Event fundraising manager jobs in Birmingham, west midlands

Family Education Trust is recruiting a Development Manager to turn evidence-led research into real-world impact for families across the UK. This is a rare opportunity to build a fundraising function from the ground up inside a respected policy organisation - with the autonomy to do it your way.

About the role

You will build and lead FET's income growth function, securing near-term unrestricted income while developing durable fundraising capacity. Your core focus is establishing a new major donor and mid-value programme and delivering a high-performing trusts and foundations pipeline.

We have streamlined administrative responsibilities so you can concentrate on what matters: income growth and donor relationships. You will work closely with our Communications Manager, who produces copy and assets for your fundraising brief.

What we are looking for

We need someone with recent, hands-on fundraising experience in a mission-led organisation who has built income, not just maintained it. Experience building a major donor pipeline is essential, along with trusts and foundations competence. You must have genuine personal alignment with FET's mission and established public positions on family policy.

The details

Salary: Up to £40,000, with flexibility for an exceptional candidate Location: Home-based, with UK travel as required Contract: Full-time, permanent Hours: 37.5 per week Annual leave: 25 days plus bank holidays Pension: 5% employer contribution via salary sacrifice Closing date: 9am Monday 16 March 2026 

How to apply

Please read the full job description and person specification (attached) and send a CV and covering letter by 9am Monday 16 March 2026. Your covering letter should explain how you meet the essential criteria set out in the person specification.

Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

The Community Fundraising Officer is an exciting role at MDUK, that will sit within the Fundraising Team. 

In Community Fundraising we are the team that builds relationships with our supporters, families, and event participants to fundraise so that MDUK can continue to find treatments and ultimately cures through research, and to drive improvements in care and quality of life. 

About You: 

You'll be an integral member of the Events and Community Fundraising Team.

You'll work closely with a team of field-based colleagues providing support, ensuring the growth of income and development of long-term relationships with supporters.

You'll need to travel within the region. 

You'll be required to meet with our supporters, the wider team and assist at events throughout the year (this may include some evenings and weekends)

Values and behaviours:

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• A positive attitude and approach that reflect the charity’s values.
• Seek opportunities to contribute to the development of the charity.
• A commitment to and an understanding of disability issues, equality, diversity and inclusion.
• Always demonstrate role model behaviour.

About us:

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK. 

We share expert advice and support to live well now; fund ground-breaking research to understand the different conditions better and lead us to new treatments; work with the NHS towards universal access to specialist health; and together, campaign for people’s rights, better understanding, accessibility, and access to treatments.

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.

Location: This role is home based within the West Midlands, Wales and South West region and travel will be required across this region with occasional travel to Head Office based London, SE1

Closing date: 27th February 2026 

Please download the job description to see full role responsibilities

Marie Curie is the UK’s leading end-of-life charity, dedicated to ensuring that everyone facing the end of life has access to the care, support, and dignity they deserve. We are the largest non-NHS provider of end-of-life care in the UK and the only organisation to operate across all four nations. Through our network of community nursing, hospice care, and comprehensive information and support, we are here for people and families when they need us most.

Your Role in Our Vision

We’re looking for a motivated and creative Events Officer to help deliver unforgettable third-party challenge events from open-water swims and charity hikes to endurance treks and iconic fundraising challenges. Working closely with the Events Product Lead, you’ll take ownership of key events in our portfolio, ensuring supporters have an exceptional experience while helping us grow participation, hit income targets and continually improve our offer through insight-driven planning.

If you love bringing ideas to life, thrive in a fast-paced, collaborative environment and get excited about helping supporters take on meaningful challenges for a cause they care about, this role is a brilliant opportunity to make a real impact.

Key Responsibilities

• Manage key fundraising products from planning through to delivery.
• Support the development of product strategies that drive income and engagement.
• Use audience and market insight to grow participation and maximise fundraising.
• Act as the main point of contact for your products, providing clear guidance across teams.
• Monitor budgets, KPIs and ROI, ensuring accurate reporting and forecasting.
• Support delivery of marketing and stewardship plans.
• Work with operational teams to ensure smooth supporter journeys and excellent event experiences.
• Evaluate product performance and identify opportunities for improvement.
• Manage supplier relationships and mitigate project risks.
• Stay aware of sector trends and emerging opportunities.

What You’ll Need

• Experience managing fundraising products, events or campaigns.
• Strong project management skills with the ability to juggle multiple deadlines.
• Confident working with budgets, forecasting and performance reporting.
• Ability to use insight to inform decisions and improve product performance.
• Excellent communication and stakeholder-management skills.
• Strong organisational skills and attention to detail.
• Experience managing suppliers and external partners.
• A proactive, solutions-focused approach to problem-solving.
• Ability to evaluate performance and make evidence-based recommendations.
• Creativity and curiosity, with an interest in sector trends and innovation.

Please see the full job description

Application Process 

As part of your online application, you will be asked for a CV. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role. 

Close date for applications: Wednesday 4th March 2026 (We anticipate strong interest in this role and may close the vacancy early, so we encourage you to apply as soon as possible.)

Salary: £27,450 - £30,500 DOE

Contract: 12 month FTC

Based: UK Homebased with travel required for team meeting and events on a quarterly basis.

Benefits you’ll LOVE:

• Flexible working. We’re happy to discuss flexible working at the interview stage.
• 25 days annual leave (exclusive of Bank Holidays)
• Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
• Loan schemes for bikes; computers and season tickets
• Continuous professional development opportunities.
• Industry-leading training programmes
• Wellbeing and Employee Assistance Programmes
• Enhanced bereavement, family friendly and sickness benefits
• Access to Blue Light Card membership
• Subsidised Eye Care

At Marie Curie, our values are central to everything we do. They guide how we care for people, how we work together, and how we make decisions every day. We are committed to creating a workplace that is safe for everyone — staff and volunteers alike — supportive, inclusive and rewarding.  We take stringent steps to ensure that anyone who joins our organisation are suitable for their roles and are committed to safeguarding all our people from harm. We actively consider our impact on the planet, embedding sustainability into everyday decisions to create a lasting, positive difference for the individuals we care for and the world we share.

We believe everyone should have the opportunity to thrive and fulfil their potential. Marie Curie is deeply committed to diversity, equity and inclusion, recognising both the social justice imperative and the strength a diverse workforce brings.  We actively encourage applications from people of all cultures, perspectives and lived experiences.

We are happy to make reasonable adjustments throughout the recruitment process. If you require any support, please contact us at .

Every application we receive is personally reviewed by a member of our Talent Acquisition team, and in return, we ask that your application authentically reflects you — your experience, perspective and voice.

The Katie Piper Foundation is a small, national charity founded in 2009 by Katie Piper, a burns survivor. We exist to provide rehabilitation to survivors of life-altering burns and traumatic scarring.

This is a new and varied role where you will be responsible for the development of our supporter-led fundraising and challenge events portfolio, be involved in event management and administration and provide exceptional stewardship to maximise fundraising from supporters and donors. You will be part of a small but talented team full of passion for fundraising and this life-transforming cause.

This is a home based part time role. We welcome fexible working and will work with you to find a working pattern which suits us all. 

Working closely with the Corporate and Partnerships Manager and Communications and Storytelling Manager, you’ll amplify our reach, ensuring we can continue delivering life-changing rehabilitation services.

As our Fundraising Manager, you will take the reins in shaping and executing an ambitious annual fundraising plan. Your mission? To grow supporter-led fundraising income by spotting opportunities and championing third-party events that inspire our supporters. You’ll also craft an engaging, inclusive community fundraising plan, building a thriving network of supporters and empowering survivors to get involved, and support our events programme, including our annual carol concert.

But that’s not all. You’ll play a key role in driving diverse income-generating initiatives, ensuring the charity remains strong and sustainable. Your work will directly fuel our ability to offer vital therapy and rehabilitation, creating real, lasting change in the lives of survivors.

Find out more in the job pack and feel free to get in touch for an informal chat

WMUK is looking for a proactive and self-driven fundraiser to lead on the creation and implementation of the charity’s fundraising strategy, ensuring that the charity has a sustainable base to improve the lives of people affected by Waldenstrom’s macroglobulinaemia (WM) and lymphoplasmacytic lymphoma (LPL), rare forms of blood cancer.

Leading on the delivery of fundraising activities, you’ll be a self-starter who can hit the ground running. You’ll be able to implement a strategy, whilst also quickly identifying and capitalising on opportunities as they come up, demonstrating flexibility and an ability to work in a fast-paced environment.

The role will also give you the opportunity to work alongside the CEO in the creation of a major donor programme, helping to support the growth of this important stream for the charity by managing relationships and shaping the nature of support these individuals receive.

As an adept relationship manager, you’ll be able to speak and write persuasively to engage stakeholders long-term. You’ll be experienced in working directly with beneficiaries and have an empathetic demeanour.

This is a fantastic opportunity for the right candidate to create something from the ground up, seeing tangible impact quickly.

Join a charity which helps families wherever and whenever they need us

Lia’s Wings is the only charity delivering life-saving aeromedical transfers by plane both within the UK and overseas. We make sure babies and children receive the vital treatment they need, no matter where they are. Alongside these urgent medical transfers, we provide tailored, wrap-around support for families to help them through a crisis, creating long-term improved health and well-being outcomes.

We are seeking an experienced Fundraising Manager to join our team on a fixed-term 14 month contract (maternity cover). 

The successful candidate will primarily be responsible for the management and delivery of our challenge events, special events and community fundraising streams, but the post-holder would also be expected to regularly support activities across our corporate partnerships, individual giving and Family Fundraising streams of fundraising too.

You will play a key role in developing these income streams, engaging our supporters to motivate them to fundraise for Lia’s Wings and creating initiatives that introduce new people to our organisation.

Key Responsibilities: 

Event Management

• To manage our Challenge, Community and Special Event fundraising streams to achieve set targets. This will include management of challenge events such as our flagship event, Ride for Lia, as well as London Landmarks and the Royal Parks Half Marathon.
• To manage our annual Air Ambulance Mingle and develop existing plans for a new Christmas Carol Concert

Corporate and Community Partnerships

• To assume account management of our smaller corporate and community partnerships (who are primarily engaged with us through event fundraising)
• To support the Director of Fundraising in the delivery of our larger corporate and community partnerships.

Supporter Engagement

• To effectively steward fundraisers to ensure an excellent supporter experience (resulting in year-on-year participation), including appropriate thanking and recognition, reporting and feedback on outcomes of events.
• To build strong relationships with existing and new stakeholders, including event committees and our Board of Trustees.

Essential Experience and Skills

• A minimum of three years proven experience in a fundraising role, preferably in a challenge, community or special events fundraising role.
• Demonstrable ability to build relationships and effectively steward and support fundraisers to exceed their targets.
• Experience in writing and developing stewardship plans and in creating engaging fundraising collateral to support donors and supporters of all levels.
• Demonstrable experience in developing and managing fundraising evens from design to completion, including logistical planning, budgeting, forecasting, stewardship and evaluation.
• Experience working with fundraising committees and/or Trustee Groups.

Essential Skills:

• A strong communicator, able to confidently engage with stakeholders of all levels, internally and externally, to share our vision and maximise fundraising success.
• Excellent project management skills, with strong attention to detail, comfortable working across multiple-channels simultaneously.
• A team player, willing to be hands-on and involved in the day to day running of a small charity.
• Excellent understanding and application of relevant charity legislation and codes of conduct relating to these areas of fundraising.

Values & Culture

We are a small team with a big heart. We value kindness, transparency, professionalism, and a deep commitment to the families we serve.

At Deafblind UK, we support people living with sight and hearing loss to live the life they want.

We have an exciting opportunity to join our growing fundraising team as we look toward the charity's 100th anniversary in 2028.

The Fundraiser - Corporate & Events will play a pivotal role in enabing Deafblind UK to achieve its goals - helping us to reach more supporters, inspire long-term giving, and raise vital funds through corporate partnerships and charity-led fundraising events. You’ll be at the heart of building relationships, creating impact, and driving income that directly transforms the support available for people with dual sensory loss.

Reporting to the Fundraising Development Manager, the Fundraiser - Corporate and Events will be responsible for growing our existing supporter base and driving engagement, loyalty and income through innovative corporate fundraising activities and charity-led fundraising events. You will be responsible for implementing fundraising strategies, coordinating campaigns, and developing strong connections with businesses in order to generate income and meet targets.

The role includes helping to market and promote Deafblind UK events, with a focus on writing compelling copy for online and offline promotion. The postholder will have a flair for creativity and innovation, with outstanding supporter relationship management skills; to help enhance income generation through mass participation events. Our aim is to ensure all fundraising activities are delivered to the highest standards and are well-planned, exciting, safe, creative and challenging.

This is a highly rewarding position for a creative and dynamic individual to make a genuine difference to the support available for the 450,000 people across the UK who are deafblind.

This position is based remotely with frequent travel as and when required to carry out the duties of the role.

The role will also include:

• Building and managing a portfolio of corporate partnerships, delivering engaging activities such as networking events, golf days, and workplace fundraising.
• Leading on the planning and delivery of charity-led fundraising events, ensuring they are successful, safe, accessible, and memorable.
• Developing and stewarding lasting relationships with businesses, supporters, and volunteers, ensuring excellent supporter experiences.
• Growing income through creative initiatives, from collection pots in high-footfall areas to securing pro-bono and in-kind support.
• Working closely with our Fundraising Development Manager and Marketing Team to deliver fundraising targets and raise Deafblind UK’s profile.

You will bring to the role:

• A minimum of two years in a fundraising role, with a flair for building and maintaining strong relationships.
• A natural talent for networking and the ability to inspire passion in others.
• Proven experience in managing events and a demonstrable track record of meeting fundraising targets.
• Creativity to spot opportunities paired with the organisational skills to deliver them seamlessly.
• A self-motivated, energetic, and passionate approach to delivering excellent supporter experiences.
• A flexible, can-do attitude to some evening and weekend working as the needs of the role requires.
• Good IT skills and proficient in the use of Microsoft Office, including Word, Powerpoint, Excel and Outlook. Experience of database management preferably CRM.
• A full, clean UK driving licence. 

Please see attached Job Description and Person Specification for further details.

The TSA is looking for an enthusiastic, knowledgeable, and experienced person to join our small but ambitious fundraising team. This is a key role at the TSA, with trusts and foundations an area we have identified for significant growth, while acknowledging the extremely competitive world the sector currently finds itself in for receiving such funding. 

It would suit a candidate with a strong track record in consistently delivering in a similar role. The charity has completed significant work in this area to get the foundations right for this role (Theory of Change etc.) 

The Trusts and Foundations Manager will be responsible for developing and delivering a successful trusts and foundations fundraising programme, securing both restricted and unrestricted income to support TSA’s services, research and strategic priorities. Working closely with colleagues across fundraising and the wider organisation, the post-holder will manage a varied portfolio of funders, from small charitable trusts to major grant-making foundations. In return, you’ll have the opportunity to have genuinely flexible working as part of a warm, empathetic and committed team. Every day, you will know that you are making a massive difference in the lives of thousands of people across the UK. 

This role is responsible for working collaboratively with the Head of Fundraising to develop and deliver our annual portfolio of events (including RDA UK organised events, securing places in third party events and supporting in aid of events), introducing new local fundraising opportunities, and building relationships within community groups. 

• To work collaboratively with the Head of Fundraising to deliver RDA UK’s community and events fundraising programme, ensuring income targets are achieved or exceeded.
• To explore, develop, and manage an RDA UK flagship event.
• To oversee and develop our challenge events programme, including open and bespoke overseas challenges.
• To build strong community partnerships and supporter networks, maximising engagement across the UK.
• To provide excellent supporter stewardship, ensuring every fundraiser feels valued and motivated.

RDA is committed to creating a workplace where everyone belongs. We welcome applications from talented candidates of all backgrounds, abilities, and experiences, and celebrate the diversity that makes our team stronger.

​​We are really excited to have welcomed our new Director of Income Generation and Development to Brain Tumour Research this month, a great new start for the new year!​

This is a fantastic time to be joining our ambitious and growing charity and we are keen to share this with likeminded and talented individuals. We currently have an opening for a Community Fundraiser, to be based in the East Anglia region.​

As the Community Fundraiser covering East Anglia you will play a crucial role in helping the charity meet its strategic plans and objectives, which include campaigning to increase the national investment in brain tumour research to £35 million per year, while fundraising to create a network of seven sustainable Brain Tumour Research Centres of Excellence across the UK.  Your role will be to generate and grow our income through community fundraising activities, contributing to a regional team target of more than £1.5 million.​

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Do you live in Cambridgeshire, Norfolk or Suffolk?
• Do you have at least one years' experience of working in a professional Community Fundraising position?​

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Have you answered Yes to these questions?

Does this sound like the opportunity to really get 2026 off to an amazing start? ​

If you are excited to learn more about this position, please take a read through our recruitment pack which is attached in this advert.​​

If you have the skills and ambition that we are looking for we welcome your application.  We are really looking forward to welcoming a new member to our team!

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We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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The Regional Fundraising & Partnership Officer (South East) will play a key role in growing income and building long-term supporter relationships.

Reporting to the Head of Fundraising and working closely with colleagues across fundraising, communications and support services, you will develop relationships with regional corporates, trusts and community groups. You’ll deliver local fundraising campaigns, appeals and events, grow regional membership and supporter engagement, and share compelling stories of impact that inspire sustained support.

This is an autonomous, externally facing role, suited to someone who enjoys building relationships, spotting opportunities, aligning fundraising activity with real-world service delivery and research impact and working remotely.

About you

You will bring proven experience in fundraising – whether community, corporate or trusts alongside strong relationship-building and stakeholder engagement skills. You’ll be confident writing compelling proposals and supporter communications, comfortable managing multiple priorities, and motivated by making a tangible difference through locally driven fundraising.

The Regional Fundraising and Partnership Officer (South East) will be home-based with occasional travel to our head office in Ashford, Kent. The charity are a flexible employer and happy to discuss how they might match your work preferences with the needs of the charity. This role may involve some occasional evening or weekend working.

Salary: £35,622 (rising to £36,035 after probation)

Key responsibilities

• Build and develop relationships with regional corporates, trusts, community groups and supporters across South East
• Deliver regional fundraising campaigns, appeals and community fundraising activity aligned with organisational priorities
• Identify, develop and steward regional partnerships, supporting supporters to move from initial engagement to long-term commitment
• Research and pursue regional trust and grant opportunities and support project-based fundraising initiatives
• Grow regional membership and supporter engagement, promoting deeper involvement with the charity
• Share compelling local impact stories and case studies to inspire giving and long-term support
• Work closely with fundraising, communications and service delivery colleagues to ensure fundraising activity reflects real-world impact
• Provide insight and feedback from regional supporters to inform wider fundraising and engagement strategy

Ideal experience

• Proven experience in fundraising, such as community, corporate, trusts or individual giving
• Strong relationship-building skills, with the ability to engage a wide range of stakeholders
• Experience of developing and delivering fundraising campaigns, events or appeals
• Confidence in writing compelling proposals, cases for support and supporter communications
• Ability to work autonomously, manage multiple priorities and deliver results across a defined region
• Strong organisational and communication skills, with a collaborative and proactive approach

Employee benefits

The charity offers a supportive and flexible working environment, including:

• 25 days’ annual leave rising to 28 days, plus public holidays
• Up to 5% contributory pension
• Healthcare cover and Employee Assistance Programme
• Funded learning and development opportunities
• Home-based working with flexibility and regional travel
• An inclusive, mission-driven culture

We're looking for an enthusiastic Head of Fundraising with a strong track record in fundraising and grant management, who is particularly motivated to join Khulisa because of a deep commitment to our mission – supporting the wellbeing and mental health of young people.

About Khulisa

Khulisa, meaning 'nurture' in the Zulu language of South Africa, is an award-winning charity dedicated to providing therapeutic support to young people. We focus on reaching those who are most at risk – young people from deprived communities who are often marginalized, vulnerable to exclusion, and at heightened risk of becoming involved in crime

Our approach centres on safe, exploratory methods that aim to understand behaviour and experiences often rooted in trauma, abuse, and neglect. We deliver intensive therapeutic programs within educational and community settings, empowering young people to confront the underlying causes of their emotional distress and work toward healing. To create lasting, sustainable change, we work to establish trauma-informed environments around young people by equipping parents, caregivers, educators, and other professionals with the tools they need to offer effective, supportive care. Currently, our services are active in London and Manchester.

About the role

Over the last two consecutive financial years, we have raised approximately £1 million each year – primarily through trusts and foundations, corporate donors, and individual supporters. As the successful candidate, you and the team you lead will play a pivotal role in maintaining this level of fundraising success, ensuring our vital work with young people continues to flourish. This role will involve:

• Reviewing and evaluating our funder qualification processes to ensure donors align with our values and meet our ethical standards.
• Ensuring that detailed research on prospective funding opportunities, including trusts, foundations, corporate partners, HNWIs, are carried out and that plans for making approaches are developed and carefully implemented.
• Initiating, nurturing and maintaining strong relationships with prospective funders and donors.
• Working together with the Senior Leadership to develop and periodically review Khulisa's 3-year fundraising strategy, taking ownership of key elements and processes, and periodically developing and testing new fundraising approaches.

For a full list of duties and responsibilities, please see the attached job description below. 

The post holder will be required to work from home permanently but be willing and able to easily travel to various locations across the London and the North West as necessary to fulfill the requirements of the role and to engage with stakeholders and colleagues.

What we're looking for

Abilities/Experiences

• Extensive fundraising and grant management experience working on large bids (£100K plus).
• Excellent writing skills with ability to produce clear, concise and engaging reports.
• Demonstrable ability to communicate effectively with a wide range of stakeholders and build relationships easily.
• Demonstrable experience of successfully raising funds from Trusts & Foundations, Corporates and Major Donors.
• Experience of leading or significantly contributing to development and/or delivery of a fundraising strategy.
• Experience of budget management and financial processes in income generation activities.
• Experience of mobilising and managing implementation of grant agreements from initiation to reporting and possibly reapplication.
• Ability to confidently negotiate or renegotiate with senior stakeholders on programme budgets, deliverables and objectives. 

Knowledge/Skills

• Good knowledge of Khulisa's work and ability to use this to creatively engage with new donors and secure their interest.
• Strong knowledge of CRM database, preferably Salesforce, in managing funder/donor relationships and fundraising activities.
• Strong account management and negotiation skills.

Diversity, Equity and Inclusion: We are actively looking to recruit a diversity of talent. We embrace, respect and value the difference in our employees and believe that we and our work is better for it. We are committed to creating and maintaining an inclusive environment that consists of fairness, dignity, and caring for everyone, and one that enables every employee to flourish and realise their potential.

We are seeking a Fundraising Officer with experience in finding, applying for and securing grants, with an interest in exploring and planning for new income generation.This is a great opportunity to join our organisation and play a pivotal role in growing income that supports our mission and vision.

The Fundraising Officer will focus on Trusts and Foundations fundraising initially, with opportunity to explore additional income streams over time. 

We are looking for a dynamic, highly motivated and experienced individual with a proven track record in fundraising roles within the not-for-profit sector.

About Metabolic Support 
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well. 

About the Role 
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact. 

Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels. 

As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease. 

Key Responsibilities 

• Lead and deliver an integrated fundraising and communications strategy 

• Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events 

• Act as an external ambassador for Metabolic Support 

• Oversee communications, marketing, social media and brand development 

• Manage donor relationships, stewardship and CRM (Nutshell) 

• Provide fundraising forecasts, reports and budgets to the Board 

• Ensure compliance with GDPR and fundraising regulations 

About You 

• Proven experience in fundraising, communications or income generation 

• Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors) 

• Excellent written and verbal communication skills 

• Confident relationship-builder and storyteller 

• Highly organised, proactive and comfortable working autonomously 

• Strong alignment with Metabolic Support’s mission and values 

Other Information 

• UK-based with eligibility to work in the UK 

• Willingness to travel and work occasional evenings/weekends