Event manager jobs in falmouth, cornwall

This is a new role within the Bereavement Support Service proactively engaging bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.

The aim of this post is to provide consistent, high-quality emotional support via digital channels to bereaved families who seek support from the Lullaby Trust.

Main duties and responsibilities

1. Proactively engage bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.

· Assist with the setting up of new digital channels to be used by the Lullaby Trust to answer and respond to bereaved families.

· To be the primary contact for the bereavement support digital services including WhatsApp, text, webchat and other social media channels.

· Proactively engage with bereaved families through social media and other online platforms.

· Ensure any safeguarding concerns are actioned in accordance with the organisations Safeguarding policy.

· Send materials to bereaved contacts, including bereavement packs and follow up emails and ensure all documents and databases are updated with each contact in line with the department guidelines, including Raiser’s Edge, Excel databases.

· Cover and answer the bereavement support helpline and online enquiries responding within the set guidelines and KPIs for the department.

· Ensure any messages on Bereavement Support Facebook Groups are monitored and advice is given via befrienders where appropriate.

· Attend face to face events for bereaved families including family days and memorial events when needed.

· Work with Income and Engagement Team around social media bereavement support content/posts.

2. Deliver and run live bereavement themed sessions on social media

· Run monthly live sessions on social media on bereavement topics/themes, responding to comments and messages during and after the sessions, ensuring anyone seeking ongoing support is responded to and referred to relevant services .

· Work with the Engagement Team to promote live session.

· Facilitate monthly remembrance sessions.

3. Ensure the bereavement support services are promoted to those bereaved and to professionals working with bereaved families

· Assist with the recruitment and facilitation of Bereaved Families’ Panel.

· Keep up to date with the bereavement support world including joining National Bereavement Alliance, Child Bereavement Network and research around grief and bereavement.

· Attend events as required to represent the Lullaby Trust’s bereavement support services.

4. Maintain accurate records throughout all services, complying with the organisation’s recording and reporting requirements

Maintain ongoing knowledge and training on the Lullaby Trust’s advice and the scientific knowledge behind this advice.

Collate statistics, as required on areas of work within the support services team.

Assist with the services’ evaluation and impact processes.

Provide other administrative support to the team as required.

Other:

Attend and participate with external supervision sessions, managerial supervision and team and organisational meetings.

Location: Home-based; with occasional travel to Respect’s office at Voluntary Action Islington (VAI), 200A Pentonville Rd, London N1 9JP; with responsibility for pilot sites in Manchester, London, Cleveland and North Wales.

Responsible to: DAPO Triage Service Manager

Responsible for: DAPO Triage Workers and IDVAs

Salary: Point 35-36  £37,450-38,349 (a London Allowance of £3,299.00 will be applied to employees who live in London).

We are pleased to offer a starting salary at the beginning point of the salary band. This position offers opportunities for salary increases based on performance and tenure. 

Hours: 37.5 hours per week; 5 days a week with flexible working hours and provision of an out-of-hours response as needed.

Travel: You will be required to travel when the requires it.

Job type: Fixed Term Contract until 31st March 2026, with a possibility to extend, subject to funding.

Benefits:

• Friendly and collaborative working environment
• Remote working 
• 25 to 30 days holidays per annum plus bank holidays (depending on length of service and pro-rata for part-time employees) 
• Contributory pension scheme including 6% employer’s contribution (subject to employee’s minimum 2% contribution) 
• Enhanced maternity, adoption and paternity pay 
• Occupational sick pay depending on length of service and pro-rata for part-time employees.
• Access to Employee Assistance Programme 
• Access to staff discounts

Closing date: 6th June 2025, 23:59

Interviews to take place: 17th and 19th June 2025. These will be held virtually via Teams

About the role:

The Team Leader will lead on the delivery of the Triage Model in their pilot area/s, providing support, case management and supervision for the Triage Worker and IDVA roles. They will act as the first point of contact assessing the suitability of initial referrals to be allocated to a Triage Worker for a full assessment. The Team Leader will support the Service Manager and Practice and Development Lead in developing multi agency relationships for the successful implementation of the model and will take a lead role in maintaining these relationships locally to ensure operational success when undertaking assessments to try and ensure the right recommendations for positive requirements are made but also to support the ongoing development of a national delivery model and to support the evaluation of the pilot.

About you:

• At least 3 years’ experience of working on complex cases in a multi-agency environment and working with other professionals/agency to manage risk and safeguard vulnerable adults and children
• An understanding of the root causes of domestic abuse on both an individual and societal level
• Experience of working in a partnership with other organisations and managing the challenges that may arise
• Knowledge of safe and effective interventions with perpetrators of domestic abuse across different risk and needs groups
• To manage a complex workload, across multiple geographic regions, and effectively meet reporting deadlines and the needs of a wide range of stakeholders.
• A commitment to anti-discriminatory practice and an approach that centres survivors. 

About Respect 

Respect is a pioneering UK membership organisation in the domestic abuse sector.  Founded in 2000, we have built our expertise over the last 25 years in what was then a fledgling sector and recently have seen significant and rapid growth.

How to apply 

You must download an application form from Respect's job page, and submit to Operations department in word doc. format only, please. 

For an informal discussion about the role, please contact our HR Team directly. 

Closing date: 6th June 2025, 23:59

Interviews to take place: 17th and 19th June 2025. These will be held virtually via Teams

Stories Officer
Remote working
£16,000 - £17,400 pa plus excellent benefits (FTE £25,000 - £29,000 pa)
21 hours per week (Mon - Weds)
Permanent, part-time job share

We are pleased to offer this role as a job share, working Monday, Tuesday and Wednesday. Previous applicants need not apply. 

The Stories Officer sits in the Marketing and Communications team and will focus on:

· Assist in managing storytelling requests from across RNID, providing vital support and crafting impactful and compelling narratives.

· You’ll be gathering and shaping powerful authentic stories that highlight the impact of RNID’s work, supporting RNID’s strategic goals.

· When you join us, you’ll dive straight into important campaigns like our Protect Your Hearing Campaign, helping to craft meaningful stories. You might find yourself out on location, capturing powerful stories firsthand from our amazing storytellers or coordinating a photo shoot featuring one of our celebrity supporters.

As Stories Officer, you will:

· Work closely with the Stories & Celebrity Manager, identify, interview, and write-up case study stories from people who are deaf, have hearing loss, or tinnitus to support RNID’s campaigns, media, and fundraising efforts.

· Manage and update our centralised database of case studies, celebrities, and influencers, ensuring all stories across the charity are recorded for effective stewardship. Maintain storyteller profiles, contact details, permissions, and consent forms while ensuring GDPR compliance in data collection and storage.

· Collaborate with PR, fundraising, digital, and campaigning teams to integrate storytelling into their work, identify their needs, and match case studies or celebrities to relevant projects.

· Support the development and delivery of storytelling content across multiple platforms, including social media, website, press, and marketing materials, ensuring content meets accessibility standards.

· Manage multiple internal and external storyteller requests.

We are looking for an individual with a passion for storytelling and a deep commitment to amplifying the voices of people who are deaf, have hearing loss or tinnitus.

You will have excellent writing skills, with experience in journalism, PR, or a similar field, and a strong ability to craft compelling narratives that engage and inspire. Your interviewing skills will be key, as you’ll need to connect with people from diverse backgrounds, ensuring they feel comfortable and confident sharing their stories.

Sensitivity and empathy will be essential as you capture authentic, impactful stories. In addition, you’ll be an exceptional multitasker, able to manage multiple storytelling requests and competing priorities with ease. Your proactive and creative approach will drive you to consistently find new ways to tell powerful stories that align with the charity’s mission and strategic goals.

If you are driven by the power of storytelling and want to make a real difference, we would love to hear from you.

We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus.

We work with our communities and partners across industry, government, charity, education and more to change life for the better. RNID has a proud history and big ambitions. We’re focused on making the greatest impact possible across the whole of the UK. We champion the latest technology and the opportunities it brings. We also know the value of a friendly face in local communities to support people where they need it most.

We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.

Closing date: 15 June 2025.

We are now at an exciting time where we must grow to meet the ambition of our new 10-year strategy. To support our team and community in this next stage of our development, we are now looking for a Communications Officer.   

Working closely with the Senior Communications Manager and our Engagement and Events team, the new hire will help to promote the capitals approach and position the Capitals Coalition as the central and leading organization in this space. 

Collaboration, communication, and shared ownership are central to our way of working. We are looking for a candidate with a strong ‘can-do’ attitude, great communication and organizational skills, who can work independently to a high standard, and have a creative eye. If you are passionate about working at the intersection of climate, biodiversity, social development, equity, and economics, believe people and planet must be at the heart of decision making, and are keen to learn, then we want to hear from you!

Download the job description and application form and learn how to apply at our website. The final deadline to apply is 15th June.

Vision of adventure, a small outdoor charity based in the Lake District , is seeking an experienced fundraiser to join our team. We specialise in working with people with visual impairments facilitating outdoor adventures, social connection and access to specialist coaching. To achieve this the organisation partners visually impaired individuals with sighted guides for residential weekends focusing on: long walks, canoeing, climbing, tandem biking, and more. The team comprises five part-time workers, numerous volunteers, and the board of trustees. We all work remotely, use each others first names, and have flexible scheduling.

The role of a fundraiser is paramount to our continued sustainability. You will be solely responsible for our fundraising initiatives. The charity has a commendable track record of raising funds, and you will be expected to surpass these targets as a professional fundraiser. An engagement officer will support your role by gathering feedback and preparing draft funder impact reports.

You will have extensive demonstrable fundraising experience. You will be personable, be an excellent communicator , make appropriate use of information communication technology, and capable of managing your own time and workload. 

We are open to applications that combine this role with that of the engagement officer, which is also advertised at this time.

The role may suit someone who may be stepping back from a busy office environment, have a disability, or caring responsibilities where the remote nature and flexible scheduling would be an asset.

About StreetVet

StreetVet is a fast-growing national charity, committed to providing free vet care to the pets of those experiencing homelessness and to keeping pets and owners together to maintain the human-animal bond. StreetVet relies on its team of over 250 vet and nurse volunteers in 23 locations around the UK to provide free veterinary treatment, funded by grants, corporate and private donors and partners. Since inception in 2016, the charity has treated nearly 3,000 pets and has won numerous awards including the Vet Trust Award for the Most Trusted Veterinary Charity, Purina Better with Pets Prize and Homeless Link Excellence Award for Excellent Support.

Title: Volunteering Officer

Duration: Permanent, full-time

Reporting to: Head of Volunteering

Responsible For: All StreetVet volunteers

Works With/Key Contacts: Colleagues across the organisation, volunteers, potential volunteers

Location: Home – remote working with regular travel to visit outreach locations (mostly located in the South and East of the UK) and attend industry events for recruitment drives

Contracted hours: 37.5 hour work week (flexible working available)

Holiday: 25 days per year plus national holidays 

Salary: £30,000 - £32,000 dependent on experience

Main purpose of the role

The Volunteering Officer will be responsible for the day-to-day management of the StreetVet volunteering programme. This role will have overall responsibility for recruiting, onboarding, and supporting StreetVet volunteers as well as establishing positive working relationships with volunteers to ensure they have a fulfilling and rewarding volunteering experience.

Key Responsibilities

· Lead the recruitment and induction of volunteers.

· Provide effective and timely administration of the volunteering programme.

· Provide highly effective support to all StreetVet volunteers to ensure a positive volunteering experience and offer training opportunities to develop volunteers in their roles.

· Provide regular communication to volunteers e.g. a regular newsletter, to update them on information relevant to their volunteering and keep them up to date of StreetVet’s wider activities, achievements and plans.

· Implement initiatives to reward and recognise volunteers for their efforts and engage with national initiatives e.g. Volunteer Week to celebrate the contributions of StreetVet volunteers.

· Arrange opportunities for StreetVet volunteers to come together and share their experiences of volunteering at StreetVet.

· Work with the Head of Volunteering to implement processes to gather feedback on the volunteering experience at StreetVet (e.g. volunteer surveys, exit interviews) and create relevant action plans to continue with areas of good practice and implement suggestions/recommendations where feasible.

· In collaboration with the Head of Volunteering, provide support, training and guidance to staff managing/working with volunteers.

Please refer to the Job Description for a full list of responsibilities and the person specification.

Closing date: 1st June 2025 at 23:30pm

Applications may close before the deadline, so please apply early to avoid disappointment.

Job Title: CEO

Reporting To: Chair of Trustees

Salary: £50,000 Pro Rata 

Working Hours: 28 hours per week (4 days). Job share applications will be considered.

Location: Hybrid/ Prepare to travel to London several times a year for industry events. Prepared to travel to other destinations in the UK on occasion.

Contract Type: Permanent

About Us

Safer Waves was set up in 2019 to provide support to merchant seafarers who have experienced sexual assault, sexual harassment or gender discrimination on board.

Safer Waves provides an anonymous email support service, run by volunteers who are trained in responding to disclosures of sexual violence, and who understand the specific challenges experienced when these events happen onboard a vessel.

We work with shipping companies, industry leaders, law enforcement and maritime training providers to raise awareness of sexual violence within the maritime industry, and to improve the support that is available to seafarers who experience it.

Job Purpose

For the first 5 years, Safer Waves has been a volunteer-led organisation. We are now in the exciting position of being able to recruit a CEO, and we are looking for an individual who has the passion to see this new organisation thrive in the maritime welfare sector.

As the head of a small and rapidly developing organisation, the CEO role will be extremely varied, with the opportunity to shape the organisational structure as needed. The CEO will work closely with the trustee board and Operations Manager to deliver the strategy, improve sustainability and financial resilience, manage risk and deliver high-quality services to our beneficiaries.

We are a growing organisation, and this is a unique opportunity to grow and innovate with the organisation and to contribute to our future success. Applicants will need to be prepared to take on a wide range of tasks at the outset including compliance, accounting, training, public speaking, banking, leading volunteers, engaging with external partners and funders, overseeing the website and email service and many other tasks.
 

Responsibilities & Accountabilities 

The CEO reports directly to the Trustee Board and is responsible for the following:

• Strategy: Shape and deliver the charity's strategy over the next five years, whilst also ensuring the day-to-day running of the charity remains effective.

• Finance: Maintain and develop relationships with funders, and find new funding streams for the charity. Prepare budgets and control spending accordingly.

• Risk management and compliance: Work with the trustees to ensure strong governance, including effective management of risks and compliance with current legislation.

• Relationships: Build and maintain relationships with international organisations including charities, shipping companies, law enforcement and government agencies among others.

• Line management: Manage staff and volunteers

• Communications and Outreach: Work with the Operations Manager, Trustees and volunteers to raise the profile of the charity and increase the number of seafarers reached

Person Specification

Essential 

• Experience in being self-sufficient and driving progress, ideally in a business or charity setting.

• Senior Management Experience

• Able to demonstrate alignment with the core values of Safer Waves.

• Knowledge and understanding of supporting survivors of sexual violence

Desirable

• Experience working in the charity sector. 

• An understanding of the maritime sector

Your cover letter should address and provide evidence to support each of the essential criteria and the desirable criteria if applicable.

Role: Marine Scientist

Contract: Permanent

Holiday: 25 days per year plus Bank Holidays

Based: Hybrid working – London (Paddington) or Cornwall (Newquay) office three days per week with two days home working. 

Reports to: Director of Policy and Research

Are you an ambitious science-based advocate for a healthy ocean in the UK?

• Are you passionate about protecting UK seas, including ending overfishing, stopping fossil fuel expansion, and protecting seabed habitats?
• Are you a scientist by background with the ability to research and translate the latest science and data in support of our campaigns?
• Do you have a good network of contacts in the academic and NGO communities?
• Do you have experience of managing or conducting research projects?
• Do you want to join one of the world’s most effective marine conservation organisations with an exciting and expanding UK presence?

Oceana

Oceana is dedicated to protecting and restoring the world’s oceans on a global scale. We are a leader in science-based advocacy, and we campaign for policies to make the world’s oceans more abundant, vibrant, and biodiverse. Globally, Oceana has won more than 325 policy victories for marine life and habitats. From stopping bottom trawling in sensitive habitat areas to protecting sea turtles from commercial fishing gear, our victories represent new hope for the world's ocean. Our talented staff consists globally of about 240 people, working in more than twelve countries, including scientists, communications, fundraising, finance, administration, policy, and advocacy experts.  All team members have the opportunity for occasional travel to our headquarters in Washington, DC to connect with the global network.

Oceana in the UK is tightly focused on some of the biggest threats facing UK seas, including protecting seabed habitats, ending overfishing, and preventing new offshore oil and gas developments.

We fight for UK seas to get the protections they deserve through highly visible campaigns and detailed policy interventions to secure measurable changes to rebuild and maintain ocean abundance and health. We act as a vital public-policy interface – raising the profile of our issues through campaigns, science, communications, and expeditions, and influencing policymakers directly for commitments at key moments throughout the year.

Our small, experienced, and highly motivated team work in geographically diverse locations in London and Cornwall, coming together both digitally and in person as part of developing and delivering our ambitious campaign strategy to restore ocean biodiversity and abundance.

We’re proud to be bold, creative, agile and visual in our campaigns, and proud of the team we’re creating here in the UK. We’d love for you to join us.

Job Purpose

We are looking for a Marine Scientist to play a substantive role to support all of Oceana’s UK campaigns. Research, science and data are at the heart of Oceana’s UK work, underpinning our policy positions, creating campaign moments and answering key questions with new research.

The successful candidate will write and project manage research to unlock key campaign questions relating to overfishing, habitat protection and energy in particular, as well as other potential campaign areas in future. They will also work to increase Oceana’s presence within the academic community, attending relevant conferences and meetings and seeking future collaborations on topics of interest.

The Scientist will report to and be supported by the Director of Policy and Research, and work closely with science colleagues across the Oceana global network and beyond. Eligible candidates should have some experience in conducting research, including analysing data, but we’re equally looking for passion, motivation and a drive to protect the ocean. You should be a self-starter, with a strong ability to work independently and as part of a small but growing team.

Role Overview

• Support the delivery of Oceana’s campaigns, working with the Director of Policy and Research and relevant campaign teams.
• Research, draft and/or review content for Oceana’s scientific reports and other external communications, with particular attention to scientific accuracy.
• Gather evidence to support Oceana’s UK campaigns, including analysing primary and secondary data, conducting literature reviews and creating position papers.
• Commission and project manage research from external partners as needed, managing relationships through the duration of any projects.
• Work closely with the Oceana HQ Science and Strategy team and other scientist colleagues in the Oceana network to gather insights, inspiration and knowledge.
• Coordinate relevant stakeholders to ensure internal scientific reviews are completed in line with campaign timelines.
• Build strong external relationships within the academic community and represent Oceana to ensure we advance our goals with a wide range of stakeholders, from the general public to politicians.
• Actively participate in key policy and research conferences and events to defend and advance Oceana campaign goals.
• Maintain subject matter expertise and identify areas for new research by following the current literature, attending relevant meetings, and communicating with peers in the field.
• Represent Oceana externally in relevant networks, with partners and in the media as needed.
• Conduct other policy and research tasks as agreed and required.

Candidate Requirements

Education and work experience

• Degree, ideally masters-level, in environmental, fisheries or marine science, or a related field.
• Familiarity with marine and climate issues, regulations and policies in the UK, as well as with key institutions and decision-making processes.
• Experience writing or commissioning primary or secondary research and associated materials summarising the work.
• A passion for UK seas and delivering a healthy ocean in general.

Skills and knowledge

• Familiarity with UK marine and fisheries policy and science.
• GIS and database proficiency, including basic knowledge of GIS mapping and statistical analysis.
• Strong project management skills, with experience managing multiple workstreams and projects effectively to time and budget.
• Ability to represent Oceana in a professional and responsive manner both within and outside the academic community
• Excellent writing, editing, communication, organisational and research skills with the ability to confidently distil scientific messages to stakeholders with varying levels of expertise.
• Commitment to diversity, equity, and inclusion through continuous development, modelling inclusive behaviours, and proactively managing bias.
• Integrity and the ability to work with confidential information with discretion.
• Ability to work collaboratively with staff and other organizations.

Equal Opportunities

Oceana is committed to having a diverse workforce that is representative of the community it serves at all levels of the organisation, and we particularly welcome applications from candidates who are currently underrepresented within the conservation sector.

All offers of employment are conditional upon the successful completion of reference checks and a criminal background check.

• Application Deadline: Sunday 15th June
• Interview Dates (TBC): Wednesday 25th June / Thursday 26th June

Community Project Lead 

• Two-year fixed term, full-time (35 hours per week) or part-time (minimum 21 hours per week considered), £28,000 – £32,000 per annum depending on experience (pro rata if part-time)  
• Remote or office-based. Occasional visits to IPSEA’s office in Takeley or a London venue required. This role will also include frequent travel to meet with community partners. 

Do you have experience working with under-served communities and leading impactful outreach projects? Are you passionate about improving access to support for families of children and young people with special educational needs and disabilities (SEND)?

IPSEA is the leading charity in the field of SEND law in England, and we provide free and independent legal advice and support to families of children and young people with SEND. We also provide training on the SEND legal framework, and we influence policy at both a local and national level.

We are looking for an experienced and motivated Community Project Lead to join our team and lead the development of our advice services for under-served communities. This two-year, fixed-term role is a key part of our strategy to reach groups who may not traditionally engage with IPSEA’s support - including children and families with English as an additional language, cared-for children (children in care), migrant children, detained children, and Gypsy, Roma and Traveller communities.

The project builds on a detailed scoping exercise we’ve recently completed, which involved working closely with a wide range of charities and organisations that support these communities. The resulting report outlines the barriers they face, and will form the foundation for this project and directly inform the work you will lead.

What you’ll do 

• Design and develop pilot advice services that are tailored to the needs of under-served communities, using findings from IPSEA’s research 

• Build and maintain strong relationships with community groups, charities and service providers to co-produce accessible services 

• Collaborate with IPSEA’s advice, legal and policy teams to address the barriers these communities face in accessing SEND legal advice 

• Contribute to and share outreach materials, training resources and toolkits to support families of under-served communities and empower local advocates 

• Plan and lead workshops, focus groups and community events to raise awareness, gather feedback and enhance service delivery 

• Monitor and report on project outcomes and impact, providing regular updates to IPSEA staff and stakeholders 

You can work remotely or from IPSEA’s office in Takeley, with frequent travel required for essential meetings and community engagement.

If you share our commitment to protecting, promoting, and upholding the rights of children and young people with SEND, and would like to use your skills to improve access to vital advice and support, we would love to hear from you.

Visit our website to download a recruitment pack and application form.

Closing date for applications: 9am on Monday 16 June 2025 
First-round interviews: Wednesday 25 June 2025 (London) 

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

Shine is recruiting a Shine Nurse Specialist

Full Time

Permanent

Shine Nurse Specialist (Adult Nursing/ Registered General Nurse)

Location: Home based - within a commutable distance of London as there will be a requirement for fortnightly travel to the Chelsea & Westminster Clinic and with additional occasional travel across England, Wales and Northern Ireland. 

Shine’s Health Team 

Shine’s Health Team provides condition-specific health advice and support to people of all ages with spina bifida, hydrocephalus, NPH or IIH, promoting good self-management and enabling our members to live in optimum health.  The Team also aims to reduce the numbers of pregnancies affected by spina bifida and anencephaly through education around supplementation and fortification with folic acid, and other measures. 

Purpose of Job 

The Shine Nurse Specialist will deliver services and create resources to improve the health of Shine’s members, by informing members, their carers and professionals 

Principal Duties 

• To provide ad hoc advice to Shine’s members, their carers  and professionals on complex health issues, and signpost to NHS services 

• To attend and represent Shine at the Chelsea & Westminster Spina Bifida Clinic

• To collect information, statistics and research from a variety of sources to inform Shine’s health projects 

• To create resources to inform and support members’ health 

• To develop training/information resources for professionals 

• To plan and deliver projects, events, presentations and information sessions for members and professionals 

• To provide an information resource for Shine staff 

• To form and engage with networks of health professionals 

• To represent Shine at events and meetings 

• To work closely with the Health Research & Information Coordinator to produce and disseminate health information to Shine members and the general public 

Skills and Experience 

Essential 

• Professional/Registered Health Qualification, for example:

  • Adult Nursing 

  • Registered General Nurse 

• Experience of searching scientific and medical literature, collating information and writing reports 

• Excellent communication skills, written and verbal 

• Ability to work effectively alone and as part of a team 

• Ability to plan and deliver projects 

• Good presentation skills 

Desirable 

• Knowledge of the physical aspects of spina bifida and hydrocephalus 

In return, Shine will offer you: 

• A competitive salary

• 3% pension contribution 

• Life Assurance cover from 12 months service 

• 25 days holiday plus bank holidays + additional discretionary leave between Christmas and New Year (pro-rata for part-time hours) 

• Opportunity to purchase additional annual leave 

• Additional annual leave due to length of service  

• Broadband allowance 

• Support to learn and develop 

If you would like to have a chat about the role in more detail or have any questions, please contact Gill Yaz, Head of Health.

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job. 

To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria. 

*Please note applications without a supporting statement will not be accepted* 

Closing date: Saturday 7th June 2025 at 11pm

Interview (virtual): Tuesday 17th June 2025

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert early. 

About The Role

About Alzheimer's Society- who are we and what’s our mission? 

Dementia is the UK’s biggest killer. One in three people born in the UK today will develop dementia in their lifetime. 
At Alzheimer’s Society, we’re the UK’s leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding ground-breaking research and campaigning to make dementia the priority it should be. 

Together with our supporters, we’re working towards a world where dementia no longer devastates lives.
Our values ensure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for. 

About the opportunity
It’s an exciting time to join Regional Fundraising. We’re a growing team with big ambitions over the next 5 years. Success in your role will enable Alzheimer’s Society to campaign for change, fund research to find a cure and support people living with dementia today.
We have a fantastic opportunity available for a Regional Fundraiser to join our rewarding and growing team. This is an exciting role, which would suit someone looking to build and develop their relationship fundraising or broaden their sector experience in a major national charity.
From multi-year partnerships and supporters, right through to managing volunteers and raising awareness in our communities, the team you join is talented, fast-paced and on a mission to create a world where dementia no longer devastates lives. 

You will:

- Coordinate and facilitate groups, clubs and individuals fundraising efforts, covering primarily Counties Down & Armagh and surrounding area.
- Identify and secure new business within your area.
- Increase engagement for the Alzheimer’s Society across our sub-region.
- Build trusted and professional relationships internally and externally.
- Recruit, manage and celebrate the value of our supporters and volunteers.

This is a homeworking or hybrid (Belfast BT15 3JL) role, however you will be required to regularly travel across the south of Northern Ireland to meet supporters and occasionally attend internal meetings and events at locations across the country, including our flagship offices in Belfast, London, Birmingham and Warrington. You must live within the NI South area or the surrounding areas. Costs will be reimbursed for travel for business purposes within NI South and outside this with prior approval.

About you
This role would suit someone looking to build and develop their fundraising career in a major national charity.

- Delivering amazing account management and develop integral and successful relationships.
- Looking out for new business opportunities across our region - from the first contact to pitch development and delivery.
- Collaborating closely with experienced team members, drawing on their expertise and support.
- Contributing positively to a team-focused culture to be a proactive and reliable team player.

Regional Fundraiser – Northern Ireland - South
Closing Date: 13th June 
Contract: This is a maternity cover for 12 months
Interviews: 18th June

We are looking for a driven and ambitious fundraiser to join our small but mighty fundraising team at a crucial period for the organisation as we find ourselves in the midpoint of our strategy period.

Since 2020 we have grown our income by 35%, refined our theory of change, invested in our digital and evaluation capabilities, secured multi-year funding and support from a series of well-respected funders and partners. This has laid solid foundations for future growth as we seek to revise our programmes, reaching the most vulnerable young people across London and Greater Manchester.  

Khulisa’s work continues to be known for putting well-being at the heart of positive change, transforming the lives of some of the UK's most vulnerable young people and supporting them to increase their wellbeing, self-esteem, enable educational inclusion. The highlights of the last year, include: 

• Supporting over 480 young people and adults 

• Surpassing £1.2 million in income 

• Significant improvements in Wellbeing being reported by 61% of our young people 

• 91% of our young people reporting feeling safe and not judged during our programmes 

We very much look forward to hearing from you and good luck! 

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Key Responsibilities 

• Trust Fundraising
• Prospecting – researching new trust and foundation opportunities
• Writing five-figure applications
• Managing a portfolio of 25-30 Trusts and Foundations
• Thanking – writing thank you letters, notes and confirmation receipts
• Banking – liaising with our colleagues in finance and supporters, to support receipt of funding
• Supporting the design of new thanking materials and a schedule of keeping supporters updated - thank you cards, seasonal messaging, reporting templates 
• Reporting – annually to donors, managing reporting schedule with Senior Fundraising Manager and colleagues in finance.
• Small trusts outreach and mailings.
• CRM: Updating our database on a weekly basis, data entry, updating current funders, payment schedules, agreements, building dashboards
• Monthly review of fundraising pipelines and opportunities, supporting the team with forecasting and their own pipeline management 
• Participating in cross team meetings with fundraising agenda’s - bid kick off meetings,  delivery/funders meetings, E&I, programmes.
• Finance – monthly reconciliation meeting.
• Logistics support for donor engagement days/meetings
• Managing case study bank and securing new case studies from the Programmes Team. 
• Team work and Administration
• Cross-team working – connecting with the programmes team on a regular basis
• Responding to all cross-organisational needs, including wellbeing surveys, attending team meetings and collaboration sessions
• Minute taking on a rolling basis across the team
• Preparing external meeting briefs
• Representing the organisation externally – conferences, networking etc.
• Contributing into fundraising reporting to Khulisa’s Board of Trustees 

Skills  

• Experience of writing clearly to communicate complex issues in a compelling manner 

• Strong ability to summarise text and key points, tailored to different audiences. 

• Strong written and verbal communication skills  

• Excellent eye for detail, strong systems and processes management skills 

• Ability to write reports in a concise, engaging and accessible manner 

• Strong people skills and willingness to work as part of a wider team 

• Ability to work independently using own initiative 

• Strong levels of comfort with using new, complex technology 

Diversity, Equity and Inclusion We are actively looking to recruit a diversity of talent. We embrace, respect and value the difference in our employees and believe that we and our work is better for it. We are committed to creating and maintaining an inclusive environment that consists of fairness, dignity, and caring for everyone, and one that enables every employee to flourish and realise their potential

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