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Top job
Nystagmus Network, Remote
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We are seeking an inspiring, hands-on leader to champion our community to guide our small charity forward and grow our impact.
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Page 3 of 25
Remote
£44,000 - £48,000 per year or £26,400 - £28,800 PRO RATED to 3 days per week
Part-time (21 hours across the week, flexibly )
Contract (12 month fixed term contract, with an expectation it will become permanent)

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

Help us make sure no one living with nystagmus ever feels alone. We're looking for a Chief Executive who can turn a trusted, growing charity into a fundraising and communications powerhouse.

The Nystagmus Network is a small charity with an excellent reputation. For forty years, we've been the voice people turn to when they need it most. Whether that's a parent whose child has just been diagnosed, an adult navigating a new condition, or a clinician looking for a research partner with expertise in patient involvement. We've built that trust one relationship at a time, and now we're ready to grow it into something bigger.

We need a Chief Executive who sees fundraising at the heart of the charity, and as storytelling with a purpose. If you thrive on walking into a room with a funder and leaving with a partnership, you're the person for us. Securing significant income through trust and statutory bids sits at the heart of this role, and so does the expertise in demonstrating impact. Sharp, compelling reporting that shows funders and supporters exactly what their money makes possible.

We're looking for someone who can shape a communications and brand presence that matches the strength of our reputation, someone with experience in setting direction for external-facing content, comfortable working with fractional expertise to keep our voice consistent and professional, and just as comfortable being the face of that voice themselves. You'll be equally at home talking research priorities with an ophthalmologist as you are meeting a family with an unexpected diagnosis.

This is a hands-on role in a lean, ambitious organisation. You'll hold real responsibility for strategy, governance and our external profile, working closely with a supportive Board of Trustees, but you'll also be close enough to the work to take ownership of the insight and data that prove it's working. We want to hear from you if the idea of taking real ownership of all aspects of running a charity appeals to you, if you are a self starter with the skills to manage a wide range of projects and ideas.

You do not need to have been a Chief Executive before. What you do need is real sector experience, credibility with funders and trustees, and the drive to turn ambition into a deliverable plan. We particularly welcome applications from people with personal experience of nystagmus or other eye conditions.

If you can bring both the strategic weight and the storytelling instinct this next chapter needs, we would love to hear from you.

Part-time · 3 days per week · 12-month fixed-term contract · £44,000-48,000 per annum, depending on experience (pro rata) · Remote, with periodic in-person meetings

Application resources
Application Instructions

Please keep cover letters to one page maximum and be sure to answer the following questions:

1. What is it about your previous experience that makes you a good fit for this role?
2. Please describe what you consider to be the biggest opportunities for the Nystagmus network
3. What made you apply for this role?

Organisation
Nystagmus Network View profile Organisation type Registered Charity Company size 1 - 5

Our mission is to champion the cause of the nystagmus community we support.

Posted on: 07 July 2026
Closing date: 27 July 2026 at 09:51
Job ref: CEO
Tags: Communications, Fundraising, Programme Management, Strategy, Governance / Management

The client requests no contact from agencies or media sales.