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Heathrow Multi Faith Chaplaincy, Hounslow (On-site)
£24,000 per year
Heathrow Multi Faith Chaplaincy Charity (CIO) is based at Heathrow Airport and is dedicated to supporting everyone’s life journey.
Posted 6 days ago
Closing in 3 days
Crohn's & Colitis UK, Hatfield (Hybrid)
£45,000 - £48,000 per year, depending on experience
An opportunity to join us as IBD Project Manager, leading and coordinating the redesign and relaunch of the IBD UK Alliance programme.
Posted 6 days ago Apply Now
MLC Partners, Remote
£42,000 - £50,000 per year
Posted 1 week ago Apply Now
NFP People, Remote
Circa £33,500 (FTE circa £51k pa (inner £2,595 pa / outer £1,495 pa) London weighting
Posted 1 week ago
Social Interest Group, London (On-site)
£27,000 per year
Join our 24-hour support service which focuses on supporting individuals who have experienced long-term street homelessness.
Posted 1 week ago
Closing in 3 days
Prospectus, Remote
£30,550 per annum (FTE) (£18,332 actual)
Posted 1 week ago
Closing in 4 days
Brentford FC Community Trust, Brentford (On-site)
£13.50 - £14.50 per hour
Posted 1 week ago
The Hospice of St Francis, Berkhamsted (On-site)
£67,000 - £74,000 per year
Candidates will be an experienced qualified accountant ready to take a Board level position and shape the future direction of the charity.
Posted 1 week ago
Page 10 of 22
Twickenham, Greater London (Hybrid) 19.71 miles
£27,000 - £29,000 per year
Full-time or part-time (30 hours per week)
Permanent
Job description

This assignment will be fulfilled at 30 hours per week across Monday–Thursday. The successful applicant will be required to visit the charity's Twickenham office at a minimum of once per week.

Fowler’s Syndrome UK (FSUK) is the only charity in the world dedicated to women (and afab) with Fowler’s Syndrome or Chronic Idiopathic Urinary Retention; a life-changing and poorly understood bladder condition that causes full or partial urinary retention.

The CEO is excited to welcome a proactive, purpose-driven, and resourceful Communications and Engagement Lead to join their small and purposeful team and support the next phase in their journey.

In this multi-faceted role, you will ensure that women affected by Fowler’s Syndrome, clinicians, researchers, and the wider public are intimately connected to the charity’s work.You will enable smoother pathways for women seeking support and for healthcare professionals looking to access educational resource, while also leading on a range of communications activities and awareness campaigns.

You will take responsibility for coordinating and facilitating online patient groups, supporting in-person events, and helping to manage FSUK’s Patient Council. Tasked with overseeing the development of content such as patient resources, you will also advance wider engagement across projects and research programmes and ensure that communications, whether via newsletters, social channels, or the website, reflect the charity’s voice and values.

While having strategic oversight and leading on the management of FSUK’s digital platforms, including their WordPress website and database consisting of patients and supporters, you will also maintain the charity’s fundraising pages. Through managing FSUK’s social platforms, you will at times also interact with the charity’s online community, responding with empathy as you engage and signpost to appropriate services such as the FSUK helpline, ensuring people feel heard, informed, and supported.

Lastly, raising awareness of FSUK will be one strand of the communications output, however the primary focus is to enable stronger connections and deepen engagement and trust with their valued community.

Emotional intelligence and well defined interpersonal skills are essential, as well as having proficient organisational ability and the aptitude to multi-task when working independently within this small, yet fast-moving team.

A background in patient, community, or stakeholder engagement will also be a valuable asset, alongside exposure to working within the health, charity, or research sector. You will have demonstrable experience producing content, alongside a track record of managing digital and social platforms (particularly Instagram).

Lived experience of Fowler’s Syndrome is not essential but would be a welcome bonus!

If you’re eager to play a vital role in nurturing FSUK’s patient community, enhancing the digital presence of a growing charity that ensures women living with Fowler’s Syndrome feel supported and connected, we’d love to hear from you.

Fowler’s Syndrome UK welcomes applications from people of all backgrounds and especially anyone with lived experience of FS. We actively encourage interest from racially and culturally minoritised individuals, those who are neurodivergent, part of the LGBTQIA+ community, or living with a disability.

Please get in touch if you would like to talk to us about any support that you may need in completing an application

Application resources
Application Instructions

Please apply with an up to date CV and a tailored cover letter that reflects your suitability and interest in this opportunity.

Posted by
Fowlers Syndrome UK View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 13 September 2025
Closing date: 06 October 2025 at 12:30
Job ref: CMO_FSUK
Tags: Campaigns, Communications, Fundraising, Training / Learning, Advocacy, Care Management, Digital, Content Writing / Copywriting, Customer support, Education, Engagement / Outreach, Global Health, Health / Medical, Public Health, Wellbeing, Women's Rights, Community Fundraising, Direct / Supporters, Events / Activities, Digital Fundraising