Health information officer jobs

Job title: Health and well-being specialist cancer nurse
Department: Support Services Team
Reports to: Support Service Lead
Location: Remote (UK travel required)
Mandatory staff meeting days in person: 2 days x 4 times a year.
Clearance required: DBS check
Essential: current NMC registration with no restrictions or caution order.
Part-time: 3 days (22.5 hours) per week
Salary: £36,750 full time equivalent (pro-rata £22,050 for 3 days per year)

About Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a small patient-centric organisation with a wide reach and clear mission: to support and inform patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating neuroendocrine cancer research, increasing national awareness, and influencing improvements in outcomes.

Our vision is for a world in which people know how to recognise, diagnose, treat, care for, and cure patients with neuroendocrine cancer. 

We are a Charity driven by strong values of equity, excellence, collaboration, honesty, transparency and integrity.

Job Purpose:
To provide specialist support to individuals affected by neuroendocrine cancer—including patients, families, carers, and health and social care professionals—through expert nursing advice, psychosocial support, and the provision of dedicated advocacy and self-management services.

• To deliver accurate, evidence-based information and guidance on neuroendocrine cancer.
• To advise on self-care and promote physical and mental well-being, including appropriate escalation pathways (e.g., GP, CNS/CPN, clinical team, emergency services).
• To contribute to the delivery of direct care and support services, including the national helpline, support groups, and access to counselling and therapy.

This is a unique and rewarding opportunity to apply your clinical expertise in a broader context: you’ll play a central part in shaping the patient experience and in realising our shared vision in promoting equity and excellence across all aspects of care.

Key Responsibilities

• Assess and respond to information and support needs.
• Apply clinical expertise to deliver evidence-based nursing care for individuals affected by neuroendocrine cancer.
• Provide empathetic and informed telephone support.
• Advocate for patients and families, ensuring access to appropriate information and support services.
• Coordinate and facilitate patient support groups (online and in-person) and facilitator support.
• Deliver health promotion and harm reduction interventions that empower self-care and autonomy.
• Co-produce accessible, high-quality information resources.
• Maintain accurate and timely records in line with service protocols and NMC standards.
• Uphold the NMC Code of Conduct and stay informed on relevant policies and professional developments.
• Demonstrate professionalism and integrity in all aspects of work.
• Engage in ongoing professional development, including clinical supervision, appraisals, and training.
• Contribute to internal training and external consultancy teaching events.
• Foster effective communication across NCUK staff, clients, partners, and stakeholders.
• Collaborate effectively with NHS, social care, and charity partners to promote integrated, person-centred care and support joint working initiatives.
• Represent NCUK in internal and external working groups, contributing to plans and reports.
• Support engagement with national and local research projects, as appropriate.
• Adhere to internal policies and contribute to service reviews and improvement initiatives.
• Lead specific projects as assigned by the Service Lead or CEO.
• Provide data and insights for strategic planning, service evaluation, and framework development.
• Participate in and support clinical audits, implementing improvements where needed.
• Ensure service alignment with external policies, guidelines, and strategic targets.
• Comply with all relevant legislation, policies, and best practice guidelines.
• Embody and promote NCUK workplace values, serving as a positive ambassador for the organisation.

Other Duties
The post holder will operate within a dynamic and evolving environment and may be required to undertake additional responsibilities to support the effective functioning of Neuroendocrine Cancer UK.

Requirements

• Must have a current NMC registration with no restrictions on their practice or caution order attachment.
• Min 5-year post reg. experience, within a clinically relevant field: including caseload management
• Be able to provide at least two professional references from your last place of work as a nurse or midwife.
• Please note that a Disclosure and Barring Service (DBS) check will be required.
• Demonstrate a willingness to attend all mandatory training relevant to their role
• Must be flexible to work locally or remotely, and willing to travel to attend support groups, conferences, and events.
• Minimum 1 day/week helpline +/- cover as needed.
• Mandatory staff meeting days in the office (Leamington Spa) 4 times a year.

Administrative Skills

• Proficient in Microsoft 365 Office applications
• Proficient in accurately entering complex data into secure electronic systems.
• Be able to demonstrate full awareness and compliance with legal and professional requirements (e.g., GDPR, NMC), reporting appropriate concerns through line management to the Data Protection Officer.

Professional Experience & Knowledge

• Demonstrable knowledge and experience within relevant clinical speciality.
• Experience working with individuals affected by cancer, including neuroendocrine cancers and/or other life-limiting conditions
• Skilled in engaging with patients' families and support networks
• Proven ability to assess healthcare needs and implement best practices for physical and psychosocial well-being support via telephone or in-person.
• Experience of coordinating and managing patient care: including addressing safeguarding issues
• Demonstrate a collaborative approach across multidisciplinary teams and organisational boundaries
• Strong verbal and written communication skills
• Experienced in delivering training, teaching, and facilitating group work
• Demonstrate commitment to ongoing professional development
• Effective problem-solving and change management capabilities
• Understanding of resource management, health and safety, clinical risk and quality issues.
• Familiar with audit processes and principles
• Competent in prioritisation, delegation and workload management
• Awareness and management of stress in self and others

Why work with us?

• Be part of a small, passionate, and values-driven team making a tangible difference.
• Receive support for professional development, training, and personal growth.
• Enjoy a remote and flexible working environment.
• There is the potential, pending experience and performance, to progress to support service lead.

About the Anne Robson Trust

The Anne Robson Trust exists to improve the experience of dying for patients and those close to them. We help people talk more openly about death, and we work with healthcare organisations to provide companionship and comfort in the final days of life.

About the Role

This role provides essential administrative and organisational support to our Healthcare team - with a particular focus on supporting the Head of Healthcare Partnerships and Development in her day-to-day work. You’ll keep things running smoothly: organising meetings, preparing documents, managing follow-ups, coordinating data, and helping ensure our volunteer services and those across our NHS and community partners are consistent, engaged, and well supported. It’s a busy, varied role that suits someone who enjoys structure, detail, data analysis and engaging with stakeholders. As the charity grows, there may be opportunities to take on more project coordination responsibilities. 

Key Responsibilities

PA & Team Support

• Proactive support for the Head of Healthcare Partnerships and Development: diary planning, follow-up, inbox and document creation and organisation
• Track actions and deadlines; keep information well-structured
• Prepare agendas, papers and notes for internal/external meetings

Coordination & Partner Support

• First-line administrative support for coordinators and partner teams
• Schedule and attend coordinator calls; maintain partner timelines and updates
• Administer volunteer records, onboarding and general service coordination
• Keep digital records accurate and up to date

Data, Monitoring & Reporting

• Collect, check and collate monthly service data
• Maintain spreadsheets, logs and worksheets
• Support data analysis and prepare summaries and dashboards

Training & Induction Support

• Organise logistics for online and in-person training sessions
• Keep training materials up to date, support evaluation and follow-up
• Prepare resources and assist facilitators during sessions

Research & Project Support

• Support with development and completion of project management tools
• Desk based research on local context and partner information
• Support planning and coordination for pilot projects: schedules, trackers, documentation Provide project support and help during the development of new services

Communications & Materials

• Produce clear documents, visuals and slide decks (Word, PowerPoint, Canva)
• Draft concise written updates for partners and internal use
• Maintain organised shared files and resources

Person Specification

• Essential Strong administrative and project support experience
• Excellent organisation, accuracy and attention to detail
• High digital confidence (Excel, Word, PowerPoint, online systems)
• Experience maintaining data and spreadsheets
• Clear written communication and ability to create simple visuals
• Calm, supportive communication style with partners and colleagues
• Ability to organise and prioritise own workload
• Solution focussed approach to challenges
• Team player with the ability and initiative to work unsupervised

Desirable

• Experience of working in the charity, statutory or health sector
• Experience supporting training or adult learning sessions
• Familiarity with volunteer-involving services
• Understanding of end-of-life care, or a willingness to learn

Personal Attributes

• Empathetic and emotionally intelligent
• Takes ownership of practical tasks and contributes positively to the team dynamic
• Practical, proactive and solutions-focused
• Reliable, organised, and steady under pressure
• Collaborative, grounded and aligned with our mission

Equality, Diversity and Inclusion The Anne Robson Trust is committed to equality, diversity and inclusion and welcomes applications from all backgrounds. We particularly encourage applications from underrepresented groups within the charity sector. We’re committed to ensuring that everyone’s contribution is valued and that our recruitment processes are fair and inclusive.

Mind in Croydon is seeking to recruit a full time Independent Mental Health Advocate (IMHA)  to join our small, dedicated team of Independent Mental Health Advocates working to provide advocacy services to adults subjected to detention under the Mental Health Act in the London Borough of Croydon to ensure they understand, express and exercise their rights, and to enable them to access essential services. The advocacy team also provides Community Mental Health Advocacy for people who are informal patients in psychiatric hospital or living in the community and provides weekly advocacy service at two InMind Healthcare Group hospitals in Croydon.

This role is suitable for a fully qualified Independent Mental Health Advocate (IMHA) with a proven ability to support people under the Mental Health Act. We are not considering trainee positions at this time.

In December 2024 the team was awarded the Quality Performance Mark in Advocacy, a testament to their quality of service providing safe and life-changing support.

SALARY:                          £30,404 per annum
                                         plus pension contributions (above 4% by salary sacrifice)

REPORTS TO:                 Advocate Service Manager     

TERM:                              Permanent, subject to funding, full time (36 hours pw)

BASED AT:                       Bethlem Royal Hospital, Beckenham BR3 3BX. Advocates are also required to meet clients at different sites throughout Croydon and neighbouring boroughs.

This role supports hybrid working. Other flexible arrangements can be discussed however please note that specific flexible working arrangements such as staggered hours may not be feasible due to operational constraints set by the Hospital.

About the Project

The National Lottery funded Meddwl Ymlaen Mind Our Future project is led by The Venture on behalf of the North East Wales partnership. The aim is to empower young people aged 11 to 24 to shape mental health services across Wrexham and Flintshire. Young people will co develop and influence policy, processes and services that affect their mental wellbeing.

Overview of the Role

The Senior Youth Engagement Officer will lead the youth engagement and co production elements of the project. A key part of the role is to lead and facilitate the Young Leaders Advisory Board (YLAB), made up of 11 to 24 year olds who guide the direction of the project. The post holder will support their leadership development, confidence and decision making.

The role also includes developing a strategy to recruit and engage more young people, delivering a calendar of youth led events, and ensuring young voices shape all aspects of the project. The officer will represent Mind Our Future in meetings with stakeholders and support young people recruited into paid roles within the project.

Main Duties

• Lead and facilitate the YLAB, plan and chair meetings, and support members to take an active leadership role.
• Recruit and engage a diverse group of young people to join the YLAB and ensure the group reflects the communities of Wrexham and Flintshire.
• Provide mentoring, coaching and personal development opportunities for young people involved.
• Co design project activities with young people, ensuring their voices guide decisions, planning and evaluation.
• Organise workshops, events and activities and ensure all logistics are managed effectively.
• Build strong relationships with stakeholders and communicate project updates.
• Recruit and support young people in paid roles within the project, including training, mentoring and ongoing support.
• Act as the designated safeguarding lead for the project including implementing safeguarding procedures, providing guidance, and liaising with authorities when required.
• Contribute to overall project success through planning, evaluation and collaborative teamwork.
• Maintain high standards of professionalism, confidentiality and equality across all work.

Person Specification

Qualifications

Essential
• Minimum Level 3 qualification in Youth Work
• Clean UK driving licence
• Level 3 safeguarding children in Wales qualification
• Significant experience in a Safeguarding Lead or equivalent role

Desirable
• Diploma or degree in mental health, particularly relating to children and young people
• Health and Safety training

Skills and Abilities

Essential
• Strong communication skills in English
• Experience working with young people and young adults
• Empathy and ability to connect with young people
• Strong verbal and written communication skills
• Excellent planning and organisational skills
• Good IT skills including digital communication and online working
• Ability to produce quality reports and presentations
• Ability to engage effectively with stakeholders and motivate young people
• Ability to work collaboratively and create a positive environment
• Ability to travel throughout Wrexham, Flintshire and occasionally across Wales
• Ability to meet deadlines and targets

Desirable
• Welsh language skills
• Ability to adapt communication styles for different needs (for example Makaton)

Experience and Knowledge

Essential
• Significant safeguarding experience
• Knowledge of youth work and youth development
• Understanding of monitoring and evaluation in a youth work setting
• Awareness of youth sub cultures and social media
• Experience of youth participation or consultation
• Understanding of professional boundaries
• Experience implementing Health and Safety and Equalities processes
• Knowledge of Youth Work in Wales: Principles and Purposes and related frameworks
• Knowledge of Data Protection and GDPR
• Understanding of the importance of Welsh language and culture

Desirable
• Experience of co production
• Experience working with diverse groups of young people
• Experience working with varied abilities
• Partnership working experience
• Project management experience or transferable skills

Personal Qualities

Essential
• Trustworthiness
• Commitment to professional development
• Commitment to equality and challenging discrimination
• Integrity, discretion and strong personal drive
• Ability to problem solve and work under pressure
• Compassion and patience
• Strong interpersonal and listening skills
• Genuine care for supporting others
• Fun, engaging and adventurous attitude

Other Requirements

• Ability to carry equipment between locations
• Frequent evening and weekend work will be required
• Enhanced DBS check required

Senior Practice Tutor

Join our team as a Senior Practice Tutor and make a difference to children and young people’s lives

Anna Freud is seeking a Senior Practice Tutor – Autism Spectrum Conditions and Learning Disabilities to join our world-leading mental health charity for children, young people and their families. Our mission is to close the gap in wellbeing and mental health by advancing, translating, delivering, and sharing the best science and practice with everyone who impacts the lives of children, young people and their families. More information about Anna Freud is available on our website.

Our EDI commitment

We are dedicated to fostering a diverse and inclusive workplace and being an equal opportunities employer, whereby equity, diversity, and inclusion (EDI) are core to our recruitment practices. All candidates who meet the job criteria will be considered for employment, regardless of ethnic origin, religion or belief, gender, sexual orientation, disability, age, socioeconomic background, caring responsibilities and care experience.

We ask candidates to share their diversity dimensions with us to help us identify, tackle and prevent bias across the employee lifecycle. We believe a diverse workforce enhances our ability to support mental health and wellbeing, allowing us to better meet the needs of the children, young people and families we serve.

As a Disability Confident employer, disabled candidates meeting our criteria are guaranteed an interview. Applications are submitted anonymously and assessed using a fair evaluation process based on the criteria set out in our job profiles.

What we offer

We offer a range of staff benefits and you can view them all on our careers page.

Alongside our benefits, this role gives you the chance to shape the next generation of clinicians working with autistic children, young people and those with learning disabilities. You’ll contribute to a high-profile NHS England–funded training programme delivered with UCL, strengthening your expertise while influencing clinical practice at a system-wide level. You’ll have protected time for academic work, meaningful contact with trainees, and a flexible hybrid set-up that balances in-person teaching with remote preparation and supervision.

What you’ll do

In this role, you’ll support the delivery, supervision and academic quality of a specialist postgraduate programme training clinicians to work with autistic children, young people and those with learning disabilities.

• Delivering and developing teaching, particularly skills-based workshops, across the Pg Dip programme
• Marking assignments and taking part in calibration workshops to ensure fair, consistent assessment
• Facilitating small Practice Tutor Groups, supporting trainees’ clinical skill development and monitoring their progress
• Providing personal tutoring, responding to trainee queries and supporting an inclusive, positive trainee experience
• Contributing to programme operations, attending team meetings and maintaining high standards in safeguarding, EDI and professional practice

What you’ll bring

You’ll be a strong fit for this role if you’re an experienced clinician in ASC/LD who brings confidence in teaching, supervision and supporting trainees, and can work collaboratively within a busy academic and clinical training environment.

• A recognised core mental health qualification plus specialist training in ASC/LD evidence-based therapies for children and young people
• Extensive clinical experience with autistic children, young people, parents and families, including work within CYPMH or wellbeing services
• Significant experience providing ASC/LD-specific clinical supervision and managing or overseeing practitioners
• Knowledge and experience of delivering clinical training or university-level teaching
• Strong organisational skills, the ability to work flexibly, manage deadlines, and create an inclusive, reflective learning environment

Key details

Hours: Part-time (7 hours per week)

Whilst this will usually be worked on Mondays during term time, there may be occasions where you are requested, or you may request, to work flexibly and on a different day of the week to support peak points in the academic cycle, e.g. to meet marking deadlines.

Salary: £52,000 FTE per annum, plus 6% contributory pension scheme

Location: Hybrid (a mixture of home/onsite working): staff are working onsite for at least 20% of their working hours at our London site (4-8 Rodney Street, London N1 9JH). Flexibility will be required to attend in-person teaching days during term time.

Contract type: Permanent

Next steps

Closing date for applications: Morning (10am), Monday, 05 January 2026. Please note that due to high application volumes, we may close this advert early. We encourage you to apply promptly and to keep an eye on our future vacancies for more opportunities.

Notification of interview: shortlisted applicants will be notified no later than Monday, 05 January 2026. During shortlisting, applicants are anonymously assessed using the criteria visible in the Job Profile. Please note: due to the high volume of applications received, we will not be able to provide feedback to unsuccessful applicants.

Interviews: will be held in-person/remotely on Thursday, 08 January 2026.

How to apply: click on the 'apply now’ button to apply online. We are unable to accept CVs and kindly request no contact from agencies.

The ISM seeks a Legal Officer to help deliver key services to its members across a wide range of legal issues. The role includes supporting unpaid-fee claims, helping musicians understand third-party contracts, and assisting the wider legal team with ongoing matters.

The award-winning ISM is the dynamic, change making professional body representing musicians. With a current membership of over 11,000, the ISM is known for its legal support to its members across a range of issues from copyright and employment disputes to contracts.  We are also known for our campaigning work on issues from equality to Brexit and AI which can cross over into legal services. We do not handle litigation and any disputes which proceed to this stage are handled by our legal insurance providers. 

It is vital that we deliver gold standard legal services, responding to the needs of our professional musician membership. You will be someone who has experience as a legal adviser or have some legal knowledge such as contract, copyright or employment law. You will be proactive with strong problem solving skills, good drafting and oral skills, keen attention to detail and good emotional intelligence.

You will be joining a professional staff team who are based in Bayswater, London. The role is five days per week of which at least three will be in the office.

For a full job description for this role and how to apply visit the ISM website.

Closing date is Monday 12th January at 9.30am. Interviews will take place face-to-face and applications generated by AI will not be considered.

Job Summary 

The Health Information Officer will be responsible for the day-to-day management of our patient and public information about bowel cancer and will work closely with the Senior Health Information Officer and Health Information Manager in the development of information content.

This role is an excellent development opportunity for a proactive person with strong administrative and prioritisation skills who is looking to develop their career in health information. Experience in an information or communications role would be beneficial.

The position offers you a unique and exciting opportunity to make a direct difference for people affected by bowel cancer, ensuring all of the charity’s information meets patient needs, is of the highest quality and has a strong evidence base.

Please note we may interview on a rolling basis before the closing date as applications come in.

Are you passionate about improving the health and well-being of your local community? Do you have the skills and compassion to support individuals living with long-term health conditions? We’re looking for a motivated Health & Wellbeing Facilitator to join our dedicated team at Age UK Bromley & Greenwich.

About the Role
As a Health & Wellbeing Facilitator, you will play a pivotal role in delivering our Long-Term Health Conditions Programme. This includes leading self-management workshops, organising peer support groups, and empowering clients to make positive lifestyle changes. You’ll be a key player in helping individuals build confidence, enhance their health knowledge, and take control of their well-being. Working closely with colleagues and volunteers, you’ll connect clients to valuable services, create support networks, and make a tangible difference in their lives.

What You’ll Do:

• Work with the Lifestyle Coordinator to plan and deliver engaging health and well-being workshops for individuals with ongoing health conditions.
• Facilitate support groups, training and supervising volunteer peer mentors to provide targeted, condition-specific guidance.
• Collaborate with partner organisations to ensure a smooth referral process for additional services like Befriending, Carer Support, and Handyperson services.
• Provide personalised support through various channels, including face-to-face meetings, phone calls, and online communication.
• Help clients develop essential skills, such as managing medication, reducing stress, and communicating with healthcare providers.
• Monitor programme outcomes, maintain accurate client records, and contribute to continuous service improvement.

About You
We’re looking for someone with excellent communication skills, a proactive attitude, and a genuine passion for helping others. You should have experience working with individuals who face health challenges and a commitment to promoting independence and well-being. Knowledge of local resources and services is a plus, as is experience in organising health-related workshops or programmes.

Essential Skills & Experience:

• Strong communication skills with a track record of supporting individuals facing health challenges.
• A basic understanding of long-term health conditions and how they impact physical, emotional, and social well-being.
• Ability to work effectively both as part of a team and independently.
• A flexible and adaptive approach to meet the needs of our clients.

Why You’ll Love Working with Us
At Age UK Bromley & Greenwich, we are passionate about making later life a time to enjoy. Join a supportive, mission-driven team where your work is valued and where you’ll have the chance to make a real difference in your community. We value equality, respect, and creativity, offering a collaborative and flexible work environment.

What We Offer:

• 27 days of annual leave (pro rata), plus bank holidays.
• Pension scheme with a competitive employer match.
• Hybrid working options considered (after completion of Probation Period) to support work-life balance.
• Access to the Employee Assistance Programme for mental, financial, and physical well-being support.

Job Title: Health Advocate Educator - Maternity Cover

Location: Warwickshire
Salary: £25,857.12 per annum
Contract type: Full Time, Fixed Term (from 1 March 2026 until 1 April 2027 - Maternity cover)

Hours: 37.5 hours per week

This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.

The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.

The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 6 January 2026

Interview Date: 15 January 2026

Job Title: Health Advocate Educator - Full Time

Location: Warwickshire
Salary: £25,857.12 per annum
Contract type: Full Time, Permanent 

Hours: 37.5 hours per week

This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.

The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.

The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 7 January 2026

Interview Date: 19 January 2026

ob Title: Health Advocate Educator

Location: Warwickshire
Salary: £12,928.56 per annum 
Contract type: Part Time, Permanent

Hours: 18.75 hours per week. Monday and Tuesday – 9am-5pm and Wednesday – 9am-12:45pm. Occasional late shift: 12:30pm – 8:30pm on a rota basis (approximately 2-3 days a month) 

This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.

The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.

The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 5 January 2026

Interview Date: 12 January 2026

The post-holder will be based at GMRC but work alongside TRC and MASH women’s services and Greater Manchester Pathfinder partnership, with service users who have experienced sexual trauma but who present with additional complex mental health needs.

They will work with service users in partner organisation settings and in the community, working collaboratively with individuals, carers and partners from local multi agency providers and services, to assess and identify social care needs that may be potential barriers to the client being able to address their sexual trauma.

The post-holder will provide guidance, leadership and consultation on social care legislation and policy to the team and to other areas of mental health services, including joint working where appropriate.

They will contribute to developing and maintaining high standards of decision making and professional practice in the field of social work.

The post-holder will be responsible for a caseload of service users under the care of the Pathfinder Partnership, supporting them in their recovery journey.

They will provide specialist social work interventions to service users and their carers / families, and involve them in all planning, helping to develop social resilience, motivation and daily living skills.

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.

The post-holder will be based at GMRC but work alongside TRC and MASH women’s services and work within the pathfinder partnership, across all partner organisations, providing high quality, evidence based, low intensity Cognitive Behavioural Therapy (CBT) based interventions using a guided self-help model, to clients with who have experienced sexual trauma but also have additional mental health needs.