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Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Role Purpose

The Partnerships Development Lead will be responsible for proactively generating significant income from five and six figure corporate partnerships.

You will manage the new business pipeline, identify new opportunities with prospective corporate partners and develop lasting relationships with them. You will develop compelling applications and creative partnerships proposals securing new and exciting partnerships for Child Bereavement UK.

Main Responsibilities

• Lead corporate new business development to drive the growth of corporate partnerships.
• Develop, manage and steward a portfolio of partners by building strong relationships to maximise multiyear giving and growth.
• Work alongside the Head of Corporate Partnerships and Commercial to support the development and implementation of a new Partnerships strategy covering development of a prospect pipeline, building a culture of peer referrals, annual targets and key account plans.
• Research and identify new corporate prospects who have the potential to make a significant difference to the lives of grieving children. You will develop and implement cultivation strategies to turn prospects into supporters.
• Prepare and present highly customised, compelling funding proposals to prospective corporate prospects.
• Make effective and targeted new business calls, including warm and self-generated leads.
• Work closely with the Corporate Partnerships Account Manager to deliver a thorough on boarding process ad handover for new accounts.
• Identify key decision makers and use strong consultative and negotiation skills to articulate the benefits of a partnership with Child Bereavement UK.
• Maintain an awareness of corporate giving trends, news, events and legislation in the UK and pick up on opportunities or topical issues that will enhance the charity.
• Develop new corporate partnership products to cultivate new donors, and work alongside the Director of Income Generation and Head of Corporate Partnerships on the introduction of a new Development Board.
• Work closely with the Regional Fundraising Managers to spot new opportunities.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Essential

• Experience of working in corporate fundraising, including being confident in pitching and writing proposals for a corporate partner audience.
• Experience of prospecting and new business development.
• Experience of securing 5-6 figure partnerships from corporates.
• Strong interpersonal skills and the ability to relate with senior stakeholders both internally and externally.
• Highly professional, flexible and committed to achieve and exceed KPIs.
• Exceptional communication skills both written and verbal.
• Strong influencing skills.
• A self-starter with strong team working skills.
• Excellent time management and organisational skills with the ability to prioritise work, handle conflicting demands and meet tight deadlines.
• A creative thinker and quick to respond to opportunities
• Strong presentation skills

Desirable

• Understanding of child bereavement.
• Experience of using Salesforce CRM System.

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Role Purpose

The Adult Bereavement Counsellor provides therapeutic support to adults- particularly parents and carers- who are experiencing acute or complex grief following the death of a child.

The post holder will provide comprehensive psychosocial assessments and deliver therapeutic interventions working therapeutically using a range of counselling methods, approaches, and techniques, consistent with Level 3 of the NICE psychological intervention framework (2004).

They will also deliver crisis interventions where appropriate to ensure emotional safety and stability. In addition, the role includes designing and implementing a variety of therapeutic interventions across individual, couple, and group contexts, drawing on different models as required.

Main Responsibilities

Communication and Relationships

• Communicate effectively and sensitively within the organisation and with external professionals, including health and mental health services such as CMHTs and GPs.
• Convey complex and emotionally sensitive information to adults with clarity, empathy, and professionalism.
• Manage interactions with individuals or groups who may be distressed or emotionally impacted by information shared.
• Develop and maintain strong, positive working relationships with colleagues and peers to promote effective teamwork and collaboration.
• Model organisational values and behaviours, demonstrating respect, compassion, and integrity in all communication and relationships.

Knowledge, Training and Experience

• Undertake detailed psychosocial assessments and risk evaluations for parents and carers bereaved of a child, determining the most appropriate interventions and levels of support.
• Deliver individual and, where appropriate, couple or group counselling sessions using evidence-based approaches to address complex grief, trauma, and adjustment to loss.
• Ensure all practice meets professional standards and complies with relevant codes of conduct and national guidance.
• Maintain up-to-date knowledge of current research, evidence-based practice, and developments in bereavement and trauma-informed care.
• Provide crisis interventions when required, ensuring emotional containment, safety and referral to appropriate support.
• Support service users to develop coping skills, resilience, meaning making, and strategies to manage distress and ongoing adjustment.
• Integrate trauma-informed principles, recognising the emotional and physiological impact of bereavement and its intersection with other mental health concerns.
• Engage in continuous professional development and maintain an active professional portfolio in line with professional body requirements.
• Demonstrate knowledge and compliance with organisational policies, procedures, and safeguarding legislation, including Safeguarding Children and Adults and the Mental Capacity Act.
• Provide guidance, supervision, and support to volunteers individually or in groups as required.

Analytical and Judgement Skills

• Apply sound professional judgment and analytical skills to assess needs, plan interventions, and evaluate outcomes in accordance with best-practice frameworks.
• Participate actively in team meetings to plan, review, and evaluate care strategies and approaches.
• Ensure the accurate and timely recording of data and information to support monitoring, evaluation, and service development.
• Contribute to the collection, analysis and reporting of outcome measures to support quality assurance, demonstrate impact, inform practice and interventions, and inform continuous improvement.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.

Person Specification

Education/Professional Qualification

Essential

• MA/MSc or Postgraduate Degree (minimum Level 4 or equivalent) in Counselling, Psychotherapy, Arts Therapy
• Registration with a professional body (ie. HCPC, UKCP, BACP, BAAT, etc)
• Evidence of continuing professional development

Desirable

• Certificate/diploma in supervision
• Dual qualification (social work and counselling/psychotherapy)
• BACP accreditation or eligible for BACP accreditation

Skills and Experience

Essential

• Able to make clear psychosocial assessments and managing complex emotional and mental health needs, risk, and safeguarding
• Awareness of the intersection between loss, mental health, relationships and identity
• Strong assessment, formulation and planning skills within a therapeutic context
• Substantial post qualification experience in counselling or psychotherapy
• Experience of working therapeutically with adults (pre and post bereavement)
• Experience of using outcome measures, feedback tools and data to evaluate effectiveness and impact of interventions

Knowledge and Understanding

• A strong understanding and knowledge of relevant psychological theories, therapeutic interventions, and models of grief work
• In-depth understanding of the impact of bereavement, trauma, and loss especially after the death of a child
• Knowledge of child development, attachment, and resilience frameworks
• Sound awareness of risk assessment, safeguarding legislation and information sharing processes
• Knowledge of evidence-based models of counselling and therapeutic interventions including creative and systemic approaches
• Proven ability to design, deliver and adapt psychosocial assessments and therapeutic counselling interventions effectively through digital platforms, maintaining therapeutic alliance, safety and impact when working remotely with adults.
• Knowledge of safeguarding legislations and impact on practice
• Inclusive in approach, sensitive to diverse experiences of grief and cultural expressions of loss
• Awareness of the importance of service evaluation, outcome measurement, and reflective practice in demonstrating impact and improving quality
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Youth Team Forum Discussion

For roles in our Bereavement Services Team, we will invite those applicants selected for interview along to a discussion forum with members of our Youth Team. This session is held remotely and lasts approximately 20 minutes. The discussion topic will be shared with you in advance of the session.

About us

Foxglove is a non-profit that exists to make the use of technology fair for all. When Big Tech companies abuse their power, their workers or the planet – and when governments use technology to oppress, exclude or discriminate – we litigate and campaign to fix it.  

Big Tech companies have become so large – gobbling up a huge slice of the global marketplace and an unprecedented treasure hoard of user data – that they’re now more powerful than many states. The harmful effects of this concentration of power are everywhere – threats to our democracy, to our privacy, decimated workers’ rights and platforms rife with disinformation and hate. Big Tech and AI data centres are rapidly expanding, resulting in huge strain on energy and water supplies. Worldwide governments are ploughing ahead with the use of algorithms and mass data systems to cut costs and increase efficiency often resulting in digital tools that entrench unfairness and leave the most vulnerable in society in crisis. All these problems are only getting worse with generative AI.

Foxglove works to bring the rule of law to the tech and AI giants who have upended our public square, workplaces, and social lives. We have a strong track record. We’ve launched landmark cases seeking structural changes to big tech’s harmful business models, supported 180+ Facebook content moderators fired for trying to form a union to sue Facebook and their outsourcing company, Sama – winning world-first judgements. We're urging competition regulators worldwide to stop Google’s theft of independent news. We’ve filed the UK’s first legal challenge to a data centre permission decision, forced disclosure of secret contracts between tech giants and the NHS, stopped a racist Home Office visa streaming algorithm, helped make grading fair for UK A-level students and challenged the Department of Work and Pension’s use of an algorithm unfairly flagging disabled people for benefit fraud investigations.   

We are a small but growing team of lawyers, communications experts, and campaigners. We are a CIC, not a practising law firm. We partner with legal firms on cases, directing litigation in multiple jurisdictions. Our work is global, and we work in partnership with lawyers, civil society, unions, and people impacted by Big Tech.

About you

You are a highly experienced lawyer with a strong interest in using the law to hold governments and companies to account. You see the law as a tool for structural change, not just individual wins. You think strategically about how litigation, campaigning, and coalition-building can work together. You appreciate the value and impact of movements and are as comfortable drafting legal arguments as you are speaking to a journalist, or rallying those who've never heard of judicial review to a joint cause. You care about power, meaning who has it, who doesn't, and how to shift it. You follow the ways Big Tech and governments are reshaping society, and you don't just find it interesting: it makes you want to act. You're a sharp, compelling writer who can make complex legal arguments land with different audiences. You're a self-starter who spots opportunities and runs with them, but you're equally invested in the team around you. You share credit generously, help sharpen others' thinking, and understand that lasting change is collective. Most importantly, you believe in making the use of technology fair for all.

If this is you; if you want to take on some of the most powerful companies and governments in the world, and you think the law is one of the tools we have to do it; if you are seeking a role where the work is urgent and the stakes are real, we would love to hear from you.

The role

The post holder will work alongside our Co-Executive Director, Head of Legal and Legal Administrator in developing and managing Foxglove’s legal work. You will develop and drive forward a significant number and range of cases, including the development of case theories, investigating and collecting evidence, drafting correspondence, evidence and submissions. You will also be responsible for coordinating and managing external legal teams, in multiple jurisdictions. This will require you to have the comfort and ability to navigate diverse settings, while also having the insight to weigh up the benefits and challenges of pursuing cases in different jurisdictions. You will serve as an external representative for Foxglove’s work, writing and speaking on topics of relevance. You will also be a sparring partner for others in the team, bringing a creative mindset and political savviness. UK and international travel are required. Flexibility with working hours will sometimes be needed.

Key responsibilities include, but are not limited to:

Case Development and Management

• Build connections, and listen to affected communities, unearth and pursue issues caused by tech injustice, coming up with innovative legal solutions.
• Build and maintain relationships with impacted community members, unions, other lawyers, experts, co-counsel, intervenors, civil society organisations, whistleblowers, and the public.
• Explore and develop new and undiscovered opportunities for Foxglove to be impactful and effective in our work.
• Effectively work with the co-Executive Director and Head of Legal to develop and implement Foxglove’s legal strategy.
• Manage multiple cases at any one time, while also thinking to the future regarding cases that should be explored and developed.
• Draft and comment on technical and legal documents and correspondence.
• Lead evidence gathering.

Compliance and Risk Management

• Manage court deadlines and time limits where applicable.
• Ensure regulatory compliance in all aspects of your work and our cases.
• Always maintain the strictest standards of client confidentiality.
• Always maintain the strictest concern for and awareness of data protection and Foxglove policies.
• Keep up to date with the global political and litigation landscape concerning tech justice.

Other

• Help ensure communities’, workers’ and affected individual’s voices are heard in our campaigns, communications and advocacy work.
• Contribute to external representation and writing, including through media appearances, social media posts, blogs and op-eds.
• Contribute to the development of materials for advocacy purposes including video or audio testimony, photographs etc.
• Support others in our legal team, across Foxglove, and the relevant ecosystem in developing strategies to use the law to hold governments and companies to account.
• Other ad hoc tasks as required.

Person Specification

Essential

• Substantial experience in legal practice and conducting litigation and a demonstrated understanding of litigation strategies.
• Creative thinking and imagination.
• A strong interest in using the law to hold governments and companies to account.
• Qualified lawyer in any jurisdiction with at least 10 years of legal experience.
• Significant experience in legal practice in the UK.  
• Demonstrable commitment to supporting marginalised communities to access justice.
• Ability to learn new areas of law quickly and develop new areas of work.
• Good political antennae and excellent relationship building and management skills.
• Experience conducting cases from initial advice through to trial.
• Relevant experience in analysing complex factual and legal situations and helping to advise clients in accordance with their aims.
• Experience in dealing sensitively with clients, whistleblowers and experts.
• Experience in working on complex matters, which require analysis of large amounts of documents and data.
• Excellent communication skills, demonstrated by the ability to communicate accurately, clearly, concisely and persuasively, both verbally and in writing.
• Excellent time management skills demonstrated by the ability to organise and prioritise a complex workload and work to tight deadlines.
• Experience in working and leading a team environment.
• Comfort with working at both the details-driven operational level and big-picture strategic level, as well as the ability to navigate between the two.

Length and Salary

The role is permanent. The annual salary is £88,400 per annum less any required deductions for income tax and national insurance.

Our team works remotely, and this role can be based anywhere. We would prefer you to work within or close to UK office hours, but this is flexible. Our team travels every two months for team days and twice a year for team retreats. This role will include significant UK and international travel. Only candidates with the right to work in their location will be considered.

How to apply

Please make your application via Applied, answering the application questions and uploading your CV. We will not review applications sent via a job board or to our email. Applications will be reviewed on a rolling basis with first round interviews likely to take place in May for selected candidates.

Foxglove does not use AI in its recruitment processes, except to detect applications for AI use. As a tech- justice organisation, we ask the same of our candidates.

Foxglove is being supported in this search and appointment process by SCHC Advisors. For a confidential conversation to learn more about the role, please contact Sophia Copeman.

Foxglove is growing and we are striving to build a team that is inclusive. We will create a diverse and adaptable environment where we support people to do their best work. We believe an effective and creative team is made up of people from different walks of life. You can read more about how we work and what we offer our staff on our website.

We encourage people from historically disadvantaged or underrepresented groups in the legal profession to apply.

If you require any reasonable adjustments to complete this process, or have any questions, please get in touch with Sophia Copeman.

If you would like to know more about how we process your data as part of the recruitment process you can read our recruitment data use policy.