Chief Executive Officer

Chief Executive Officer

Coventry, flexible and hybrid working

4 to 5 days per week (0.8 to 1.0 FTE)

£48,000 – £55,000 pro rata, depending on experience

Lead an innovative, values-driven team making a real difference for people with muscular dystrophy (MD)

Muscular Dystrophy Support Centre is a user-led charity dedicated to supporting people affected by muscular dystrophy - rare and sometimes life-limiting conditions that impact 110,000 people in the UK. We are one of only two dedicated MD therapy centres in the country and the only one in the Midlands.

We provide long-term, transformative physical therapies and community support to improve mobility, independence and quality of life. In 2025, we aim to support over 600 people through services at our Coventry HQ, satellites across the region, and online.

After a period of significant growth, we’re now focused on consolidating operations, improving systems, and preparing for the next stage in our development -guided by a new five-year strategy.

We’re looking for a compassionate, strategic and operationally-minded Chief Executive to lead us into this next phase. You’ll work closely with our Board, staff, volunteers, and service users to deliver sustainable growth, ensure operational excellence, and champion our community. We are a dynamic, supportive and committed team with a flexible working environment.

About the role

This is a hands-on leadership role, ideal for someone who thrives in a small but ambitious charity setting. As Chief Executive, you will:

• Lead the development and delivery of our strategic vision and operational plan.
• Responsible for day-to-day operations and embed robust systems for monitoring and continuous improvement.
• Ensure accurate data collection and reporting to guide effective decision-making.
• Support and develop a collaborative and values-led team culture.
• Oversee finances and income generation, including statutory funding and voluntary income.
• Act as our lead spokesperson and build strong external partnerships across the health, charity, and policy sectors.

What we’re looking for

We’re open to candidates from diverse professional backgrounds, but we’re especially keen to hear from people who can demonstrate:

• Senior leadership experience in the charity, health or care sectors.
• Strong operational and team management skills – including experience improving systems and processes.
• Experience with strategic planning, income generation, and governance.
• A people-first leadership approach with a strong commitment to inclusion and user voice.
• A warm, grounded communicator with experience building trusted relationships with staff, volunteers, funders, and service users.

What we offer

• Employer-contributed pension scheme (contribution 3% qualifying earnings)
• 22 days annual leave plus bank holidays (pro rata), with additional days of leave accrued with service
• Employee Assistance Programme
• Free tea and coffee provided in the office
• Free onsite car parking
• Friendly and informal office environment

Why join us

• Opportunity to further shape and build a Charity and your role in a key phase of development.
• Opportunity to make a meaningful impact in the lives of people with long-term, degenerative conditions
• Work with a supportive, passionate and collaborative team and Board.
• Experience first-hand the impact of our services and support on service-users and their families.