Community ambassador volunteer volunteer roles in Belfast

Epilepsy Action is a national charity with a bold vision: to create a world without limits for people with epilepsy. In 2024 we launched an ambitious new strategy to grow our income and extend the support we offer. After a successful start, we are ready for the next stage in the strategy, and we are looking for new trustees to join our Board and help turn our ambition into lasting impact.

You will bring the skills, values and perspective to help our charity thrive, whether that’s a track record of leading growth and transformation, the ability to open doors through your networks, experience in health or the medical sector, or expertise in law, digital technology or fundraising.

We are committed to building a diverse, inclusive and effective Board that reflects the communities we serve, and people affected by epilepsy. We welcome applications from everyone and are particularly keen to hear from people who are underrepresented on charity boards, including people from ethnically diverse backgrounds, disabled people, LGBTQ+ people, and people of different ages and socio-economic backgrounds. We believe greater diversity makes for better decisions.

If you want to help shape a world without limits for people affected by epilepsy, and use your voice and influence to raise understanding of the condition, then we would love to hear from you.

Purpose of the Role 

The role of a trustee is to share the Board’s collective responsibility for the effective governance and leadership of the charity, setting our strategic direction and major policies in accordance with our objectives, vision, mission and values.

Epilepsy Action (registered as the British Epilepsy Association) is both a registered charity and a company limited by guarantee. As such, trustees are both charity trustees and company directors and have the statutory and legal duties which these roles impose.

This is a voluntary (unpaid) role with a three-year term of office, renewable for up to two consecutive terms.

You need to be able to commit approximately 6–12 days per year, including: 

• Four Board meetings per annum, plus meeting preparation 

• Subcommittee meetings (if applicable) 

• Strategy days, training, and occasional events 

Meetings are a combination of hybrid and fully remote, with an annual in-person meeting in September in Leeds. Overnight accommodation will be booked for trustees and travelling expenses reimbursed for in–person meetings. 

To Apply 

For any questions in advance of your application please contact us via our recruitment email.

To make an application please send your CV and a supporting statement to our recruitment email.

Your supporting statement should answer the following questions:

· What has drawn you to apply to be a trustee for Epilepsy Action?

· What are the main skills and experience that you bring that could benefit the charity?

· How do you think your values align with Epilepsy Action’s values of being supportive, empowering, inclusive and ambitious?

We also ask candidates to fill in the Trustee Application Questionnaire as part of the recruitment process.  This form includes sections for diversity monitoring, as well as skills and experience.

If you need any adjustments to support you to apply or take part in the recruitment process, please let us know.

Shortlisted candidates will be invited for an informal meeting where they will have a chance to find out more about our work.

Formal interviews will be with the Chair, the CEO and relevant members of the Board and / or Advisory Panels will take place at the end of May and beginning of June.