35 Head of marketing and membership services jobs

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

As an Organisational Change & Development Consultant, you'll play a key role in delivering people, culture, talent, organisational design and development projects that support the British Heart Foundation's People Power. Working within the Talent &

Organisational Development team, you'll partner with change specialists, learning technologists and learning and development professionals to drive meaningful organisational change.

Reporting to the Head of Organisational Change, you'll provide project and consultancy support across the Organisational Change and Talent & Leadership teams. You'll work collaboratively with stakeholders to identify challenges, develop evidence-based solutions and deliver initiatives that support organisational priorities.

You'll lead projects and workstreams, develop change, communication and training plans, support organisational design activity and use research, insight and stakeholder feedback to drive successful outcomes. You'll also contribute to business reporting, project evaluations and wider Talent & Organisational Development programmes and events.

About You

As our ideal candidate, you'll have:

• Knowledge of consulting skills, project management and organisational change principles.
• Experience managing multiple projects and supporting organisational change, development or design initiatives.
• Experience working within a Learning, Talent or Organisational Development environment.
• Strong stakeholder engagement, facilitation and influencing skills, with the ability to build effective relationships at all levels.
• Excellent written communication, presentation and organisational skills, with strong attention to detail.
• Strong analytical, research and problem-solving skills, with the ability to use insight and data to inform decision-making.
• A proactive, solutions-focused approach, with the confidence to take initiative and embrace new ways of working.
• The ability to apply behavioural insight to support people development and organisational change.
• Strong IT skills, including Microsoft Word, Excel and PowerPoint.

A qualification in HR, Learning, Organisational Development or Organisational Change would be advantageous, as would knowledge of organisational design principles and processes.

If you're passionate about helping organisations navigate change and delivering initiatives that create positive people and organisational outcomes, we'd love to hear from you.

Working arrangements

This is a project-specific fixed-term contract for 9-12 months, created to deliver the change and communications for our strategic programme to transform BHF into a skills-powered organisation.

This is a hybrid role, where your work will be split between your home and at least one day per week, on average, in our London Office. This may vary from time to time, so you will need to work in a flexible way to unlock your best work for our cause. 

Belonging at BHF

By embracing diversity and fostering an inclusive environment, we strengthen our ability to achieve our mission of saving and improving lives, ensuring our work reflects and serves the needs of every community across the UK.

To hear from our people, check out Belonging at BHF. 

Our people are at the heart of everything we do. By funding research across six decades, we’ve helped keep millions of hearts beating and millions of families together. We’re investing in ground-breaking research that will get us closer than ever to a world where everyone has a healthier heart for longer.

Benefits and development

At BHF, we offer a comprehensive range of benefits designed to support our colleagues’ wellbeing and professional growth.

To find out more about our benefits you can download the Benefits document at the bottom of this page or check out our Benefits and Development pages. 

Need more help balancing your work and home life? Talk to us about what flexibility is available at the application or interview stage. 

Interview process

The interview process may take place in-person or virtually via MS Teams.

How to apply

It’s quick and easy to apply for a role at the BHF. Just click on the apply button below. All you’ll need is an up-to-date CV and a supporting statement, outlining your interest in the role and how you meet the role’s criteria.

Our recruitment processes are fair, accessible, and inclusive. BHF use anonymous CV software as part of the application journey. 
 
We support responsible use of AI to help shape your application. By applying for a role at BHF, you confirm that your application is authentic and reflects your own skills and experience, to ensure everyone is assessed fairly.

Should you need any adjustments to the recruitment process, at either application or interview, please contact a member of the Recruitment team. 

We Are Survivors is a survivor-focused voluntary sector organisation that aims to create and facilitate safe spaces for male (including trans and non-binary individuals) survivors of sexual harms across Greater Manchester, providing access to quality-assured support. Our work is focused on developing ways for individuals to empower themselves to work through personal and sometimes painful issues, guided and supported by our trauma-informed team, following the trauma and recovery model.

Our vision is to have “A society where NO male survivor is left behind”

We are looking for an Executive Assistant who can work closely with our CEO and help them make the best use of their time, relationships and influence.

At the heart of this role is our ambition that no male survivor is left behind. You will support the CEO to keep that ambition visible in their day-to-day work, helping them stay focused on the conversations and opportunities that can create meaningful change for male survivors.

This is more than an administrative role. You will help the CEO manage their priorities and prepare for important meetings. You will keep track of commitments, follow up on agreed actions, and ensure the right information is available when needed. There will be times when plans change quickly, so you will need to be comfortable using your judgement and adapting your approach.

You will also help We Are Survivors engage and influence at the local, regional, and national levels. This could involve supporting contact with commissioners or government departments, preparing briefings for meetings, coordinating events and helping the CEO maintain strong relationships across the sector. Your work will help ensure that the experiences of male survivors are heard in the places where decisions are made.

As someone working closely with the CEO, you will often be a first point of contact for people inside and outside the organisation. You will need to be approachable while understanding the importance of confidentiality. You should feel confident managing sensitive information and recognising when something needs the CEO’s immediate attention.

We are looking for someone who is organised and able to take initiative. You will share our commitment to male survivors and understand the difference that thoughtful executive support can make. You do not need to know everything from day one, but you should be curious about our work and motivated by the opportunity to help We Are Survivors extend its reach and impact.

WHO WE ARE

University Hospitals Birmingham Charity consists of four hospital charities supporting some of the busiest hospitals in Birmingham – Queen Elizabeth Hospital Birmingham, Heartlands Hospital, Good Hope Hospital and Solihull Hospital.

Being in hospital can be really tough physically and emotionally. This is why our hospital charities do as much as they can to help patients and their families feel as supported as possible during their treatment.

Each hospital charity provides the added extras that are "over and above" what the NHS can fund as standard. This includes life-saving equipment, state-of-the-art facilities, training and research, as well as free accommodation and patient comforts.

Across UHB Charity we are currently raising funds for a Total Body PET CT Scanner as well as our Children's and Newborn Appeals and Home from Home accommodation for civilians and military personnel, to name just a few.

As a Legacy Administrator you will help us raise much needed funds that will make a real difference to our patients and their families.

JOB SUMMARY

This role is primarily based at Queen Elizabeth Hospital Birmingham, with the expectation of occasional travel to other hospital sites.

This post is within the Fundraising Team at University Hospitals Birmingham Charity, which is the official charity of Heartlands Hospital, Good Hope Hospital, Solihull Hospital and the Queen Elizabeth Hospital Birmingham.

This is a new role within the Charity Team. In this role, you will be a crucial part in ensuring that all legacies to the charity are administered in a timely and sensitive manner, maintaining and building great relationships with both internal and external stakeholders.

This role will involve occasional evening and weekend work at charity events and events organised by our supporters. 

PRINCIPAL DUTIES

• Work with the Senior Fundraising Officer responsible for Legacies to actively manage a varied caseload
• Handle a mixture of pecuniary, residuary and reversionary legacy cases
• Tailor your approach to each case depending on the circumstances, having a flexible approach whilst ensuring that all gifts are administered in a timely manner
• Work to optimise University Hospitals Birmingham Charity legacy income where appropriate
• Ensure that all bequests to UHB Charity are received and utilised, in accordance with UHB Charity policies
• Maintain your knowledge of current legislation
• Play an active role in the wider legacy team and promoting Gifts in Wills where necessary
• Working alongside the Stewardship Team, ensuring accurate data inputting and correspondence both written and verbal with supporters
• Managing and prioritising unpredictable and frequently interrupted busy workload.
• Working with and deliver clear objectives and key performance indicators.
•  Proactively contributing to the achievement of targets and the ongoing fundraising success of the Charity as a whole and to be a supportive, effective and collegiate team member.

COMMUNICATION

• Relaying accurate and timely information to the fundraising team, communications team, grants team and stewardship team. Communicating with donors and fundraisers.
• Dealing with enquiries from the general public, disseminating information and ensuring that the appropriate action is taken, whilst maintaining the Charity’s policies and procedures

ORGANISATIONAL RESPONSIBILITIES

• Maintaining Raiser's Edge donor management system. Accurate data inputting of donations, fundraising, thank you letters and general archiving, production and upkeep of databases. 

PROFESSIONAL RESPONSIBILITIES

• Ability to present oneself in a professional manner as a representative of the hospital and the charity.
•  To maintain confidentiality in all aspects of duty including fundraiser and donor data.
•  To assist in maintaining accurate records and to complete and return as requested statistical data.
• To maintain an accurate effective database, recording essential information and providing statistical data in accordance with guidelines and policy using Raiser's Edge, Microsoft Office, Word and Access.
• To represent the Charity in a variety of different contexts and to a variety of different audiences.
• To ensure that a positive image of the hospital and the Charity is projected at all times.
• To hold a flexible approach to working hours (the role will require the post holder to work evenings and weekends as necessary).
• To hold a flexible approach to work when asked to take on other fundraising or admin duties when the team needs to cover holidays, or at times of workload pressure. 
• To adopt a supportive and collegiate approach when working with the fundraising team and other colleagues within the hospital.

The Legacy Administrator will also carry out other projects and duties as directed by the Head of Fundraising, Director of Fundraising and Charity Chief Executive.

NOTES:

This is not intended to be an exhaustive list of responsibilities but more an outline framework against which the post holder will be given flexibility to define the detail. Any changes will be the subject of consultation with the post holder.

All employees must adhere to and perpetuate Charity Policies and Procedures relating to:

• Health and Safety
• No Smoking at Work
• Equal Opportunities in Employment, including responsibilities under the Disability Discrimination Act.

Your attention is drawn to the confidential nature of information collected within the NHS. The unauthorised use or disclosure of patient or other personal information is a dismissible offence and in the case of computerised information could result in a prosecution for an offence or action for civil damages under the Data Protection Act 1984.

Please note that employees are employed directly by the Charity and not the NHS.

Employees of the Charity are eligible to join a defined contribution pension scheme, to which the Charity will contribute 8% of an employee’s annual salary in addition to employee contributions.

Employees of the Charity are eligible for enhanced maternity and sickness pay.

Employees of the Charity receive 27 days holiday per year, plus Bank Holidays.

SKILLS/KNOWLEDGE and ABILITY

Essential

• Excellent written skills with first class spelling
• Use of Microsoft Office including Word, Excel, Access, Outlook, PowerPoint along with other software packages
• Ability to ensure accurate data inputting
• Ability to work independently and under pressure, prioritising work to meet deadlines
• Ability to deal with heavy, unpredictable workloads
• Ability to set up and maintain organisational systems
• Ability to work flexibly to meet the needs of the charity
• Problem solving
• Record keeping
• Non-judgemental attitude
• Accepts responsibility for own decisions
• Ability to represent the Charity at events and functions
• Good interpersonal skills and ability to
• influence people at all levels
• Understanding and respect for the importance of patient confidentiality
• GCSE English Language or equivalent
• GCSE Mathematics or equivalent

Desirable

• Educated to degree level or equivalent
• Qualification in community fundraising, corporate fundraising, communications, PR or marketing
• Membership of the Institute of Fundraising

EXPERIENCE

Essential

• Experience and understanding of charity legacy administration
• Ability to communicate clearly, assertively and compassionately with Executors, solicitors and bereaved family and friends
• High level of numeracy skills in order to approve complex Estate Accounts and tax calculations
• Experience of operating in a modern digital workplace, including using digital tools to work collaboratively and productively
• Experience of working on own initiative

Desirable

• Experience of working with donors and fundraisers
• Raiser's Edge donor database experience
• Experience of working and consulting with patients and/or the public 

ADDITIONAL INFORMATION

Essential

• A team player with a flexible approach
• Available to work out of hours if required.

Desirable

• Car driver with a clean licence