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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
This is an exciting opportunity for individuals who are passionate about making a positive difference in local communities. In this role, you will work closely with colleagues in the Social Value Team, the Charities Liaison Team and wider Group functions, playing a key part in ensuring our initiatives continue to improve lives and places. You will assist LHCPG’s Group and Regional Business Units in implementing the broader Social Value Strategy across our products, services and projects, whilst collaborating with associate partners and companies planning community projects and supporting them to report on the outcomes of their social value plans.
You will also be:
This fixed term position will support Scotland and the North of England and will involve regular travel throughout the regions. The successful candidate will be expected to offer hands-on support in various locations and collaborating with teams and clients across multiple regions. The proposed start date will be in July 2026 and is expected to cover up to 12 months.
We are looking for a candidate with strong interpersonal abilities, capable of collaborating and engaging effectively with various teams and stakeholders at all levels. The ideal candidate will demonstrate excellent attention to detail, possess outstanding verbal and written communication skills and evidence proficiency in IT, including familiarity with relevant systems and software packages. You can confidently present content to colleagues and clients and turn strategic plans into measurable results. You will also have:
Working in the public sector, charities, housing or construction experience would be advantageous but not essential. Please refer to the attached job description and person specification for a full list of responsibilities and attributes.
We are planning to conduct initial interviews on 27th and 28th May, followed by final interviews on 8th and 9th June. Please ensure your availability for these dates, as shortlisted candidates will be contacted with further details regarding the interview process.
What you’ll get:
It is encouraged that all candidates submit a cover letter to support their application. Please note that we reserve the right to close this job posting before the application deadline if suitable candidates are identified
We improve lives and places through the impact of our products & services and social value generated through our community benefit funding & activity
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research Policy and Partnerships Officer
We’re looking for a Research Policy and Partnerships Officer to join the team.
Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.
Position: CE402 Research Policy and Partnerships Officer
Location: Home-based, UK Nationwide. However, occasional travel will be required as part of this role (may include team meetings or other work related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £35,500 (inner London weighting £3,950 per annum or outer London weighting £2,457 per annum may be applied in accordance to where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: 26 May 2026
The Role
The Research Policy and Partnerships Officer monitors UK research policy and governance developments, synthesises evidence and supports preparation of clear internal briefings, policy statements and consultation responses.
Reporting to the Research Policy and Partnerships Manager, the role helps ensure the Association’s research portfolio and the Research Academy remain well aligned to national frameworks and governance standards, and that lived experience is appropriately reflected in system facing outputs.
The role also supports the Research Policy and Partnerships Manager in building and maintain partnerships with research funders, medical research charities, academic institutions and health system leaders.
Key responsibilities will include:
About You
You will:
To fulfil the role, you must be a resident of the UK and have the right to work in the UK
Please state any preferences for flexible options in your covering letter.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Research Officer, Research and Policy Officer, Partnerships Officer, Research Policy and Partnerships Officer, Research and Policy, Policy and Partnerships.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP
Do you want to help improve health & care for people in Hertfordshire? Are you passionate about making a difference by ensuring people’s voices are heard? Would you like to work with a motivated and dynamic team, who embody our values of equality and compassion? If so, we might have an opportunity for you.
We have an exciting new position in the team, who will play a crucial role in enabling the day-to-day running of the organisation. You will provide support across the team relating to both administrative and project-related tasks, as well as within our distinguished signposting & information service, helping us make a difference to the people of Hertfordshire.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Rare opportunity: Help those affected by road crashes and create lasting change with Brake, the renowned road safety charity.
Who we are: Brake is the national, acclaimed charity delivering the National Road Victim Service, a specialist, accredited, UK-wide support service for road victims, delivering case-managed care for anyone who has been bereaved or seriously injured in a road crash or who is supporting a road crash victim.
Not your average job: This is a highly specialised frontline role supporting people affected by traumatic road deaths and life-changing injuries. We are seeking candidates with a strong understanding of trauma-informed practice and experience supporting people through the impact of traumatic bereavement and/or injury.
You will provide a specialist trauma-informed and bereavement-informed approach to care, helping individuals and families navigate the immediate and long-term impact of sudden loss or catastrophic injury. You will undertake a comprehensive needs, risk and safety assessment from which a bespoke support plan will be agreed with the person and/or families, ensuring that immediate wellbeing needs, vulnerabilities and safeguarding considerations are identified and addressed.
By joining this role, you will make a profound difference to individuals and families during their most difficult moments, helping them regain stability, access practical and emotional support, and navigate the complexities of the criminal justice or coronial process with guidance and care.
Take a look at our comprehensive job description for more details.
What we offer:
- A generous 35 days of annual leave (including bank holidays and 3-day shutdown period between Christmas and New Year, pro-rata for part-time working patterns)
- Birthday day off (taken any time)
- Enhanced sick pay and compassionate leave
- Death in service benefit
- Pension
- Employee Assistance Programme
- Flexible working
- A rewarding role with purpose
- Be part of a skilled, friendly team with an engaged Board of Trustees
Who you are: We need energised and resilient self-starters with experience in supporting traumatic grief and post-traumatic stress. a background in providing high-quality emotional support and advocacy. Experience in the following sectors often provides a robust toolkit of high-level transferable skills: Police or criminal justice roles, family liaison, counselling or trauma support, health and social care, casework in any related field
Specifically seeking candidates with:
- Experience with people affected by trauma, sudden bereavement, or serious injury
- Understanding of trauma-informed practice and ability to provide support sensitively
- Experience identifying and responding to safeguarding and vulnerability concerns
- Strong advocacy skills ability to act as a powerful voice for service users, expertly navigating external networks, assemble resources and cross-functional support where required.
About us: At Brake, we are committed to creating a truly inclusive workplace where all colleagues feel valued, respected, and supported. We welcome applications from all backgrounds and life experiences, and particularly encourage candidates from the global majority, LGBTQIA+ community, and people with disabilities to apply.
We believe that diverse perspectives strengthen our work and enable us to deliver the best possible support to individuals and families affected by road trauma. As a proud Disability Confident employer, we don’t want you to ‘fit’ our culture, we want you to enrich it
If you are passionate about making a difference and share our vision for a world where no one is killed on our roads, we want to hear from you.
Not for traffic offenders: Due to the nature of our work we can't accept applications from traffic offenders. Candidates will be asked to disclose whether they have any unspent points or driving convictions on their licence at interview.
An enhanced DBS check is required due to the sensitive nature of our service.
Join us today and be part of the solution!
If writing a cover letter isn't your thing, why not send us a short video telling us about yourself.
We work to stop road deaths and injuries, support people affected by road crashes and campaign for safe and healthy mobility for all.

The client requests no contact from agencies or media sales.
The governance and policy manager is a senior strategic and operational role responsible for leading, coordinating, and strengthening all governance-related functions across World Physiotherapy. Reporting directly to the CEO, the role ensures the organisation consistently meets the highest standards of governance, compliance, transparency, and accountability, in line with its global mission and constitutional framework.
The postholder serves as a key advisor to the CEO, board, and leadership structures, ensuring governance systems are robust, efficient, and appropriate for an international membership organisation. The role works closely with member organisations (MOs), regions, and speciality groups to enhance governance practices, ensure policy alignment, and support coherent decision-making across the global network.
The role also contributes to organisational direction by actively participating in the development and implementation of the World Physiotherapy strategic plan and supporting alignment with regional and other strategic plans.
1. Governance leadership and oversight
2. Board and executive support
3. General meeting (GM) management
4. Regional elections coordination
5. Policy development and management
6. Strategic planning and alignment
7. Support to member organisations, regions, and specialty groups
8. Stakeholder engagement and communication
9. Continuous improvement and risk management
Person specification
Education and qualifications
Essential experience and skills
Desirable
Personal attributes
Impact of the role
This role is critical to ensuring World Physiotherapy operates with excellence in governance and policy. The governance and policy manager supports effective decision-making at the highest level, strengthens organisational credibility, and contributes to a cohesive, well-governed global network aligned with its strategic objectives.
Only candidates invited for interview will be contacted.
To represent physiotherapy across the globe, advancing our profession and advocating access for all, to improve health and wellbeing.


The client requests no contact from agencies or media sales.
Trusts Fundraiser
Location: Remote – Homebased
Contract: Part Time - 25 hours per week | Permanent
Salary: £29,656.01 - £31,134.23 (Full Time Equivalent)
Deafblind UK has championed people with dual sensory loss since 1928, helping them to overcome the unique set of challenges they face. We support the rights and interests of deafblind people of all ages, in the belief that they deserve the opportunity to live their lives to the fullest, retain their independence, and be included in their local communities. Wellbeing, emotional and practical support forms the cornerstone of our support services. These services are entirely ‘bespoke’, recognising the uniqueness of every individual, and they are based very firmly on our fundamental belief that disability does not mean inability.
The Impact You'll Make
In Trusts, we secure funding to help our colleagues deliver the services described above. So, we enable our colleagues to make a very real difference to the lives of those affected by dual sensory loss. We regard that as a privilege.
What We Need
An individual who will share our view, and who can enhance our team with their experience and expertise. Someone who will bring passion, who is not afraid of hard work, and a good team player. Someone who wants to help make a difference.
What you’ll be doing
You will produce excellent and compelling funding applications, based on thorough research. You will liaise with colleagues to help construct applications. Once funding is secured, you will steward your portfolio of funders to ensure that they are well informed about our work and inclined to provide us with further support. You will ensure that records are accurately maintained on our CRM system.
You will bring to the role:
What You’ll Get In Return
Please see attached Job Description and Person Specification for further details.
We support people who have combined sight and hearing loss which affects their access to information, mobility and communication.
The client requests no contact from agencies or media sales.