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Top job
Genetic Alliance UK, Remote
£55,167 - £63,654 per year
Director of Engagement and Impact
Posted 3 days ago
Barrow Cadbury Trust, London (Hybrid)
£47,500 - £55,000 per year
Leading Fair By Design's engagement with political stakeholders, regulators and industry bodies to influence policy and regulatory change.
Posted 3 days ago
The Diocese of Winchester, Multiple Locations (Hybrid)
£32,117 per year pro-rata (£19,270)
We are seeking a skilled and detailed-oriented Trust Funds Assistant to join the Joint Finance Team across Winchester & Portsmouth Dioceses
Posted 3 days ago
Social Interest Group, London (On-site)
£38,700 per year
This is an exciting opportunity to take on a new challenge, either as a development and progression opportunity.
Posted 3 days ago
Closing in 7 days
Blood Cancer UK, Holborn (Hybrid)
£34,950 - £37,950 per year (dependent on experience)
Digital Support Services Officer
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Immigration Law Practitioners' Association, London (Hybrid)
£35,000 - £40,000 per year FTE
We are a human-rights-focused professional association needing someone to engage with and support our members (flexible part-time role)
Posted 3 days ago
Medway Voluntary Action (MVA), Multiple Locations (Hybrid)
£55,000 - £60,000 per year
We are looking for an experienced senior manager or CEO to continue to lead MVA, Medway's outstanding VCSE infrastructure organisation.
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The Hospice of St Francis, Berkhamsted (On-site)
£40,000 - £44,000 per year
As the Legacy Giving Lead you will develop and establish a Legacy Giving programme for The Hospice of St Francis.
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Bridge Renewal Trust, London (On-site)
£27,527 - £30,831 per year
Care Navigator (MACC/Frailty Service)
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The Hospice of St Francis, Berkhamsted (On-site)
£43,000 - £46,000 per year
As Associate Director of Development, you will play a pivotal role in growing income across the Hospice
Posted 3 days ago Apply Now
Hopscotch Homecare, London (On-site)
£38,000 - £42,000 per year
In this great role will be an integral part of our Homecare Service and part of the full management team of our charity!
Posted 4 days ago Apply Now
Closing in 7 days
Learning on Screen - The British Universities and Colleges Film and Video Council, Remote
£ 41,600 (£52,000 per year FTE)
Posted 4 days ago
Page 17 of 119
Remote
£55,167 - £63,654 per year
Full-time
Permanent
Job description

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

  • Lead and develop our approach to engaging and supporting our diverse membership.

  • Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

  • Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

  • Generous pension (5% employer, 3% employee)

  • 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

  • Flexible, home-based working with occasional UK travel. 

  • The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions

Application resources
Posted by
Genetic Alliance UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 24 August 2025
Closing date: 22 September 2025 at 09:00
Tags: Communications, Strategy

The client requests no contact from agencies or media sales.