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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Trusts Fundraiser
Location: Remote – Homebased
Contract: Part Time - 25 hours per week | Permanent
Salary: £29,656.01 - £31,134.23 (Full Time Equivalent)
Deafblind UK has championed people with dual sensory loss since 1928, helping them to overcome the unique set of challenges they face. We support the rights and interests of deafblind people of all ages, in the belief that they deserve the opportunity to live their lives to the fullest, retain their independence, and be included in their local communities. Wellbeing, emotional and practical support forms the cornerstone of our support services. These services are entirely ‘bespoke’, recognising the uniqueness of every individual, and they are based very firmly on our fundamental belief that disability does not mean inability.
The Impact You'll Make
In Trusts, we secure funding to help our colleagues deliver the services described above. So, we enable our colleagues to make a very real difference to the lives of those affected by dual sensory loss. We regard that as a privilege.
What We Need
An individual who will share our view, and who can enhance our team with their experience and expertise. Someone who will bring passion, who is not afraid of hard work, and a good team player. Someone who wants to help make a difference.
What you’ll be doing
You will produce excellent and compelling funding applications, based on thorough research. You will liaise with colleagues to help construct applications. Once funding is secured, you will steward your portfolio of funders to ensure that they are well informed about our work and inclined to provide us with further support. You will ensure that records are accurately maintained on our CRM system.
You will bring to the role:
What You’ll Get In Return
Please see attached Job Description and Person Specification for further details.
We support people who have combined sight and hearing loss which affects their access to information, mobility and communication.
The client requests no contact from agencies or media sales.
We are seeking a dynamic Head of Housing Support to lead our national Housing Support Services, ensuring clients receive exceptional, trauma‑informed care in safe, compliant and high‑quality homes. This is a pivotal role that influences service delivery, operational performance, and the long‑term vision for Life’s housing provision.
As Head of Housing Support, you will:
Lead & Inspire
Drive Operational Excellence
Shape the Future
Lead with Purpose
About You
We’re looking for someone who is:
Relevant housing or management qualifications (such as CIH Level 4) are desirable but not essential with strong experience.
About Life:
Life is a national pregnancy support charity that helps over 60,000 people a year. Through our services, we help people – whoever they are – to meet pregnancy or pregnancy loss with courage and dignity so they can flourish.
Our services include
Our values
All our work is underpinned by the following universal human values:
Information about the role:
For further information, please see the attached job description.
Please note, driving licence and own vehicle are required.
Salary: £45,655 per annum
Hours: 35 hours per week, 5 days per week
Location: Home Based with Extensive Travel across Midlands and South East
Benefits
At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:
Safeguarding and Equality
Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.
We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.
All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.
The client requests no contact from agencies or media sales.
We are looking for an inspiring Support Services Manager to lead our supported housing schemes, ensuring high‑quality, person‑centred support for women and children across our services.
If you are passionate about transforming lives, improving service quality and leading dedicated teams — we’d love to hear from you.
About the Role
As Support Services Manager, you will:
Lead and develop high‑quality support services
Manage, motivate and develop staff
Champion safeguarding & risk management
Ensure housing & compliance excellence
Build impactful partnerships
Drive quality, governance & reporting
Manage budgets & resources
We’d love to hear from you if you have:
Essential experience & skills
Desirable
About Life:
Life is a national pregnancy support charity that helps over 60,000 people a year. Through our services, we help people – whoever they are – to meet pregnancy or pregnancy loss with courage and dignity so they can flourish.
Our services include:
Our values :
All our work is underpinned by the following universal human values:
Information about the role:
For further information, please see the attached job description.
Salary: £34,000 per annum
Hours: 35 hours per week over 5 days
Location: Home Based with Extensive Travel across the Midlands and South East England
Benefits:
At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:
Safeguarding and Equality:
Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.
We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.
All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.
The client requests no contact from agencies or media sales.