Events projects officer jobs in Birmingham

The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.

The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.

Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.

Responsible for:

Trusts and foundations:

• Identify and research trusts and foundations that would support our organisational priorities and funding needs
• Develop high quality, compelling grant applications and cases for support
• Build and maintain a healthy pipeline of funding opportunities
• Lead funder relationship management and deliver high-quality stewardship
• Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
• Working closely with technology and delivery teams to build evidence-based cases for support for key projects
• Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
• Attending external events and meetings to support our fundraising strategy and learning

Major donors:

• Identify and research potential major donors whose interests and capacity align with our mission
• Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
• Build and maintain a healthy pipeline of potential major donors
• Develop tailored engagement and stewardship plans approaches for each donor
• Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
• Lead major gift conversations and negotiations, including face-to-face meetings
• Provide high quality, personalised stewardship to major donors
• Identify opportunities to grow or repeat giving through deeper donor engagement
• Deliver exceptional stewardship to major donors

Individual giving

• Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
• Maintaining and monitoring our individual giving platforms
• Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements

Application instructions

• Submit your CV and one-page cover letter via CharityJob
• Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
• You must answer the screening question on the application page
• Applications without a cover letter or screening question will not be considered
• Applications due: 23:30 Wednesday 27 May
• First round interviews (online): 4/5 June 2026
• Final interviews (online or in person) 10/11 June 2026

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June. 

The Navigators is a Christian discipleshp charity working across the UK. We are seeking an organised and proactive Events Executive to provide maternity cover and lead the delivery of our key external events, including the National Conference and launch of our Alongside course.

The role involves co-ordinating event logistics, managing budgets, working closely with internal teams and helping ensure events are used effectively to engage people with our work and support the growth of a movment of 'Alongsiders'.

We offer a friendly and supportive team to work with, the opportunity to take responsibility for two high profile events based on solid foundations from previous successes and a competitive remuneration package.

We would ideally like to have a candidate working fully or hybrid from the Southampton Office. However we are willing to consider applications from exceptional candidates who would only be able to take the post working fully remotely from within the UK with the ability to travel to events. 

The attached candidate pack contains more details about our work, the role and the person description for this post.

Please note that there is an occupational requirement for the post holder to be a practicing Christian.

Salary: £15,600–£24,000 per annum (£26,000–£30,000 FTE equivalent)

Contract type: Permanent; part-time (3–4 days per week, 0.6–0.8 FTE)

Location: London, Birmingham or Bristol

Hybrid: Envision operates a hybrid working policy with one day per week in a regional office, plus ad-hoc travel across regions for events and training. 

Role: This is an exciting opportunity to play a central role in how Envision brings its mission to life — through well-run fundraising events and compelling communications that inspire supporters and put young people's stories front and centre. 

As Events and Communications Officer, you will take ownership of our annual events programme, including our flagship fundraising event, the Envision Cycling Challenge. From logistics and budget management through to post-event donor recognition and evaluation, you will oversee the full events lifecycle — always looking for ways to grow our offer, attract new supporters and drive income. You will work towards an annual income target as part of a collaborative and ambitious Philanthropy and Partnerships team. 

On the communications side, you will create written and visual content that conveys the impact of our work across social media, e-newsletters, impact reports and donor updates. Working closely with the Communications Manager, you will ensure our messaging is consistent, inspiring and reaches the right audiences — while also supporting internal communications that help connect and inform our teams across the organisation. 

This is a role for someone who is as comfortable crafting a compelling story as they are managing a complex event; someone who thrives on variety, takes pride in the details and genuinely cares about the young people at the heart of our work. 

Key Responsibilities: 

• Design, deliver and manage the annual events workplan, working towards an annual income target 

• Coordinate and run all fundraising events including the Envision Cycling Challenge, managing logistics, budgets, compliance and evaluation 

• Create compelling written and visual content for external and internal communications across multiple channels 

• Support the development and delivery of donor communications, impact reports and supporter updates 

• Track and report on events performance, supporter engagement and communications metrics 

• Maintain accurate donor records on Salesforce and support timely donor recognition processes 

Essential Experience, Knowledge and Competencies: 

• Experience of events planning and management for events of varying scale and different audiences 

• Experience of creating engaging communications content, including social media, newsletters and reports 

• Strong project management skills — highly organised, with the ability to work with initiative and manage multiple priorities 

• Demonstrable success in building and maintaining relationships with supporters or stakeholders 

• Strong attention to detail across both events delivery and written communications 

• Commitment to Envision's vision, mission and values 

Envision seeks to ensure we achieve diversity in our workforce and that all applicants and employees receive equal and fair treatment, regardless of age, race, gender, religion, sexual orientation, disability or nationality. We actively encourage applications from candidates from Black and Minority Ethnic backgrounds and from socio-economically disadvantaged backgrounds, as they are currently under-represented in our organisation. Envision graduates will be guaranteed a first-round interview. 

To apply, please submit your application via Charity Jobs. For an informal chat about the role, contact our Director of Philanthropy and Partnerships, Robyn, whose contact details can be found in the application pack.

Deadline — Midnight, Sunday 17th May 

Please note: 

• Applicants must have the right to work in the UK. Unfortunately we are unable to sponsor visas at this time. 

• We will only be contacting candidates who have been shortlisted for interview. If you do not hear from us, please assume your application has been unsuccessful. 

• Successful candidates will be subject to a full Enhanced DBS check and reference checks 

Mass Participation and Events Fundraising Lead

We are seeking an experienced leader to drive forward the development and implementation of the events and mass participation fundraising strategy.

Position: CE405 Mass Participation Lead

Location: Home-based, UK Nationwide. However, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)

Hours: Full-time, 35 hours per week

Salary: Circa £49,000 per annum (inner London weighting £3,950 per annum/pro rata or outer London weighting £2,457 per annum/pro rata may be applied in accordance with where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 5 June 2026 Midnight

Interview Date: 16 and 17 June 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

Reporting to the Head of Regional Fundraising this is an exciting role leading our ambitious vision for this area of our team. Worth currently over £2m annually we are looking to grow our income from third party and owned products and events.

You will provide strategic leadership to the Mass Participation team (2 direct reports and accountability for a further 6) as well as playing an active leadership role across the Regional Fundraising Team and Mass Engagement department, contributing to the wider directorate goals and objectives.

You will be an innovative thinker with the ability to review our existing programme, the wider market environment and identify opportunities for supporter acquisition, engagement, and retention. You will oversee a customer-centric approach where supporters receive an outstanding experience and feel proud of their continued contribution.

Key responsibilities will include:

· Developing strategy for events and mass participation products

· New fundraising product development

· Strategic leadership of a geographically dispersed team, embedding a culture of high performance

· Setting meaningful income and expenditure budgets and being able to accurately re-forecast putting action plans in place to mitigate shortfalls.

About You

We are looking for someone with experience of:

· Delivering targets with successful outcomes.

· Developing strategy for events and mass participation products

· Project planning and problem solving.

· Delivering formal presentations and public speaking.

· Budget development, planning and forecasting and an understanding of risk, mitigation and contingency planning.

· Achieving annual income and expenditure targets.

· Recruiting, managing, motivating, developing and training staff and/or volunteers.

· Analysing and interpreting data.

You will need a full driving licence and own vehicle (or can demonstrate that you meet the travel requirements of the role which include travelling extensively across the region/country).

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

Applications

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

You will be able to view the role profile when you apply.

Stroke Association

Finding strength through support

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of our supporters and donors that we can provide vital support. 

Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.

We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.

We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Mass Participation, Mass Participation Manager, Mass Participation Officer, Challenge Events, Events Lead, Fundraising Events Lead, Events Fundraiser, Events Fundraising, Regional Fundraiser, Supporter Engagement, Community Fundraiser, Participation, Individual Giving.

Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People

What does it take to lead the national voice for special schools at a time of real change?

Chief Executive Officer (CEO) – National Association of Special Schools (NASS)

National – home-based, with regular travel across England and Wales, particularly London

£90,000–£110,000 per annum

Full-time, permanent.

About NASS 

The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.

We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.

This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.

As our next Chief Executive, you will:

• Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
• Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
• Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
• Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
• Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
• Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
• Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
• Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
• A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
• A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
• A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
• A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
• Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
• Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
• Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
• Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.

Why NASS?

• This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
• You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
• NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
• The organisation offers a genuinely influential platform, with strong connections across the sector and with government.

Application

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.

Closing date for applications: 9am, Monday 8th June 2026

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Regional Development Officer (RDO) - Midlands 

Location: Midlands (home-based with travel and use of hot desk office in Midlands) 
Salary: £35,100 FTE (£18/hour £21,060) 
Contract: 2-year fixed term (22.5 hours/week) 
Reports to: National Fundraising & Development Manager 

This is not an administrative role. It is comparable to: 

• Regional Development Officer (charity sector)

• Community Development Officer

• Partnerships / Outreach Officer

• Network Growth or Membership Development roles

The role combines business development, community engagement, and programme delivery, with clear responsibility for growing Phab’s national footprint and reputation. 

Why this role matters  

This is a rare opportunity to build something meaningful from the ground up. 

You’ll be the person who brings Phab to new communities—connecting disabled and non-disabled people, creating life-changing social opportunities, and building a network of clubs that transform lives. 

We’re looking for someone who thrives on meeting people, spotting opportunities, and making things happen—someone who can walk into a room, inspire others, and leave with new partners, volunteers, and future club leaders excited to get involved. 

If you’re energised by purpose and disability-inclusion, love being out in the community, and want to play a key role in growing a national charity’s reach—this role is for you. 

Role Purpose  

To grow and strengthen the Phab network by: 

• Launching new Phab Clubs in underserved areas in the Midlands 

• Supporting and energising existing clubs

• Building strong regional relationships that drive participation, partnerships, and sustainability

A critical part of this role is identifying and supporting outstanding Club Leaders—the individuals who make clubs thrive. 

What success looks like (2-year targets) 

Year 1: Establish & Build Momentum 

• Launch 3–5 new Phab Clubs in priority areas

• Identify and develop a pipeline of future club leaders and volunteers

• Build relationships with local authorities, schools, disability organisations, and community groups

• Visit and engage with existing clubs in the region to strengthen relationships and identify growth opportunities

• Generate local funding or in-kind support for new and existing clubs

• Represent Phab at key regional events and networks

Year 2: Grow & Sustain 

• Support Year 1 clubs to become fully sustainable and independently run

• Launch an additional 3–5 new clubs or affiliate groups

• Increase membership and engagement across existing clubs

• Develop regional partnerships that provide ongoing referral pathways (e.g. professionals, services, schools)

• Contribute to income generation (grants, partnerships, training opportunities)

• Establish a strong regional identity and presence for Phab

Key Responsibilities  

1. Network Growth & Club Development 

• Identify areas of need and actively develop new Phab Clubs

• Recruit, mentor, and support Club Leaders and volunteer teams

• Set up clubs alongside the club leaders (venue, structure, governance, initial membership)

• Build relationships with professionals (e.g. SEND services, social workers, educators) who can refer members

• Reconnect with former Phab participants and supporters to re-engage them

2. Supporting Existing Clubs  

• Regularly visit and engage with existing clubs

• Identify challenges and opportunities, offering practical support

• Encourage growth in membership, activity quality, and sustainability

• Share best practice and connect clubs to wider opportunities (training, funding, events)

3. Community Engagement & Partnerships 

• Act as a visible, energetic ambassador for Phab

• Attend networking events and build strong regional relationships

• Develop partnerships with community organisations, corporates, and funders

• Promote Phab’s wider offer (Phab ACTS training, Phab Adventures, events)

4. Income & Sustainability 

• Identify and secure local funding opportunities

• Support clubs to access grants and sponsorship

• Contribute to Phab’s broader income generation strategy

5. Internal Collaboration & Delivery 

• Work closely with Marketing, Fundraising & Development, and Charity Support teams

• Use CRM (Beacon) to track engagement, contacts, and progress

• Contribute to planning and delivery of regional and national initiatives

Experience & Background  

We are looking for someone who has done this kind of work before, not just worked “in charity or business”. 

Essential experience: 

• Experience in community development, outreach, or network growth

• Proven track record of starting or growing initiatives, projects, or groups

• Experience building partnerships and engaging external stakeholders

• Experience recruiting, supporting, or managing volunteers or community leaders

• Experience working in or alongside disability, inclusion, or community services

• Knowledge of UK charity landscape and safeguarding/good practice

Desirable: 

• Experience setting up or running community groups, clubs, or programmes

Experience securing local funding or sponsorship

Equal Opportunities, Equity, Diversity & Inclusion

Phab is committed to creating an inclusive organisation where disabled and non-disabled people can thrive together as equals. We actively welcome applications from people of all backgrounds, lived experiences and identities, particularly disabled people and those who are underrepresented within the charity sector.

We believe diversity strengthens our organisation and helps us better support the communities we work alongside. Recruitment decisions are made based on skills, experience, values and potential, and we are committed to ensuring a fair and accessible recruitment process for all applicants. 

Reasonable adjustments will be offered throughout the recruitment process and during employment. If you require any adjustments to support your application or interview, please let us know. 

As a Regional Development Officer, you will play an important role in promoting inclusion, accessibility and equality across our network of clubs, projects and partnerships. 

Safeguarding Statement 

Phab is committed to safeguarding and promoting the welfare of children, young people and adults at risk. We expect all staff, volunteers and partners to share this commitment and to uphold a culture of safety, dignity and respect. 

The successful candidate will be required to work in line with Phab’s safeguarding policies and procedures and may be subject to an enhanced DBS check, depending on the nature of the role and responsibilities. 

We are looking for someone who shares our values of inclusion, respect, integrity and participation, and who is committed to helping create safe and welcoming environments for everyone involved in Phab activities.

Senior Administration Officer - FTC

When registering to this job board you will be redirected to the online application form. Please ensure that this is completed in full in order that your application can be reviewed.

Senior Administration Officer - ftc - 9 Months

Home-based – Working Remotely- London & South East

£25,101 per annum + £750 Home Working Allowance per annum + £4,184 London weighting per annum- (if eligible) 

Salary will be pro-rated based on a 9-month fixed-term contract

35 hours | Monday –Friday |  Fixed Term Contract - (9 Months)

Why Join TACT?

• Top 5 UK Charity to Work For (2024)
• 97% proud to work at TACT | 92% love working here
• Not-for-profit – every surplus reinvested into children, carers & staff
• Children’s voices shape every decision, system, and improvement we make at TACT.
• Flexible homeworking
• Trauma-informed, values-led organisation

Benefits

• 31 days annual leave + 8 bank holidays (pro rata as ftc)
• 45p per mile business mileage
• Stakeholder Pension (salary sacrifice)
• Family-friendly & flexible working policies
• Volunteer days

Wellbeing & Non-Salary Benefits

• Homeworking IT bundle + home office loan
• Help@Hand EAP (24/7 GP, CBT, physio, mental health support)
• Over 35 hours a year of access to on line wellbeing events and team wellbeing days
• Menopause Policy + free clinician appointments
• Regular team wellbeing & connection events

Training & Career Development

• Excellent learning & development programme
• Opportunity to grow therapeutic & trauma-informed practice
• Supportive leadership and clear career progression pathways
• Involvement in innovative projects (e.g. TACT Connect, Health, Education)

The Role

You’ll work closely with foster carers and social work colleagues to deliver high-quality, trauma-informed support and improve outcomes for children and young people. 

The Senior Admin Officer will be responsible for general administrative functions within the London & South East region and will report to the Administrative Manager.  In some instances, the Senior Admin Officer may be required to deputise for the Admin Manager in the post holder’s absence in relation to day to day matters.

The Senior Admin Officer will specialise in a particular area (s), such as Panels, statutory paperwork, minute-taking, training, and maintaining the in-house database (Charms). As a charity we are commited to ensuring that our resources are directed toward supporting our children.  For this reason, we can only consider applicants who live within the required geographical areas listed above, as supporting roles outside these areas would incur additional costs.

Key Responsibilities:

• Providing an administration service to the London & South-East region to help meet the service objectives of increased foster carer recruitment
• Organise and prepare all panel papers for approvals and reviews.
• Minute panels and prepare ADM paperwork
• Timely and accurate record keeping on Charms (in house system).
• Responding to telephone calls and allocating these to staff as appropriate. When necessary, take messages for staff members and ensure that these are passed on.
• Communicating professionally with a wide range of stakeholders, including colleagues, carers, and third-party agencies to establish professional working relationships which focus on the best outcomes for the children and young people in our care.
• Working flexibly within the team and autonomously as needed to manage your time and duties.

What You’ll Need

• GCSE in English & Maths or equivalent
• Experience of working in a busy administrative setting in a social care-related field.
• Ability to obtain, extract and analyse information from various systems.
• Confidence in using all Microsoft Office applications, including Outlook & OneDrive.
• Experience of using a software system to record, retrieve and maintain records
• Excellent communication skills to suit a broad range of professional relationships
• The ability to work to deadlines, with accuracy and flexibility, sometimes dealing with conflicting priorities
• Familiarity with handling confidential and sensitive information in line with relevant regulations and legislative requirements
• A tendency to think creatively, exhibit resourcefulness, work with enthusiasm, compassion, and commitment
• Evidence of an understanding and commitment to equality, diversity, and anti-discriminatory practices
• Enhanced DBS / PVG (processed by TACT)

Travel

• Home-based role
• Required to attend monthly face-to-face meetings and other occasional meetings in London and surrounding counties
• Additional travel for training, team and carer events

Key Dates

• Closing Date: Monday, 25th May 2026 (midnight)
• Interviews: Thursday, 4th June 2026 (Microsoft Teams)

Safeguarding Commitment

Safeguarding is everyone’s business, and TACT believes that only the people with the right skills and values should work in social work.  As part of TACT’s commitment to safeguarding, we properly examine the skills, experience, qualifications, and values of potential staff in relation to our work with vulnerable young children.  We use rigorous and consistent recruitment approaches to help safeguard TACT’s young people.  All our staff are expected to work in line with TACT’s safeguarding policies. 

Apply early - we may close the role if we receive a high volume of applications.

We are seeking an exceptional leader to be our next chief executive, leading a respected and influential membership organisation at the heart of a thriving grassroots movement.

You’ll be working to build on the success we’ve seen and strong position and voice we have established for ourselves and our members, as a leading force for inclusive and sustainable transport and communities.

You’ll bring an impressive track record in values-based leadership, a proven ability to engage and inspire grassroots change-makers, strategic partners and policy-makers, and a deep belief in the importance of community-led change towards a sustainable, equitable future.

About us

Community Rail Network is a national not-for-profit organisation, which is in the process of applying for charitable status, supporting a growing ‘community rail’ movement, which helps communities get the most from their railways, promotes sustainable and inclusive travel, coordinates volunteering and place-making, and brings people together.

Community rail is made up of 77 community-based organisations, and around 1,300 station volunteer groups and other community-led initiatives around Britain. Their activities range from creative projects for young people, to advising train operators on service improvements, to building travel confidence among marginalised groups, to biodiversity projects at stations, to promoting greener tourism by rail.

Our enthusiastic team of 24 works from home in dispersed locations, but we come together regularly in person and online. We work collaboratively to support members, provide training, events and resources, run campaigns, and champion community rail and its insights. We believe in helping everyone reach their potential while having a good work-life balance.

About this role, and your main responsibilities

Our current CEO is moving on after nine years in role, leaving the organisation, team and wider movement in a strong and empowered position to deliver on the next phase of our development.

Your opportunity is to lead the organisation, and to deliver on our new five-year strategy setting an ambitious course for the future during a period of major transformation for our railways and the wider transport system. You will ensure that we are:

• clear in our identity and our independence, and seen as thought leaders in our field;
• are supporting our members and stakeholders to meet their changing and diverse needs; and
• ensuring the financial and operational resilience of the organisation in an environment that is undergoing a period of rapid change.

As CEO, you will lead a passionate and experienced senior leadership team with three direct reports, while working closely with and reporting into our Board, key partners and funders, and ensuing an engaging, empowering, tenacious approach across all we do.

Advocacy of community rail and its benefits will be high on your agenda, and you will be working closely across multiple stakeholders including UK and devolved national governments, regional and local authorities as well as forging collaborative partnerships with like-minded organisations.

Maintaining our community-centric ethos, you will need to ensure we're effective in enabling members to unlock greater value from the railways at a grassroots level, while drawing on their insights to affect wider change. With hundreds of member groups and organisations across Britain delivering life-changing, place-enhancing work, you will have a solid foundation to build on, to take community rail forward and expand our impact in the years ahead.

Last, but not least, you will be responsible for ensuring the strong and effective governance of the organisation, modelling our governing principles, values and behaviours, and ensuring that we have robust financial and resource management in place.

Skills, competencies and qualities

1. Exceptional leadership skills, including a proven ability to lead, develop and grow third sector organisations or multi-faceted teams delivering complex activities, projects and campaigns;
2. Excellent communication and external leadership skills: articulate, assertive, with the ability to work diplomatically and persuasively with stakeholders at all levels;
3. Experienced in acting as the public face of an organisation, such as through the media, public speaking and high-level meetings, and using evidence and storytelling to articulate and champion a cause;
4. Politically astute, with knowledge of and commitment to social inclusion, social justice and sustainability, and a sound grasp of the importance of public transport, sustainable travel, and community-led action;
5. A proven ability to influence policy and decision-makers, and to identify influencing opportunities, ideally in relation to community development, sustainability and/or transport, including sharing community insights;
6. A strong track record in income generation and development, building strong funder relationships and delivery partnerships, managing programme or organisational budgets and controlling expenditure;
7. Experience of working with and/or reporting to a board, ideally in a not-for-profit and/or membership context;
8. An empowering, engaging approach to leadership, management and change-making;
9. Resilient, pragmatic and determined, with the ability to work under pressure, seize emergent opportunities, manage risk, and support others dealing with competing priorities.

Other information

The role will involve extensive travel within Britain as part of building your profile and that of the organisation with central and devolved government in Scotland and Wales, and increasingly with the devolved regions of England.

There is flexibility on location given the requirement to travel and that your office will be home-based. You will need to travel to in-person quarterly team meetings (usually in London or West Yorkshire) and to Board meetings which alternate between online and London. It is expected that travel will be by public transport and easy access to the rail network is therefore required to ensure journeys can be made sustainably. 

This is a full-time position, 37 hours per week. We use a flexi-time system with core hours 10am-3pm, and are committed to being a flexible, supportive and understanding employer. This is a permanent position with a probationary period of six months. 

Benefits: 25 days annual leave plus bank holidays (rising up to 30 days, plus Bank Holidays, in line with long service); pension with employer contribution of 7%; and access to Employee Assistance Programme.

Successful applicants will need to provide proof that they have the right to work in the UK and provide two references.

Community Rail Network is an equal opportunities employer. We welcome applications from disabled people and Black, Asian and other minoritised groups, who meet with the skills and competencies for this role. We will provide reasonable adjustments for interviews as required.

1. Overview

Cerebral Palsy Sport (CP Sport) is recruiting three Regional Programme Delivery Officers to support the delivery of the “Together We Can” Young Ambassador Programme across England.

This is an exciting opportunity to work directly with young people with cerebral palsy (CP), supporting them to build confidence, develop leadership skills, and lead social action within their communities.

These roles will be central to delivering a national programme across eight regional hubs, working closely with young people, partners, and communities to create meaningful and lasting impact.

2. Contract Details

Salary: £30,000 per annum

Hours: Full-time (35 hours per week) – part-time considered

Contract: Fixed-term until March 31st 2027 (with potential for extension, subject to funding)

Location: Home-based with regular travel across your region

Regions: North / Midlands / South

3. Role Purpose

You will be responsible for delivering the Young Ambassador Programme within your region, supporting young people aged 10–20 with CP to take part in training, social action, and community-based activity.

You will work closely with Young Ambassadors to:

· Develop their confidence and leadership

· Support them to plan and deliver activities

· Build partnerships across schools, sport, and health sectors

4. Key Responsibilities

Programme Delivery

· Lead delivery of the Young Ambassador Programme within your region

· Support the recruitment, onboarding, and engagement of Young Ambassadors

· Deliver or facilitate training sessions and group activities

· Support young people to co-design and deliver social action projects

Supporting Young Ambassadors

· Provide ongoing support, guidance, and encouragement

· Create a safe, inclusive, and engaging environment

· Support young people to develop confidence and leadership skills

Activity and Events

Support delivery of:

· School visits

· Community engagement activities

· Regional multisport events

· Awareness campaigns (including World CP Day)

These activities form a core part of the programme’s impact and youth-led delivery model.

Partnerships and Engagement

Build relationships with:

· Schools and education providers

· Health and medical professionals

· Sports clubs and community organisations

Support partners to engage with the programme and Young Ambassadors

Planning and Coordination

· Plan and coordinate regional delivery in line with programme timelines

· Manage logistics for sessions and events

· Maintain regular communication with the national team

Monitoring and Reporting

· Track attendance, activity, and engagement

· Collect feedback and evidence from delivery

· Contribute to programme reporting, including the 6-month progress report

Safeguarding and Compliance

· Ensure all delivery follows safeguarding policies and procedures

· Complete risk assessments for activities

· Maintain safe and inclusive delivery environments

5. Personal Specification

Essential

· Experience working with young people in community, youth, or sport settings

· Strong communication and relationship-building skills

· Ability to plan and deliver activities or programmes

· Organised and able to manage multiple priorities

· Ability to work independently and as part of a team

· Commitment to inclusion and supporting young people

Desirable

· Experience working with disabled young people or inclusive programmes

· Understanding of cerebral palsy or disability inclusion

· Experience working with schools, health professionals, or community partners

· Experience delivering training or workshops

6. Working Pattern

You will receive:

· Full induction and programme training

· Ongoing support from CP Sport’s national team

· Regular check-ins and supervision

· Opportunities for professional development

7. Safeguarding

CP Sport is committed to safeguarding and promoting the welfare of children and young people.

All staff will be required to:

· Complete safeguarding training

· Undergo an enhanced DBS check

· Follow all safeguarding policies and procedures

8. Recruitment Process 

We are looking for candidates who can start as soon as possible.

· Applications will be reviewed on a rolling basis

· Interviews will be scheduled as suitable candidates are identified

We encourage early applications.

Salary: £15,600–£18,000 per annum (£26,000–£30,000 FTE equivalent)

Contract type: 1-year fixed term (end date July 2027); part-time (3 days per week, 0.6 FTE) 

Location: London, Birmingham or Bristol

Hybrid: Envision operates a hybrid working policy with one day per week in a regional office, plus ad-hoc travel across regions for events and training. 

Role: This is an exciting opportunity to champion youth voice across Envision and support young people as they transition beyond our programmes. 

As Youth Engagement and Transitions Officer, you will lead and coordinate our Youth Advisory Group, ensuring young people have genuine influence over organisational priorities and decision-making. You will develop and maintain a thriving graduate and alumni network, creating opportunities for continued connection, mentoring and professional development. You will also design and deliver a Transitions Programme that supports young people as they move into education, employment or further opportunities, working with our Partnerships team to engage Envision's corporate partners where relevant. 

Youth voice will run through everything you do. Working closely with the Communications Manager, you will ensure young people's perspectives are authentically reflected across our communications - from social media and campaigns to case studies and co-created content. You will be part of the Programmes and Impact Team, collaborating with colleagues across London, Birmingham and Bristol to embed meaningful youth participation at every level of the organisation. 

Key Responsibilities: 

• Lead and coordinate the Youth Advisory Group and internal youth voice working group 

• Design and deliver a Transitions Programme and graduate/alumni network 

• Develop events, mentoring and networking initiatives for graduates 

• Support youth-focused communications including content creation and co-produced materials 

• Build relationships with partners and stakeholders to create opportunities for young people 

• Collect data and contribute to monitoring and evaluation of youth engagement activities 

Essential Experience, Knowledge and Competencies: 

• Experience facilitating activities with young people, including creating and co-creating engaging sessions and adapting to the needs of the group 

• Strong project management and organisational skills with the ability to manage your own time to meet deadlines 

• Experience working on projects with multiple stakeholders, communicating effectively in writing and verbally 

• Commitment to Envision's vision, mission and values 

Envision seeks to ensure we achieve diversity in our workforce and that all applicants and employees receive equal and fair treatment, regardless of age, race, gender, religion, sexual orientation, disability or nationality. We actively encourage applications from candidates from Black and Minority Ethnic backgrounds and from socio-economically disadvantaged backgrounds, as they are currently under-represented in our organisation. Envision graduates will be guaranteed a first-round interview. 

To apply, please submit your application via Charity Jobs.

Deadline — Midnight, Sunday 17th May 

Please note: 

• Applicants must have the right to work in the UK. Unfortunately we are unable to sponsor visas at this time. 

• We will only be contacting candidates who have been shortlisted for interview. If you do not hear from us, please assume your application has been unsuccessful. 

• Successful candidates will be subject to a full Enhanced DBS check and reference checks. 

About Adolescent Health Study

The Adolescent Health Study (AHS) (Registered Charity Number 1213337) is an ambitious new UKRI-funded initiative to establish a prospective, longitudinal population study that will generate a globally leading open science data platform and research resource. AHS aims to recruit at least 100,000 young people aged eight to 18 years from across the UK and to follow their mental and physical health and wellbeing over at least 10 years. It plans to collect data through questions and measures; to obtain bio-samples for a wide range of genomic and other high-throughput assays; and to capture linked data relevant to health and wellbeing from participants’ health, education and other administrative records.

There will be a strong emphasis on engaging with and involving young people, schools, parents and other relevant stakeholders in the design and delivery of the study, as well as on including young people that represent as wide as possible a range of backgrounds, experiences and characteristics. AHS will focus on enabling a wide range of research, including studies of the critical biological and social developments that occur during the transition from childhood to adulthood and the determinants of both mental and physical health and wellbeing in adolescents and young adults.

Purpose of the post

The Engagement and Involvement Lead will engage with young people, families, schools and other interest-holders in the process of designing, delivering and ensuring the best outputs from the Adolescent Health Study, and is critical for the success of the project.  We are at the early stages of laying the foundations for this and in this new role we are seeking an experienced and passionate individual to co-ordinate and lead AHS’s cross-UK participant and public involvement and engagement activities.

This is a role that requires high levels of confidence, autonomy, enthusiasm and skill. The postholder will be responsible for delivering the project’s new Engagement and Involvement Strategy, including:  coordinating a Young Persons’ Advisory Group for AHS; developing and delivering AHS public engagement and involvement activities; outsourcing and supervising engagement and involvement activities that are better provided by external partners; scoping and advising on which routes for involvement and engagement activities are best suited to different tasks. 

Main responsibilities

 Planning & strategy delivery

•  Ensuring the study delivers the values and approaches set out in the AHS engagement and involvement strategy
•  Planning, delivering and reporting on an ongoing, regular and important programme of engagement events and activities
•  Reviewing/revising/adding to existing policies, processes and procedures to support effective working together with people and communities (such as reimbursement, compensation, making reasonable adjustments)
•  Developing and implementing appropriate evaluation, monitoring and reporting of Community Engagement & Involvement
• Keeping up to date with good practice & sector advances and sharing these with the AHS team.

Practical engagement and involvement

• Developing methods to enhance engagement and involvement, and helping to build positive relationships with young people and stakeholder groups, including charities, third sector & advocacy groups
• Overseeing day-to-day planning & delivery of a high-quality engagement and involvement programme.  To include, for example:
  • Managing and supporting Youth Advisors
  • Running a standing Young People’s Advisory Group (YPAG)
  • Organising & delivering other ad hoc engagement activities as necessary
• Securing external partners where necessary, and managing contracts and delivery of their work across the UK
• Ensuring that any external parties (e.g. organisations, freelancers, consultants) supporting AHS’s involvement and engagement work have clear roles, responsibilities & goals
• Working with the Head of Communications to develop and manage provision of relevant information to members of the public, teachers, young people & researchers
• Keep clear records of involvement and engagement activities, ensuring results are used to inform the study and the wider research community.

Team support

• Checking for and capitalising on possible opportunities for engagement and involvement to be embedded in the work of the wider team
• Ensuring appropriate induction, training, mentoring and support is organised for the research team and communities involved
• Sharing examples of emerging good practice and impact across the research team.
• Line managing an Engagement and Involvement Officer

Wider

• Contributing to shared learning and future sustainability as part of wider communities of practice
• Acting as a key point of contact for community members and partners involved in the research
• Representing and presenting the AHS study’s engagement and involvement work to the wider research community at a senior level, including in national engagement & involvement networks as necessary.

Knowledge, skills and experience

 Essential criteria

Engagement and involvement

•  Experience developing and delivering engagement and involvement activities with young people and other relevant interest-holders (such as parents, families, teachers and schools)
•  A proven track record or professional background in working with young people – such as in youth work, counselling, mentoring, education, or a related setting
• Understanding and experience of good practice in youth engagement and involvement,  including the principles and implementation of safeguarding, data protection, and inclusive practice
• Awareness of culturally sensitive approaches and methods to be inclusive of all relevant perspectives, including  marginalised and vulnerable groups
• Ability to design and deliver workshops, focus groups or meetings that encourage open dialogue and collaboration
• Demonstrated commitment to youth participation and the meaningful inclusion of young people’s perspectives.

Other essential criteria

• Undergraduate degree or equivalent qualification in a relevant field
• Experience of successful project management and ability to deliver, working independently.
• Ability to manage a budget and report on financial activity accurately
• Ability to work collaboratively within a multi-disciplinary team, with experience of working alongside and influencing senior level professionals
• Research literacy, with a clear understanding of large UK-wide research initiatives and the various competing demands and pressures the study will face
• Excellent written and verbal communication skills - able to communicate effectively and confidently with a range of stakeholders and to summarise and report key information clearly and accurately, both verbally and in writing
• Confident using online tools (e.g. MS Teams, Zoom), and collaborative platforms (e.g. SharePoint, Microsoft 365)

Desirable criteria

• Relevant qualification in engagement and involvement
• Post-graduate degree or equivalent experience
• Understanding of key concepts and challenges in young people’s health and wellbeing and the transition to adulthood
• Familiarity with health research and data governance frameworks
• Understanding and knowledge of key potential partners across the UK for delivering youth engagement in the sector.
• Experience using digital engagement and facilitation tools for online workshops (e.g. Miro, Mural, Mentimeter, Canva, PowerPoint)

Dimensions

• This has been designed as a full-time role, although part-time work could be considered for the right candidate.
• Flexible working across several geographical locations in the UK.  Travel may be required to AHS locations and partner organisations.
• AHS is a national organisation, and our activities take place across the UK.

Application Process

This post is subject to receipt of satisfactory references, an enhanced DBS check and right to work in the UK (visa sponsorship is not available).

Please apply via CharityJob, making sure to answer the screening questions in full.

The closing date for this position is midnight on Sunday 31st May. 

 Interviews are currently expected to be held Wednesday 1st/Thursday 2nd July.

Equal Opportunities Policy Statement

AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. It is our policy to provide employment equality to all, irrespective of age, disability, gender identity or expression, marital or civil partnership status, pregnancy or maternity, race, religion or belief, sex, or sexual orientation.

Beyond these protected characteristics, we acknowledge the importance of socio-economic background, childcare and caring responsibilities, educational background, neurodiversity, and any other factors that shape an individual’s identity and opportunities. We strive to create an environment where all colleagues feel valued, supported, and able to contribute fully.

Values

It is an exciting time for the Adolescent Health Study (AHS) as we establish our senior leadership team and begin to plan the pilot studies. As the senior executive team evolves, the AHS values will be grounded in inclusivity, integrity, accountability, and collaboration. 

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.