Health information officer jobs

Chief Executive Officer

British Liver Trust (transitioning to Liver UK)
Location: Hybrid (UK based, with monthly travel to Winchester)
Salary: circa £90,000, dependent on experience

Lead the next chapter for liver health in the UK

This is a unique opportunity to lead a respected and financially stable health charity at a pivotal moment of transformation.

Following a successful merger, the organisation is preparing to launch as Liver UK, bringing together services, information and advocacy across all ages. With a clear, trustee-approved strategy for 2026–2032 already in place, the next Chief Executive will focus on delivery, growth and national influence.

A strong platform and a planned transition

This role comes at a natural and positive point within a planned leadership transition.

Our current Chief Executive has provided long-standing, successful leadership and is excited to deliver the final phase of the rebrand before handing over. The incoming CEO will inherit a well-led organisation with strong governance, a clear strategic direction, and real momentum.

About the role

As Chief Executive, you will lead delivery of an established strategy, ensuring the organisation continues to grow its reach, impact and income.

You will work closely with an engaged and supportive Board of Trustees to maintain high standards of governance, regulatory compliance and risk management, while strengthening the charity’s voice in national policy and public affairs.

This is a role that balances external influence with internal leadership, ensuring both impact and organisational resilience.

Key responsibilities

• Deliver a trustee-approved long-term strategy, refining priorities as needed
• Ensure robust governance, legal and regulatory compliance
• Lead policy, public affairs and national influencing activity
• Maintain financial sustainability and drive income growth
• Lead and develop a high-performing Senior Management Team
• Oversee delivery of high-quality services and information

About you

You are a credible and values-driven leader with senior experience in the charity, health or related sectors.

You will bring:

• Proven senior leadership experience at Director or CEO level
• Strong understanding of governance, finance and regulatory compliance
• Experience influencing policy and working with senior stakeholders
• A track record of delivering organisational growth and impact
• Excellent communication and relationship-building skills
• You will be confident working with a Board of Trustees, able to build strong relationships, provide clear advice, and operate effectively in a governance-led environment.

You will be motivated by improving health outcomes and confident leading an organisation with both national influence and strong operational delivery.

Why join us?

• A clear, trustee-approved strategy ready for delivery
• Strong governance, financial stability and organisational foundations
• A positive and well-managed leadership transition
• The opportunity to shape a newly unified, UK-wide charity
• A chance to make a meaningful difference in an under-recognised area of health
• A strong, engaged and motivated Board

A competitive salary will be offered, reflecting the experience, skills and leadership qualities of the successful candidate.

The Mental Health Foundation is recruiting for a Financial Controller to support the Finance team based at our London office.

Deadline: Sunday 24th May at 11.59pm
Location: London
Salary: Starting salary £47,472 rising to £53,993, inclusive of £4,000 London weighting
Hours: Full-time (32 hours per week)
Contract type: This is a permanent role

This exciting role will lead on all aspects of the finance function, including managing managing the Finance & Systems Officer, overseeing the production of year-end accounts in collaboration with internal stakeholders and auditors, and preparing monthly management accounts for reports to the Senior managers and trustees. Responsibilities also include stewardship of the Foundation’s liquid assets, leading the budgeting and forecasting processes, verifying monthly payroll prepared by HR, and ensuring the efficient operation of the purchase ledger function.

What does the role involve?

• Coordinate across the Foundation and help prepare the annual statutory accounts and all schedules for audit and be the lead liaison with the auditors.
• Prepare monthly financial reports and budgets for review by senior management, providing analysis and other measures of performance.
• Lead on improving processes and systems across all aspects of finance and liaising with the wider organisation to drive these forward.

What skills, knowledge and experience are we looking for?

• Up to date knowledge of charity financial legislation and best practice
• Innovative in the development of processes, procedures and information systems to support the work of the team and organisation
• Demonstrable successful accounting experience in a similar role, ideally within the charity sector

Safeguarding is Everyone’s business – Mental Health Foundation is committed to safeguarding and promoting the wellbeing of all its beneficiaries, those who surround them, its staff, volunteers, and anyone else who comes into contact with its services and expects all trustees, staff, and volunteers to share this commitment. The successful applicant will be subject to appropriate vetting procedures (proof of eligibility to work in the UK, proof of residency and satisfactory employment screening, including a Disclosure check and two most recent references) along with 3-year renewals of Disclosure checks. We are unable to provide sponsorship for this post, you must be able to demonstrate your eligibility to work in the UK.

How to apply

If you think your skills match and you’d like to be part of a dynamic and growing organisation, please complete and submit your application via our website. Please ensure you attach an up-to-date CV and statement of suitability answering all points of the person specification. Applications will close at midnight on Sunday 24th May and we are unable to accept late applications. Interviews are expected to take place online between 1st - 4th June.

We believe our people should represent the communities, organisations and individuals we work with. Diversity and inclusion is a strategic priority for us as an employer and mental health charity, and we are proud to be signatories of the Business in the Community Race at Work Charter and the Disability Confident Committed Scheme. Applications from under-represented sections of the community are actively encouraged.

If you have a disability, require any additional support or have any questions regarding the role, please contact us. We make reasonable adjustments throughout the recruitment process and during employment. Disabled candidates who meet all the essential person specification criteria will be offered an interview. Therefore, please do ensure you tick the relevant box on the application form and clearly indicate in your application/covering letter if you consider yourself to meet the requirements of the Equality Act 2010 / Disability Discrimination Act 1995.

We are currently operating mostly digital recruitment (including interviews via video conferencing). We have moved to a hybrid working model of a minimum of 2 days per week in the office and the rest working from home.

We look forward to hearing from you!

As a fundraising and grant-making charity, we bring to life projects that transform patient care - from sensory packs for children in A&E to a peaceful sanctuary garden for people living with dementia. We’re a small, ambitious and supportive team, and in just three years we’ve tripled our income. Our goal is to become the charity of choice for our local community in Islington and Haringey.

Over the past 18 months, this role has built community and challenge events income from the ground up, creating real momentum. There’s still huge untapped potential locally, offering an exciting opportunity to grow and innovate.

This is a varied and rewarding role where you’ll build meaningful relationships with clinicians, donors and the community, and see first-hand the impact of your work. You’ll lead on community fundraising, challenge events and volunteering, with real autonomy. It's a fantastic step up for someone ready to develop and make their mark.

The successful candidate will benefit from an NHS Agenda for Change salary and excellent NHS benefits, including a generous pension and annual leave.

Lead a unique mental health retreat service helping prevent crisis admissions and supporting recovery across Gloucestershire. Join a values-driven organisation making a lasting difference through compassionate, person-centred care.

Swindon & Gloucestershire Mind is seeking an experienced and motivated Service Manager to lead Alexandra Wellbeing House — a unique short-term mental health retreat delivered in partnership with Gloucestershire Health & Care NHS Foundation Trust. Supporting adults experiencing acute emotional distress, the service provides an alternative to inpatient admission through early intervention, recovery-focused support, and collaborative care planning.

This is an opportunity to lead a skilled multidisciplinary team while shaping the future development of an innovative community mental health service. You will work closely with NHS partners, Crisis Teams, Community Mental Health Teams, and third-sector organisations to strengthen referral pathways and improve outcomes for people experiencing mental ill health.

We are looking for someone with strong leadership experience, a passion for person-centred mental health support, and the ability to build trusted partnerships across services. You will oversee service quality, staff development, safeguarding, performance reporting, and continuous improvement while ensuring the service remains welcoming, safe, and empowering for everyone accessing support.

In return, we offer a supportive and forward-thinking working environment, ongoing professional development, supervision, flexible working opportunities, generous annual leave, and the chance to help shape meaningful mental health services within the local community.

Join us and help create services where people are recognised, valued, and supported.

CHA is recruiting an experienced and values-driven Chief Operating Officer to lead our central operations and support the delivery of high-quality housing and care services.

As COO, you will provide strategic and operational leadership across residential and sheltered services along with the finance, estates, HR, and other central services—driving performance, ensuring compliance, and enabling sustainable growth. You will work closely with the CEO and Board while leading a diverse team of senior leaders.

Key responsibilities include:

• Leading delivery of organisational strategy and continuous improvement
• Managing central teams and driving high performance
• Overseeing financial planning, budgeting, and resource management
• Ensuring compliance, risk management, and governance
• Leading estates strategy, capital projects, and IT/digital development

About you:

• Proven senior leadership experience (housing, social care, or related sectors)
• Strong financial, operational, and people management skills
• Inspiring leader with a collaborative and solution-focused approach

Additional requirement:
Due to our Christian ethos and heritage, there is an occupational requirement for the post holder to have a personal Christian faith.

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

We’re looking for a Health Content Designer to join our team and create trusted, high-quality information for people affected by blood cancer.

In this role, you’ll be responsible for the creation and continuous improvement of our health information at every stage of the user journey. You’ll design content that’s data driven and responsive to user needs. You’ll work across a range of formats and channels to help us maximise our reach and engagement with the blood cancer community.

You’ll collaborate with users and clinical experts to ensure our information is accurate, relevant, evidence-based and accessible. You’ll use your content design skills to help anyone affected by blood cancer access the information they need.

If you have content design experience within the health sector and can demonstrate strong writing skills across a range of media, we’d love to hear from you.

This role requires travel to London for key in-person activities, including team, departmental and organisational away days. Additional travel may be required for meetings, workshops or collaboration.

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

Vice Chancellor's Office

Development, Alumni and Campaigns Office

Prospect Research Officer (Health) 
Ref: SC4983

Salary on appointment will be £31,236 per annum (pro rata), with an annual increment up to £37,694 per annum (pro rata)

UEA is driving forward with its bold and inspiring £100 million Dare to Do Different Campaign, and our prospect research function sits right at the heart of this momentum.

​One of the key themes is Health UEA. This role is an opportunity to be a key player in driving transformational change, working hand in hand with our Pro-Vice Chancellor for the Faculty of Medicine and Health Sciences and as part of a dynamic fundraising team to uncover and engage high quality prospects. Your insight will help build a strong pipeline of potential major donors, supporting strategic health related fundraising that advances the University’s most ambitious priorities.

​The successful candidate will apply advanced prospect research methodologies and relevant technologies to identify high net worth individuals with both the capacity and the motivation to donate, helping us drive forward our ambitious health priorities whilst upholding the highest ethical standards.

​We’re a collaborative, supportive team that takes pride in working together to achieve exceptional results. This role offers the chance to make a tangible, lasting impact playing a pivotal part in helping us reach our campaign goals and shape the future of UEA. 

​This part-time (0.5 FTE/18.125 hours per week) post is available from 1 August 2026 on a fixed term basis for two years. 

UEA offers a variety of flexible working options and we encourage applications from individuals who would prefer a flexible working pattern including annualised hours, compressed working hours, part time, job share, term-time only and/or hybrid working. Details of preferred hours should be stated in the personal statement and will be discussed further at interview.

Please note, this role is not eligible for visa sponsorship and the successful candidate must have right to work in the UK.

Further information on our great benefits package, including 39 days annual leave inclusive of Bank Holidays and additional University Customary days (pro rata for part-time), can be found on our benefits page.

Closing date: 15 June 2026

The University holds an Athena Swan Silver Institutional Award in recognition of our advancement towards gender equality.

Are you someone who can build trusted relationships across sectors, develop sustainable income, and turn strategic opportunities into meaningful impact? 

Are you looking for a part-time, senior role where you can shape organisational direction, grow partnerships, and deliver programmes with national and international reach? 

The Design in Mental Health Network (DiMHN) is a UK-based charity dedicated to improving mental health outcomes through better design. We are seeking a strategic and entrepreneurial Head of Partnerships & Programmes to play a central role in our next phase of growth. 

In this role, success will mean building high-value partnerships, growing sustainable income, and delivering programmes that expand DiMHN’s impact and influence. 

WHAT YOU'LL BE DOING 

Reporting to the Chief Executive, you will: 

• Drive sustainable income through a mix of commercial partnerships, membership growth, and charitable funding
• Develop and lead strategic and commercial partnerships, from opportunity through to delivery
• Lead the design, delivery, and evaluation of programmes across our core areas of work
• Grow and engage a diverse membership across commercial and health sector stakeholders
• Embed strong monitoring, evaluation, and reporting to demonstrate impact and inform decision-making

WHO WE'RE LOOKING FOR

We are looking for a strategic, relationship-driven leader who can translate opportunity into impact, income, and influence. 

Knowledge and experience 

You will bring: 

• A strong track record of developing and securing income through partnerships, sponsorship, membership, and/or charitable funding
• Experience building and managing commercial or strategic partnerships, including identifying opportunities and maintaining long-term relationships
• Experience designing and delivering programmes involving multiple stakeholders, sectors, and/or geographies
• The ability to develop robust business cases, including assessing opportunities, risks, and resource requirements
• Experience growing and engaging professional networks, memberships, or cross-sector communities
• Confidence working in complex, multi-stakeholder environments

Knowledge of the mental health, healthcare, design, or built environment sectors is welcome, but not essential. 

Personal attributes 

You will be: 

• Strategic and entrepreneurial, able to spot and develop opportunities
• Collaborative and relationship-led, with the ability to build trust across diverse stakeholders
• Impact-focused, motivated by delivering measurable outcomes
• Adaptable and resilient, comfortable working in a growing and evolving organisation 
• Passionate about improving mental health outcomes and interested in how design can improve people’s lives 

WHAT YOU'LL GET IN RETURN

As part of the team, you will benefit from:

• Annual leave - 28 days’ annual leave plus bank holidays (pro rata) 
• Work from home – though in-person meetings with partners and members will be expected in order to build strong working relationships
• Flexible working - flexibility in how the 21 hours are worked across the week (to be agreed during offer discussions) 

NEXT STEPS 

Please see https://bit.ly/DIMHNPartnershipsProgrammes for our Candidate Pack, application instructions and details about the interview process.

About Bipolar UK

Bipolar UK is the only national charity dedicated to supporting people affected by bipolar — including individuals, carers, families and loved ones. Over one million people in the UK live with bipolar disorder, yet many experience symptoms for years before receiving an accurate diagnosis.

We are entering an exciting new phase following the launch of our co-produced three-year strategy (2026–2029). Over the coming years, we will reach more people than ever before, expand access to self-management support, and build understanding of bipolar across workplaces, services and communities.

At the heart of our work is the belief that people affected by bipolar are the experts in their own lives. We are committed to equity, diversity and inclusion, and to ensuring our services are accessible, culturally responsive and shaped by lived experience.

 Purpose:  The Peer Support Officer role will work within Bipolar UK’s Peer Support Line team to support our community through telephone and email support across the UK.

The role involves using your skills and knowledge to support people affected by bipolar disorder with support requests and providing information and signposting to people via email and telephone. The successful applicant will also manage service reports in Salesforce, report back regularly to the management team, as well as developing links with other mental health services or appropriate agencies.

Though Bipolar UK does not offer Crisis Support, the successful applicant may have to direct members of our community experiencing a crisis to relevant services and will also be responsible for recognising and reporting Safeguarding incidents within the bounds of Bipolar UK’s Safeguarding Policies.

The position requires good personal interaction and the ability to empathise with service users while remaining calm and considered in sometimes difficult situations.  This is a varied and hands on role and we are looking for someone with good communication (verbal and written) along with good organisational skills. Bipolar UK will offer the successful applicant regular support and engagement with the team, as well as reflective practice sessions throughout their service with the charity.

The Peer Support Officer reports to the Services Manager who manages this service. This will be a home-based role with occasional travel, such as team days/meetings/training.

Why join us?

This is an opportunity to provide practical, non-clinical information and peer support to our community, including family and loved ones. Our Peer Support Line is often a first point of contact, offering a listening ear, helping to reduce isolation, and signposting people to relevant information, services, research and campaigns.

You will join a team of highly skilled colleagues who share the same passion to support our community in a safe and appropriate way.

Specific Responsibilities

• Act as an initial point of contact with the charity for all enquiries about our services
• Act as an initial point of contact for all people affected by bipolar disorder seeking support, information and signposting
• Direct enquiries for Bipolar UK’s additional services, including understanding Bipolar UK’s specific resources and training opportunities for workplaces and connections for research
• Build and maintain relationships with existing volunteers and with volunteers expressing interest in supporting Bipolar UK
• Ensure that all service provided by both the postholder complies operationally with Bipolar UK policies and procedures, including safeguarding and data protection postholder must handle personal/special category data confidentially and in line with policy/UK GDPR
• Contribute to the development and delivery of new formats of peer support in a spirit of co-production
• Ability to work flexibly and responsively, responding to urgent requirements
• To ensure that all support information and signposting options are kept up to date
• To complete all support records in a timely manner
• Reporting all Safeguarding concerns and crisis incidents in line with Bipolar UK’s relevant policies
• To work with community mental health teams and other interested stakeholders to promote the services of the charity
• To act as an advocate for Bipolar UK within your work
• Willing to travel within the UK as deemed appropriate by the organisation, reasonable adjustments are available.
• Other duties deemed appropriate by the Chief Executive to assist in achieving the aims and objectives of the charity

 Person Specification

The successful candidate will have:

• Understanding of lived experience and peer support
• Ability to work as part of a team and individually using own initiative
• An understanding and awareness of safeguarding
• Ability to work autonomously and at times remotely from line manager
• Experience of data collection and monitoring
• Excellent communication skills
• Excellent organisational skills
• Be competent in the use of Microsoft 365 products including Outlook and other Microsoft Office programmes
• Experience of delivering peer support in paid employment or as a volunteer

Our Commitment to Equality, Diversity & Inclusion

Bipolar UK is an equal opportunities organisation. We warmly welcome applications from people of all backgrounds and particularly encourage applications from people with lived experience of bipolar or other mental health conditions, people from under‑represented communities, and those whose voices are less often heard in mental health spaces.

All recruitment decisions are based solely on skills, experience and suitability for the role.

Data Protection

Any personal information you provide will be handled securely and used only for recruitment purposes, in line with UK data protection legislation.

Safeguarding

All employees are expected to work in line with Bipolar UK’s safeguarding policies, ensuring safe, respectful and empowering environments for everyone we work with.

The successful candidate will likely have:

• Experience of partnership working with statutory and third sector organisations
• Lived or professional experience supporting people affected by bipolar, or severe mental health conditions.

How to Apply

Bipolar UK operate a blind recruitment practice and advertise our roles via CharityJob.

Please submit your CV online to CharityJob with a covering letter (maximum two A4 pages). Your cover letter should clearly demonstrate how your experience meets the person specification and explains your motivation for working with Bipolar UK

Closing date is 9am on Monday 25 May 2026.

Chief Executive Officer (Part-time, 3 days/week)

Veterans With Dogs (VWD) is seeking an experienced, values-driven and credible Chief Executive Officer (CEO) to lead our charity into its next chapter. This rare and exciting opportunity offers the chance to guide a small, high-impact team at a pivotal stage in the charity’s growth.

Location: Flexible / UK-based, with regular travel to Exeter, training sites, and key meetings as required. We are flexible in how this is structured, and relocation is not required.
Salary: £45,000–£55,000 pro-rata (equivalent to £27,000 - £33,000 for 3 days/week) + 3% pension contribution
Contract: Permanent

Hours: 21 hours / 3 days per week

Holiday: 28 days per annum (FTE), plus bank holidays
Reports to: Chair of Trustees
Direct reports: 3

About Veterans With Dogs

Veterans With Dogs is a UK charity that transforms the lives of Armed Forces veterans living with mental health challenges. Through the provision of highly trained assistance dogs and trauma-informed support, we help restore purpose, independence, and dignity to those who have served.

Founded in 2012, our work addresses a vital gap for veterans living with PTSD, anxiety, depression, and complex trauma. Through our award-winning PALS™ (Partner Animal Life Skills) programme, we support veterans to rebuild their lives, with the constant support of a trusted companion by their side.

Following a period of governance transition and renewal, we are entering a new and exciting phase. We are strengthening leadership, systems, and strategy to ensure long-term sustainability and greater reach, while maintaining the quality, care, and integrity that sit at the heart of our work.

We recognise that this is a senior leadership role within a small organisation and are committed to flexibility in how the role is delivered. We are open to conversations around working patterns and location to ensure we attract the strongest possible candidate.

We are also open to shaping aspects of the role around the strengths and location of the successful candidate.

We would particularly welcome candidates who can bring fresh perspective, while respecting and building on the strong foundations already in place.

This is an opportunity to shape the future of a respected and growing charity at a pivotal moment, with genuine scope to influence strategy, culture, and long-term impact.

The Role

The CEO will provide strategic direction, operational oversight, and cultural leadership for Veterans With Dogs. Working closely with the Board of Trustees, the CEO will oversee the delivery of the charity’s mission, ensure operational excellence, develop our long-term strategy, and foster a values-led and high-performing team.

This is a hands-on, multi-dimensional leadership role, ideal for a calm, pragmatic, and inspiring individual with experience of organisational stabilisation, stakeholder engagement, and sustainable growth. You will build strong relationships with the team and stakeholders, maintaining a visible and engaged leadership presence both in person and remotely.

This is a genuinely part-time role with a focused and manageable scope, supported by an engaged Board of Trustees and a committed team. The role is designed to be sustainable within the allocated hours.

Key Responsibilities

Leadership & Strategy

• Lead the development and delivery of an interim plan and longer-term organisational strategy
• Translate strategic goals into clear operational priorities and plans
• Foster a compassionate, inclusive, and mission-aligned organisational culture
• Act as a credible and inspiring ambassador for Veterans With Dogs with stakeholders, funders, partners, and the public
• Guide the charity through stabilisation and values-led, sustainable growth

Governance & Compliance

• Ensure compliance with all relevant charity law, regulation, and best practice
• Work in partnership with the Board of Trustees, supporting effective governance and reporting
• Implement and embed improvements in HR, finance, safeguarding, IT, and operational systems
• Lead on organisational risk management, ensuring policies and procedures are in place and regularly reviewed

Operations & Programme Delivery

• Oversee day-to-day operations to ensure safe, ethical, and effective service delivery
• Ensure safeguarding standards are upheld for both veterans and dogs
• Drive continuous improvement in programme quality, delivery, and impact measurement
• Ensure operational systems and data processes are robust, compliant, and fit for purpose

People & Culture

• Lead, support, and nurture a small, dedicated staff team and wider network of volunteers
• Promote staff wellbeing, clear communication, and professional development
• Work with trustees to assess future staffing needs and build leadership capacity

Finance & Sustainability

• Work with trustees and advisors to ensure sound financial management and reporting
• Contribute to financial planning, budgeting, and development of a sustainable reserves policy
• Help diversify income streams, supporting fundraising efforts, corporate partnerships, and individual giving

Fundraising & External Relations

Build and maintain relationships with funders, donors, corporate partners, and sector allies

• Collaborate with the fundraising trustee to develop new funding opportunities
• Represent the charity externally with credibility, transparency, and professionalism
• Strengthen partnerships with ADUK, ADI, Cobseo, and other key membership bodies

Person Specification

Essential

• Senior leadership experience within a charity, social enterprise, or values-led organisation
• Strong knowledge of charity governance, regulation, and trustee relationships
• Experience leading teams through organisational change or stabilisation
• Financial literacy with experience of budgeting, reporting, and planning
• Excellent communication and interpersonal skills across diverse stakeholders
• A calm, values-based, and ethical leadership approach

Desirable

• Experience in health, mental health, veterans’ services, or trauma-informed work
• Experience working with boards during periods of strategic or leadership transition
• Fundraising and/or income generation experience
• Understanding of safeguarding best practice (for people and/or animals)
• Lived experience of the military or charity sectors (not essential)

Our Commitment

Veterans With Dogs is committed to equity, diversity, and inclusion. We actively welcome applicants from all backgrounds and strive to create a supportive, respectful, and empowering workplace. We recognise the value of lived experience and are committed to continuous learning as an organisation.

How to Apply

Please apply via Charity Jobs.

If you would like a confidential conversation before applying, we would be happy to speak with you.

Closing date to apply: 5pm on Monday 15 June 2026

• First interviews (online): week commencing 22 June 2026
• Second interviews (in our Exeter office): TBC

Previous applicants need not reapply, thank you.

Veterans With Dogs is a registered charity in England and Wales (No. 1161554).

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

The role

Job Title: Youth & Community Engagement Officer

Part Time:          8- 12 days per month

Salary: £28-30,000 pro rata

Reporting to: Operations Director

Job Purpose:

 This role will lead the development and delivery of Allergy UK’s youth engagement initiative. We are beginning several exciting new projects focused on engaging young people who live with allergy and providing opportunities for them to have a voice and support them in raising awareness of the issues that affect their life. We are seeking young people’s participation and co-production in all activities we develop to support their needs. The role of Youth Engagement Officer will be to engage with young people across the UK, to ensure that they have the opportunities and support to shape and influence Allergy UK’s programmes and activities for young people living with allergy.

The Youth & Community Engagement Officer will engage with children and young people across the UK to ensure they are meaningfully involved and supported to influence Allergy UK’s services, campaigns and resources. This includes creating safe, inclusive spaces where young people and parents and carers feel listened to and empowered to share their experiences.

The successful individual will develop youth opportunities that build confidence, skills and life chances, while supporting children and young people living with allergy to overcome the social, emotional and practical barriers they may face. A key part of the role will be working collaboratively with parents and carers to ensure their voice inform decision making and design.

As a Youth & Community Engagement Officer, you will have experience of working positively with children, young people and families, and have a proactive, organised and confident approach.

Strong organisation skills and initiative are essential as you will be the lead Allergy UK’s youth provision.

You will coordinate a range of activities on-line and in-person engagement sessions, blogs, podcasts, learning opportunities and digital activities all rooted in co-production principles. You will work as part of a wider team to engage children, young people and parents and carers, to amplify unheard voices and stories, and help drive positive change for families living with allergy.

The post is funded by the National Lottery Community Fund until September 2028. As a grant- funded role, the postholder will be responsible for the effective delivery, monitoring and evaluation of agreed grant outcome and KPI’s, ensuring full compliance with funder requirements and reporting deadlines.

Your main responsibilities include, but are not limited to:

Key Accountabilities:

· Design, develop and deliver youth-led and family-centred services across three core areas:

o Continue to design and deliver youth-led services with the existing 18–25 youth group for people living with allergies

o Recruit, , launch and establish a new youth group for 13–17-year-olds living with allergies

o Recruit, launch and establish a support and engagement group for parents and carers of children and young people living with allergies

· Plan, project manage and deliver engaging co-production projects, building positive, trusted relationships with children, young people and parents and carers, and promoting meaningful participation.

· Create opportunities for young people to have a strong and influential voice, supporting them to engage in Allergy UK’s awareness- raising and public affairs activity to influence policy, improve services and drive change.

· Establish, develop and lead the Allergy UK Youth Forum, ensuring it is representative, inclusive and impactful.

· Support and develop young people to become champions and ambassadors for Allergy UK, building confidence, leadership skills and advocacy capability.

· Work collaboratively with a wide range of organisations including but not exclusively schools, local government, health and youth services and voluntary sector organisations.

· Develop and deliver training and development resources to support young people’s skills, understanding and personal development.

· Ensure all required documentation is completed accurately, secularly, and within agreed timescales, in line with contractual, safeguarding and reporting requirements

· Work closely with the Operations Director and wider staff team, providing insight and advice on issues affecting children, young people and families living with allergy.

· Develop and embed effective youth engagement procedures and best practice, ensuring a consistent, safe and inclusive approach across all activities..

· Take responsible for the health and safety including risk assessments and reviews for all youth and family engagement activities, ensuring safety and wellbeing of participants.

· Act as a key role holder for safeguarding, ensuring that the safety and wellbeing of children, young people and vulnerable adults is central to all youth and family engagement activity. This includes promoting a strong safeguarding culture, adhering to Allergy UK’s safeguarding policies and procedures, identifying and escalating safeguarding concerns appropriately, completing and contributing to risk assessments, and working closely with designated safeguarding leads and relevant staff to ensure safe, inclusive and compliant practice at all times.

· Maintain accurate and confidential records, ensuring the secure and compliant recording of sensitive data on Allergy UK’s Salesforce database in line with data protection requirements.

Person Specification

This role involves regular contact with children, young people and potentially vulnerable adults. The successful candidate will be required to undergo an Enhanced Disclosure and Barring Service (DBS) check, in accordance with organisational safeguarding policies.

Essential:

 Education & Qualifications

 Degree or equivalent and demonstrable/relevant work experience.

Essential Experience

 · Minimum of 3 years’ experience working with young people

· Experience of directly engaging children and young people (ideally across different age groups, e.g. 13–25)

· Experience of developing and delivering engaging youth engagement opportunities, following best practice, and adopting methods of co-production

· Experience of planning, delivering and evaluating projects or programmes

· Coordinating online and inperson activities (e.g. groups, workshops, forums, events)

· Managing multiple workstreams and meeting deadline

· Experience working independently while contributing to a wider team

· Practical experience of working in a safeguarding‑aware environment

Desirable Experience

 · Experience of working with or supporting parents and carers, particularly in health, disability or community contexts

 The purpose of this job description is to focus attention on the most important aspects of the jobholders role. It is not intended to be a complete list of duties: therefore, it is to be expected that the day-to-day performance of the job will include tasks not listed above. The list of duties for which the jobholder is responsible may reasonably be varied or added at the discretion of the charity.

What you will bring

Essential Skills and Knowledge

 · Knowledge of safeguarding responsibilities relating to:

o Children and young people

o Vulnerable adults

· Experience of recognising, recording and escalating safeguarding concerns in line with local and national guidance.

· Experience of recording accurate information on a CRM system, ideally Salesforce, ensuring timely and GDPR-compliant data entry.

· Experience of monitoring, evaluation and reporting against grant-funded KPIs.

· A Demonstrable experience of working directly with young people in a youth engagement/participation role.

· Demonstrate experience in the development and delivery of strategies to successfully engage, interact and promote development with young people.

· Experience in planning and delivering youth sessions and activities.

· Experience of working with a range of stakeholders and representing the views of young people.

· Experience of writing reports and meeting conflicting deadlines.

· Experience of managing people, resources, or projects.

· Skills and Knowledge Ability to engage with young people.

· Ability to work independently.

· Ability to motivate others and work as part of a team.

· To ensure young people feel safe and are safeguarded, by ensuring cross partnership and local safeguarding policies and procedures are adhered to.

· Understanding of the issues facing young people.

· Understanding and commitment to equal opportunities policies.

· Evidence of challenging discrimination or implementing equal opportunities with young people.

· Knowledge and understanding of relevant legislation, especially regarding children’s rights, promoting inclusion.

· Proficient in Microsoft Office, including Microsoft Teams, Salesforce (or similar CRM) and Zoom

· Able to work flexibly to meet requirements of the role.

Desirable

· Understanding of allergy

· An understanding of the charity sector and the work of volunteers.

Behavioural Competencies

 Relating & Networking Working with People

Adhering to principles and values Persuading and influencing Formulating strategies & Concepts Planning & Organising

Attitudes

· A positive individual who can guide, inspire and motivate team members

· Decisive and determined

· Ability to think on your feet and adapt quickly when needed

· Ability to manage a large and varied workload, prioritising to meet competing deadlines

· Empathetic and sensitive

· A passionate commitment to delivering the charity’s vision, mission and values

· Commitment to equality, diversity and inclusion

Would you like to play an important role in improving science coverage in the news?

We are looking for a Press Officer with a passion for science and the media to help us make, break and react to some of the biggest science stories in the national news. Working on everything from genome editing and vaccination to climate change and AI, the SMC is an independent press office for science specialising in the science, health and environment stories that hit the headlines.

Our Press Officers are immersed in the most controversial, politicised and messy science stories in the news. This is not a role for the faint-hearted; but if you're passionate about accurate media coverage of the science stories that define our times, and you can work with a calm head when things are busy and demanding, this is the job for you.

What we are looking for

You are someone who is passionate about science in the news being accurate and evidence-based, and who is genuinely excited by the SMC's work. You are able to work fast and reliably on multiple subjects and collaborate effectively with your colleagues. You are someone with a science background who can demonstrate good judgement, good media awareness, and a strong understanding of the difference between evidence and ideology. You are excited to progress your career as part of a small but high-impact, office-based team in a fast-moving environment.

What we can offer you

• 25 days annual leave + bank holidays + Christmas closure, increasing after 5 years’ service
• Annual performance-related pay reviews
• Generous pension, healthcare, and family-friendly provisions
• Free gym and discounted lunch options

Selection process

• Application (CV and cover letter)
• Interview consisting of a 40min task and 40min panel interview, at our London offices on Monday 8th June
• References

This is an on-site role based at our offices in London (Euston). Staff are expected to be in the office five days a week. Start date asap (exact date to be agreed).

How to apply: please submit your CV and a covering letter via this platform detailing why you want this particular role and how you fit the role requirements. You can also email your application to the jobs@ address listed on our website. Your CV and covering letter should not be more than one side of A4.

If you wish to have an informal discussion about the role you can find contact details on the job listing on our website.

Applicants must have a pre-existing right to work full time in the UK as we are unfortunately unable to sponsor visas.

We know that some demographics are less likely to apply for roles if they don’t feel they meet every requirement. We encourage all applicants who have a strong interest in our work and believe they have the right skills to succeed to apply for the role.

Information Officer

Salary: 

• Actual salary for 28 hours per week is £26,574.40 plus London Weighting £2,400 or Home Allowance £450 pa.
• Actual salary for 21 hours per week is £19,930.80 plus London Weighting £1,800 or Home allowance £450.

Hours: Part-time 28 or 21 hours per week
Benefits: • Flexible working • 30 days annual leave plus recognised bank holidays (pro-rata for part-time staff) • Contributory pension scheme • Healthcare cash plan covering dental, optical, 24/7 GP service •Employee assistance programme • Opportunities for learning and development

Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis (CF). We're working towards a brighter future for everyone with CF by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

We are looking for an Information Officer to join our busy and supportive team at an exciting time of rapid change in cystic fibrosis and the information landscape. Changes in clinical care, treatments and the experiences and needs of people with CF have led to a dramatic increase in the breadth and volume of information we need to create, at a time when trusted information is more important than ever.

To navigate this, you’ll need solid editorial expertise and a commitment to engaging with and empowering the cystic fibrosis community through the development of high quality, engaging, accessible information, in print and digital formats.

You will develop and maintain our extensive offer of health and other information, including factsheets, booklets, clinical guidelines, web content and videos aimed at people affected by cystic fibrosis and clinical teams. You will make sure that our resources meet the needs of our target audiences through sensitive and meaningful involvement with people with CF and healthcare professionals.

You will have experience of producing high quality, comprehensive information for people with health conditions from concept through to publication and a knack for making complex health information easy to understand. An understanding of and commitment to the criteria of the Patient Information Forum quality kitemark (the PIF TICK) is integral to the role. 

This position will involve working on multiple projects concurrently, juggling priorities, being proactive in your approach and creating reactive information to address emerging issues. Strong organisational and time-management skills are needed, as is the ability to work autonomously, and also collaboratively with colleagues in the team and wider organisation, and a range of external stakeholders.

* If London office-based, you will be required to attend London Head Office 40% of weekly working hours. If home-based, you will be required to attend the London Head Office for business needs as required. Please note this is a UK-based role and candidates will need to be based in the UK.

We offer a range of benefits including:

• Flexible working
• 30 days annual leave plus recognised bank holidays (pro-rata for part time staff)
• Contributory pension scheme
• Healthcare cash plan covering dental, optical, 24/7 GP service 
• Employee assistance programme
• Opportunities for learning and development

Please note you will need to have the right to work in the UK before starting work with us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for our roles.

Closing date for completed applications is 11:59pm on Monday 1 June, 2026. 

First interviews will be held week commencing Monday 8 June, 2026. Second interviews will be held week commencing Monday 15 June, 2026.

We reserve the right to bring forward the closing date or extend if necessary.  Therefore, if you are interested in this role, please submit your application as early as possible.

How to Apply

Before applying, please ensure you read the job description for more information about the role. 

Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now.’

No agencies or media please.

Our commitment to an inclusive workplace

Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with diverse backgrounds, experiences, and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ and people with disabilities.

It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.

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