bring a commercial outlook and strong interpersonal and stakeholder management skills, with the ability to work effectively across a wide range of audiences, both collaboratively with a passionate staff team and independently.
If you are passionate about making Berkshire a better place to live and work, we would love to hear from you.
Further details can be found on the Prospectus website.
How to Apply
To apply for the role, please upload your CV together with a supporting statement (of no more than 1000 words) onto the Prospectus website via the link.
Please ensure that you have included a telephone number, as well as any dates when you will not be available or might have difficulty with the recruitment timetable.
If you wish to apply using an alternative format, please contact Prospectus.
If you would like to have an informal conversation about the role, please contact our retained partners via email with your CV:
At Prospectus we believe passionately that a truly inclusive workplace leads to increased social impact. We are committed to supporting our clients to build more inclusive teams. To understand how we are performing, we ask that you kindly complete the brief equal opportunities questionnaire when you submit your application via our website. Please be assured that your responses are kept confidential, separate from your candidate record, are not part of any application you make, and that the consultants never see individual responses to the questionnaire.
Recruitment Timetable
Deadline for applications: Sunday 7th June (midnight)
Interviews with Prospectus online: 16th – 23rd June
Interviews with the organisation, in-person: 8th July
What does it take to lead the national voice for special schools at a time of real change?
Chief Executive Officer (CEO) – National Association of Special Schools (NASS)
National – home-based, with regular travel across England and Wales, particularly London
£90,000–£110,000 per annum
Full-time, permanent.
About NASS
The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.
We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.
This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.
As our next Chief Executive, you will:
Why NASS?
Application
For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.
Closing date for applications: 9am, Monday 8th June 2026
As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
We’re looking for a senior leader to join our Senior Management Team and take overall responsibility for the organisation’s operational core.
This is an exceptional opportunity to join a high-impact organisation as a key member of the Senior Management Team, working in close partnership with the Chief Executive to drive organisational excellence, sustainability, and transformation.
As Executive Director, Operations, you will sit at the heart of the organisation leading critical services and ensuring everything we do is underpinned by strong governance, robust finances, effective systems and an engaged, high-performing workforce. You’ll play a pivotal role in shaping strategy, enabling delivery, and ensuring we remain fit for the future.
This role requires a strategic leader who thrives on complexity, brings clarity to challenge, and is motivated by delivering meaningful impact.
What you’ll do
What you’ll need
You’ll join a collaborative and purpose-led leadership team, with the opportunity to shape how the organisation operates and grows. This is a role with real influence, where your leadership will directly enable delivery, improvement and long-term success. Please find out more from the candidate pack.
Why join us
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Release Counselling and Therapy for Women is entering an exciting new chapter.
Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth.
We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values.
This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact.
As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.
The client requests no contact from agencies or media sales.
This is an exciting opportunity to lead one of the most distinctive and high-performing music, culture and arts organisations in England.
Newham Music is seeking an exceptional Chief Executive to lead the organisation through its next phase of development. The CEO will provide overall strategic, operational and cultural leadership, working closely with the Board of Trustees and senior team to ensure that Newham Music continues to deliver excellent work, strong partnerships, sound governance and long-term organisational resilience.
This is a substantial and visible leadership role. The successful candidate will need to lead confidently across strategy, people, finance, governance, safeguarding, partnerships and external representation. They will also need to combine public and cultural leadership with a clear understanding of organisational performance, financial discipline and delivery.
The incoming CEO will inherit an organisation with strong foundations, a respected reputation and significant reach across schools, communities and the wider cultural sector. They will also take on a live strategic brief. Key priorities will include sustaining trust and quality across the organisation, leading Newham Music’s positioning for the next Arts Council England investment cycle, strengthening long-term resilience, and developing a more diversified income base alongside public investment.
A central part of the role will be to lead Newham Music within a multi-income model. The successful candidate will need to show confidence in managing a mixed financial ecology that includes public grant funding, earned income, fundraising, sponsorship and wider partnership investment. They will be expected not only to protect existing income but to grow and diversify it.
This is a role for a leader who can think strategically, act decisively, build strong relationships and lead with credibility across multiple settings. The right candidate will understand how to balance ambition with judgement, public purpose with financial realism, and artistic and educational values with strong organisational performance.
We recognise that relatively few candidates will have direct senior experience of both the Music Hub model and the Arts Council England NPO framework. We do not require it. What we are looking for is the curiosity and capacity to understand both frameworks quickly, the leadership experience to operate confidently within them, and the credibility to represent Newham Music effectively to ACE, DfE, schools, funders and communities.
If you have senior leadership experience in the charity, arts or publicly funded sector, within a mission-led organisation with a mixed income model and strong governance requirements, you have the foundations for this role. We will provide full briefing on both investment frameworks as part of the recruitment process, and transition support is designed to ensure the incoming CEO is fully equipped from day one.
The client requests no contact from agencies or media sales.
Founded in 1865, and established by Royal Charter, the Royal Alfred is a much respected and widely known Maritime Charity based in Surrey providing a Nursing Care Home and affordable Housing for former seafarers and their dependents. Due to the impending retirement of the current Chief Executive Officer, they are seeking a dynamic individual to take on this exciting opportunity to build upon recent achievements and to meet the challenge of maintaining a first-class service to the Society's beneficiaries.
To £85 000 + bens
Surrey - Hybrid
The post requires a committed, well-motivated individual with excellent communication skills, able to absorb responsibility yet delegate to an established and talented team of senior managers. Training, where applicable, will be provided, particularly for registration as the Nominated Individual. The post also takes responsibility for Finance, and thus an understanding of financial procedures and budgetary control will be essential.
Reporting to the Chair, other duties will include;
● As the Nominated Individual, supervise the management of the Care Home (Belvedere House), together with Housing, ensuring the highest standards of delivery possible are being achieved.
● Representing the interests of the Society within the wider Maritime Charity and Care sectors as necessary.
● Ensuring that the Strategic Plan and all Policies laid down by the Society are implemented and adhered to.
● Ensuring that all legal, statutory, governance, and best practice guidelines are adhered to.
● Overseeing grant application planning, submission and implementation, including identifying resource requirements and submitting proposals.
Who are we looking for?
The nature of the Charity defines that a candidate with some maritime experience in a leadership role would be an advantage but is not essential. Previous experience in the care sector or some experience in regulated environments is also desirable
The successful candidate will have proven experience as a senior manager, and will be an effective leader, with a willingness to learn then apply knowledge of Care Services as the legally Nominated Individual. The chosen candidate will require DBS certification for work with vulnerable adults.
The closing date for applications will be Monday 18th May. Any direct applications will be forwarded to our retained consultant, Simon Bell at Adjacency Executive Search.
Lead a national organisation providing a lifeline at moments of crisis
Every 90 seconds, someone is reported missing in the UK. Behind each disappearance is a moment of crisis, uncertainty and risk, for the individual and for those who love them.
This UK charity is dedicated to supporting missing children and adults, and their families. For over 30 years, the organisation has provided free, confidential support through its helpline, services and advocacy, while working to improve the national response to missing through research, policy and campaigning.
With a strong foundation, a committed Board and a clear strategic direction, the organisation is building its reach and influence. It is now seeking an exceptional Chief Executive to lead it into its next phase.
Chief Executive Officer
£90,000 – £100,000
Hybrid, with regular presence in London and national travel
The Chief Executive will provide strategic and visible leadership to ensure the organisation continues to deliver high-impact support while strengthening its influence and sustainability.
We are looking for a leader who brings:
This is a rare opportunity to lead an organisation that combines frontline support with national influence, at a time when its voice, visibility and impact are more important than ever.
How to Apply
For further information, please view the appointment brief on the Prospectus website.
To apply, please submit your CV along with a supporting statement (maximum 1,000 words), outlining your suitability for the role.
Recruitment Timetable
Deadline for applications: Wednesday 27 May 2026
Interviews with Prospectus: w/c 1 June 2026
Interviews with the charity:
First round: w/c 15 June
Second round: w/c 22 June
Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.
Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:
• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.
• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.
• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.
• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.
• Championing our award-winning support services for disabled people.
• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.
You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June