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Top job
Genetic Alliance UK, Remote
£55,167 - £63,654 per year
Director of Engagement and Impact
Posted 3 days ago
Women's Resource Centre, London (On-site)
£45,000 per year
Posted 2 weeks ago
Closing in 6 days
Harris Hill Charity Recruitment Specialists, Remote
£60k per year
Posted 2 weeks ago Apply Now
PSS (UK), Multiple Locations (Hybrid)
£45,000 per year
Are you passionate about making sure people have a voice, a choice when it comes to their care and make a big impact?
Posted 2 weeks ago
Closing in 5 days
Stewardship, EC1Y, London (Hybrid)
£60,000 per year
Seeking an inspiring and strategic leader to head our Philanthropy Fund service.
Posted 4 days ago
Closing in 2 days
Scottys Little Soldiers, Remote
£39,000 - £45,000 per year
To drive Scotty's mission by securing transformative, long-term grant partnerships, empowering us to support bereaved military families. 
Posted 2 weeks ago
Target Housing Ltd, Rotherham (Hybrid)
£53,100 per year
Seeking a strategic, values-led leader to drive impact across our asylum support service. Help shape safe, dignified, quality housing
Posted 1 week ago Apply Now
Royal Commonwealth Society, London (On-site)
£42,000 per year
Posted 1 week ago
Closing in 5 days
Midland Heart, Birmingham (On-site)
£90,306 per annum
Posted 1 week ago
Closing in 2 days
The UK Committee for UNICEF (UNICEF UK), Multiple Locations (Hybrid)
Circa £67,000 per annum
This is a great opportunity to join the UK Committee for UNICEF (UNICEF UK) as Head of Corporate Partnerships – Business Development.
Posted 5 days ago
Sovereign Network Group, Multiple Locations (Hybrid)
£68,000 - £83,000 per year
A fantastic opportunity to join SNG as Head of Tenancy Sustainment, developing our strategy to support customers throughout their tenancy!
Posted 1 week ago
The Geological Society of London, London (Hybrid)
£50,000 - £55,000 per year
Posted 2 weeks ago
Saïd Business School, Oxford, Oxfordshire (Hybrid)
£48,235 - £57,255 pa
Posted 6 days ago
Page 2 of 16
Remote
£55,167 - £63,654 per year
Full-time
Permanent
Job description

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

  • Lead and develop our approach to engaging and supporting our diverse membership.

  • Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

  • Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

  • Generous pension (5% employer, 3% employee)

  • 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

  • Flexible, home-based working with occasional UK travel. 

  • The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions

Application resources
Posted by
Genetic Alliance UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 24 August 2025
Closing date: 22 September 2025 at 09:00
Tags: Communications, Strategy

The client requests no contact from agencies or media sales.