Upload your CV
Save time when you spot your dream job. Upload your CV with ease.
Save time when you spot your dream job. Upload your CV with ease.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Head of Operations
Salary: Up to £61,600 (dependent on experience)
Location: Home-based or hybrid London-based co-working
Contract: Full-time (flexible working requests welcome)
Suicide is preventable. That’s why we are working to create a safer online world and to connect young people with the help and support they need to stay safe and well.
We’re Molly Rose Foundation, founded following the death of 14-year-old Molly Russell. At Molly’s inquest, a coroner ruled harmful online content contributed to her death. In her name, we’ve now got big plans to create change and save young lives.
We’re looking for a Head of Operations who can ensure we grow effectively and focus our energies on helping young people live long and stay strong. You’ll lead and develop our finance, governance, HR, and IT operations, ensuring we can deliver with impact and grow and scale smoothly.
You’ll play a leading role in shaping and delivering our organisational strategy, monitoring our progress and budgets, and leading the process to design and develop our next Strategy to 2030. You’ll be adept at designing effective and robust policies and committed to developing a high functioning, high-impact organisation.
As a member of our Leadership Team, you’ll have the vision, strategy, and entrepreneurial zeal to help us thrive.
But you’ll also relish the opportunity to build a small organisation from scratch with the drive and passion to really get stuck in and help us to fulfil our potential.
We offer a comprehensive package that includes:
- 27 days annual leave plus 1 volunteering day, rising to 30 days holiday after three years’ service;
- annual leave buyback scheme, with the option to purchase up to 5 additional days;
- employee pension scheme;
- £500 employee wellbeing budget;
- we welcome applications from diverse range of applicants in circumstances, and actively welcome flexible working requests.
Application Process
To apply, please send a CV (maximum 2 sides of A4) and cover letter (maximum 2 sides of A4) via the Charity Jobs website.
Application closing date: Friday 22 May 2026
There will be a 2-stage interview process with first interviews held online between 11 - 12 June 2026.
Second interviews will be held in-person in London.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
SV 2 is a registered charity supporting victims and survivors of sexual abuse and sexual assault across Derby City and Derbyshire. We deliver specialist support, education and prevention services, including ISVA and ChISVA services and a BACP‑accredited therapy service.
We are looking to expand our pool of experienced, trauma‑informed Clinical Supervisors to provide reflective, supportive and ethically focused supervision to staff working across our services. This supervision plays a vital role in promoting safe practice, practitioner wellbeing, professional development and robust safeguarding and ethical decision‑making.
You may undertake monthly clinical supervision to one or more of the following areas;
ISVA teams (monthly group supervision across North and South Derbyshire + quarterly individual supervision
Supervision must be trauma‑informed and reflective, aligned with the BACP Ethical Framework (or equivalent), and attentive to risk, safeguarding, vicarious trauma and burnout.
About you:
You will hold a Level 5 or Level 6 (or equivalent) Clinical Supervision qualification, be registered/accredited with BACP/UKCP/NCS (or equivalent), and hold a recognised Level 6 counselling/psychotherapy qualification.
You’ll have experience delivering group supervision, strong knowledge of sexual violence and trauma, and a commitment to CPD and safeguarding practice. An Enhanced DBS is required.
Please apply via CharityJob with your CV and a covering letter
The client requests no contact from agencies or media sales.