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Page 1 of 24
Remote
£45,000 - £55,000 per year
Full-time
Permanent

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Job description

Fundraising Lead  
£45,000–£55,000 F/T 
Remote with regular travel 

About Metabolic Support 

Metabolic Support is the UK umbrella patient organisation for people living with Inherited Metabolic Disorders (IMDs) — rare, lifelong genetic conditions affecting around 40,000 people in the UK and 1.43 million worldwide. Since 1981 we have been at the forefront of rare disease advocacy, research and community support. 

About the Role 

This is a strategic, hands-on opportunity to lead our fundraising activity, drive sustainable income growth and position Metabolic Support as the leading international patient advocacy group for IMDs. Reporting to the Chief Executive, you'll shape and deliver an ambitious fundraising strategy, build relationships with trusts, foundations, corporates and major donors, and work across our small, agile team to embed fundraising principles into everything we do. The role has no direct reports but requires a collaborative, proactive approach and the confidence to work autonomously. 

Key Responsibilities 

  • Develop and deliver an integrated fundraising strategy covering corporate partnerships, individual giving, major donors, trusts and foundations, legacies, community and events 

  • Lead on high-value bids and build compelling donor propositions 

  • Manage donor stewardship, CRM (Nutshell), budgets and board reporting 

  • Instil fundraising principles across the team and maximise income opportunities organisation-wide 
     

About You 

  • Proven fundraising or income generation experience with expertise in at least one area: trusts and foundations, corporates or major donors 

  • Strong relationship-builder with excellent written and verbal communication skills 

  • Highly organised, self-starting and comfortable managing competing priorities 

  • Committed to Metabolic Support's mission; willing to travel in the UK and internationally 

Application resources
Organisation
Metabolic Support View profile Organisation type Registered Charity
Posted on: 22 June 2026
Closing date: 22 July 2026 at 10:00
Tags: Fundraising, Health / Medical, Community Fundraising

The client requests no contact from agencies or media sales.