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About the role
We’re seeking a PPIE Manager to lead and strengthen patient involvement across mitochondrial disease research. As an equal partner in the LifeArc Centre for Rare Mitochondrial Diseases, The Lily Foundation leads the programme’s patient and public involvement strategy.
While the initial priority for this role is delivering the PPIE strategy for the LifeArc Centre, as a permanent member of the team, you’ll be responsible for building a sustainable involvement infrastructure that extends across all Lily Foundation research workstreams.
You’ll become a ‘patient expert’ who can bridge the gap between the patient community and the scientific world. You’ll be proactive in upskilling and empowering both patients and researchers, ensuring that lived experience remains the compass for future research.
Key responsibilities
Person specification
We’re looking for someone who blends a professional background with a genuine heart for our cause.
Essential knowledge and skills
Essential experience
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment. We particularly welcome applications from people with lived experience of mitochondrial disease or other rare conditions.
Closing date: Monday 11th May 2026
Interviews: W/c 18th May 2026
The client requests no contact from agencies or media sales.
Policy and Public Affairs Manager (England)
Reporting to: Head of Policy and Public Affairs
Line Management: 1 Policy and Public Affairs Officer England
Location of work: Remote but role holder will ideally be London-based to be able to frequently commute for meetings/ events at Westminster. The role may involve also some infrequent travel across the UK.
Contract type: Full-time, 35 hours per week, although flexible/ compressed hours will be considered. The role will require occasional evening and weekend work.
Contract Length: Permanent
Salary: £42,000
BACKGROUND
Magic Breakfast is the UK’s leading school breakfast charity and makes a difference to over 350,000 children and young people every day by offering breakfasts and expert advice to tackle child morning hunger in schools across England and Scotland.
This is an exciting time for Magic Breakfast as the benefits of school breakfast provision are increasingly recognised by policymakers, educators and the public. The Policy and Public Affairs (PPA) Team is central to this work. And through our new organisational strategy, Nourishing Futures, the work of the PPA Team is growing to meet our advocacy ambition to expand school breakfast provision and deliver our vision which would see every child in the UK nourished, empowered and thriving.
JOB PURPOSE
The role of the Policy and Public Affairs Manager is a high-impact role, central to designing and delivering Magic Breakfast’s national policy and public affairs strategy in England. The role holder will lead the development of evidence-based policy positions and work collaboratively to drive forward strategic, integrated and impactful advocacy campaigns to successfully influence decision-makers, policy change, and funding frameworks aligned with our key objectives. Specifically, you will also lead the design and implementation of our new workstream to expand school breakfast provision to secondary schools and early years settings, alongside our work to ensure the effective implementation of the Free Breakfast Club Programme.
More broadly, you will keep abreast of political developments relevant to Magic Breakfast - proactively identifying opportunities to respond, influence and shape the debate across the school food system and provide strategic, analytical and timely advice to the Senior Leadership Team.
Using your excellent communication skills, you will be able to translate complex policy into tailored and effective communications, policy briefings, positions and submissions, and will play a lead role in confidently engaging external stakeholders including UK Government Ministers, Parliamentarians, special advisers, officials and sector partners.
We are looking for someone who enjoys collaboration, who shares our passion for driving systematic change, and who can use their experience to navigate, respond to, and influence the fast-moving political environment to deliver lasting and meaningful change. You’ll be part of a collaborative and ambitious organisation, working at the intersection of policy, practice and impact – putting children and young people at the heart of everything we do and helping to ensure every child starts their day nourished, empowered and ready to thrive.
KEY RESPONSOBILITIES
Build and maintain strong relationships with UK Government Ministers, Parliamentarians, Special Advisers, officials and sector organisations, including conducting stakeholder mapping and power analysis to identify key routes to influence.
Design, lead and implement integrated advocacy campaigns to deliver maximum impact in collaboration with cross-organisational teams.
Work closely with colleagues to share expertise and intelligence, inform and shape research areas, support campaign activities aligned with advocacy objectives, and respond proactively to live developments across the organisation.
Line manage and support the development of the Public Affairs Officer.
Strong ability to translate complex policy into clear, persuasive communications tailored to specific audiences to deliver maximum impact.
Please read the full job description attached below.
WHAT WE OFFER
At Magic Breakfast we value our employees and work hard to develop offer a supportive, respectful culture which enables everyone to thrive.
Please see our job pack below
Please see our website
APPLICATION PROCCESS
Should you wish to discuss the role before applying please email our People and Culture Team, HR @ magicbreakfast .com
Shortlisting: w/c 25th and 26th May
Interview 1: w/c 1st and 2nd June
Interview 2: w/c 8th and 11th June
We reserve the right to close the vacancy early if a high volume of applications are received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.
The client requests no contact from agencies or media sales.
Dimensions, the UK's largest not-for-profit support provider for adults with learning disabilities and autistic people, is seeking a Campaigns Manager to lead bold, audience-focused campaigns that strengthen our voice, grow our influence, and help drive even better lives for the people we support.
The Campaigns Manager leads the development and delivery of impactful, evidence-led campaigns that raise awareness, influence policy and practice, and drive engagement with key audiences.
The role plays a vital part in improving the lives of people with learning disabilities and autism by shaping public attitudes and ensuring their voices are heard and represented authentically.
Working in co-production with people with lived experience, the post holder will ensure campaigns are inclusive, evidence-based, and aligned with Dimensions’ priorities and values, contributing to meaningful and lasting change.
As part of your application, we would like you to share your portfolio. You can include a link in the skills and experience section of the application or include the links in a covering letter.
Interviews will take place face to face in London.
We will require proof of qualification if you successfully secure this role.
About the role
Your main duties will include:
About you
The successful applicant will have:
The rewards
Apply now
ID: 1782 Operational Manager, Northeast
Service: Stockton on Tees Family Time, Stockton Family Outreach & Volunteer service and South Tees Perinatal service
Salary: Grade 4 Point 34-38: £42,562 – £46,703 FTE (£34,049.60 - £37,362.40 per annum, pro rata for 29.6 hours per week)
- Additionally, £480 home-based allowance FTE per annum
Location: Home based
Hours: Part-time (up to 29.6 hours per week)
We offer flexible working arrangements - please see below for more details.
Contract: Permanent
Family Action & the Role’s Impact:
At Family Action we support people through change, challenge or crisis. It’s what we’ve done for over 150 years. We protect children, support young people and adults and offer direct, practical help to families and communities.
We see first-hand the power of family to shape lives, for better or worse, so we speak up for the
importance of family in national and local policymaking, amplify family voices and represent the changing needs of families in the UK today.
This is an exciting opportunity to lead the operational delivery of services across Stockton on Tees and South Tees (Recar & Middlesbrough) area. The Operational Manager will provide strategic and operational management to our services in the Northeast and line management of 2 - 3 service managers.
Stockton services are delivered under our successful strategic partnership with Stockton Borough Council. This unique partnership was formed nearly 5 years ago with the aim of transforming service provision using a collaborative approach to service development and innovation. Our South Tees Perinatal service operates over Redcar and Middlesborough and are just entering a 3 year extension to our current contract.
Main Responsibilities:
· Provide leadership, management and supervision to operational services that provide Family Time sessions, Family Outreach support and Volunteering support, plus perinatal support to families.
· Ensure that services are delivered to a good quality standard in relation to practice and performance and that services can demonstrate their impact using evidence based outcomes tools.
Main Requirements (for details check the job description and person specification):
· Experience of providing effective management, leadership and safeguarding oversight of case work and group work based support services, which overall improve the lives of service users.
· Experience of setting up and/or managing innovative projects.
· Strong interpersonal skills, with the confidence and ability to present and communicate information effectively both in person and using a range of mediums to internal and external stakeholders, including children and young people, parents and carers, and funders.
· Appointments are subject to Family Action receiving a satisfactory disclosure from the Disclosure and Barring Service –Enhanced
Benefits:
- an annual paid leave entitlement that commences at 25 working days, rising each April by one day, subject to a maximum of 30 working days plus bank holiday pro rata
- up to 6% matched-pension contributions
- flexible working arrangements and new starters have the right to make flexible working requests from day one of employment
- enhanced paid sick leave and paid family leave provisions
- eye care and winter flu jabs vouchers
- cycle to work scheme
- investing in your professional development with ongoing quality training and career development opportunities
We are forward looking, ambitious and committed to continuous improvement. We are a people focused, can-do organisation, which strives for excellence in all we do and operates with mutual respect.
To Apply:
· Click the “Apply Now” link below and fill out our digital application form
· Closing Date: Sunday 10th May 2026 at 23:59
Interviews are scheduled to take place on: 20th May 2026
For direct queries or if you would like to discuss any aspect of the selection process or flexible working requests, please email: Claire Meek (email address available on advert document).
Our commitment to Equality, Diversity & Inclusion:
We are happy to consider any reasonable adjustments that candidates may need during the recruitment process and you will be asked whether you require any adjustments if shortlisted for interview. We also make reasonable adjustments on the job, where required.
We are committed to Equality, Diversity & Inclusion in all that we do and welcome applications from all sections of the community. Intersectionality is important to us and we particularly welcome applications from ethnically diverse communities, LGBTQIA+ candidates and disabled candidates because we are committed to increasing the representation of these groups at Family Action. We know that greater diversity will lead to even greater results for families and children and strive for our workforce to be truly representative of the diverse communities we support.
All candidates with a disability are welcome to apply under the Disability Confident Scheme and request priority consideration for an interview, provided they meet the essential criteria for the role.
To help remove financial barriers to working with us, we will reimburse reasonable travel costs if you are invited to attend an interview in person.
*Ordinarily Family Action appoints new starters at the starting point of the salary scale (with subsequent annual pay progression), unless you have experience that would justify appointment further up the salary scale or there are any other exceptional reasons.
Family Action is an award-winning national charity working from the heart of local communities across England and Wales.



We are seeking an enthusiastic and efficient Partnerships Coordinator to join our dynamic team. The main purpose of this role is to support the delivery of high-quality partner engagement and stewardship, ensuring positive and responsive partner experiences. You will be involved in the development of compelling partner communications, and proactively identifying new funding opportunities. Additionally, there will be opportunity to support the implementation of organisational system and process improvements. Essential attributes for this role include a willingness to learn, enthusiasm, drive and a proactive mindset.
If you are passionate about making a difference in the global health or non-profit sector, keen to work with a collaborative & dedicated team, thrive on building and maintaining strong relationships with corporate partners, and eager to get involved in improving internal systems and processes, we would love to hear from you.
Experience & Skills:
Essential:
Desirable:
Why join us?
Other essential:
First stage interviews will be conducted on 2 & 3 June.
Our vision is a world in which both the prevention and care of people living with obesity are embedded in global values and systems.
The client requests no contact from agencies or media sales.
We’re looking for a People and Culture Manager to shape and lead Amala's first dedicated people function, ensuring our global team is supported by rigorous and human-centred people practices. You will work closely with the Head of Finance and our international leadership team to manage the end-to-end team member lifecycle and continuously foster a deep sense of belonging across our remote workforce.
Who we are
Amala’s mission is to use the power of education to transform the lives of young refugees, their communities and the world. We are a non-profit organisation with big ambitions to create a deep and lasting impact for young people who are displaced. We have developed the first accredited secondary level programme and qualification for out of school refugee and crisis affected youth, and we also offer Changemaker Courses in areas such as Peace-building, Ethical Leadership, and Social Entrepreneurship. Our approach to education is conveyed through our human-centred, context-inclusive curricula and learning programmes that are relevant to the lives that our students lead today and will lead in the future.
Key responsibilities
Recruitment & Onboarding: Lead end-to-end hiring and design onboarding programmes that strictly adhere to Safer Recruitment requirements.
Performance & Development: Manage the annual review cycle and coach managers to have meaningful, development-focused conversations.
Policy & Culture: Act as a custodian of Amala’s culture while maintaining compliant HR and policies and the Single Central Record.
Compensation: Maintain our job grading framework and lead salary benchmarking against the NGO sector.
You will be successful if you have
CIPD Level 5 qualification and proven HR management experience within an NGO or mission-driven organisation.
The ability to navigate the nuances of supporting globally distributed teams across different cultures and time zones.
A human-centred mindset that balances rigorous HR compliance with empathy and a commitment to team wellbeing.
All roles at Amala are open to applications from all sections of society. We believe in the potential of everyone regardless of race, religion or belief, ethnic origin, disability, sexual orientation, family structure, economic background, age, nationality or citizenship, gender identity, marital or civil partnership status, pregnancy or maternity, age, or any other characteristic protected by law.
Safeguarding children, young people and vulnerable persons is a priority for Amala. All team members are expected to share that commitment and adhere to Amala’s Safeguarding and Welfare Policy and Team Code of Conduct. Any offer of appointment by Amala is conditional on satisfactory pre-appointment checks.
How to apply
Read the job description for more details on the role and for information on how to apply.
Deadline: Monday 18 May 2026, 12:00 BST
Our mission is to use the power of education to transform the lives of refugees, their communities and the world.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The role
We are seeking an experienced Manager of Philanthropic Giving with a strong track record in securing major gifts. The ideal candidate will excel at building trusted, long-term relationships with donors and feel confident leading conversations that result in significant philanthropic support. This role will also contribute to the development and delivery of a trusts and foundations strategy, helping to grow and strengthen our portfolio.
Working closely with the CEO, senior leadership and trustees, you will develop compelling funding propositions, steward donors and funders through excellent reporting and engagement, and represent myaware at meetings, events and networking opportunities. You will also maintain accurate records through our CRM system, track performance against targets, and contribute to income planning and reporting. This is a strategic and hands-on role with real impact for people affected by myasthenia.
The Manager of Philanthropic Giving will be predominantly home based within the UK (with occasional working and meetings at Derby HQ) and will work in co-operation with the fundraising team and all myaware colleagues to deliver agreed fundraising targets and campaigns. Own transport is essential for this role as occasional travel throughout the UK will be required to attend donor meetings, events and networking opportunities, as well as the ability to travel to the Derby office. There may be the need to occasionally work during weekends and evenings and therefore there is a need to work flexibly when required.
Who We Are Looking For
We are looking for an experienced and motivated fundraising professional with a strong track record in major donor fundraising along with experience in Trusts and Foundations fundraising. You will have experience in personal communication in asking for high level funds, and experience of stewarding high net worth individuals to maintain high levels of engagement over a significant period. You will have experience of Trusts and Foundations fundraising including pipeline management and stewardship, writing compelling funding applications and impact reports.
You will be a strategic thinker with excellent interpersonal, research and organisational skills, confident managing a complex pipeline and working collaboratively across teams. You will be comfortable working independently, using CRM systems, and engaging senior stakeholders, including trustees and high-level donors. Most importantly, you will share myaware’s values, demonstrate empathy with our cause, and be committed to making a meaningful difference through philanthropy.
If this sounds like you, we would love to hear from you.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Monday 25th May 2026.
Provisional interview date will be week commencing: 01.06.2026
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
Citizens Advice Bury & Bolton (CABB) is a leading provider of legal advice and information, supporting thousands of clients every year. We are a busy, client focused and dynamic service with a track record of delivering high quality advice face to face, over the phone and digitally.
Our communities are facing unprecedented challenges with rising costs. The rising cost-of-living continues to directly impact individuals and families, with more people than ever in negative budgets, debt and housing crises.
This role would provide direct line management to the following teams:
These teams collectively make up our client access points, in 2025-2026 supporting over 16,000 clients to access our services and receive information, guidance and advice.
There’s no ‘average’ day for our teams – each client, case and community location is different. You will be responsible for supporting these teams, enhancing the service and ensuring that we are able to provide high quality information, guidance and advice to clients when they access our services.
You will be part of the Delivery Leadership Team, a well-established team of managers responsible for their areas of specialist advice.
This is a fantastic opportunity for personal and professional development, where you will be fully supported in this role, with development opportunities available.
About you:
Key tasks within this role include:
Application Process
Please note we will be actively interviewing and shortlisting candidates during the application stage and reserve the right to close the vacancy early.
We believe inclusion is a social justice issue - a principle that underpins our EDI work. To that end, we particularly welcome applications from local individuals who are representative of the local communities we serve - this is not just a matter of diversity but of strategic importance to ensure our services are grounded in the realities of our communities.
If you would like an informal conversation about this role or the application process, you can book a meeting with our HR Team (link available within the job pack).
Benefits
We value the people who work here. The following are included within the employee remuneration packages as standard;
Your cover letter should be no more than 1 page and should answer the following questions;
Why do you want to work at Citizens Advice Bury & Bolton?
How will your skills, knowledge and experience meet the person specification and key responsibilities of the role?
Citizens Advice Bury & Bolton (CABB) is a leading provider of legal advice and information, supporting thousands of clients every year.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Thank you for your interest in Greater Manchester Mayor’s Charity. Greater Manchester Mayor’s Charity launched in April 2019 with one clear vision, that homelessness has no place here in Greater Manchester. As one of the founding funders of A Bed Every Night, we have been at the forefront of efforts to reduce rough sleeping in the city region. Since our launch, our grant making has evolved to complement this emergency response through two additional priority areas: Places and Spaces, and Targeted Prevention.
But as the challenges develop, so does our response. Our next step is to support organisations and initiatives working with communities – as well as individuals – to turbocharge progress towards a city-region where everyone has a safe, genuinely affordable place to call home and everyone can flourish and thrive.
In collaboration with the VCFSE sector of Greater Manchester, 10GM, the GMCA and NHS GM, Greater Manchester Mayor’s Charity are powering the Live Well Communities Fund and helping the partners to grow the success of the first year of this programme.
The Partnership & Engagement Officer will play a central role in this new collaboration, driving forward engagement with VCFSE partners deploying the fund and delivering funded activities whilst also growing partnerships and identifying opportunities to grow the fund itself.
Spanning fundraising and engagement, this is an exciting opportunity at the heart of an innovative new stage for Greater Manchester Mayor’s Charity and the city region. If you are ready to take the next steps in your career, growing and developing in a fast-paced, high-profile charity and working alongside a small but committed team dedicated to addressing homelessness in Greater Manchester, then we look forward to receiving your application!
The Role
We are looking for a highly organised, confident individual who is excited working in a fast-paced, high-profile environment and passionate about addressing homelessness and empowering communities in and across Greater Manchester.
You will play a crucial role in growing the Live Well Communities Fund. This will include building relationships to identify and maximise funding opportunities, working with our Communications and Content Executive and the Live Well Communities Fund partner organisations to share learnings and impact from funded activities, and providing administrative support to ensure the smooth running of this project alongside our Office Lead.
You will be comfortable working flexibly within a small team, as well as engaging and networking with people and organisations across the public, private and VCFSE sector. You will have excellent written and verbal communication skills and be committed to our vision: a Greater Manchester where everyone has a safe, secure and genuinely affordable place to call home, and is able to flourish and thrive in a strong, resilient community.
This is a great opportunity for someone looking for a role in a dynamic and growing organisation with real social impact.
The Greater Manchester Mayor’s Charity values diversity. Dedicated to cultivating and upholding a culture of inclusion, we are committed to equal opportunity and anti-discrimination practices and full members of the Greater Manchester Good Employment Charter.
We seek diversity in our applicants and are particularly interested in attracting applications from candidates from historically marginalised groups and people under-represented in the Charity sector.
Homelessness has no place in Greater Manchester.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is an exciting opportunity to be part of a passionate, supportive team and to help grow community and events frundraising directly enables Bipolar UK to reach more people, reduce harm, and save lives. You will be trusted to lead, encouraged to innovate, and supported to do your best work.This is a management role focussed on strategic planning, enabling delivery and leading a small team to perform at their best.
Working closely with the Director of Fundraising and alongside the Strategic Partnerships and Trusts teams, you will be responsible for setting clear plans, developing effective fundraising approaches, and ensuring strong systems, processes and supporter experiences are in place to drive sustainable income growth.
You will lead the delivery and development of community fundraising, challenge events, individual giving through community activity, and in-memory fundraising. A key part of the role will be developing a clear and engaging events and fundraising volunteer offer, including an effective induction process that enables volunteers to fundraise confidently on behalf of Bipolar UK.
This role requires a thoughtful, organised and people-centred manager who understands how to balance ambition with compassion in a mental health charity context.
Key Responsibilities
1. Strategic leadership and planning
2. Community and events fundraising delivery
3. Volunteer fundraising offer
4. Digital campaigns and income growth
5. Supporter experience and stewardship
6. Team leadership and organisational contribution
Essential Criteria
Desirable Criteria
Please submit a CV and a cover letter of no more than 2 pages, outlining your suitability for the role and our experience using the essential and desirable criteria.
Our mission is to empower everyone affected by bipolar to live well and fulfil their potential.
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview
You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health.
You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life.
The role is home or hybrid based; member contact is predominantly via phone and video calls.
This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.
There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.
Benefits to working at Shine
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Reimbursement for HCPC registration
Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision.
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.
To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 18th May at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews (virtual): Thursday 28th May 2026
Please see full details of the job description and person specification below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
About Us:
Stephen’s Children UK is a Christian charity dedicated to providing financial support to the existing and well developed Stephen’s Children ministries in Egypt’s garbage slums outside of Cairo.
These programs are staffed by over 1,500 dedicated and compassionate individuals ready to make a difference. Over 20% of Stephen’s Children staff members grew up in these same impoverished communities. They come back with the hope to break the cycle of poverty for others, instilling a culture of hope by nurturing hearts, training minds, and teaching our families the strength of God’s love, though the provision of schools, healthcare, home visits, summer camps and much more.
As part of our ongoing growth and efforts to expand our reach in the UK, we are looking for a dynamic, passionate, and experienced Charity Fundraiser with strong social media and digital marketing skills.
Role Overview:
As a Charity Fundraiser with Social Media and Digital Marketing experience, you will play a pivotal role in raising awareness and funds for our cause. You will leverage your expertise in fundraising, social media strategy, and digital marketing to develop and execute innovative campaigns that inspire individuals and organisations to engage and contribute. This is an exciting opportunity to make a tangible impact through creative and strategic digital campaigns.
We are in early discussions with a potential Patron which would significantly boost our profile, and we are in particular looking to develop partnerships with large corporate donors in line with their CSR obligations.
You will be reporting to the UK Trustees.
Key Responsibilities:
Although mostly working autonomously, you will be working with, and representing SCUK on the international Marketing and Communications Advisory Group to ensure a cohesive approach (the Communications and fund raising teams from the various Stephen’s Children entities in other nations):
Key Requirements:
Desirable Skills:
Why Join Us?
If you are an innovative, results-driven fundraiser with a passion for social media and digital marketing, we would love to hear from you. Apply today and help us create a brighter future for those in need!
How to Apply:
Please send your CV and a cover letter detailing your relevant experience to the email shown.
Please ensure your cover letter highlights your fundraising experience and examples of successful digital marketing campaigns and corporate sponsorship initiatives that you have led or contributed to.
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research Grants Manager
We’re looking for a Research Grants Manager to join the team.
Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.
Position: CE401 Research Grants Manager
Location: Home-based, UK nationwide however, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £47,000 per annum (inner London weighting £3,950 per annum or outer London weighting £2,475 per annum may be applied in accordance to where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: 20 May 2026
The Role
The Research Grants Manager leads the design, delivery and governance of the Association’s research funding portfolio. The role ensures that all Association funded research schemes, including fellowships and project grants, are strategically configured, rigorously governed and effectively delivered in line with the Association’s Research Strategy.
The role will ensure that research funding schemes are aligned with external research developments and designed to maximise long-term impact. The role includes formal accountability for embedding high-quality, inclusive and structured lived experience participation within research funding processes.
The Research Grants Manager is the organisational lead for research funding operations, ensuring the Association maintains a sector-leading, transparent and strategically focused funding programme.
Key responsibilities will include:
About You
You will:
To fulfil the role, you must be a resident of the UK and have the right to work in the UK
Please state any preferences for flexible options in your covering letter.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Research and Grants Manager, Research Manager, Grants Manager, Scientific Research, Health, Social Science, Social Science Research.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP