Events and community officer jobs in bosham, west sussex

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Community Fundraising Manager

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Community Fundraising Manager to join our small and friendly fundraising team. You will be responsible for driving our strategy for Community Fundraising, Individual/Regular Giving and Events. With a database of around 100,000 registrants and 15,000 members, these existing income streams have lots of great potential. We have amazing fundraisers in our community who take on challenges like the London Marathon, London to Brighton bike ride, or their own swimming challenge and there’s lots of great potential amongst our supporters, including our committed members and regular givers.

Contract:  Permanent
Hours:  30 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £31,000 - £33,000 (pro rata)
Reports to: Head of Development 
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to events will also be required.
Closing date: midnight on Friday13th June
Interview dates: First-round interviews will be held on a rolling basis

Purpose of the role

• Grow a successful existing income stream (Fundraising Events and Regular Giving) and develop and grow a comparatively new income stream (Community Fundraising and Individual Giving) for Twins Trust. You will do this alongside other fundraisers in the team and with support from a Fundraising Officer.
• Lead and develop a multi-year strategy for growing our Community and Events programmes, with a well-planned calendar of events throughout the year covering different themes and geographies.
• Lead the strategy for our Individual/Regular Giving programme
• Lead on the creation, planning and delivery of a new Twins Trust owned mass participation fundraising event
• Provide strategic support and guidance to our Fundraising Officer to implement the annual raffle, ongoing Lottery programme and Individual Giving programme.
• Work closely with other teams across Fundraising, Membership and Communications to spot opportunities to maximise income and drive new projects forward
• Provide exceptional relationship management and stewardship to fundraisers in our community to make them feel appreciated, maximise income raised and encourage repeat fundraising

Ideal candidate

The ideal candidate will have demonstrable experience of developing and implementing a strategy for Community They will be able to demonstrate how they have delivered one or more of these income streams and grown these programmes significantly, providing excellent stewardship to fundraisers.

Person specification

Essential

• Significant experience of leading a 6 figure multi-year community fundraising strategy including forecasting and monitoring income and expenditure
• Experience of leading community, events, or Individual/Regular Giving fundraising - taking ownership and achieving growth in scale and income
• Experience of creating and delivering a new medium to large scale (£25k plus) fundraising event, maximising all commercial opportunities within it
• Excellent relationship building skills
• Ability to manage several projects at the same time
• Experience working in a CRM and analysing data to inform decision-making (Microsoft Dynamics experience a plus)
• Excellent communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Strong IT skills, including SharePoint and advanced Excel
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• Understanding of digital marketing
• An understanding of GDPR in relation to fundraising

Team: Community & Events

Location: Homebased with occasional travel

Work pattern: 35 hours per week, Monday to Friday

Salary: Up to £37,565.95 per annum

Contract: Fixed term for 18 months

We are the UK’s largest cat welfare charity. All over the country, our passionate employees, volunteers and supporters are using their kindness and expertise to make life better for millions of cats and the people who care for them.

Will you join us and make life better for cats?

Responsibilities of our Community Fundraising Programme Development Officer:

• This role will focus on supporting the implementation of the community fundraising programmes, working with colleagues across the Community and Events teams to develop consistent, efficient and effective ways of working.
• The post holder will work collaboratively with the Community Fundraising Programme Implementation Manager and National Community Fundraising Manager as well as colleagues from our Finance and Operations teams to project manage and deliver defined short-term projects to improve operational and financial management and support the implementation of the new National Community Hubs and wider Community & Events strategy.

About the Community & Events team:

• We sit within the Marketing & Income Generation directorate
• The National Community Fundraising team at Cats Protection has recently gone through transformative change, implementing a new community hub structure in six regions across the UK. Leading and enabling community led fundraising in their area, they raise circa £3.5million income per year, making a significant contribution to Cats Protection’s work to make life better for cats.

What we’re looking for in our Community Fundraising Programme Development Officer:

• Evidence of project management experience, including planning, organising and delivering projects from inception to completion within time and budget
• Experience of process improvement and reporting
• Strong organisational skills, ability to meet deadlines and work to targets and good project management skills
• Good working knowledge of transaction/contact database (preferably CARE NG and/or Microsoft Dynamics)
• Knowledge or understanding of Finance systems and processes

What we can offer you:

• range of health benefits
• 26 days’ annual leave plus bank holidays, increasing with length of service
• Salary Finance, which empowers you to take control of your financial wellbeing
• and much more, which you can learn about 

Interested? Here’s how to apply:

Please contact for a copy of the job description

Application closing date: 5th June 2025

Virtual interview date: 27th June 2025

Applications may close before the deadline, so please apply early to avoid disappointment. Please note, applications received after the closing date may not be responded to.

If you’re enthusiastic about this opportunity but your experience doesn’t align perfectly with every requirement, we encourage you to apply anyway and demonstrate how your experience is transferrable.  You may be just the right candidate. 

If successful, your recruitment journey will include:

1. Anonymised application form

2. Virtual interview via Microsoft Teams

Please note, the process may change slightly dependent on application numbers. We will inform you of any relevant changes.

Please email [email protected] if you require any adjustments to be made for you to complete your application or to participate in the recruitment journey

Are you passionate about helping people to do great things? Do you get a kick out of someone else’s joy as they reach their fundraising target?  Are you an excellent communicator online and on the phone? 

We are looking for a Community Fundraising Manager to develop our fundraising ambitions and work with our community.  

This is a varied and interesting role which will give you the opportunity to see your impact first-hand, as you will be interacting daily with people whose lives are affected by PANS or PANDAS.  You will also provide logistical and project management support on fundraising events. 

Our small community means that our fundraisers tend to be families affected by PANS or PANDAS.  We are passionate about creating opportunities for members of our community to support us in ways that create joy in their own lives.  We intend that fundraising activities and events should help tackle the isolation and other difficulties that are faced by those living with these complex and misunderstood conditions. 

Team: Community & Events

Location: Homebased with occasional travel

Work pattern: 35 hours per week, Monday to Friday

Salary: Up to £49,655.50 per annum

Contract: Fixed term for 18 months

We are the UK’s largest cat welfare charity. All over the country, our passionate employees, volunteers and supporters are using their kindness and expertise to make life better for millions of cats and the people who care for them.

Will you join us and make life better for cats?

Responsibilities of our Community Fundraising Programme Implementation Manager:

• The role will be responsible for reviewing and strengthening programme delivery across National Community Fundraising to increase long term engagement and net income contribution after the successful roll out of the community fundraising hubs in 2024.  Working in collaboration with internal stakeholders, the role will develop the key strategic programmes (Local Corporate Partnerships, DIY Fundraising, Fundraising Volunteers, Local Events & Small Trusts) within National Community Fundraising to enable volunteer and supporter led fundraising to flourish.
• The role will also lead, develop and motivate the National Community Fundraising Assistant and the Community Fundraising Programme Development Officer. The Community Fundraising Programme Development Officer is responsible for delivering short-term projects to improve operational and financial management, to support the implementation of the new National Community Hubs and wider Community & Events strategy.

About the Community & Events team:

• We sit within the Marketing & Income Generation directorate
• The National Community Fundraising team at Cats Protection has recently gone through transformative change, implementing a new community hub structure in six regions across the UK. Leading and enabling community led fundraising in their area, they raise circa £3.5million income per year, making a significant contribution to Cats Protection’s work to make life better for cats.

What we’re looking for in our Community Fundraising Programme Implementation Manager:

•  Community Fundraising experience at a senior level
• Programme / product management experience
• Line management experience with track record of developing individuals and leading a team
• Evidence of clear planning including setting objectives, implementation and demonstrable monitoring, review and evaluating skills
• Strong working knowledge of transaction/contact database (preferably CARE NG and/or Microsoft Dynamics)
• Detailed knowledge of the CIoF code of practice

What we can offer you:

• range of health benefits
• 26 days’ annual leave plus bank holidays, increasing with length of service
• Salary Finance, which empowers you to take control of your financial wellbeing
• and much more, which you can learn about 

Interested? Here’s how to apply:

Please contact for a copy of the job description

Application closing date: 5th June 2025

Virtual interview date: 23rd June 2025

Applications may close before the deadline, so please apply early to avoid disappointment. Please note, applications received after the closing date may not be responded to.

If successful, your recruitment journey will include:

1. Anonymised application form

2. Virtual interview via Microsoft Teams

Please note, the process may change slightly dependent on application numbers. We will inform you of any relevant changes.

The Movements Trust is a start up charity operating in the UK and elsewhere. Our mission is to increase the funding that reaches social movements working on a Just Transition. 

We're seeking someone who is enthusiastic, committed to movement building and campaigning, great at details and systems, and overall an effective team player in a remote setting.

Our new Movement Officer will - 

- Be the first point of contact for movement enquiries, monitoring our inbox and responding to queries

- Support movements, campaigners and activists make applications to the Trust for our sponsorship service or grants programmes,

- Work with the Team and our Board of Trustees to ensure movements are screened and on-boarded

- Work with the Team to ensure we develop excellent services for movements, as well as helping to develop more events and support for movement building, improve our communications, fundraising and overall management so that we can continue to grow! 

KEY SKILLS

Essential

• Good administrative skills, preferably within a charity setting 

• Experience of managing finances eg record keeping, processing and budgeting

• Understanding and/or experience of community organizing, activism, campaigning and/or movement building

• Good communications skills - able to meet movements and explain our services to them, and to bring movements together to share experiences

• Understanding and commitment to the objectives of the Trust eg Charitable standards, a ‘Just Transition’ and social movements 

Desirable

• Fundraising - either applying for grants, or grant distribution 

• Using social media and digital tools

• Communication and awareness raising techniques

London, South-East Coast, East Midlands & East of England

£51,481 per annum

Full-time, 35 hours per week

Permanent contract

Home based role living in any of the regions specified*

Join CSP’s successful Campaigns and Regional Engagement team

We have an exciting opportunity for an experienced communications professional to join our Campaigns and Regional Engagement team. You will assist in raising the profile of physiotherapy throughout London, the South-East Coast, the East Midlands and the East of England, and support our work to influence key stakeholders.

Through the development of effective communications, you will engage and inspire Chartered Society of Physiotherapy (CSP) members to promote the value of physiotherapy in their communities, whilst also building opportunities to increase the profession’s influence with local decision makers. The role also involves substantial input into CSP campaigns and events.

First class communication skills, confidence and self-motivation are essential attributes for this role, along with the ability to work effectively across team boundaries. Educated to degree level, or equivalent, you will also need expertise in at least one, and preferably several, of the following: stakeholder engagement, media and PR, online communications, video production, public affairs, writing for publications and event management.

*You must be able to travel within the regions specified and be willing to undertake some work in the evenings and on weekends. Homeworking is subject to meeting assessment requirements, which includes a minimum broadband speed of 18Mbps and a dedicated space to work from.

For an informal discussion about the role, please contact head office to arrange a discussion with Becca Bryant or Jennie Edmondson.

Why work for the CSP?

The CSP is the professional, educational and trade union body for the UK's 65,000 chartered physiotherapists, physiotherapy students and support workers; and one of the largest representative bodies in healthcare.

At the CSP, our goal is to create a culture characterised by innovation, respect, encouragement, passion and teamwork. We all strive for continuous improvement and to be the best at everything we do. We aspire to work in a way that embodies our values of learning, courage, inclusive and integrity. Our shared values are part of our organisational DNA, reflecting the expectations we have of ourselves and others. They guide what we do and how we do it, to have the greatest impact for our members. Please visit the website for further information.

We offer an excellent benefits package, including 27 days’ annual leave plus bank holidays (pro rata), Christmas office closure between 25 December to 01 January and generous pension scheme with 12% employer contribution.

To enable our employees to balance their individual, family and work-life, we would be happy to discuss flexible working arrangements with shortlisted candidates (subject to business needs).

To apply for the role please click on the ‘Apply online’ tab below and complete the online application form. CVs will not be accepted.

Closing date: 10am, 5 June 2025.

Interview date: 25 June 2025, in person at the CSP London office.

If you require any adjustments during the application stage, please email the Human Resources team at Head Office.

The CSP is committed to equity of opportunity, aiming to provide a working and learning environment free from discrimination. We are taking appropriate steps to create a workforce that reflects the diverse society in which we work and live in. Therefore, we particularly encourage applications from candidates under-represented in the CSP’s workforce, including those from Black, Asian and minority ethnic backgrounds, those with disabilities and LGBTQIA+ people. Please note, all candidates will be expected to actively demonstrate their commitment to Equity, Diversity, and Belonging throughout the application and interview stages. To view our equity, diversity and belonging strategy, please visit the website.

NO AGENCIES

The Community Engagement Officer is an essential role in fostering strong relationships with current and prospective members of the School Library Association community. The postholder will provide frontline support, drive online and in person engagement through outreach initiatives, and contribute to the growth and sustainability of the membership base. This is an exciting opportunity for someone passionate about school libraries, education, and community-building.

With a particular focus on coordinating and supporting our Branch network, you will collaborate on initiatives for development, delivery and new projects as they come online. You will be the first port of call for advice and expertise relating to school libraries and enabling our members to more effectively support their school communities. Supporting the delivery of online and in-person networking events and workshops for members, you will work with your SLA colleagues, in particular the Training and Events Officer, to deliver a high-quality member offer and to ensure member needs are reflected in all offerings. The ability to travel to training and events across the UK is essential. Duties include:

Branch network and member support

• Work with the CEO to develop the SLA Branch Network and accompanying strategies
• Identify opportunities for developing initiatives to grow and develop the Branch network community, that will deliver on the SLA mission
• Develop strong relationships with local, regional and national stakeholders to support network growth and enable members to take full advantage of all relevant opportunities available to them
• Provide advice for SLA members on all aspects of school libraries, ensuring they are supported and can be as effective as possible in their school communities 
• Drive engagement and development of online communities as part of the branch network

 Training and events

• Work with the Training and Events Coordinator to support and deliver a calendar of exciting, engaging and informative events
• Support the delivery of online and in-person networking events and workshops with a focus on the Branch network community
• Represent the association at relevant events and for programmes (e.g., conferences, webinars, book awards) to promote membership and services
• Support training and event delivery (online and in-person), engaging and inspiring audiences as needed
• Support development of training programmes, toolkits and resources using member insight to inform

Outreach and communications

• Coordinate the mentoring scheme and ensure it is promoted effectively, with necessary support and development available to mentees and training for mentors
• Use your sector insight to identify opportunities for development of research and other initiatives, maintaining links and horizon scanning
• Provide SLA consultancy aligned with strategic approaches, supporting schools with development of their libraries, reading and information literacy provision to help children and young people reach their full potential
• Contribute to SLA communications such as TSL, newsletters, updates, and promotional materials
• Oversee the book review process in support of TSL, our quarterly journal
• Supporting management of the SLA resource library, working with colleagues to ensure alignment
• Support outreach to new audiences

Building relationships and an ability to foster collaboration and community engagement will be an important part of this role. All team members contribute to office admin, maintaining member data and general office support.

To be successful in this role you should ideally be able to demonstrate:

· experience of working in school libraries, the education sector and a strong understanding of the education landscape

· clear understanding of the curriculum and teaching and learning outcomes

· knowledge of children and young people’s literature

· experience developing and delivering inspirational training, to small and large groups, both online and in person

· experience creating training resources, toolkits and teaching and learning resources

· ability to galvanise and inspire others with flair and creativity

· the ability to manage own workload, prioritise and meet competing deadlines

· the ability to work hours flexibly around event and training delivery

An expert communicator, you will be experienced in developing relationships with a variety of stakeholders at all levels. Experience of consultancy, schools’ engagement and outreach would be advantage.

The salary for this position is £19, 594.59 (FTE £29,000) for 25 hours per week, and comes with a 6% employer pension contribution.

We are open to discussing flexible working patterns, condensed hours or other arrangements we may not yet have thought of. This is a remote working role, with monthly all team meetings which you will be required to attend, in addition to training and events across the UK. Working patterns can be negotiated. We strongly encourage candidates of all different backgrounds and identities to apply. Each new role provides us with an opportunity for us to bring in a different perspective and  we are always eager to diversify our team. The SLA is committed to building an inclusive, supportive place, where you can do brilliant and rewarding work.

Why work for the School Library Association?

We are in an exciting period of growth in the history of the SLA, with a new CEO, coinciding with the opportunity to influence a new government. Plans to redevelop our offer are in progress and you will have the opportunity to influence new approaches and ways of working. We are a small, friendly team who support each other to deliver an excellent service to our members and passionately believe in the power of school libraries to transform children and young people’s personal, social and educational outcomes.

Annual Leave is 25 days plus bank holidays. We offer free mental health support and counselling sessions and brilliant discounts with a variety of retailers including up to 40% off Vue cinema tickets through our HR partner.

About the School Library Association

The School Library Association (SLA) is an independent charity and membership organisation that believes every pupil is entitled to effective school library provision. The SLA supports all those working in school libraries. We have been representing the school library sector for more than eighty-five years, with membership to the Association thought of as essential to all those who work in and around school libraries. Membership to the SLA provides training, support in advocating with senior leadership teams, incredible discounts and collegiate networking opportunities for everybody working in and with school libraries.

How to apply

To apply please send your CV and a covering letter (no more than one page) detailing the experience you have in relation to the job description, that you can bring to this role, and how your skills align with what we are looking for. Applications without a cover letter will not be considered. We truly appreciate all applications, but due to the volume we receive, we will not be able to provide individual feedback. No agencies please

Deadline: Monday 2nd June, 9am. Please note we will be actively interviewing for this role; if you are interested apply as soon as possible as we may close recruitment early if the right candidate is found.

We are recruiting a Digital Fundraising Assistant to assist in the delivery of our growing virtual events programme. 

This is an exciting new role which involves supporting delivery of a wide range of virtual events at Sands, in order to grow our fundraising income.  The role includes increasing Sands’ online presence across a range of channels through excellent stewardship of large audiences who are both warm and new supporters. 

You will ensure delivery of a world class supporter experience using an omnichannel approach, helping our supporters reach and exceed their fundraising targets.

Working with the Digital Fundraising Manager, you will monitor the everchanging virtual challenge environment and consider how best to adapt our activities in order to achieve financial targets and remain innovative and a leader within the sector.

You will have strong communication skills and enjoy building relationships, especially within online communities. Additionally, you will have an understanding of a wide range of social media channels and an interest in creating refreshing, inspiring content.

A highly organised and efficient approach is essential in order to respond to large quantities of enquiries across multiple channels. Excellent written communication skills are therefore essential.

Relevant experience in creating engaging video, image and written content for different social channels is also an essential requirement.

This post is home-based. There may be the need to support Sands events at weekends and/or evenings and working hours can be adjusted accordingly.

The role

As Partner Engagement Manager you will promote the work of Family Fund and maintain a positive profile within the disability sector in Northern Ireland and with key Government/political stakeholders.

You will undertake a range of public affairs and policy activities that help sustain and grow our government funding and that secure positive outcomes for disabled children and their families. You will be acknowledged as a senior Family Fund representative across the disability sector, deputising for the Group CEO, or Directors on committees and at events as required.

You will also identify growth/income opportunities and feed through to relevant internal teams, providing follow up support, as required.

If you join us, you’ll be:

• Ensuring that Family Fund’s profile remains high amongst key organisations.
• Engaging with Ministers and MLAs to building awareness and support for Family Fund’s work.
• Family Fund’s key point of contact for all partners and stakeholders in Northern Ireland.
• Engaging in sector working groups and consortia to help secure improved support for families raising disabled children.
• Inputting to government policy development via consultations and direct work with government departments.
• Promoting the support offered by Family Fund to support demand generation, including targeted work in relation to our Equity, Diversity and Inclusion objectives.
• Supporting our Fundraising Team in identifying and securing funding opportunities that allow Family Fund to provide improved grants/information and support services to families.

About you 

For this role you will need to have experience of presenting to external stakeholders and representing an organisation in a professional capacity. Ideally you will have some knowledge/experience of public affairs or policy development work.

To be successful in this role you will need to be self-motivated and be able to engage positively with different teams. You must be flexible, adaptable and resilient to work demands and change. This post is home based with regular travel.

About us

Family Fund is a great place to work for great people. We provide a challenging and rewarding working environment where every staff member can make their mark.

We are a values based organisation and we aim to show our values in all that we do. Read our staff stories here, and see how our staff display our values every day.

We commit to inclusion, equality and diversity and we welcome applications from all parts of the community. Family Fund is a Disability Confident Employer. We will invite to interview all disabled applicants who meet the requirements for the role. If you have a disability, and are happy to let us know, please highlight this in your covering letter.

How to apply

When you’re ready to apply, complete the online application form and submit a CV and a covering letter. Your letter will need to explain what skills and qualities you would bring to the team.

For more information, please read the job description on our website.

The successful candidate must complete pre-employment checks that meet the Baseline Personnel Security Standard. This includes a right to work check and employment history verification.

Information:

Closing date: Midnight on Tuesday 3 June 2025
Interview date: Friday 13 June 2025

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Fundraising Officer

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Fundraising Officer to join our small and friendly fundraising team. You will support the High Value Partnerships Manager and Community Fundraising Manager, both of which are already well-established income streams with lots of great potential. It’s a great opportunity to work across varied income streams including Corporate, Trusts & Grants, Community, Fundraising Events and Individual/Regular Giving.

Contract: Permanent
Hours:  37 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £24,000 - £27,000
Reports to: Community Fundraising Manager  
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to partner meetings/events will also be required.
Closing date: Sunday 8th June
Interview dates: First-round interviews will be virtual and take place in mid June

Purpose of the role

• Reporting to the High Value Partnerships Manager you will provide support across our two priority Fundraising streams – Community Fundraising (Community, Events and Individual/Regular Giving) and High Value Partnerships (Trusts, Grants, Corporate and Sponsorship).
• Conducting prospect research (Corporate and Trusts/Grants) creating a pipeline of targeted opportunities, and submitting applications for lower level funding
• Providing excellent relationship management to those in our community who fundraise for us, whether that’s as a Regular Giver or Marathon runner
• Providing support to the Manager planning Fundraising Events, recruiting participants, attending and cheering on our fundraisers and thanking our supporters
• Accountable for delivering our annual raffle and ongoing Lottery programme
• Support the wider Development team with admin relating to Fundraising

Ideal candidate

The ideal candidate will have experience either in supporting the delivery of High Value partnerships or Community Fundraising. They will be able to demonstrate how they have researched partnerships and/or submitted funding applications, providing excellent stewardship and creating meaningful partnerships that lead to long term support for the charity.

Person specification

Essential

• Experience of donor stewardship
• Excellent relationship building skills
• Ability to research and find vision aligned funders
• Ability to project manage the delivery of partnerships and/or events
• Excellent writing, communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Ability to multi-task and manage several different priorities at once
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• An understanding of GDPR in relation to fundraising
• Experience working in a CRM (Microsoft Dynamics experience a plus)

We’re looking for a well-organised person, with excellent attention to detail and a can-do attitude. You will enjoy undertaking a variety of work from project work to administration. You will have gained two-years work experience in grant making, so will be comfortable working with others and will feel confident using IT applications and databases.This role is remotely based, you’ll be in touch with the rest of the team on a daily basis, but you’ll also feel comfortable undertaking tasks yourself and will competently manage your own time.You will also have a passion for our values and our work. If this sounds like you, we’d love to hear from you!

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

Sands exists to save babies’ lives and ensure that anyone affected by pregnancy loss or baby death receives the support and care they need.

Bereaved parents and families are at the heart of why Sands exists. Sharing their experiences of pregnancy and baby loss, and what connects and involves them with our work, is both an important part of their bereavement journey and a way to demonstrate the need for our vision and mission to succeed. This role will help us to show in a real and human, authentic way, what Sands is doing to save babies’ lives and support bereaved families.

Sharing these personal stories in external communications will help us reach more people, bringing to life the work we do in a way that engages diverse audiences, and increasing the likelihood of their taking actions in support of Sands.  

This new role has been developed to support the Communications & Engagement team to develop our story-telling function, build our real stories library and ensure the associated consent and stewardship processes are compassionate, efficient and effective. The Stories Officer will ensure wherever possible, that external communications assets and content created by teams across Sands includes the voices of people touched by pregnancy and baby loss – including those who have been personally affected, and those who are allies of Sands, such as healthcare professionals, corporate partners, research partners, fundraisers and more.

You will have experience of working in a charity stories or communications team, or in a stories-led environment such as journalism.

A good knowledge of compliance and safeguarding issues, including experience of working with vulnerable people in a communications context is required.

With excellent written communication and creative skills, you will be able to produce work that captures and conveys real life experiences in a sensitive and compassionate tone.

You will be highly organised with the ability to multi-task and work across more than one project simultaneously.

Stories Officer
Remote working
£16,000 - £17,400 pa plus excellent benefits (FTE £25,000 - £29,000 pa)
21 hours per week (Mon - Weds)
Permanent, part-time job share

We are pleased to offer this role as a job share, working Monday, Tuesday and Wednesday. Previous applicants need not apply. 

The Stories Officer sits in the Marketing and Communications team and will focus on:

· Assist in managing storytelling requests from across RNID, providing vital support and crafting impactful and compelling narratives.

· You’ll be gathering and shaping powerful authentic stories that highlight the impact of RNID’s work, supporting RNID’s strategic goals.

· When you join us, you’ll dive straight into important campaigns like our Protect Your Hearing Campaign, helping to craft meaningful stories. You might find yourself out on location, capturing powerful stories firsthand from our amazing storytellers or coordinating a photo shoot featuring one of our celebrity supporters.

As Stories Officer, you will:

· Work closely with the Stories & Celebrity Manager, identify, interview, and write-up case study stories from people who are deaf, have hearing loss, or tinnitus to support RNID’s campaigns, media, and fundraising efforts.

· Manage and update our centralised database of case studies, celebrities, and influencers, ensuring all stories across the charity are recorded for effective stewardship. Maintain storyteller profiles, contact details, permissions, and consent forms while ensuring GDPR compliance in data collection and storage.

· Collaborate with PR, fundraising, digital, and campaigning teams to integrate storytelling into their work, identify their needs, and match case studies or celebrities to relevant projects.

· Support the development and delivery of storytelling content across multiple platforms, including social media, website, press, and marketing materials, ensuring content meets accessibility standards.

· Manage multiple internal and external storyteller requests.

We are looking for an individual with a passion for storytelling and a deep commitment to amplifying the voices of people who are deaf, have hearing loss or tinnitus.

You will have excellent writing skills, with experience in journalism, PR, or a similar field, and a strong ability to craft compelling narratives that engage and inspire. Your interviewing skills will be key, as you’ll need to connect with people from diverse backgrounds, ensuring they feel comfortable and confident sharing their stories.

Sensitivity and empathy will be essential as you capture authentic, impactful stories. In addition, you’ll be an exceptional multitasker, able to manage multiple storytelling requests and competing priorities with ease. Your proactive and creative approach will drive you to consistently find new ways to tell powerful stories that align with the charity’s mission and strategic goals.

If you are driven by the power of storytelling and want to make a real difference, we would love to hear from you.

We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus.

We work with our communities and partners across industry, government, charity, education and more to change life for the better. RNID has a proud history and big ambitions. We’re focused on making the greatest impact possible across the whole of the UK. We champion the latest technology and the opportunities it brings. We also know the value of a friendly face in local communities to support people where they need it most.

We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.

Closing date: 15 June 2025.