• Are you looking for volunteer roles ?

    Go to volunteering section

1,580

Jobs

Job Alerts On

Get job alerts sent straight to your inbox.

By clicking 'Create alert' you agree to the Terms and Conditions applicable to our service and acknowledge that your personal data will be used in accordance with our Privacy and Cookie Policy and you will receive emails and communications about jobs and career related topics.

You will now get the latest from this search sent to your inbox.

You can manage your job alerts by clicking here:

Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 day ago Apply Now
Top job
Betknowmore UK, Remote
£38,000 - £42,000 per year
Posted 1 day ago Apply Now

Upload your CV

Save time when you spot your dream job. Upload your CV with ease.

Upload CV
Enable Leisure & Culture, London (On-site)
£50,000 - £55,000 per year
Posted 1 day ago Apply Now
Young Ealing Foundation, Ealing (Hybrid)
£29,120 - £33,280 per year
Posted 1 day ago Apply Now
The Talent Set, London (Hybrid)
£32,000 - £34,000 per year
Posted 1 day ago
Coram Voice, Bloomsbury (Hybrid)
£27,000 - £28,000 per annum
Posted 1 day ago
YMCA DownsLink Group, Multiple Locations (On-site)
£28,330 per annum
Posted 1 day ago
The Royal Household, London (Hybrid)
£80,000 per year
Posted 1 day ago
The King's Trust, Manchester (Hybrid)
£39,096.00 to £46,915.00, dependent on your location, skills, knowledge and experience
Posted 1 day ago
Closing in 6 days
Charity People, London (Hybrid)
£43,300 per annum
Posted 1 day ago Apply Now
Page 8 of 106
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.

Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.