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Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000
Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.
Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.
We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.
You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.
We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.
A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.
Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.
We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.
This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.
If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.
Key dates
Applications open: 27 May 2026
Closing date: 9am, 22 June 2026
Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.
How to apply
To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.
Please note that applications submitted without both a completed application form and CV will not be considered.
We are unable to accept enquiries or applications from recruitment agencies.
To have a cure for cavernoma that people living in the UK can access.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
National sight loss charity, Retina UK is currently recruiting for a personable, motivated Senior Research Coordinator with experience in communicating science to a lay audience, who is educated to degree level in a biomedical or clinical science, and has excellent presentation and planning skills.
Key responsibilities will include ensuring effective communication of research into inherited sight loss, including the projects we fund, to our community, fundraisers, supporters and staff and measuring the impact of our research programme.
The client requests no contact from agencies or media sales.
Title: Active Recovery Practitioner
Place of work: The Southmead Project, BS10 6AS and various locations around Bristol and Somerset
Interview date: Tuesday 9th June
The Southmead Project:
The Southmead Project is an equal opportunities employer providing free specialist trauma counselling and support for adult survivors of abuse across Bristol and surrounding areas. Our recruitment is done in line with safer recruitment practices. We welcome people of any race, ethnicity, gender identity, sexual orientation, class, ability, language, religion and cultural background. We value the differences between people and affirming each person as an individual.
We value our team very highly and pride ourselves on being a supportive employer. We provide the following benefits to encourage every staff member to have a supported, well-rounded and enriched working experience:
● Paid supervision for 1.5 hours per month, with an external clinical supervisor
● Line management for 1 hour per month
● Training budget of £500 per year to spend on relevant training of that person’s choice
● Employer pension contribution of 5%
● Generous annual leave allowance and paid sick leave
● Cycle to work scheme
● Optional private counselling for up to 12 sessions per year with an external counsellor of that person’s choice
We also support employees with reasonable adjustments through the Access to Work scheme.
The Active Recovery Project gives adult survivors of abuse the opportunity to take part in community-based activities. It provides a safe and supportive space for clients to participate in a variety of group activities with others who share or understand their experience and develop peer relationships, resulting in increasing confidence and reduced isolation.
The activities are based on ideas from our members and include water-based activities (such as rowing, canoeing, sailing and kayaking), surfing, trips to community spaces and creative sessions (such as arts and crafts). Activities take place every week. Each activity will last approximately 2.5 hours each. Members can attend the group sessions for up to 18 months.
The current Practitioner has said:
“The decision to leave this role has been so difficult, the team are so lovely, caring and supportive. In the role I have got to go surfing, walk alpacas and make a bowl on a pottery wheel. Sometimes I honestly can’t believe it’s my job. I have learnt so much and got to work with some of the most wonderful and inspiring people. There are countless moments at groups that I will never ever forget - some of my most amazing moments in life have come at work and that doesn’t happen very often!”
Job Purpose:
The Practitioner role requires working as part of a small team and they will help prepare and deliver two Active Recovery sessions per week, in Bristol and Somerset. The Somerset group runs on a Tuesday and the Bristol group runs on a Wednesday. During the sessions, the Practitioner will be responsible for using a trauma-informed approach to support clients who become dysregulated or need emotional support.
Principal Tasks:
1. Together with the rest of the Active Recovery team, to provide initial trauma-informed assessment phone calls and/or meetings with potential members as part of the registration process for Active Recovery. This includes assessing need, risk and suitability for the service using a trauma-informed approach.
2. To support the Active Recovery Lead in creating safety plans and tailoring activity sessions where appropriate. These will be informed through relationships with members and the initial assessment phone calls.
3. Support the Active Recovery Lead in planning trauma-informed sessions for members.
4. Support the setting up, delivering and debriefing about activity sessions with members and volunteers. Ensuring members are clear on each session's ground rules and safeguarding processes, using the Member’s Agreement.
5. Provide trauma-informed face-to-face support to members at sessions who may become overwhelmed or require help dealing with flashbacks and dissociation.
6. To support volunteers with safeguarding queries and ensure safeguarding procedures are followed, including being the Safeguarding Lead at activity sessions if the Active Recovery Lead is not there and escalating any onward safeguarding referrals and queries to the Southmead Project Designated Safeguarding Lead.
7. Support the Active Recovery Lead with management of volunteers for the project.
8. Develop and maintain an Active Recovery community through email, phone calls, texts and in person.
9. Be the key person in ensuring that members have all the information and resources needed to get to the sessions - building a relationship of trust with members, using Spond, email, texts and calls, creating Canvas, figuring out transport logistics.
10. Support the project’s aim to have the members’ voices at the heart of the project.
11. Contribute to the development of outcome processes in line with the Southmead Project and its funders’ requirements.
12. Maintain positive relationships with partnership organisations for the project.
13. The Practitioner will not have budget responsibility but will ensure that their own personal expenses (mileage/parking) is within the budget for the project, keeping accurate records.
14. Record data accurately and in a timely manner on Oasis.
15. Attend monthly one-to-one line management meetings with the Head of Active Recovery.
16. To attend monthly one-to-one clinical supervision with a Supervisor who is approved by the Southmead Project. Supervision is a requirement of this charity as an organisational member of the British Association of Counselling and Psychotherapy.
17. To work within the framework, spirit and ethos of the Southmead Project’s Equal Opportunities Policy, and actively engage in promoting the policy within the charity and in all dealings with clients and other agencies.
18. Follow the Southmead Project policies, procedures and professional code of conduct as outlined in the Staff Handbook.
19. All members of staff, paid and unpaid, are required to undergo the enhanced level of Disclosure and Barring Service check
Please see documents for full job description and person specification.
Meaningful therapeutic support accessible for adults impacted by abuse and addiction. A safe space for growth, connection and wellbeing for all.

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Release Counselling and Therapy for Women is entering an exciting new chapter.
Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth.
We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values.
This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact.
As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.
The client requests no contact from agencies or media sales.
Join Addiction Family Support
Addiction Family Support is the leading UK-registered charity supporting adults affected or bereaved by a loved one's harmful use of alcohol, drugs, or gambling.
The role: Family Support Worker (Bereavement)
As a Family Support Worker at Addiction Family Support, you will be responsible for delivering a range of services to provide crucial emotional and practical assistance to individuals bereaved (and affected) by the loss of a loved one due to addiction. Through both individual and group support, you will offer a compassionate and understanding presence, helping people navigate grief and loss in a safe and supportive environment.
Our service delivery takes place via several methods, including taking calls on our telephone Helpline, responding to emails through our email service and delivering remote 5-Step Method informed intervention to individuals and groups via an online platform.
Working patterns are flexible and you may be expected to work on a rota basis, and we would hope to be able to offer more hours per week in time when funding allows it.
You will need to be confident in your ability to provide support via a variety of remote and digital platforms, being able to respond to immediate requests for support. You will be an active and involved member of our team and contribute to all aspects of our work to help us achieve our strategic goals and work towards achieving our vision.
Responsibilities:
Ongoing support
As a Family Support Worker (Bereavement), you will have access to regular supervision and peer support, ensuring you feel confident and equipped in your role. Development opportunities are available to help you grow in your position and enhance the support you provide.
Join our team of change-makers
Are you ready to make a difference? We're on the lookout for a vibrant, enthusiastic, proactive and collaborative individual with the right skills and experience to become part of our incredible charity.
Be part of something special
Our clients' continuous positive feedback speaks volumes about the impact of our work, and we take immense pride in it. Emilia Fox, one of our dedicated Patrons, stands with us in our mission.
Join an award-winning journey
This is your chance to become part of an award-winning charity where every day is an opportunity to contribute to the greater good. If you're seeking a dynamic environment filled with compassionate individuals dedicated to creating positive change, we invite you to apply or reach out with any enquiries.
The deadline for submitting applications is 5.00pm on Friday 29 May 2026.
Interviews will be held w/c 8 June 2026.
Supporting people affected or bereaved by a loved one's harmful use of alcohol, drugs or gambling.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary for Senior Health Information Officer
This role is ideal for someone passionate about creating high-quality, evidence-based health information and making complex medical topics accessible to all audiences. You will play a key part in developing engaging content, maintaining information standards, and ensuring patients, professionals and the public have access to accurate, up-to-date resources.
You’ll work collaboratively across teams, manage a wide range of digital and print resources, and help drive innovation in how health information is delivered and used.
Key Responsibilities
About You
Please note this is a summary of the role. For a comprehensive outline of responsibilities and requirements, please refer to the attached job description.
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The Pepper Foundation is a local charity funding children’s hospice care at home, specialised play and family days for children living with life-limiting and life-threatening conditions in Hertfordshire and Buckinghamshire.
The Trusts & Foundations Fundraiser will be joining Pepper at an exciting time as we launch our new three-year fundraising strategy. Backed by committed investment and with full Board approval, we are delighted to be growing the charity to deliver sustainable income that directly supports local children and families with hospice care in the comfort of their own homes.
Working closely with the Head of Trusts & Foundations, you will play a pivotal role in increasing income from trusts and foundations by developing and managing a strong pipeline of funders, securing new grants, and building long-term relationships that lead to increased and multi-year support. You will research and prepare compelling applications to both new and existing funders, alongside producing timely, engaging reports that clearly demonstrate impact.
This role requires a highly organised and motivated individual with a passion for writing, strong attention to detail, and the ability to deliver exceptional cultivation, stewardship and relationship management of trusts and foundations aligned with our mission.
Your work will directly support hospice at home care, specialist play services, and meaningful family days out for children with life-limiting and life-threatening conditions – making a tangible difference to families during the most difficult of times.
Hours: 22.5 hours per week working from home – applicants must live within Hertfordshire or Buckinghamshire (or surrounding counties)
Salary: £19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)
Key requirements:
How to apply: For further details about the role, please download our recruitment pack. Please send your CV with a cover letter explaining why you would make a great candidate for this role and how you meet the job description.
Closing date: 1st June 2026 at 5pm
Interview dates: First-round interviews on 10th and 11th June and second-round interviews on 15th June 2026.
Interviews will take place at our office in Berkhamsted. Please let us know if you have any accessibility requirements or need any adjustments for the interview.
If appointed, an enhanced DBS check will be required.
The client requests no contact from agencies or media sales.