We believe that change for people affected by ME won't just happen; it must be made. That's why action and impact are at the heart of everything we do. Whether that's helping people today with support, information, or care. Or working towards securing future change through our research and campaigning work. The intent of everything we do is to pursue positive impact for the lives, rights, and futures of people affected by ME.
As Communications Manager you will play a pivotal role in delivering strategic, impactful communications that advance Action for ME’s work, improve understanding and recognition of ME and support fundraising efforts
The Communications Manager will be responsible for the day-to-day delivery of the communications strategy, leading a team of two other communications staff. You will work closely with colleagues across the fundraising, policy, research and services departments, delivering clear and compelling storytelling, and maximising visibility across media, digital platforms and key stakeholder networks.
Key duties
Leadership and Management
-
Work to ensure that people with ME are at the heart of everything we do through meaningful engagement and participation to influence all aspects of communications and marketing.
-
Contribute to the development of, and then lead implementation of, the Communications Strategy, ensuring the appropriate involvement of key stakeholders, scoping, evaluating, and improving our practice.
-
Maintain a data-insight led approach to the communications work providing regular management information and key performance indicator reports.
-
Work as a member of the Extended Leadership Team.
-
Line manage Communications Team members, supporting them to set and achieve performance objectives through regular one-to-ones and 12-monthly appraisals.
-
Be responsible for Communications budget and the relationship with services providers required for the production of the charity’s digital and printed information and support resources.
Communications and Marketing
-
Raise the profile of the impact of ME, and of Action for ME and its work, to enable the organisation to reach more people and better support need, by establishing a regular cadence of appropriate but innovative product across all main social media channels.
-
Ensure fundraising is supported by embedding clear calls to action around donations and membership growth as a matter of course.
-
Under the direction of the Director of Fundraising, develop all website, press and social media content for charity appeals.
-
Market the charity’s Support and Healthcare services, including key digital and printed information and support resources, to the ME community and the professionals working with them, working closely with respective service leads.
-
Contribute to income generation by working closely with the Director of Fundraising to develop the communication and marketing materials needed to implement the organisation’s Fundraising Strategy.
-
Coordinate the charity’s response to any crisis communications, including developing appropriate crisis management plans and working outside of office hours as required.
-
Establish effective systems/processes for gathering, supporting, maintaining, and managing case studies for a range of purposes (including press and media opportunities, public affairs and policy work, and fundraising).
-
Draft and issue press releases and media statements and ensure appropriate follow-up by telephoning journalists, contacting picture desks etc. as appropriate.
-
Alongside the CEO and any commissioned agency, develop relationships with key press, media and communications stakeholders to enhance the charity’s work.
-
Oversee the production of the annual report, on budget, to schedule, taking overall editorial responsibility for content.
-
Oversee the ongoing development of our digital engagement including our website and social media and being the point of contact on website issues.
-
Fulfil the role of brand gateway keeper, ensuring all digital and printed communications, including information and support resources, adhere to brand guidelines, house style and organisational tone.
-
Maintain an up-to-date knowledge and oversight of how ME and related key issues (e.g. Long Covid) are discussed in the media and wider ME community.
-
Build networks to enhance the charity’s strategic communications and marketing work.
-
Build and maintain an effective social media monitoring regime, ensuring fit for purpose rules of engagement are in place and applied consistently.
Other Key Accountabilities
-
Ensure that all relevant service standards are met including compliance with best practice, legal and regulatory frameworks and internal standards.
-
Ensure best value in all our work.
-
Undertake any other duty within your ability and within reason, as may be required, from time-to-time, at the discretion of your line manager.
-
On occasions, provide management support and cover within the organisation, as needed.
-
Act as an advocate for the charity and its work.
Person specification
Experience, Knowledge and Understanding
-
A minimum of 2 years’ experience working in a communications management role
-
Experience of developing integrated, insight and audience-led communications plans including social media
-
Experience of website and brand management
-
Experience of delivering successful campaigns
-
Experience of engaging with press and/or media including writing press releases and media briefings
-
Experience of working collaboratively with different teams/departments
-
Experience of working in charity communications (desirable)
-
An understanding of ME and the impact on people affected by it (desirable)
-
Experience of integrating fundraising with communications (desirable)
Skills, Behaviours and Values
-
Adaptable and highly organised with an ability to work methodically, managing and prioritising a varied workload, use your own initiative, work independently, and work well in a team.
-
Strong MS Office skills including the ability to use Word, Excel, databases and web-related programmes and software.
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Director of Community Services
£80,000 pa plus excellent benefits
Remote working
Permanent, 35 hours per week
This is a key senior leadership role, responsible for shaping and leading RNID’s community services so that we change lives one by one. The Director of Community Services will lead our flagship RNID Near You services and Contact RNID, with responsibility for business development, operational delivery, service quality, safeguarding, volunteer management and continuous improvement.
As Director of Community Services you will:
-
Provide strategic leadership for RNID’s community services, setting a clear direction, maintaining strong delivery discipline and maximising impact for our service-users.
-
Set and maintain high standards for service quality and assurance, ensuring consistent practice, effective compliance arrangements and a culture of learning and continuous improvement.
-
Grow RNID’s community services by maximising opportunities to establish new RNID Near You services and maintaining a strong future services roadmap.
-
Strengthen safeguarding across RNID, ensuring systems and processes are proportionate, robust and effective in protecting service users, staff and volunteers.
-
Lead volunteer management across RNID, ensuring services have the volunteer capacity they need and that volunteers are well trained, supported and recognised.
-
Drive continuous improvement and further modernisation of services, ensuring they meet community needs. Improve the efficiency of services, helping RNID reach more people.
-
Foster a culture of strong performance management across all services, using insight into demand, quality, risk and impact to support effective decision-making and delivery.
-
Build and strengthen partnerships, particularly with NHS trusts, commissioners and other funders, to grow and improve services.
-
Play an active role in collective leadership and decision-making as a member of the Senior Leadership Team, modelling values-led, inclusive leadership and creating a culture of accountability, learning and continuous improvement.
You are ready to work for a home-working organisation and have good IT skills, particularly with Microsoft Office applications including Outlook, Excel, Word.
We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus. We work with our communities and partners across industry, government, charity, education and more to change life for the better.
RNID has a proud history and big ambitions. We’re focused on making the greatest impact possible across the whole of the UK. We champion the latest technology and the opportunities it brings. We also know the value of a friendly face in local communities to support people where they need it most.
We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.
Closing date: 12 July 2026
Interview dates as below:
- Stakeholder sessions: 20th & 21st July 2026
- Final panel interviews: 27th & 28th July 2026
Supporting people who are deaf, have hearing loss or tinnitus
External Communications Manager
Salary: £40,000–£42,000 FTE
Hours: 30 hours per week
Location: Remote, with regular travel to FitzRoy services, team and stakeholder meetings as agreed. The role requires attendance in London once per month and applicants must be able to commute to services in Norfolk, Nottingham and Hampshire.
Reports to: Head of Communications
Directorate: Business Development and Partnerships
FitzRoy is a national charity supporting people with learning disabilities, autism and mental health needs to live lives rooted in choice, meaning and happiness.
We are strengthening our external voice and looking for a confident, perceptive and warm communicator to help more people understand FitzRoy’s expertise and impact and increase our influence.
This is a moment of change for social care. We want to play a more active role in shaping its future, ensuring the people at the heart of it are seen, heard and involved in the decisions that matter.
About the role
As External Communications Manager, you will help build FitzRoy’s profile and reputation by identifying the stories, insight and opportunities that show what good support looks like in real life.
You will work closely with the Head of Communications, fundraising, business development and operational colleagues to turn external communications priorities into practical plans, content and opportunities.
This is a delivery role with real influence. You will be expected to bring ideas, advise colleagues, shape practical plans and turn opportunities into action.
What you will do
You will:
- develop proactive external communications activity that raises awareness of FitzRoy’s work, expertise and impact
- spot opportunities for FitzRoy to contribute constructively to sector conversations
- identify realistic opportunities for media, sector press, partner or local coverage
- gather stories, photos, video and quotes that help people understand what good support looks like in real life
- use social media, website content, audience insight and analytics to strengthen FitzRoy’s external profile
About you
You may come from charity communications, PR, journalism, public affairs, stakeholder communications or another external communications background.
You do not need to have worked in social care before, but you will need to be interested in people, willing to learn quickly and able to handle stories about people’s lives with care, respect and good judgement.
We are looking for someone who is:
- an excellent writer and editor
- confident developing clear, accessible content for different audiences
- warm, curious and able to build rapport quickly
- able to spot strong stories, ideas and opportunities
- confident creating social media and website content shaped by audience insight
- comfortable working independently and managing competing priorities
- able to think strategically about audiences and influence, while being practical about what can be delivered in a small team
- confident gathering content including photos, videos and quotes
- willing and able to travel to FitzRoy services and meetings as needed
A full clean driving licence and access to a car for work travel are required, as some services are not easily accessible by public transport.
Working at FitzRoy
You will join a small, friendly communications team with big ambitions. This role will suit someone who enjoys a mix of planning, writing, relationship-building, story-gathering and hands-on delivery.
You will help us show the difference good support makes – and help ensure the voices, experiences and achievements of people with learning disabilities, autism and mental health needs are seen and heard.
How to apply
To apply, please submit your application and a covering letter.
We do not expect your covering letter to address every point in the person specification. We would like you to tell us:
- what interests you about this role and FitzRoy
- three things you would bring to the role
- a piece of communications work you are proud of and why
- how you approach using social media, website content and audience insight to build external profile
- how you would approach telling stories about people’s lives with care, respect and good judgement
If you are using AI tools to write your application, please use them with caution. We are looking for your own voice and writing style.
Our vision, mission and values guide us each step of the way, and are as important now as when the charity first began. Our vision A society where p