Equality officer jobs

We are looking for a dynamic and experienced programme manager who will oversee The Advice Workforce Development Fund (AWDF). AWDF is a collaborative programme dedicated to strengthening and sustaining the social welfare advice sector in London. The role will coordinate and run steering and advisory groups, and ‘task and finish’ groups, working with cross-sector stakeholders to enable the implementation of recent recommendations generated by research commissioned by the programme, and help with monitoring and evaluating the project and funded projects under this programme. The successful candidate will have strong project management skills, a commitment to social justice, and a track record of delivering impactful support to external partners.

The workforce development programme was created after working closely with a group of funders and advice sector representatives who are now steering group members. The programme has reached an exciting stage, as it transitions from a foundation-laying and research phase into more of a focus on influencing and implementation of the learning generated to date, while also maintaining and strengthening new and existing relationships. This role, with support from the Head of Sector Support and Grants and the CEO, will oversee the continued development and delivery of this exciting partnership into the longer-term. This role will also work closely with the Propel initiative under London Funders to ensure effective coordination of work is done at all levels.  

Are you passionate about supporting young asylum-seekers and refugees to make change happen? Do you understand campaigning and how to achieve change in the British political system? You could be our new Campaigning Youthworker! 

About Young Roots 

At Young Roots, we want to see a compassionate and welcoming society for young refugees and asylum seekers in the UK. We work alongside young people seeking safety in the UK, building trusted relationships, providing practical and emotional support and promoting young people’s rights and power.  

About the role 

The Campaigning Youth Worker (CPW) will work with young people who are seeking asylum or who are refugees in London to support them to seek change to laws and policies on the issues that matter to them. This role will be located in Croydon and King’s Cross, with regular attendance at our service delivery venues across London as required, including one evening activity per week. 

The role will involve building relationships with young people who attend Young Roots activities and through outreach, having ongoing conversations about the issues that young people say matter to them, working with young people to understand how change to laws and policies happens and supporting young people to take campaigning action to achieve that change.

Please see the job description and person specification for full details. 

Young Roots and recruitment 

Young Roots recognises the positive value of diversity, promotes equity and challenges discrimination. We welcome and encourage applications from people of all backgrounds, particularly those who can face disadvantage in employment, such as people from Black, Asian and minority ethnic backgrounds, LGBTQ+ individuals and people with disabilities. As an organisation that supports refugees, asylum seekers and migrants, we particularly welcome applications from people within these communities. We offer a guaranteed interview for those with lived experience of the asylum system and those with disabilities, where they meet the essential elements of the person specification.

If aspects of the application process create barriers to you applying and you’d like any adjustment to the process or you’d like an informal discussion or advice on your application, please get in touch. We would also like to alert you to the existence of organisations which supporting people from under-represented groups to access employment, who can advise you on applying for this role. For example, Scope, Young Women’s Trust and Experts by Experience. 

Young Roots is committed to safeguarding and promoting the welfare of children and young people and expects all staff to share this commitment. We take this duty very seriously. 

Our work is underpinned by policies and procedures which promote safe working practices. We have a framework of training and supervision which everyone is expected to comply with and systems for monitoring, quality assurance and gaining service user feedback. On joining you will be expected to be part of this approach to safeguard our service users. 

All posts are subject to a safer recruitment process which includes vetting checks such as enhanced criminal records and barring, scrutiny of employment history, references and other checks. 

To apply 

To apply, please submit your CV alongside a personal statement by the closing date outlining how you would be a great fit for the role. 

Your personal statement should be no more than 800 words, answering the following questions: 

1. What is your motivation for working with Young Roots? 

2. What is your motivation for applying for this role specifically? 

3. What skills and experience would you bring that will enable you to be successful in this role?Please ensure you refer to the essential criteria on the person specification and provide examples to demonstrate how and where you meet the criteria. Your skills and experience could be gained through work, community involvement, or personal and family experiences. 

Please submit your application via Charity Jobs. 

No agencies, please. 

Closing date: 10am on Monday 5 January 2026 

Interview date: 19 or 20 January (you will be able to indicate a preference if you are shortlisted). Successful applicants will then have a second interview round - a young person panel on the evening of Thursday 22 January at our Brent project. 

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

In this role, you’ll lead major clinical research programmes, including a strategic clinical trial funding scheme, build strong partnerships across the research community, and oversee the UK Blood Cancer Research Network. You’ll help shape funding opportunities, ensure robust programme governance, and champion meaningful involvement of people affected by blood cancer to drive impactful, patient-centred research.

We’re looking for someone with experience delivering research funding programmes, strong knowledge of UK clinical research, and excellent communication and relationship-building skills. You’ll be confident managing multiple projects, using data and technology, and working with diverse stakeholders. A relevant science background and ability to improve systems and processes will help you thrive.

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

Please note, we may close this ad early at our discretion.

Join us in the ambitious ‘Birmingham In Action’ campaign, which commits to raising over £600 million of charitable funding and 1.25 million volunteer hours positioning the University as one of the world leaders in University development. To fulfil our exciting campaign ambitions, we are recruiting a Philanthropy Manager to help grow our philanthropic funding and to take our campaign to the next level. 

Our world has many challenges that will deeply affect our generation and the next. As a Philanthropy Manager, you will cultivate significant gifts for amazing education and charitable research projects, you will provide funding for scholarships to support students from underrepresented backgrounds and will raise philanthropic funds for priority research areas including cancer, other global health issues and climate change. You will encourage and inspire donors to make long-term, sustainable gifts.

You will be joining an established team of fundraisers made up of Senior Philanthropy Managers, Philanthropy Managers and Philanthropy Officers. You will have experience of delivering against financial targets, along with the ability to translate complex information into a compelling ask in both verbal and written form. As a Philanthropy Manager in DARO, you will be innovative, self-motivated, and take ownership of fundraising opportunities in this area and generate significant gifts for amazing philanthropic projects. You will have an enthusiasm for building relationships, the skill to interact with high-level donors and supporters, and the ability to showcase the sector-leading academic research to a range of audiences. 

We believe there is no such thing as a 'typical' member of University of Birmingham staff and that diversity in its many forms is a strength that underpins the exchange of ideas, innovation and debate at the heart of University life. We are committed to proactively addressing the barriers experienced by some groups in our community and are proud to hold Athena SWAN, Race Equality Charter and Disability Confident accreditations. We have an Equality Diversity and Inclusion Centre that focuses on continuously improving the University as a fair and inclusive place to work where everyone has the opportunity to succeed. We are also committed to sustainability, which is a key part of our strategy.

Salary: £45,732 - £50,614 
Contract: 12-month FTC
Location: UK Hybrid (2 days/week in office in either London, Edinburgh, Cardiff or Warrington)
Closing date: 31 December
Benefits: Generous annual leave, employee assistance programme, flexible working arrangements. 

We have an exciting opportunity for a Senior New Business Development Officer to join a bold and innovative initiative that’s mobilising £20 million in philanthropic and investment capital to support climate adaptation enterprises. You’ll lead on developing and delivering a fundraising programme, building relationships with major donors, foundations, and institutions to drive real-world impact.

Working closely with senior leaders and sector partners, you’ll craft compelling campaigns, secure strategic funding, and help position the fund as a trailblazer in climate finance and international development.

To be successful as the Senior New Business Development Officer you will need:

• A strong track record of securing six-figure gifts from major donors or institutions
• Excellent project management and campaign analysis skills – in particular developing fundraising pipelines and stewardship plans
• Outstanding communication and relationship-building abilities
• Knowledge of climate finance, impact investment, or international development (ideally)

If you would like to have an informal discussion, please get in touch and ask for Heather, quoting the reference 2800HB

Ashby Jenkins Recruitment are a specialist charity recruitment agency, we use our extensive sector knowledge and experience to match candidates to the most suitable charity jobs. We are passionate about improving equality across the sector, you can read more about our commitment to diversity here.

We take a relationship-led approach to recruitment in the charity sector and partner with you as the leading charity recruitment agency.

If enough applications are received the charity reserve the right to end the application period sooner.
 

Key info
Closing date: Sunday 25th January 2026 at 23:59. 

Annual salary: £42,400

Hours: 37.5 hours per week (full time)

Contract length: 3 years initially, with contract extension subject to funding

Location: UK based, mainly remote with occasional in person work

The role

TransActual is recruiting a Communications Lead to join our rapidly growing team. You’ll be working alongside our board and Senior Management team to develop and implement a communications strategy across all media channels that supports the accurate representation of TransActual’s work to the wider world and our mission to advocate, empower and inform.

We are looking for someone with strong interpersonal skills both in terms of understanding and responding to underlying questions in a sometimes hostile media environment, identifying the effective ways of proactively and reactively communicating about our advocacy goals, and working closely with our Policy Lead, Director of Operations and for Healthcare, staff team, board and volunteers to achieve that.

Your responsibilities will include, but not be limited to, the creation of a communications strategy, communications processes, protocols and standards, press releasing and liaison, and line management of our communications officer. You will be responsible for forward planning of communications where events are foreseeable and will also be required to enable rapid and sensitive response to unpredictable events and consequent media inquiries.

An in-depth understanding of trans people’s lived experiences and an ongoing commitment to bringing about positive change for all trans people in the UK is absolutely essential for this role. This understanding can come from your own lived experience. You will demonstrate a strong understanding of and commitment to equity, particularly in relation to race equity and disability equity.

We particularly welcome and encourage applications from trans people, Black People and People of Colour, neurodivergent people and disabled people.

Key Responsibilities

Finance

• Responsible for processing all income in SAGE from various platforms reconciling income to bank statements.
• Responsible for processing monthly/annual journal and accruals
• Responsible for sales invoicing.
• Perform monthly CRM-Accounting software reconciliation.
• Helping to improve finance processes and systems.
• Monthly claim and process monthly Internal Gift Aid claims and reconcile External Gift Aid with Fundraising Team.
• Support Finance Manager with a variety of monthly and quarterly reconciliations and ad-hoc reports
• Oversee customer invoicing and Credit Control.
• Assist the external auditors during their audit fieldwork
• Coordinate financial tasks for Major Fundraising Events (pre and post activities)
• Attend the major Fundraising events
• Acting as point of contact for income related queries
• Support with bank reconciliation,
• Support with preparation of fixed assets register
• Assist in the preparation of VAT returns
• Assist in the preparation of Budgets, Reforecasts and Management Accounts
• Keep financial procedures and other documents up to date.
•  Provide training to budget holders

Other

• Maintain records of procedures, sharing best-practice with the rest of the team
• Provide support and cover as required to the Finance and Operations team.
• Respond to and direct general office inquiries by phone or email.

The above list is not exclusive of exhaustive, and the post holder will be required to undertake such duties as may reasonable be expected.

Hillside Clubhouse is looking for an Executive Director to champion its vision for inclusive, co-produced mental health and employment support.

Applications close at 9 a.m. Wednesday 7th January.

Who we are

Hillside Clubhouse is a co-produced mental health charity supporting people with severe mental illness and more common mental health conditions across Islington. With over half of the staff team bringing lived experience, members play an integral role in shaping the organisation. Hillside provides a wide range of recovery, well-being and employment services, including its Clubhouse activities, commercial kitchen and social enterprises, alongside IPS, Employment Advisors in Talking Therapies and IAG support. They are committed to tackling stigma, promoting equity and creating a community where people’s skills, strengths and aspirations are always recognised and valued.

About the role

The Executive Director will be a values-driven leader, able to guide Hillside Clubhouse through its next phase of development and ensure that co-production, equity and lived experience remain fully embedded in their work. The new Executive Director will refresh Hillside’s strategy, identifying new opportunities for development whilst ensuring that member voices are at the heart of all major decisions. This role requires a balance of visionary leadership and an agile, diplomatic mindset that remains responsive to the evolving needs of members.

A central priority for the incoming Executive Director will be business development. They will have the ability to secure and diversify income streams, strengthening existing partnerships and identifying new opportunities. Hillside is looking for an innovative leader who can find areas for growth that align with their value-driven approach. A key focus area for the incoming Executive Director will be developing a fundraising strategy that ensures the long-term viability of the organisation.

The Executive Director will be responsible for amplifying Hillside’s presence externally, developing strong relationships in Islington and across London. As an outward-facing leader, the post-holder will have a deep understanding of the health and social care landscape, with the ability to develop Hillside’s relationships with key commissioners, funders and partners. Remaining receptive to

the experiences of members and frontline staff, the Executive Director will channel the voice of Hillside’s community, allowing them to shape the services that are delivered within Hillside and beyond.

Hillside is looking for a visible, approachable Executive Director with a strong presence in the Clubhouse environment, a relational leader who can forge connections with members and the wider team. The Director will also have a robust understanding of charity governance and the ability to build a strong relationship with the Board.

Please click 'Redirect to recruiter’ to be redirected to the Peridot Partners website, where you can find full details of the job description and register your interest to apply.

Applications for this role close at 9 a.m. Wednesday 7th January.

Marketing Officer- Hybrid

Are you a creative communicator with a passion for purpose-driven marketing?

Join Pilgrims’ Friend Society, a Christian charity with over 200 years of experience supporting older people, as we step into an exciting new season of growth, impact, and innovation. We’re looking for a talented Marketing Officer who’s ready to make a real difference, not just in campaigns, but in people’s lives.

This is your opportunity to bring stories to life, amplify our mission of supporting older people in Christian faith and community, and help shape a brand that reflects care, dignity, and hope. You’ll be part of a collaborative team, driving fresh ideas across digital, print, and events, all while serving a cause that matters.

If you’re strategic, hands-on, and ready to put your creative energy to work for something bigger than yourself, we’d love to hear from you.

Read the job pack here for further details of this fantastic opportunity

Responsibilities:

• Creating and delivering marketing campaigns that raise awareness of our care homes and housing schemes.
• Working with our digital agency to run paid campaigns (PPC, social, lead generation) and supporting traditional methods where effective.
• Managing and updating the website to ensure content is clear, relevant, accessible, and SEO-optimised.
• Collaborating with colleagues across the charity to provide consistent, joined-up messaging.
• Protecting and promoting our brand identity and tone of voice across all materials.
• Using research and insight to understand audiences and identify trends.
• Building strong relationships with colleagues, partners, and communities to deliver joined-up marketing.
• Measuring and reporting on campaign impact using tools such as Google Analytics and social media insights.
• Managing the marketing budget to ensure resources are used effectively.
• Additional duties as required.

Experience/skills:

• Degree or equivalent in Marketing, Communications, or related field.
• Minimum of three years’ marketing experience, including digital campaigns, website management (e.g. WordPress), and SEO.
• Confident communicator with strong writing, editing, and presentation skills.
• Proficient in using Canva or Adobe Creative Suite for on-brand materials.
• Strong organisational skills with the ability to manage multiple projects and deadlines.
• The ability to work independently and with colleagues from across the organisation
• A can-do problem-solving attitude

*Applicants must be evangelical Christians (This role has an Occupational Requirement to be filled by a Christian under the provisions of the Equality Act (2010).)

Hours:

35 hours a week, Monday to Friday.

Benefits:

• Hybrid working (2 days in the office, 3 days at home)
• Flexible working hours
• 25 days holiday plus bank holidays
• Training & development
• Ongoing support from management
• Team events
• Pension scheme
• Care Friends referral 
• Medicash
• Perkbox – including an Employee assistance programme.
• Long-standing service rewards
• Birthday rewards

Application Requirements:

To help streamline our selection process, please submit the following with your initial application:

CV: Ensure there are no basic errors.

Cover Letter: outlining how your skills, experience, and faith align with the role and our mission

— What our staff say about us: …“It is a friendly and welcoming place to work” … —

We are committed to having a diverse senior management team and we encourage applications from disabled and Black, Asian, and Minority Ethnic candidates, as these groups are underrepresented on our senior management team at present.

Please note: the closing date for this post is Wednesday 21st January 2026, however, this vacancy may close sooner if sufficient applications have been received so please apply as soon as possible if interested.

About the role

We are currently looking for an impassioned and self-driven individual to join our activities team to deliver exceptional service to our students, through engaging with the 350+ student groups, which deliver an incredible range of world-class opportunities to their members.

You will coordinate the creation of new student groups and manage funding opportunities as well as lead on the onboarding for new committee members and oversee administration for the minibus fleet. You will review, advise on, and approve society event/trip budgets and finance, in collaboration with the Activities (Events) Team. You will also support clubs and societies to effectively manage their finances, and  review Society sponsorship contracts to make sure they are in-line with College and Union policies, that directly benefit and enhance the student experience.

A significant part of the role will be to deliver our annual budgeting process in line with Imperial College Union's grant allocation and financial policy, as well as supporting student-led groups to plan budgets effectively.

The role sits within the Directorate of Membership Services and the post will have a cross-departmental focus to ensure our training package, volunteer support and all processes are equitable and effective for all student groups.

What you would be doing

The Activities Coordinator (Operations) is a critical role in delivering the Students’ Union’s strategic objective of fun and inclusive communities through support, development and empowerment of student-led groups. The role is responsible for supporting the:

• Delivery of training relating to financial processes
• Processing financial documentation that enables diverse activity for student groups
• Coordination of finances associated with club and society activity, annual and event budgeting in conjunction with colleagues in the finance team.

Alongside the Activities Manager, elected Officer Trustees, and the wider Activities Team, the role will support the delivering of a high-quality support service for student-led groups.

Please see Job Description for full list of duties and responsibilities.

What we are looking for

The successful candidate will use their skills and knowledge to empower student leaders and bring experience in supporting financial administration. The role demands strong organisational ability, a methodical approach to managing information, and refined interpersonal skills. Ideally, you will have worked with financial systems, delivered excellent customer care, and supported student or youth leadership. You should be able to work independently while effectively balancing competing priorities. 

Please see Person Specification in the Job Description for full list.

What we can offer you

Please note this role is with the Students’ Union. We’re a registered charity in our right, with our own governance, systems, processes and objectives. However, we work extremely closely with Imperial College London, so you’ll also be joining a wider community of staff working within higher education. If you’ve never worked in a students’ union, or are unsure why it’s different, we urge you to get in contact. It’s a brilliant place to work.

As an employee of Imperial College, you will be part of lively community and work in a friendly and relaxed environment. Our aim is to provide to all our employees an encouraging and relaxed working environment with an emphasis on personal development and work-life balance. Based on that we offer:

• flexible working hours
• generous pension scheme
• 25 days holiday (plus 6/7 extra days per year for College Christmas and Easter closures)
• bicycle loan scheme
• season ticket loan
• health benefits
• excellent professional development opportunities and many more.

More information can be found on the Imperial College Benefits page.

Further information

To apply for the role please complete the online application form.

We are running a characteristic anonymised application process for this recruitment as part of the College’s commitment to equal opportunities and eliminating discrimination. Applicants will be assigned an application reference number and applicants’ names will not be visible to recruiting managers until the interview stage. You will not be required to attach a CV. Please also refrain from including your name in your supporting statement.

Closing date: 11 January 2026

Should you require any further details on the role please contact the People team listed on the website.

Interviews (In-Person) will be expected to take place on 22 and 23 January 2026.

We welcome applications from everyone regardless of age, gender, gender identity, gender expression, ethnicity, sexual orientation, faith, or disability. We particularly encourage applications from Black, Asian and other racial minority ethnic candidates and disabled candidates who are currently underrepresented in our workforce. If there are any reasonable adjustments needed through the process, we will accommodate as much as possible.

As part of our commitment to sustainability, every role within Imperial College Union contributes to our environmental and social goals. This includes actively participating in initiatives to reduce waste, conserve energy, and promote eco-friendly practices within every department.

Job Title: Refuge Worker

Location: Warwickshire 
Salary: £15,859.03 per annum

Contract type: Part Time, Permanent

Hours: 23 hours per week

This is an exciting opportunity to join Refuge as a domestic abuse refuge worker, providing high quality practical and emotional support to survivors of domestic abuse and their children living in our refuge accommodation in Warwickshire.

The post holder will work closely with survivors from the point of crisis and admission to the refuge, through to move on from the emergency accommodation. This involves providing a personalised, holistic support and safety plan, enabling survivors to access housing, welfare, benefits and legal advice.  

You will also work in partnership with both statutory and voluntary sector partners to ensure that the whole range of survivors’ needs are met.

A key requirement is to ensure that survivors are provided with a safe, supportive and welcoming environment in accordance with Refuge’s philosophical principles.

As part of this role, you will be required to participate in an out-of-hours on call rota.

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 12 January 2026

Interview Date: 20 January 2026

St Peter’s is seeking a talented and motivated professional to take the lead in configuring and administering two key IT systems that underpin our volunteer management and HR/Payroll systems. This pivotal role will ensure our systems deliver maximum benefit—enhancing volunteer and employee experience, driving operational efficiency, and ensuring compliance.

What We’re Looking For

• A proactive problem-solver with strong technical aptitude.
• Someone eager to develop expertise quickly in new systems.
• Excellent communication skills to engage with employees, volunteers, and system champions.
• A collaborative team player who thrives in a project-driven environment.

What we can offer you:

• Salary of up to £35,000 per annum, dependent on experience
• Full time, 37.5 hours per week, Monday – Friday
• Fixed term contract, 12 months

Interview Dates: January 5th, 7th, and 9th

If you would love to work in support of a great cause, then do get in touch to learn more about the role.

We will review applications as they come in and therefore, we may close the vacancy before the closing date, so candidates are advised to apply early.

We know sometimes the 'perfect candidate' doesn't exist, and that people can be put off applying for job if they don't tick every box. If you're excited about working for us and have most of the skills or experience we're looking for, please go ahead and apply. You could just be what we're looking for!

All applicants must be eligible to work in the UK before they apply for a vacancy and be able to provide evidence of this. 

ob Title: Health Advocate Educator

Location: Warwickshire
Salary: £12,928.56 per annum 
Contract type: Part Time, Permanent

Hours: 18.75 hours per week. Monday and Tuesday – 9am-5pm and Wednesday – 9am-12:45pm. Occasional late shift: 12:30pm – 8:30pm on a rota basis (approximately 2-3 days a month) 

This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.

The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.

The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 5 January 2026

Interview Date: 12 January 2026

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.