Children and young people advisor jobs in Nottingham

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

About Adolescent Health Study

The Adolescent Health Study (AHS) (Registered Charity Number 1213337) is an ambitious new UKRI-funded initiative to establish a prospective, longitudinal population study that will generate a globally leading open science data platform and research resource. AHS aims to recruit at least 100,000 young people aged eight to 18 years from across the UK and to follow their mental and physical health and wellbeing over at least 10 years. It plans to collect data through questions and measures; to obtain bio-samples for a wide range of genomic and other high-throughput assays; and to capture linked data relevant to health and wellbeing from participants’ health, education and other administrative records.

There will be a strong emphasis on engaging with and involving young people, schools, parents and other relevant stakeholders in the design and delivery of the study, as well as on including young people that represent as wide as possible a range of backgrounds, experiences and characteristics. AHS will focus on enabling a wide range of research, including studies of the critical biological and social developments that occur during the transition from childhood to adulthood and the determinants of both mental and physical health and wellbeing in adolescents and young adults.

Purpose of the post

The Engagement and Involvement Lead will engage with young people, families, schools and other interest-holders in the process of designing, delivering and ensuring the best outputs from the Adolescent Health Study, and is critical for the success of the project.  We are at the early stages of laying the foundations for this and in this new role we are seeking an experienced and passionate individual to co-ordinate and lead AHS’s cross-UK participant and public involvement and engagement activities.

This is a role that requires high levels of confidence, autonomy, enthusiasm and skill. The postholder will be responsible for delivering the project’s new Engagement and Involvement Strategy, including:  coordinating a Young Persons’ Advisory Group for AHS; developing and delivering AHS public engagement and involvement activities; outsourcing and supervising engagement and involvement activities that are better provided by external partners; scoping and advising on which routes for involvement and engagement activities are best suited to different tasks. 

Main responsibilities

 Planning & strategy delivery

•  Ensuring the study delivers the values and approaches set out in the AHS engagement and involvement strategy
•  Planning, delivering and reporting on an ongoing, regular and important programme of engagement events and activities
•  Reviewing/revising/adding to existing policies, processes and procedures to support effective working together with people and communities (such as reimbursement, compensation, making reasonable adjustments)
•  Developing and implementing appropriate evaluation, monitoring and reporting of Community Engagement & Involvement
• Keeping up to date with good practice & sector advances and sharing these with the AHS team.

Practical engagement and involvement

• Developing methods to enhance engagement and involvement, and helping to build positive relationships with young people and stakeholder groups, including charities, third sector & advocacy groups
• Overseeing day-to-day planning & delivery of a high-quality engagement and involvement programme.  To include, for example:
  • Managing and supporting Youth Advisors
  • Running a standing Young People’s Advisory Group (YPAG)
  • Organising & delivering other ad hoc engagement activities as necessary
• Securing external partners where necessary, and managing contracts and delivery of their work across the UK
• Ensuring that any external parties (e.g. organisations, freelancers, consultants) supporting AHS’s involvement and engagement work have clear roles, responsibilities & goals
• Working with the Head of Communications to develop and manage provision of relevant information to members of the public, teachers, young people & researchers
• Keep clear records of involvement and engagement activities, ensuring results are used to inform the study and the wider research community.

Team support

• Checking for and capitalising on possible opportunities for engagement and involvement to be embedded in the work of the wider team
• Ensuring appropriate induction, training, mentoring and support is organised for the research team and communities involved
• Sharing examples of emerging good practice and impact across the research team.
• Line managing an Engagement and Involvement Officer

Wider

• Contributing to shared learning and future sustainability as part of wider communities of practice
• Acting as a key point of contact for community members and partners involved in the research
• Representing and presenting the AHS study’s engagement and involvement work to the wider research community at a senior level, including in national engagement & involvement networks as necessary.

Knowledge, skills and experience

 Essential criteria

Engagement and involvement

•  Experience developing and delivering engagement and involvement activities with young people and other relevant interest-holders (such as parents, families, teachers and schools)
•  A proven track record or professional background in working with young people – such as in youth work, counselling, mentoring, education, or a related setting
• Understanding and experience of good practice in youth engagement and involvement,  including the principles and implementation of safeguarding, data protection, and inclusive practice
• Awareness of culturally sensitive approaches and methods to be inclusive of all relevant perspectives, including  marginalised and vulnerable groups
• Ability to design and deliver workshops, focus groups or meetings that encourage open dialogue and collaboration
• Demonstrated commitment to youth participation and the meaningful inclusion of young people’s perspectives.

Other essential criteria

• Undergraduate degree or equivalent qualification in a relevant field
• Experience of successful project management and ability to deliver, working independently.
• Ability to manage a budget and report on financial activity accurately
• Ability to work collaboratively within a multi-disciplinary team, with experience of working alongside and influencing senior level professionals
• Research literacy, with a clear understanding of large UK-wide research initiatives and the various competing demands and pressures the study will face
• Excellent written and verbal communication skills - able to communicate effectively and confidently with a range of stakeholders and to summarise and report key information clearly and accurately, both verbally and in writing
• Confident using online tools (e.g. MS Teams, Zoom), and collaborative platforms (e.g. SharePoint, Microsoft 365)

Desirable criteria

• Relevant qualification in engagement and involvement
• Post-graduate degree or equivalent experience
• Understanding of key concepts and challenges in young people’s health and wellbeing and the transition to adulthood
• Familiarity with health research and data governance frameworks
• Understanding and knowledge of key potential partners across the UK for delivering youth engagement in the sector.
• Experience using digital engagement and facilitation tools for online workshops (e.g. Miro, Mural, Mentimeter, Canva, PowerPoint)

Dimensions

• This has been designed as a full-time role, although part-time work could be considered for the right candidate.
• Flexible working across several geographical locations in the UK.  Travel may be required to AHS locations and partner organisations.
• AHS is a national organisation, and our activities take place across the UK.

Application Process

This post is subject to receipt of satisfactory references, an enhanced DBS check and right to work in the UK (visa sponsorship is not available).

Please apply via CharityJob, making sure to answer the screening questions in full.

The closing date for this position is midnight on Sunday 31st May. 

Interviews are currently expected to be held Wednesday 1st/Thursday 2nd July.

Equal Opportunities Policy Statement

AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. It is our policy to provide employment equality to all, irrespective of age, disability, gender identity or expression, marital or civil partnership status, pregnancy or maternity, race, religion or belief, sex, or sexual orientation.

Beyond these protected characteristics, we acknowledge the importance of socio-economic background, childcare and caring responsibilities, educational background, neurodiversity, and any other factors that shape an individual’s identity and opportunities. We strive to create an environment where all colleagues feel valued, supported, and able to contribute fully.

Values

It is an exciting time for the Adolescent Health Study (AHS) as we establish our senior leadership team and begin to plan the pilot studies. As the senior executive team evolves, the AHS values will be grounded in inclusivity, integrity, accountability, and collaboration. 

Position: Policy and Public Affairs Officer (Scotland)
Hours: Full-time, 35 hours a per-week
Contract: Permanent
Location: Home Based in Scotland
Salary: Starting from £26,384 per annum plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You will start at our entry point salary of £26,384 per annum, increasing to £28,033 after 6 months service and satisfactory performance and to £29,682 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus. 

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information. 

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

We’re looking for an enthusiastic and talented policy and public affairs professional to join our team. You should have experience of working to develop policy and have the ability to communicate our position to a wide range of audiences across Scotland.

In this exciting role you will work with the MS community to influence change in public policy, continuing to make the case for improvements in the treatment, care and support of people affected by MS.

This is a fantastic opportunity for someone who understands the political and policy environment in Scotland, who has experience in external facing influencing roles, who is outcome-focused and delivers tangible results. The successful candidate will work closely with the MS community, the Scottish Policy and Communications team as well as key external partners such as MSPs and their teams.

Closing date for applications: 9:00 on Monday 1st of June

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.