The Information Manager is a pivotal senior role within The Migraine Trust—responsible for shaping and developing all health information produced by the organisation. This role ensures that our information is accurate, accessible, evidence‑based and meets the highest national standards, including oversight of our Patient Information Forum (PIF TICK) accreditation. The health information we produce covers a wide range of topics from migraine treatments, management of migraine, latest research and migraine triggers. There is also an ongoing need to scope new information needs and, where identified, produce new information. The depth of health information we currently have and will produce in the future ensures that this role will offer plenty of opportunities to work with a range of stakeholders on a variety of information topics. We currently hold PIF TICK certification, which will be part of this role to maintain. You will help us maintain the quality of our health information and ensure that we comply with the charity’s writing style and branding.
Acting as the charity’s subject‑matter expert on migraine information, the postholder plays a vital strategic role in influencing organisational priorities, ensuring the public, healthcare professionals, policymakers and wider stakeholders have access to accurate, impactful and up‑to‑date content.
This role directly contributes to the Trust’s strategic ambitions by:
- Strengthening public understanding of migraine
- Reducing stigma and misinformation
- Improving healthcare navigation and outcomes
- Supporting clinical and policy change
- Enhancing organisational reach
Key tasks and responsibilities
Producing and maintaining quality information
Manage The Migraine Trust’s provision of health information in line with the charity’s annual planning cycle and the PIF TICK accreditation. This will include: -
· Lead The Migraine Trust’s health information portfolio, ensuring alignment to annual plans, organisational strategy, and PIF TICK quality standards
· Manage the full lifecycle of health information—from scoping and research to writing, expert review, design and publication
· Reviewing and updating existing information content, ensuring it is accurate, up-to-date, accessible and produced in consultation with service users and people with lived experience, relevant medical advisors, health care professionals, the charity’s staff and other relevant specialists and organisations when appropriate
· Identify emerging gaps in information and lead the development of new materials
· Identify and engage with target groups identified in our three year strategy to identify need and produce associated materials
· Support staffs learning and build knowledge of migraine
Build key strategic partnerships to assist us in disseminating information on migraine.
· Champion the use of world class health information within the organisation, as well as displaying a high level of expertise around all our health information content
· Build and maintain strategic partnerships with healthcare professionals, professional bodies, and charity sector organisations to increase reach and influence
· Represent the charity externally as a health information expert at conferences and events
· Help to support our busy communications team to help provide messaging content for videos, blogs, responses to media requests etc
· Take responsibility for the provision of printed information materials to ensure we can continue to provide resources to suit demand, in a cost-effective manner
· Work with the communications team to identify creative and accessible ways to disseminate our information to a variety of audience
· Work closely with our valued volunteer group to gain feedback and direction on all aspects of our health information
· Explore opportunities of coproduction with other charities to further our reach
Support the evaluation and impact reporting of our information provision by regularly monitoring its use using a variety of evaluation methods and produce timely and accurate reports for both internal and external use.
· Updating and maintaining the health information web pages
· Lead the monitoring and evaluation of all health information outputs
· Produce impact reports and insights to inform strategic decision‑making, fundraising proposals, research priorities and service development
· Maintain and continuously improve data‑driven approaches to evaluating reach, accessibility and effectiveness of health information
· Keep up to date with relevant information and research on migraine
· Work with external suppliers such as designers, printers
Research
A very small aspect of this role is to be the focal point for our research administration which will include:
· Being the key point of communication and support for the research committee
· Manage administrative duties relating to new applications for research funding and current grant holders
· Co-ordinate and send out papers for research meetings (once a year maximum)
· Liaising with researchers funded by the charity and ensuring project reporting is up to date
· Liaise with the AMRC as and when appropriate
Other
· Represent the charity at appropriate external events for both the public and healthcare professionals
· Build relationships with healthcare professionals, external stakeholders and members of our community
· You may be asked to work outside of office hours or travel within the UK
· Be a supportive and participatory senior member of the team
· Abide by the charity’s policies, practices and core values
· Support diversity and equality of opportunity in the workplace.
-
- nsuring project reporting is up to date
- Liaise with the AMRC as and when appropriate
The client requests no contact from agencies or media sales.
Thank you!
Position: Community Support Senior Officer x 3
Type: Full-time (35 hours a week), permanent
Location: Homebased (1 x with access to North West England, 1 x with access to East Midlands and 1 x with access to West Midlands). Must have access to a car with clean driving licence
Salary: Starting from £33,044 per annum plus excellent benefits
Salary Band and Job Family: Band 2, Charity
You’ll start at our entry point salary of £ 33,044 per annum, increasing to £35,109 after 6 months service and satisfactory performance and to £37,174 after a further 6 months.
About us
We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.
Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.
Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.
Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.
About this job
Join us as a Community Support Senior Officer and make a real difference!
In this pivotal role, you’ll provide high-quality support to volunteers, volunteer managers, and service providers across our community networks. You’ll help ensure enquiries are resolved promptly, guide volunteers through their journey, and work collaboratively to maintain well-governed, compliant groups that meet local needs. If you’re passionate about empowering volunteers, skilled in communication and planning, and eager to contribute to positive change for people affected by MS, we’d love to hear from you.
Please note, you must have access to car with a clean driving licence for this role.
Closing date for applications: 9:00 on Monday 5 January 2026
We anticipate interviews will take place week commencing 12th January 2026.
Interested?
PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.
Equal Opportunities
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.
We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application.
Disability Confident Employer
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.
You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.
If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.
More about our employee benefits:
We have a wide range of employee benefits including (but not limited to):
Encouraging work life balance
- 38 days paid annual leave (including bank holidays), pro-rata for part-time
- More annual leave entitlement, based on length of employment
- Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us)
- Flexible working options
Caring for you and your family
- Generous sick pay entitlement
- More sick pay entitlement, based on length of employment
- Opportunity to buy and sell annual leave in each calendar year
- Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis
- Enhanced leave for new parents
- Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
- Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
- 10 days paid disability leave a year, pro-rata for part-time
- 10 days paid carers’ leave a year, pro-rata for part-time
- Cycle to work scheme
- Death in service scheme
- New family-friendly benefits, including paid leave:
- In the event of miscarriage or still birth
- To support fertility treatments
- For antenatal appointments for both parents
Thinking about your finances
- Enhanced salary sacrifice pension scheme
- Discounted season ticket loan and interest-free emergency loans
- Give as you earn to support other charities of your choice before tax
- New employee portal including lifestyle savings vouchers and personal wellbeing
Enriching your life at work
- Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
- Yearly internal apprenticeship opportunities
- New, modern offices that embrace working together both in-person and remotely
- Various opportunities to influence how we internally operate (including surveys, and focus and committee groups)
- Active and supportive internal employee networking groups for collaboration and peer support
- 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community)
- 2 days paid leave a year for volunteering with other charities during normal
Safeguarding
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.
This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.
We recognise our particular responsibility to make sure vulnerable adults and children are protected.
We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.
Your right to work in the UK
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.
You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.
No agencies please.
Registered Charity
101 - 500
To fund world-leading research, share the latest information and campaign for everyone's rights. Together we are a community. Together we can stop MS