Knowledge management officer jobs in Belfast
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The Katie Piper Foundation is seeking an experienced Finance and Business Manager to join our small, dedicated team in this newly created role, central to supporting our growth over the next three years.
You will lead all aspects of financial management, working closely with the CEO on budgeting, planning, and resource allocation. Responsibilities include overseeing day-to-day finances, producing management accounts, reporting to the Board, and ensuring strong financial controls and compliance.
In addition, you will help strengthen the charity’s wider operations, improving systems across IT, data, and reporting, as well as supporting risk management, policy development and measuring and communicating our impact.
This will be varied and evolvingrole suited to someone confident working across both strategic and operational areas, and comfortable driving organisational improvement.
We are a fully remote team. The role is home-based and part-time (28 hours a week, FTE 35 hours), and we are open to flexible working arrangements.
We are looking for a proactive professional with strong financial expertise and a broader business mindset. If you are ready to take on a pivotal role in a small team supporting a life-changing cause, we would love to hear from you.
To learn more about the role and how to apply, please view the full job pack here:
https://lnkd.in/dXjWSVwV
The Katie Piper Foundation, established in 2009 by burns survivor Katie Piper OBE, provides rehabilitation to survivors of life changing burns
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.
The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for:
Trusts and foundations:
- Identify and research trusts and foundations that would support our organisational priorities and funding needs
- Develop high quality, compelling grant applications and cases for support
- Build and maintain a healthy pipeline of funding opportunities
- Lead funder relationship management and deliver high-quality stewardship
- Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
- Working closely with technology and delivery teams to build evidence-based cases for support for key projects
- Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
- Attending external events and meetings to support our fundraising strategy and learning
Major donors:
- Identify and research potential major donors whose interests and capacity align with our mission
- Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
- Build and maintain a healthy pipeline of potential major donors
- Develop tailored engagement and stewardship plans approaches for each donor
- Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
- Lead major gift conversations and negotiations, including face-to-face meetings
- Provide high quality, personalised stewardship to major donors
- Identify opportunities to grow or repeat giving through deeper donor engagement
- Deliver exceptional stewardship to major donors
Individual giving
- Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
- Maintaining and monitoring our individual giving platforms
- Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements
Application instructions
- Submit your CV and one-page cover letter via CharityJob
- Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
- You must answer the screening question on the application page
- Applications without a cover letter or screening question will not be considered
- Applications due: 23:30 Wednesday 27 May
- First round interviews (online): 4/5 June 2026
- Final interviews (online or in person) 10/11 June 2026
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Bipolar UK
Bipolar UK is the only national charity dedicated to supporting people affected by bipolar — including individuals, carers, families and loved ones. Over one million people in the UK live with bipolar disorder, yet many experience symptoms for years before receiving an accurate diagnosis.
We are entering an exciting new phase following the launch of our co-produced three-year strategy (2026–2029). Over the coming years, we will reach more people than ever before, expand access to self-management support, and build understanding of bipolar across workplaces, services and communities.
At the heart of our work is the belief that people affected by bipolar are the experts in their own lives. We are committed to equity, diversity and inclusion, and to ensuring our services are accessible, culturally responsive and shaped by lived experience.
Purpose: The Peer Support Officer role will work within Bipolar UK’s Peer Support Line team to support our community through telephone and email support across the UK.
The role involves using your skills and knowledge to support people affected by bipolar disorder with support requests and providing information and signposting to people via email and telephone. The successful applicant will also manage service reports in Salesforce, report back regularly to the management team, as well as developing links with other mental health services or appropriate agencies.
Though Bipolar UK does not offer Crisis Support, the successful applicant may have to direct members of our community experiencing a crisis to relevant services and will also be responsible for recognising and reporting Safeguarding incidents within the bounds of Bipolar UK’s Safeguarding Policies.
The position requires good personal interaction and the ability to empathise with service users while remaining calm and considered in sometimes difficult situations. This is a varied and hands on role and we are looking for someone with good communication (verbal and written) along with good organisational skills. Bipolar UK will offer the successful applicant regular support and engagement with the team, as well as reflective practice sessions throughout their service with the charity.
The Peer Support Officer reports to the Services Manager who manages this service. This will be a home-based role with occasional travel, such as team days/meetings/training.
Why join us?
This is an opportunity to provide practical, non-clinical information and peer support to our community, including family and loved ones. Our Peer Support Line is often a first point of contact, offering a listening ear, helping to reduce isolation, and signposting people to relevant information, services, research and campaigns.
You will join a team of highly skilled colleagues who share the same passion to support our community in a safe and appropriate way.
Specific Responsibilities
- Act as an initial point of contact with the charity for all enquiries about our services
- Act as an initial point of contact for all people affected by bipolar disorder seeking support, information and signposting
- Direct enquiries for Bipolar UK’s additional services, including understanding Bipolar UK’s specific resources and training opportunities for workplaces and connections for research
- Build and maintain relationships with existing volunteers and with volunteers expressing interest in supporting Bipolar UK
- Ensure that all service provided by both the postholder complies operationally with Bipolar UK policies and procedures, including safeguarding and data protection postholder must handle personal/special category data confidentially and in line with policy/UK GDPR
- Contribute to the development and delivery of new formats of peer support in a spirit of co-production
- Ability to work flexibly and responsively, responding to urgent requirements
- To ensure that all support information and signposting options are kept up to date
- To complete all support records in a timely manner
- Reporting all Safeguarding concerns and crisis incidents in line with Bipolar UK’s relevant policies
- To work with community mental health teams and other interested stakeholders to promote the services of the charity
- To act as an advocate for Bipolar UK within your work
- Willing to travel within the UK as deemed appropriate by the organisation, reasonable adjustments are available.
- Other duties deemed appropriate by the Chief Executive to assist in achieving the aims and objectives of the charity
Person Specification
The successful candidate will have:
- Understanding of lived experience and peer support
- Ability to work as part of a team and individually using own initiative
- An understanding and awareness of safeguarding
- Ability to work autonomously and at times remotely from line manager
- Experience of data collection and monitoring
- Excellent communication skills
- Excellent organisational skills
- Be competent in the use of Microsoft 365 products including Outlook and other Microsoft Office programmes
- Experience of delivering peer support in paid employment or as a volunteer
Our Commitment to Equality, Diversity & Inclusion
Bipolar UK is an equal opportunities organisation. We warmly welcome applications from people of all backgrounds and particularly encourage applications from people with lived experience of bipolar or other mental health conditions, people from under‑represented communities, and those whose voices are less often heard in mental health spaces.
All recruitment decisions are based solely on skills, experience and suitability for the role.
Data Protection
Any personal information you provide will be handled securely and used only for recruitment purposes, in line with UK data protection legislation.
Safeguarding
All employees are expected to work in line with Bipolar UK’s safeguarding policies, ensuring safe, respectful and empowering environments for everyone we work with.
The successful candidate will likely have:
- Experience of partnership working with statutory and third sector organisations
- Lived or professional experience supporting people affected by bipolar, or severe mental health conditions.
How to Apply
Bipolar UK operate a blind recruitment practice and advertise our roles via CharityJob.
Please submit your CV online to CharityJob with a covering letter (maximum two A4 pages). Your cover letter should clearly demonstrate how your experience meets the person specification and explains your motivation for working with Bipolar UK
Closing date is 9am on Monday 25 May 2026.
Our mission is to empower everyone affected by bipolar to live well and fulfil their potential.
Policy and Public Affairs Manager (England)
Reporting to: Head of Policy and Public Affairs
Line Management: 1 Policy and Public Affairs Officer England
Location of work: Remote but role holder will ideally be London-based to be able to frequently commute for meetings/ events at Westminster. The role may involve also some infrequent travel across the UK.
Contract type: Full-time, 35 hours per week, although flexible/ compressed hours will be considered. The role will require occasional evening and weekend work.
Contract Length: Permanent
Salary: £42,000
BACKGROUND
Magic Breakfast is the UK’s leading school breakfast charity and makes a difference to over 350,000 children and young people every day by offering breakfasts and expert advice to tackle child morning hunger in schools across England and Scotland.
This is an exciting time for Magic Breakfast as the benefits of school breakfast provision are increasingly recognised by policymakers, educators and the public. The Policy and Public Affairs (PPA) Team is central to this work. And through our new organisational strategy, Nourishing Futures, the work of the PPA Team is growing to meet our advocacy ambition to expand school breakfast provision and deliver our vision which would see every child in the UK nourished, empowered and thriving.
JOB PURPOSE
The role of the Policy and Public Affairs Manager is a high-impact role, central to designing and delivering Magic Breakfast’s national policy and public affairs strategy in England. The role holder will lead the development of evidence-based policy positions and work collaboratively to drive forward strategic, integrated and impactful advocacy campaigns to successfully influence decision-makers, policy change, and funding frameworks aligned with our key objectives. Specifically, you will also lead the design and implementation of our new workstream to expand school breakfast provision to secondary schools and early years settings, alongside our work to ensure the effective implementation of the Free Breakfast Club Programme.
More broadly, you will keep abreast of political developments relevant to Magic Breakfast - proactively identifying opportunities to respond, influence and shape the debate across the school food system and provide strategic, analytical and timely advice to the Senior Leadership Team.
Using your excellent communication skills, you will be able to translate complex policy into tailored and effective communications, policy briefings, positions and submissions, and will play a lead role in confidently engaging external stakeholders including UK Government Ministers, Parliamentarians, special advisers, officials and sector partners.
We are looking for someone who enjoys collaboration, who shares our passion for driving systematic change, and who can use their experience to navigate, respond to, and influence the fast-moving political environment to deliver lasting and meaningful change. You’ll be part of a collaborative and ambitious organisation, working at the intersection of policy, practice and impact – putting children and young people at the heart of everything we do and helping to ensure every child starts their day nourished, empowered and ready to thrive.
KEY RESPONSOBILITIES
- Lead the policy development process in consultation with cross-organisational teams and external organisations to develop clear, evidence-based policy recommendations and positions.
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Build and maintain strong relationships with UK Government Ministers, Parliamentarians, Special Advisers, officials and sector organisations, including conducting stakeholder mapping and power analysis to identify key routes to influence.
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Design, lead and implement integrated advocacy campaigns to deliver maximum impact in collaboration with cross-organisational teams.
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Work closely with colleagues to share expertise and intelligence, inform and shape research areas, support campaign activities aligned with advocacy objectives, and respond proactively to live developments across the organisation.
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Line manage and support the development of the Public Affairs Officer.
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Strong ability to translate complex policy into clear, persuasive communications tailored to specific audiences to deliver maximum impact.
Please read the full job description attached below.
WHAT WE OFFER
At Magic Breakfast we value our employees and work hard to develop offer a supportive, respectful culture which enables everyone to thrive.
Please see our job pack below
Please see our website
APPLICATION PROCCESS
Should you wish to discuss the role before applying please email our People and Culture Team, HR @ magicbreakfast .com
Shortlisting: w/c 25th and 26th May
Interview 1: w/c 1st and 2nd June
Interview 2: w/c 8th and 11th June
We reserve the right to close the vacancy early if a high volume of applications are received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Location: Home based
Hours: Part time - 18 hours
Terms: One-year fixed term contract (with a possibility of extending the role funding allowing)
Salary: FTE £24,750 (actual £11,880)
Pension: NEST Scheme
Annual Leave: 28 days pro rata (inclusive of bank holidays)
Normal working week: 37.5 hours
What we can offer you:
• Flexible, remote working from home.
• A positive and friendly staff culture.
• Annual in-person meet-ups as a team.
• Laptop and Phone as required.
• Option to discuss and set your own regular working hours.
• The opportunity to make a difference to a growing charity and a large, engaged
community.
• Organisation wide shut down at Christmas in addition to your holiday entitlement
ABOUT US
PANS and PANDAS are complex neuro-psychiatric conditions which are frequently
misunderstood and misdiagnosed. PANS PANDAS UK are the only charity in the UK
working to improve outcomes and ensure brighter futures for people affected by PANS and PANDAS.
We provide support and information to families, and work tirelessly to inform medical
practice, raise awareness, engage with medical, social work and educational
professionals, and much more.
We are a small team based at home in various UK locations. We keep in touch frequently online and have a warm, supportive and positive culture.
OVERALL PURPOSE
The Education Training Development Manager will lead the operational development, and delivery of the national education training programme, ensuring it aligns with organisational priorities and emerging national guidance. The role is responsible for the coordination, growth and quality assurance of PANS PANDAS UK’s national CPD training offer for teachers and educational psychologists (EPs), supporting the development and delivery of high‑quality training modules and strengthening partnerships.
The role reports to and works in close collaboration with the PANS PANDAS UK Education Lead, who retains overall ownership, strategic responsibility and final decision‑making authority for the training programme and the wider education strategy.
Central to this role is working collaboratively with the PANS and PANDAS community and the Youth Advisory Board (YAB) to ensure all training is informed by lived experience.
Key Responsibilities
Programme & Content Development
- Jointly review, update and refine existing CPD materials with the Education Lead, informed by national guidance and emerging research, with the Education Lead holding overall responsibility
- Support development of new training modules and associated materials.
- Explore future delivery models to expand national reach and scalability.
- Identify opportunities for integration of PANS or PANDAS training/materials within University/Initial Teacher Training (ITT) and other relevant programmes.
- Work collaboratively with the PANS PANDAS community and Youth Advisory Board (YAB) to ensure training reflects lived experience.
Trainer Recruitment & Capacity Building
- Recruit and induct additional trainers.
- Support trainer development.
- Maintain consistent quality standards.
- Deliver priority or pilot training sessions when needed to help support programme growth and maintain delivery capacity.
Strategic Programme Oversight
- Provide leadership and direction for the development and delivery of the national education training programme within the strategic framework set by the Education Lead.
- Ensure training content and delivery models align with organisational priorities and upcoming national guidance.
- Lead long-term programme planning, sustainability and continuous improvement.
Partnership Development & Sector Engagement
- Build relationships with MATs, LAs, Universities and other national relevant organisations.
- Work with the charity Communications and Engagement Officer to promote the training models across social media and education networks.
- Attend and present at education sector events and networks to raise awareness of training opportunities.
Commissioning & Income Support
- Develop commissioning packages tailored to MATs, LA’s and other relevant organisations.
- Support pricing structures.
- Identify sustainable income opportunities for the charity via the training.
Quality Assurance & Evaluation
- Oversee monitoring and evaluation processes.
- Prepare reports for the charity as required.
Operational Coordination
- Coordinate scheduling, setup and delivery logistics for all training sessions.
- Manage bookings, confirmations, resource distribution, attendance recording and data collection
- Lead regular training team meetings to support planning and quality assurance.
- Support management and storage of training assets.
- Maintain regular communication with the Education Lead.
Working Environment & Culture
- Remote and flexible working within a digitally enabled national team.
- Supportive work–life balance, flexible leave arrangements and an organisational shutdown during part of December.
- Commitment to equality, diversity and inclusion, with lived experience valued.
Skills, Knowledge & Experience
Essential
- Relevant qualifications (teaching, SEND, adult learning, training design, project management).
- Ability to set priorities and align training with national guidance.
- Experience shaping or influencing SEND practice or programme development within an education context.
- Relationship building skills within the education sector.
- Strong organisational and project management skills.
- Excellent communication skills.
- Ability to work independently and as part of a team.
- Knowledge of the UK education sector.
- Familiarity with digital learning platforms.
- Willingness to gain an in depth understanding of PANS or PANDAS.
- Ability to work sensitively and confidently with the PANS and PANDAS community, including the YAB, creating safe and inclusive spaces.
Desirable
- Degree-level education or equivalent professional experience
- Experience contributing to strategic planning within education, a charity or Local Authority.
- Experience with CPD
- Experience leading multiagency or cross sector initiatives.
- Lived experience of PANS and PANDAS
Please do not submit your application by email, use the Charity Jobs application process.
Please do not use AI to write your covering letter, we really would much prefer to hear from you in your own words.
Please don't hesitate to ask if you have any questions about the role.
PANS PANDAS UK is the only UK charity supporting children and families living with the neuropsychiatric conditions PANS and PANDAS.
The client requests no contact from agencies or media sales.
Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast
Salary: £32,750 per annum
Hours: 35 hours per week
Closing date: Monday 19 May 2026 at midnight
Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026
This is a full time fixed-term position for one year (with possible extension subject to funding).
Who we are looking for
Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum.
The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.
You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.
Experience required
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Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse
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Experience of leading public affairs delivery in one of more of the devolved nations
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Experience in analysing Government policy in-depth and creating policy briefings
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Experience of drafting briefings, reports and policy submissions
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Experience of communicating across a range of parliamentary and professional stakeholders at all levels
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Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment
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Experience of organising stakeholder events
About Breakthrough T1D
Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia.
You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1.
Employee benefits
As an employer we offer:
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Hybrid working arrangements
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Flexible working and will consider compressed hours
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Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service
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Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment
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Season ticket and cycle loan
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Pension scheme
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Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates
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Personalised training to suit your career aspirations and professional development
Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age.
Improving lives today and tomorrow by accelerating life-changing breakthroughs to treat, prevent, and, ultimately, cure T1D and its complications
Dimensions, the UK's largest not-for-profit support provider for adults with learning disabilities and autistic people, is seeking a Campaigns Manager to lead bold, audience-focused campaigns that strengthen our voice, grow our influence, and help drive even better lives for the people we support.
The Campaigns Manager leads the development and delivery of impactful, evidence-led campaigns that raise awareness, influence policy and practice, and drive engagement with key audiences.
The role plays a vital part in improving the lives of people with learning disabilities and autism by shaping public attitudes and ensuring their voices are heard and represented authentically.
Working in co-production with people with lived experience, the post holder will ensure campaigns are inclusive, evidence-based, and aligned with Dimensions’ priorities and values, contributing to meaningful and lasting change.
As part of your application, we would like you to share your portfolio. You can include a link in the skills and experience section of the application or include the links in a covering letter.
Interviews will take place face to face in London.
We will require proof of qualification if you successfully secure this role.
About the role
Your main duties will include:
- Lead the development and delivery of integrated, insight-led and evidence-based campaigns that support organisational priorities and drive measurable impact.
- Plan and deliver influencing content that supports organisational priorities and contributes to policy and practice change.
- Work in co-production with people with learning disabilities and autism to shape campaign priorities, messaging, and delivery.
- Build strong relationships with internal teams, including Involvement and Engagement, Resourcing, Communications, and Operations, to deliver joined-up campaigns.
About you
The successful applicant will have:
- Degree level or equivalent qualification in journalism, marketing, communications or a related field and evidence of continued professional development.
- Experience of developing and delivering successful, integrated campaigns that achieve measurable impact.
- Possess strong planning and project management skills, with the ability to manage multiple priorities.
- Have a good understanding of campaigning approaches, including behaviour change, digital-first and content-led campaigning and coproduction.
The rewards
- Up to 35 days’ annual leave entitlement (including bank holidays)
- Staff discount shopping scheme ‘Rewarding Dimensions’
- We offer a salary advance scheme where you can access up to 50% of the money you've earned before payday.
- Employee Assistance Programme
- Pension scheme
- Long Service Awards
- Qualification scheme
- Employee recognition scheme 'Inspiring People'
- Discounted health and dental cover
- Life Assurance
- Bike to Work Scheme
- Season Ticket Loan
Apply now
- We welcome applications from everyone who has the right to work in the UK, and value diversity in our workforce
- As Disability Confident Leaders, we guarantee to interview all disabled applicants who meet the minimum criteria for the vacancy - Dimensions has been awarded this symbol by Jobcentre Plus to recognise our commitment towards the employment, retention, training and career development of disabled employees
- As part of our commitment to making reasonable adjustments, we can offer support to complete your application. Please contact the Resourcing Consultant Team
- We now have British Sign Language (BSL) translated videos for all our recruitment communications.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
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24-hour confidential Employee Assistance helpline
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Private health insurance
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Flexible hours
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5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
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Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
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Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
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Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
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Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
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Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
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Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
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Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
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Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
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Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
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Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
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Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
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Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
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Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
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Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
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Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
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Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
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Collect and analyse feedback, producing short evaluation summaries to inform future planning.
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Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
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Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
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Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
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Event logistics prepared within agreed timelines
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Accurate event information published and updated within required timeframes
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Participant satisfaction and engagement measured through surveys
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Conference and event attendance targets met
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CRM data entry completed within 2 working days of events
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Budget expenditure tracked monthly with minimal variance
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Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
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Experience organising in person events from start to finish for over 300 attendees.
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Experience liaising with suppliers, venues and speakers.
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Experience with CRM/data entry, with close attention to detail.
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Experience organising and hosting remote events.
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Understanding of hybrid events.
Desirable
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Experience in the charity sector.
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Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
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Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
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Understanding of the importance of safeguarding around events.
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Exceptional communication skills.
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Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
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Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
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Skilled in problem solving, with a proactive, solutions focused approach.
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Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
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Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
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Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
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Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
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Resilient and adaptable, able to navigate complexity.
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Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
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Demonstrable commitment to equity, diversity and inclusion.
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Personally, and professionally, responsible with high standards of integrity and accountability.
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A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Money & Energy Advice Service Lead
Pro rata salary: £39,825 (35 hour week)
Home-based, with travel as required
Up to 35 hours per week with occasional evenings and / or weekend work will be required
Permanent (subject to external funding)
Responsible for: 2.0 FTE Money & Energy Advisers
About the role
This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.
With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.
We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.
Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.
This role is made possible thanks to the support of British Gas Energy Trust.
About Kidney Care UK
Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.
Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.
About the Money & Energy Advice Service
The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:
- Flexi-time – we are flexible about start and finish times, and flexible about your location.
- Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
- Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
- Health cashback plan – ability to claim back a wide variety of routine medical treatments.
- Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
- Cycle2Work scheme
We are the UK's leading kidney patient support charity



The client requests no contact from agencies or media sales.
Are you a creative digital campaigner who can turn powerful stories into content that sparks action, builds movements, and drives change to help save lives and stop economic abuse?
About the role
We are looking for an exceptional candidate to play a central role in the delivery of Surviving Economic Abuse’s new digital engagement strategy by producing high-quality, impactful communications and compelling campaigns to extend our reach and to engage, inform and mobilise our audiences.
You will be responsible for managing and growing our digital presence across social media and ensuring this translates into action through our website and newsletters. This will include creating content tailored to victim-survivors and their family and friends, financial services professionals, policymakers, funders and other stakeholders.
As part of this role, you will help us develop and deliver digital campaigns that amplify our campaigning and policy work, as well as deliver communications to support our fundraising, consultancy and training.
About you
We’re looking for someone with proven experience running social media for a brand, organisation or campaign, with demonstrable results such as audience growth, reach, engagement or conversion. You’ll understand how campaigning and activism work, and how to mobilise supporters from diverse backgrounds to help drive meaningful change.
You’ll be a confident digital campaigner who knows how to make an impact across multiple platforms, especially Instagram, TikTok and other video first channels. You’ll have a strong understanding of trends, formats and algorithms, and know how to use them to create scroll stopping content that motivates people to take action.
This role is ideal for someone with bags of initiative, strong creative instincts, and the ability to turn complex issues into compelling digital content tailored to engage and mobilise different audiences.
If you’re excited by the opportunity to use your creativity, storytelling and digital campaign skills to amplify survivor voices, drive real-world impact and help end economic abuse, we’d love to hear from you.
What we offer
- 25 days annual leave, plus 5 Wellbeing Days and Statutory Bank Holidays
- Home working
- Flexible working
- 5% Employer Pension Contribution
- Reflective practice
- Employee Assistance Programme
- Enhanced sick pay, family leave and carer’s leave
- The chance to be part of our highly professional, supportive team
To apply
Please apply via our website.
This post is only open to women applicants, as being a woman is considered a genuine occupational requirement under Schedule 9, Paragraph 1 of the Equality Act 2010.
Applications open from 6 May and close at 11.59pm on 26 May 2026. Interviews will take place week commencing 15 June 2026.
Direct applications only – no agencies please.
Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.
SEA is a Disability Confident Committed, and Kinship Friendly Employer.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are seeking an exceptional leader to be our next chief executive, leading a respected and influential membership organisation at the heart of a thriving grassroots movement.
You’ll be working to build on the success we’ve seen and strong position and voice we have established for ourselves and our members, as a leading force for inclusive and sustainable transport and communities.
You’ll bring an impressive track record in values-based leadership, a proven ability to engage and inspire grassroots change-makers, strategic partners and policy-makers, and a deep belief in the importance of community-led change towards a sustainable, equitable future.
About us
Community Rail Network is a national not-for-profit organisation, which is in the process of applying for charitable status, supporting a growing ‘community rail’ movement, which helps communities get the most from their railways, promotes sustainable and inclusive travel, coordinates volunteering and place-making, and brings people together.
Community rail is made up of 77 community-based organisations, and around 1,300 station volunteer groups and other community-led initiatives around Britain. Their activities range from creative projects for young people, to advising train operators on service improvements, to building travel confidence among marginalised groups, to biodiversity projects at stations, to promoting greener tourism by rail.
Our enthusiastic team of 24 works from home in dispersed locations, but we come together regularly in person and online. We work collaboratively to support members, provide training, events and resources, run campaigns, and champion community rail and its insights. We believe in helping everyone reach their potential while having a good work-life balance.
About this role, and your main responsibilities
Our current CEO is moving on after nine years in role, leaving the organisation, team and wider movement in a strong and empowered position to deliver on the next phase of our development.
Your opportunity is to lead the organisation, and to deliver on our new five-year strategy setting an ambitious course for the future during a period of major transformation for our railways and the wider transport system. You will ensure that we are:
- clear in our identity and our independence, and seen as thought leaders in our field;
- are supporting our members and stakeholders to meet their changing and diverse needs; and
- ensuring the financial and operational resilience of the organisation in an environment that is undergoing a period of rapid change.
As CEO, you will lead a passionate and experienced senior leadership team with three direct reports, while working closely with and reporting into our Board, key partners and funders, and ensuing an engaging, empowering, tenacious approach across all we do.
Advocacy of community rail and its benefits will be high on your agenda, and you will be working closely across multiple stakeholders including UK and devolved national governments, regional and local authorities as well as forging collaborative partnerships with like-minded organisations.
Maintaining our community-centric ethos, you will need to ensure we're effective in enabling members to unlock greater value from the railways at a grassroots level, while drawing on their insights to affect wider change. With hundreds of member groups and organisations across Britain delivering life-changing, place-enhancing work, you will have a solid foundation to build on, to take community rail forward and expand our impact in the years ahead.
Last, but not least, you will be responsible for ensuring the strong and effective governance of the organisation, modelling our governing principles, values and behaviours, and ensuring that we have robust financial and resource management in place.
Skills, competencies and qualities
- Exceptional leadership skills, including a proven ability to lead, develop and grow third sector organisations or multi-faceted teams delivering complex activities, projects and campaigns;
- Excellent communication and external leadership skills: articulate, assertive, with the ability to work diplomatically and persuasively with stakeholders at all levels;
- Experienced in acting as the public face of an organisation, such as through the media, public speaking and high-level meetings, and using evidence and storytelling to articulate and champion a cause;
- Politically astute, with knowledge of and commitment to social inclusion, social justice and sustainability, and a sound grasp of the importance of public transport, sustainable travel, and community-led action;
- A proven ability to influence policy and decision-makers, and to identify influencing opportunities, ideally in relation to community development, sustainability and/or transport, including sharing community insights;
- A strong track record in income generation and development, building strong funder relationships and delivery partnerships, managing programme or organisational budgets and controlling expenditure;
- Experience of working with and/or reporting to a board, ideally in a not-for-profit and/or membership context;
- An empowering, engaging approach to leadership, management and change-making;
- Resilient, pragmatic and determined, with the ability to work under pressure, seize emergent opportunities, manage risk, and support others dealing with competing priorities.
Other information
The role will involve extensive travel within Britain as part of building your profile and that of the organisation with central and devolved government in Scotland and Wales, and increasingly with the devolved regions of England.
There is flexibility on location given the requirement to travel and that your office will be home-based. You will need to travel to in-person quarterly team meetings (usually in London or West Yorkshire) and to Board meetings which alternate between online and London. It is expected that travel will be by public transport and easy access to the rail network is therefore required to ensure journeys can be made sustainably.
This is a full-time position, 37 hours per week. We use a flexi-time system with core hours 10am-3pm, and are committed to being a flexible, supportive and understanding employer. This is a permanent position with a probationary period of six months.
Benefits: 25 days annual leave plus bank holidays (rising up to 30 days, plus Bank Holidays, in line with long service); pension with employer contribution of 7%; and access to Employee Assistance Programme.
Successful applicants will need to provide proof that they have the right to work in the UK and provide two references.
Community Rail Network is an equal opportunities employer. We welcome applications from disabled people and Black, Asian and other minoritised groups, who meet with the skills and competencies for this role. We will provide reasonable adjustments for interviews as required.
Applications by Tuesday 12 May 2026 (23:30) with two attachments: your CV and a covering letter of up to two sides of A4 summarising why you are the ideal person for this job and relevant experience and competencies. Please include a daytime phone number and an email address and identify your notice period in your cover letter.
First interviews take place 21-22 May 2026 online. Second interviews will be in person, Monday 1 June 2026, in London. Candidates invited for interview will be contacted by phone about a week before. Due to limited resources, we are unable to provide feedback to other candidates.
**Please be aware we use AI monitoring filters to detect any AI generated content**
Championing the community rail movement | Connecting people and their railways | Creating inclusive, empowered, sustainable and healthy communities
The client requests no contact from agencies or media sales.
About the role
An exciting opportunity has arisen for a motivated and detail-oriented Senior CRM Support Officer to join our dedicated CRM team, supporting our internal database system (CHIP).
Working within a small but influential team, you will act as the main point of contact for system users across the organisation, providing high-quality first and second-line support via multiple channels. You will troubleshoot issues, guide users, and work closely with IT, CRM and operational colleagues to resolve more complex system problems.
A key part of the role is helping users feel confident and capable when using CHIP effectively and in line with compliance requirements. This includes supporting onboarding and induction for new users, creating clear and accessible learning resources (such as user guides, knowledge base articles and video tutorials), and delivering briefings or drop-in sessions.
You will also contribute to continuous improvement by gathering user feedback, identifying trends, supporting system testing, and helping embed best practice across services to ensure accurate and reliable data use.
About you
We are looking for someone who can demonstrate:
- Good technical understanding of Microsoft Dynamics 365 and/or relational database systems
- Experience in a user support or customer-facing role
- Strong proficiency in Microsoft Office (Word, Excel, PowerPoint, Teams)
- Ability to analyse information, troubleshoot issues, and propose solutions
- Excellent communication skills with the ability to explain technical information clearly
- Strong organisational skills and the ability to manage competing priorities
- Good understanding of data protection and GDPR
- High attention to detail and accuracy
What we offer (benefits)
We offer a supportive working environment with a strong focus on wellbeing, development, and work-life balance:
- 26 days annual leave, increasing to 30 days (plus bank holidays)
- Occupational sick pay (subject to qualifying period)
- Enhanced family-friendly leave pay
- Employee Assistance Programme
- Group stakeholder pension scheme
- Access to BHSF health cash plan
- Cycle to Work scheme
- Free parking at some office locations
- Learning and development opportunities
- Support and supervision from your line manager
Recruitment process
As part of shortlisting, candidates will complete a short online skills assessment aligned to the essential requirements of the role. This helps ensure a fair and consistent selection process. Full details will be provided to shortlisted candidates.
Safeguarding & recruitment
NYAS is committed to safeguarding children, young people, and adults at risk. All successful applicants will be subject to:
- Enhanced DBS check
- Reference checks
- Digital risk assessment
In accordance with UK immigration law, candidates must have the legal right to work in the UK.
About NYAS
NYAS (National Youth Advocacy Service) is a leading rights-based charity ensuring that children, young people, and adults are fully respected, represented, and supported in expressing their views and having their rights upheld.
We work with care-experienced individuals who often rely on statutory services and may be impacted by gaps in provision. Our advocacy and legal services help ensure their voices are heard and acted upon.
We are an inclusive employer committed to equality and diversity. We welcome applications from all individuals regardless of background. We are also a Disability Confident Employer, guaranteeing interviews to disabled applicants who meet the minimum criteria.
How to apply
To apply for this role, please visit our website and complete the online application form.
Please ensure you refer to the person specification within the job description and clearly demonstrate how you meet the required criteria in your application.
The job description and person specification are available on the vacancy page of our website.
We reserve the right to close this vacancy early if we receive a high volume of applications.
At NYAS, we listen to what children, young people and vulnerable adults want. We empower them to have their voices heard.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are looking for a part-time, UK-based Finance Manager who wants to work flexible hours from home and be a key member of a small, but influential, charity that helps museums work with the information that connects collections and audiences. This is an exciting time for the organisation, as we work to transform how UK museums manage and understand their collections and transform research on museum collections.
Salary: £45,125 FTE, equating to £27,075 pro-rata
Contract: Permanent, part-time contract, 0.6 FTE
Location: Home-based within UK
Hours: 22.2 hours per week, potentially worked flexibly
Leave: 32.5 days annually FTE (including bank holidays), equating to 19.5 days annually pro-rata.
Deadline for applications: Noon, Tuesday 12 May 2026
Interviews: Online, 2 June 2026
To Apply
Application is by CV and a covering letter that succinctly explains how you meet the essential and desirable criteria set out in the person specification. Please note that applications from people based outside the UK and/or without the right to work here will not be considered.
Aims and scope of the post
The aim of this post is to ensure sound financial management to support the organisation’s ongoing charitable work. The Finance Manager is responsible for CT’s financial strategy, timely and accurate financial administration, maintenance of financial and management accounts, as well as cash flow, stock control, payroll and pension.
Responsibilities and tasks
Budgeting and forecasting
- Produce annual budgets, quarterly reforecasts, and scenario models for the organisation budget.
- Support budget forecasting for project tenders, ensuring due diligence and financial viability.
Reporting
- Produce quarterly management accounts, including variance reports, analysis by income streams, and cashflow forecasts.
- Prepare and present financial reports for the quarterly board meetings and biannual audit committee meeting.
- Produce minutes of the audit committee meetings and contribute to the minutes of board meetings.
- Complete statutory reporting to Companies House, the Charity Commission and HMRC.
- Submit the relevant reports to funders to ensure timely receipt of grant payments.
Financial management
- Process supplier invoices and carry out twice-monthly payment runs.
- Raise customer invoices for consultancy work, licensing agreements, training, and other income due.
- Carry out credit control for overdue customer invoices.
- Manage payroll, including monthly payments to HMRC, payroll year end, and pension contributions.
- Manage CT bank accounts, including weekly monitoring of transactions and income matching, managing bank mandates and online access.
- Manage company credit cards, ensuring strong controls and adequate accounting for individual cardholders’ usage.
- Respond to financial queries from customers, suppliers, funders and staff members.
- Manage grant receipts.
- Oversee the retail function, responding to queries and issues regarding sales of items through the CT online shop.
- Oversee the purchase ordering system.
Accounting
- Carry out monthly bank account and credit card reconciliations.
- Complete month-end procedures, including processing accruals, prepayments and depreciation.
- Maintain the fixed asset register and inventory list.
- Ensure accurate accounting for restricted and unrestricted funds.
- Complete quarterly VAT returns, ensuring the correct VAT treatment for all transactions (specifically regarding business/non business, and irrecoverable VAT designations).
- Complete year-end procedures and prepare draft statutory accounts for audit, together with schedules to support the figures and workings in the statutory accounts.
- Act as the main point of contact to external auditors, providing all required information.
Risk management
- Lead on maintaining the organisation’s strategic risk register.
- Ensure adequate annual insurance.
- Regularly review the reserves policy to ensure that it meets the needs of the organisation.
- Carry out regular reviews of systems, procedures and financial controls to ensure they are fit for purpose.
Line management
- This role does not line manage any staff
General responsibilities
- Following the principles of Collections Trust’s policies and procedures.
- Additional duties as may reasonably be required from time to time.
Line management
The Finance Manager reports directly to the Chief Executive.
Person specification
Collections Trust is committed to encouraging equality, diversity and inclusion among our workforce, and eliminating unlawful discrimination. The aim is for our workforce to be truly representative of all sections of society and our sector, and for each employee to feel respected and able to give their best.
Please note that the Finance Manager will need to have the right to work in the UK.
Essential knowledge, skills and qualities
- A part-qualified accountant or equivalent knowledge gained through relevant experience.
- Three years’ experience in a similar role, ideally in the charity sector.
- Strong ICT skills including relevant accounting software and Microsoft Office 365 (particularly Excel).
- Ability to write clear and concise board reports, with the ability to communicate complex financial information to a non-financial audience.
- An excellent eye for detail and consistency.
- Honesty and integrity.
- Enthusiasm, flexibility and proactive approach.
Desirable knowledge, skills and qualities
- A working knowledge of Xero or comparable accounting software.
- Familiarity with appropriate charity accounting practices (SORP regulations).
- Autonomy and ability to work effectively under own initiative.
- Strong verbal communications skills, able to convey financial information to a non-financial audience.
- Good organisational skills.
- Ability to work well within a team and manage others effectively.
- Commitment to ongoing personal and professional development.
- An understanding of relevant retail and/or consultancy operations.
The client requests no contact from agencies or media sales.
We are seeking a talented and creative Communications Officer to join our dynamic team to cover a period of maternity leave. The Communications Officer will play a crucial role in enhancing the ASE’s external and internal communication efforts. The ideal candidate will be a talented multitasker with excellent communication skills, a strong grasp of social media platforms, maintaining website content using a CMS, graphic design expertise, and a keen eye for detail. This individual will be responsible for enhancing our brand presence, engaging our audience, and maintaining consistent and effective communication across various channels. Understanding that this is a broad role, if you are experienced in one area but would need a bit more guidance in another then we are still interested to hear from you.
Mission: to promote excellence in science education
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.