About PVRI
PVRI is a small charity with a global reach. Our aim is to reduce the global burden of Pulmonary Vascular Disease with a particular focus on Pulmonary Hypertension (PH).
PH is a life-threatening and life-limiting condition that affects millions worldwide, but despite that, it isn’t widely recognised or well-understood. To change that, we bring together a fantastic network of many hundreds of PH doctors, academics, patients, and industry partners to identify and address the key global challenges in PH. In practical terms, we:
- Host international scientific conferences
- Produce an open-access peer reviewed academic journal, Pulmonary Circulation
- Run webinars and e-learning programmes
- Bring our members and networks together in over twenty working forums:
- The Innovative Drug Development Initiative (IDDI): eight multidisciplinary workstreams working to solve the challenges in PVD research and speed the development of new treatment
- Specialty Task Forces: groups working to advance understanding and improve practice in specific clinical areas of PH
- Regional Task Forces: working in-country to address the key regional and national challenges in PH
· Raise awareness of PH and advocate for better access to diagnosis, care and treatment - nationally and internationally
We’re London-based, and our small friendly staff team comprises our CEO Karen, Head of Operations & Impact Elvia, Head of Comms Debs, Marketing Officer Catherine, Project Coordinator Rachel and Admin Manager Katie. We work a flexible hybrid model, with office space in Work.Life, close to London Bridge and Borough Market. Our preference is for our new Advocacy & Engagement Lead to spend at least 1 day a week working from our office, but we are open to other options, and this can be discussed during the application process.
Our values: we’re open, inclusive and easy to engage with, and we’re ambitious for ourselves and for the global PVD community.
About the Advocacy & Engagement Lead (Global Health)
As Advocacy and Engagement Lead, you will be the bridge between our global professional network and local healthcare systems. You will scope areas of need, and work with key regional stakeholders to develop and implement plans for new PH services.
Key tasks include
· Developing roadmaps and care guidelines for the development of PH services in underserved regions
· Working directly with local healthcare leaders and PVRI Workstream and Task Forces to understand and navigate local health systems, influence policy and identify resources
· Supporting with targeted advocacy messages and global PH data including prevalence, health economics, etc.
This is an exciting new post, reporting to our Head of Operations & Impact.
If the 2-year pilot is successful, we hope to make this work a permanent part of our global operations.
We offer flexible working, a positive learning culture and opportunities for you to learn and grow in the role, including opportunities for international travel.
PVRI celebrates diversity, and we’re committed to equity and inclusion in our recruitment practices and in our ways of working. If you’re excited about our mission, and can bring talent and enthusiasm to our cause, we’d love to hear from you.
To read the full job description and to apply for this role, please visit our website.
Interviews: Tuesday 10 February 2026 at our London office
Registered charity number 1127115
Registered Charity 
6 - 10
The client requests no contact from agencies or media sales.
Thank you!
This is an exciting position for an exceptional person with a strong campaigning background to work for one of the UK’s leading rights NGOs. In this role, you’ll have the opportunity to devise high-impact campaigns to achieve real change, co-ordinating a multi-disciplinary high-performing team to further privacy, free expression and data protection rights. Ideally, you’ll also be a key Big Brother Watch spokesperson in the media.
You’ll have both people and project management responsibilities, leading our campaigns on key civil liberty issues such as digital ID, free speech and protest rights, facial recognition, AI and mass surveillance.
You’ll plan, execute and evaluate campaigns across all areas of our work.
Big Brother Watch
Big Brother Watch is a UK civil liberties campaign group fighting for a free future. We’re determined to reclaim our privacy and defend freedoms at this time of enormous technological change. And we fight to win.
We’re a fiercely independent, diverse, non-partisan and non-profit group of campaigners and researchers who work to roll back the surveillance state and protect the public’s rights in parliament, the media or the courts if we have to. We publish unique investigations and pursue powerful public campaigns to pursue real change. We work relentlessly to inform and empower the public to collectively reclaim privacy, defend our civil liberties and protect freedoms for the future.
We’re a small, dedicated and highly effective team of seven full-time staff and five volunteers.
Job description
Campaigns
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Develop and execute quarterly campaigns plans to manage and schedule relevant advocacy, policy and research work to further our strategic aims
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Co-ordinate a high-performing, multi-disciplinary team to pursue campaign goals
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Identify advocacy and press opportunities to further campaign aims
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Strategise/oversee development of campaign materials & engaging supporter actions
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Promote Big Brother Watch’s campaigns in the media, writing articles and giving quotes/live interviews to press and for our social media channels
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Uphold Big Brother Watch’s reputational excellence in public fora
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Work with Director to periodically set campaign priorities in our organisational strategy
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Communicate complex issues to varied audiences, whether parliament, press or public; whether through traditional means (e.g. print media) or public stunts and actions
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Build strong relationships with parliamentarians and advisors across all parties
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Identify opportunities to further our strategic aims in parliament through committees, parliamentary questions and other activities; as well as regional assemblies and on occasion local government
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Work with stakeholders and pursue collaborative campaigns/coalitions on key issues
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Develop and advance Big Brother Watch’s relationships with allies across Government, legislative bodies, international organisations & NGOs in a strictly cross-party manner
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Reflect, evaluate and implement learning from Big Brother Watch’s campaigns
Events
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Organise Big Brother Watch’s party conference fringe events annually
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Seek other opportunities to organise Big Brother Watch events at appropriate times, including report/campaign launch events, public events and stakeholder roundtables
Management
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Oversee the organisation’s execution of campaigns, ensuring appropriate delegation
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Ensure the highest level of quality of all campaigns output
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Line management responsibilities for the advocacy team (currently two Legal and Policy Officers)
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Manage staff performance and development, and ensure wellbeing
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Help foster a positive, supportive and high-performance work environment
The client requests no contact from agencies or media sales.