Patient involvement manager jobs

The Involvement and Engagement team at Alzheimer’s Research UK is responsible for delivering a wide portfolio of activities to increase understanding of dementia, engage and involve the public and people affected by dementia with research and promote the work of Alzheimer’s Research UK. The team work closely with people affected by dementia to gather their insights to shape our work and campaigns. 

The team is part of the Information and Involvement department. The department’s mission is to improve understanding of dementia and the diseases which cause it and encourage and support the public and people affected by dementia to get involved in research.

The manager leads on the development of a wide range of activities, such as coordinating meetings with the Lived Experience Involvement Group; the online public engagement programme; and managing the Inspire Fund community engagement grant scheme. The role has responsibility for monitoring, evaluating, and reporting on the impact of the public involvement and engagement programme. In addition, the role holder will identify improvements and undertake strategy development and implementation working with the Head of the Department to deliver this.

Reporting to the Head of Information and Involvement, the Manager has two line reports, and the team works closely with colleagues across the Policy, Communications and Involvement Directorate, notably the Information Services and Policy teams. The team also has regular interactions with people affected by dementia and supports the wider charity in engaging effectively with supporters about dementia research. They work closely with colleagues in the Research and Partnerships directorate, and Volunteering and Events teams to deliver activities.

This is a 12-month fixed term contract to cover a period of maternity leave. This role will be known internally as Involvement and Engagement Manager

Main duties and responsibilities of the role:

Lead the Involvement and Engagement team

· Work with the Head of Information and Involvement to plan and implement involvement and engagement programmes to support the development of the charity’s goals.

· Implement the Involvement and Engagement strategy for Alzheimer’s Research UK, ensuring a varied portfolio of opportunities, with a focus on reaching diverse and underserved audiences.

· Line manage two Involvement and Engagement Officers, setting objectives, with responsibility for their personal growth and development, and that of the team.

Implement the involvement of lived experience across the organisation

· Lead the management of the charity’s Lived Experience Involvement Group, overseeing the recruitment, onboarding and ongoing engagement of volunteers with lived experience of dementia.

· Lead and manage the planning of involvement activity, including a calendar of events and activities for the lived experience group, to include regular online meetings, in person events, and opportunities to contribute to ARUKs strategic initiatives and campaigns.

· Responsible for ongoing monitoring and evaluation of involvement activities, ensuring volunteers are aware of their impact, communicating impact of involvement both internally and externally to the organisation.

· Responsible for championing the value and impact of involvement across the organisation, seeking new involvement opportunities and working towards embedding involvement in key areas of the charities work.

· Work closely with and support the Research Involvement Manager with implementing involvement of lived experience in research programmes, also with external requests for support with involvement in research.

· Ensure processes to manage a database of lived experience volunteers are robust and up to date and that policies and procedures are adhered to.

Deliver public engagement programmes and activities

· Deliver the Inspire Fund community engagement grant scheme, managing the application and awards process, monitoring ongoing grants, supporting grant holders and reporting on impact.

· Oversee the planning and coordination of the public engagement events programme, including supporting the Involvement and Engagement Officer with delivery of the online public engagement series and other events.

· Working closely with colleagues in the Research team support and facilitate dementia researchers to deliver public engagement activities, providing guidance and resources as required.

· Work with the Involvement and Engagement Officers to maintain existing engagement resources and promote their use across the charity. Develop new engagement resources that can be used across a variety of events.

· Support colleagues across ARUK to build skills and confidence talking about dementia and research, and how to engage with their audiences.

What we are looking for:

· Graduate or equivalent level of education in biomedical sciences, science communication or similar.

· Experience of discussing and communicating health or research matters to the public.

· Experience of working with people affected by a long-term health condition and supporting their contributions to organisational activities or research.

· Experience of leading outreach, engagement and involvement/or involving the public with research.

· Strong experience of planning, coordinating, and delivering involvement and engagement events.

· Relevant project management experience.

· Experience working in an involvement, engagement, or public facing role or similar.

· Experience of working across partnerships, building strong working relationships (internally and externally).

· Strong and effective written and spoken communication skills, ability to tailor to lay audiences.

· Good knowledge of the research process and how the public can play a part in that process.

· Knowledge and understanding of engagement and involvement methods drawn from academia, health research or the charity sector.

· Ability to identify and develop creative opportunities for public engagement and involvement and discussion emanating from scientific research.

· An eye for creativity and innovation, and ability to grow personal network of professional contacts and create new opportunities for engagement and involvement.

· Excellent organisational skills; the ability to manage a number and variety of tasks to multiple deadlines.

· Ability to communicate appropriately with people affected by dementia and their families.

· Willingness and ability to travel independently in the UK occasionally and to work outside of regular office hours when needed.

· A confident, friendly and professional attitude; would feel at ease representing the charity to a range of audiences.

· Working with independence, intelligence, drive and initiative.

Additional Information:

Ways of working: As part of our Agile ways of working you will be required to work approximately 2 days a week from the office, which is subject to the requirements of the role and the business needs. Flexibility on where you work can be split between working from home and our office.

Roles that are classed as part of the Agile ways of working are not able to claim any costs for Mileage/Travel on Public Transport, Accommodation and/or Meals.  This includes when attending the office for various meetings/events.

Our Office: Our office is at 3 Riverside, Granta Park, Great Abington, Cambridge, CB21 6AD. 

Salary: Circa £44,000 per annum, plus benefits

Please download the Vacancy Pack on our website for more information.

The closing date for applications is the 29th June 2025, with interviews being arrange once shortlisting has been completed. Please indicate in your covering letter if you are unable to attend an interview on a certain date. We would encourage you to submit your application at the earliest opportunity, as on occasion we may have to bring forward the interview date and/or the closing date based on the needs of the business. Although a possibility, this will only happen in exceptional circumstances. Please indicate in your covering letter if you are unable to attend an interview on a certain date.

We value diversity and are committed to creating an inclusive culture where everyone can be themselves and reach their full potential.  We actively encourage applications from people of all backgrounds and cultures, in particular those from ethnic minority backgrounds who are currently under-represented.  Any offer of employment is however subject to you having the right to work in the UK.

As part of our commitment to being an inclusive employer and ensuring fairness and consistency in our selection process, we will handle your CV and application with the utmost confidentiality. While we strive to anonymise your CV where possible, there are certain sections, such as the application question, that cannot be fully anonymised. We kindly ask that you remove any personal information, including your name, when answering the application question. The hiring panel will not have access to your personal details, such as your name and address, until you are invited for an interview. Should you require any adjustments at either the application or interview stage, please contact us via our website. 

How to apply: Please create an online account using our Online Recruitment Platform which can be accessed through our Job Vacancies page. You will be able to attach your CV to your application and track the status of your application.

About Alzheimer’s Research UK: Alzheimer's Research UK is the UK's leading dementia research charity. Our mission is to accelerate progress towards a cure.  Today 1 in 2 people will be impacted by dementia, either through caring for a loved one, developing it themselves or tragically both. But there is hope. 

There has never been a more important and exciting time in dementia research. With promising new drugs in clinical trials that slow the progression of the diseases that cause it, and revolutionary new ways to diagnose them on the horizon, we are now at a tipping point. Working with the smartest minds globally and across the UK, with industry and academia, Alzheimer’s Research UK is uniquely placed to invest in the very best research identifying barriers to a cure and knocking them down so that there are more and better treatments for everyone with dementia. For the first time in history, we can see a future where people with dementia can get a swift and accurate diagnosis, and effective treatments that could slow or even stop their disease. We stand for everyone affected by dementia. We stand for a cure. 

In 2024, we were incredibly proud to be awarded a 3-star accreditation by Best Companies which recognises ‘World Class’ levels of workplace engagement. This is the second consecutive time; we have been awarded a Best Companies 3-star accreditation.

We were also listed in the prestigious Best Companies lists:

· 18th in the 100 Best Large Companies to Work For in the UK.

· 10th in the 50 Best Companies to Work For in the East of England.

· 2nd in the 30 Best Companies to Work For in the Charity Sector.

In addition, we were also shortlisted for a special award recognising the work undertaken on reducing our environmental impact.

In 2021, we were awarded the HR Management award by The Charity Times for our Wellbeing initiatives throughout the pandemic.

In 2020, we demonstrated our commitment to changing the way we think and act about mental health in the workplace and signed the Time to Change Employer Pledge. 

ARUK really does look after its people, where you will be able to add value and make a difference. 

To view further details about working for us and the benefits we offer, please visit Alzheimer’s Research UK

At Yorkshire Cancer Community, our vision is for everyone affected by cancer to have the best support possible. We are a patient-led charity, with a dedicated team of volunteers and staff who are passionate about helping anyone affected by cancer.

Working in partnership with West Yorkshire & Harrogate Cancer Alliance (WYHCA), we aim to help reduce cancer rates through our Cancer SMART project, which raises awareness of the signs and symptoms of cancer, so people are better informed, attend screening and know where to go for help.

Our Patient VIEW project is dedicated to representing the voices of patients, carers and service users, ensuring they are central to decision-making processes within cancer care.

We provide impartial and independent information and listen to those affected by cancer to ensure that they are supported.  We signpost to other charities and support groups, share information, recruit for research studies and share stories via our monthly newsletter.

As manager, you will be instrumental in ensuring we reach our goals, by building relationships with other charities, organisations and diverse groups, recruiting volunteers, working with our board of trustees, working in partnership with the WYHCA, and line management of our two staff members  – Patient VIEW coordinator (FT) and administrator (PT).

Position: Manager

Responsible to: Trustees, Yorkshire Cancer Community (YCC)

Location: Home based - the charity covers all of Yorkshire and the Humber but the main projects and focus are currently within West Yorkshire and Harrogate areas and the postholder will be expected to travel to meetings and events

Hours: 35 hours per week (full time) with some flexibility

Salary: £32,000 - £36,400 depending upon experience + pension 5% employer contribution

Holidays: 25 days + 8 bank holidays + 3 gift days between Christmas and New Year per annum

How to apply: email us for an application pack

Closing date: 29 June 2025

Interviews are currently planned for 9 July at White Rose House, West Parade, Wakefield, WF1 1LT

Key Tasks

1. To engage, manage and supervise Cancer Champions for the delivery of the Cancer SMART  programme with collaboration between Yorkshire Cancer Community and West Yorkshire and Harrogate Cancer Alliance.

2. To build relationships with charities, organisations and diverse groups where we can take Cancer SMART talks and information stalls.

3. To identify, develop and liaise with local individuals and support groups to encourage engagement and involvement within their own cancer communities.  The aim is to provide a channel for patient participation to influence cancer service development and improvement.

4. To administer and oversee the collation and sharing of information relative to the objectives of YCC by using the appropriate means of communication. This will include social media, the website, calendar of events, effective use of YCC data sources and the newsletter.

5. To work with the Board of Trustees to support the governance of the charity which will include the preparation and management of trustee meetings, contribute towards Business planning and unding strategies.

6. To provide supportive supervision to the Administrator and Patient View Coordinator

This job is for you if:-

· You have experience of working with voluntary and community, social enterprise sector (VCSE)

· You have experience of working with diverse groups of people

· You have an understanding of the voluntary sector

· You have excellent communication and interpersonal skills

· You have writing skills to present information in a variety of different formats for various audiences including the general public

· You have accuracy, attention to detail and proofreading skills

· You are skilled in the use of Microsoft Office programmes and the internet

· You are able to prioritise work to meet deadlines and able to manage time effectively

· You have a positive ‘can do’ approach, with a willingness to learn new skills

· You have a proactive and creative approach with the ability to generate new ideas and carry them forward

· You have an understanding of the importance of confidentiality

· You are committed to equality, diversity and inclusion

· You are willing to travel across Yorkshire and the Humber

If you have any questions about the process, or you would like to have an informal discussion about the post, please contact us by email.

The Research Officer role enjoys a varied workload and brings the opportunity to work with autonomy and develop new skills within a friendly and dynamic team. You will work on a broad range of projects, including being involved with our grant management processes, working closely with the Research Officer and the Acting Head of Research. The post-holder will also work closely with other departments across the charity, including producing engaging research communications content for print, online and social media, and will also have the opportunity to interact with senior researchers, clinicians and people affected by sarcoma.

This is an ideal role for someone with a scientific background and an active interest in research management, and it offers the opportunity to make a real impact for people affected by sarcoma and their families.

Benefits

• Flexible working options including hybrid working
• Pension with 5% employer contribution
• 25 days holiday entitlement per annum plus bank holidays and the working days between Christmas and New Year
• Additional day off for your birthday
• Health and wellbeing:
  • Health Cash Plan
  • Therapy sessions
  • Wellbeing Group

Our Values

• Pioneering we are leading the way to a better future for the sarcoma community.
• Together we are creating a community to make a difference for all those affected by sarcoma.
• Expert we use our expertise in understanding sarcoma to deliver better outcomes.

Duties and Key Responsibilites 

Sarcoma UK’s research programme

• To support Sarcoma UK’s grant application processes under guidance from the Acting Head of Research. This will include calls for proposals, identifying expert peer reviewers, administering a high-quality peer and lay review process, communication with applicants and potential applicants, administration of grant awards and supporting patient involvement.
• To provide support to the Grant Review Panel and Research Strategy Committee, including organising meetings and preparing minutes.
• To manage Sarcoma UK’s portfolio of active research grants, under guidance from the Acting Head of Research. This will include administration of newly awarded grants, monitoring progress of current grants, oversight of grant finances and reporting on final outputs.
• To support opportunities for patient involvement within the research programme, including managing a network of lay reviewers and facilitating new opportunities, with support from the Patient Involvement Coordinator.
• To support new developments in Sarcoma UK’s research programme, including organising and attending events, collaborative funding calls and initiatives to support early career researchers. 

Research Impact and Communications

• To monitor and gather outputs and long-term impact of research grants funded by Sarcoma UK and support in ensuring these are shared with internal and external audiences.
• To plan and produce engaging and reactive and proactive communications about sarcoma research, including website, social media, written and video content, working with the Acting Head of Research and Communications Team to ensure our research activities and outcomes are shared with the sarcoma community and wider public.
• To proactively engage with grant holders to gather impactful insights and to support engaging communication about sarcoma research.
• To regularly review and update Sarcoma UK’s website with progress updates on research grants and promote funding opportunities.
• To support work undertaken by the Fundraising Team where required, such as lab tours and supplying information about funded grants for donor reports.

External relationships

• To be a point of contact for Sarcoma UK grant holders and their host institutions.
• To maintain positive relationships with Sarcoma UK’s research panels, potential grant applications, researchers and clinicians, and the wider sarcoma research community.
• To work directly with a range of people personally affected by sarcoma to place the voice of lived experience at the heart of our research programme.

General

• To support the integration of the research programme across Sarcoma UK.
• Attend Sarcoma UK events and contribute to the wider work of Sarcoma UK.
• Travel occasionally to meetings and events. Occasional evening or weekend work may be required (time off in lieu will be given).
• Work flexibly and collaboratively in a dynamic environment, undertaking other duties as required to support the wider operations of Sarcoma UK.

These are innovative roles to develop social prescribing in the local NHS. Based in one of the six Primary Care Networks (PCN) you will work in different GP practices across that Network to deliver their specific priorities. You will join a team of ten Social Prescribing Link Workers working in Haringey PCNs and be part of a wider community-based Borough team which offers information, signposting and short-term support across the eight localities in Haringey.

Social prescribing empowers people to take control of their health and wellbeing through referral to non-medical Social Prescribing Link Workers, who give time, focus on ‘what matters to me’ and take a holistic approach, connecting people to community groups and statutory services for practical and emotional support.

Social prescribing can help to strengthen community resilience and personal resilience and reduces health inequalities by addressing the wider determinants of health, such as debt, poor housing and physical inactivity, by increasing people’s active involvement with their local communities. It particularly works for people with long-term conditions (including support for mental health), for people who are lonely or isolated, or have complex social needs which affect their wellbeing.

At the centre of the social prescribing process is the Social Prescribing Link Worker, working with GP Practices in a Primary Care Network, who connects patients who are referred to a range of activities and services in the local area depending on their needs, interests and capacity for engagement. This is a complex role as the SPLW will need to have good interpersonal skills to engage with the patient and have a comprehensive knowledge of the services and activities available in the local area.

Do you have experience in research funding? Or a keen interest to apply a scientific degree to funding impactful child health research? If so, then we have a fantastic opportunity for you. 

Following a promotion, Great Ormond Street Hospital Charity is hiring for a Research Officer is responsible for ensuring charitable funding supports the highest quality projects within our funding priority areas of: research; patient and family experience; technology and medical equipment; hospital staff support; education; and environment (through supporting redevelopment projects and capital builds).

Salary

The salary for this position is £31,935 per annum and we operate a hybrid working policy of a minimum of 2 days per week in the office.

In line with our EDI strategy and Total Reward policy, we calculate our salaries based on benchmarking data across the charity sector. To ensure fairness for existing staff and new joiners, we do not offer salaries above the advertised rate. 

Key Responsibilities

Research grant management

• Managing the delivery of GOSH Charity’s response-mode funding schemes, including our National Research Project Grant and ‘Lift Off’ pilot study funding call and others.
• Supporting potential applicants via email, phone or in person to ensure we receive high quality grant applications. 
• Processing, reviewing and validating grant applications. 
• Leading the peer review process using our Grant Management System.
• Project managing the delivery of the Research Assessment Panel.
• Supporting the input of patient and public voice, to ensure they’re built into our research funding decision making. 

Committee management

• Providing operational and secretariat support to the Research Assessment Panel and Lift Off Scientific Assessment Panels, and other expert research review panels as required.
• Managing agendas and meeting logistics, including face to face meetings as they are arranged.
• Preparing papers and reports, and collating these from across the team for delivery to the Committee in good time.
• Preparing high quality minutes that provide a clear record of discussions, decisions, and actions, and disseminating these following internal and Chair approval.
• Support the regular review of the Committee membership and tenure.
• Evaluating and recommending improvement and applying sector best practice to the Committee operations.
• Being a first point of call for Committee members, supporting them to deliver their role and ensuring they have a good experience working with GOSH Charity

This is a varied role with high impact, please refer to the full role profile for all the information. 

Skills, Knowledge and Expertise

• Previous experience working in grants management or within relevant scientific research. 
• Knowledge of research principles and the UK research funding environment. 
• Sound knowledge of paediatric research or similar discipline. 
• Demonstrate experience of research quality assessments, including peer review.
• Exceptional written and verbal communication skills with high attention to detail. 
• Strong organisational skills with the ability to manage multiple projects at once. 
• Strong relationship builder, with the ability to network in the scientific, clinical and research communities. 
• Either an undergraduate degree in a relevant scientific discipline, or equivalent relevant work experience. 

The role

We’re seeking a Research Officer to join our fantastic Research team following an internal promotion within the team.

• You will be ensuring that the management of funding rounds is robust, coordinated, and delivered to the highest possible quality, and that the funding rounds we offer address key needs of the research and patient community.
• You will be responsible for managing key stakeholders in the grant funding process, including applicants, award holders and committee members to organise key events.
• You will be liaising with researchers and people with lived experience of pancreatic cancer to coordinate meaningful internal and external public and patient involvement (PPI) through our Research Involvement Network.

About You 

• You will need sound knowledge of research principles and the UK research funding environment.
• Experience of working in a scientific or clinical research context with an undergraduate degree, preferably with a biomedical focus.
• An understanding of patient and public involvement and how to converse with people affected by pancreatic cancer.
• An ability to build relationships and coordinate working with many large and diverse specialist stakeholder groups.

If this sounds like you, we’d love to hear from you!

About working for us

This is a fast-paced organisation that is committed to making a difference. Being a part of our team is being part of a thriving, positive, dynamic, successful, and welcoming community that is making an impact. We will support you and develop you should you wish this, and you get the opportunity to be involved in activities outside the scope of your immediate role. We care about your health and well-being and your work-life balance, and you will feel that your contribution is valued and matters.

About us 

Pancreatic cancer is a tough one but we're taking it on. It is tough to diagnose, tough to treat, and tough to research. For too long this disease has been side-lined. We want to make sure that everyone affected by it gets all the help they need. Together we are taking on pancreatic cancer. Underpinning this vision are our three values:

· Courage

· Community

· Compassion

We cannot achieve our vision without employing people who are committed to our vision, strategy, and values.

At Pancreatic Cancer UK our ambition is to create an inclusive working environment that reflects the communities and audiences that we engage with and where everyone can be their true selves, where they feel respected, championed, heard, and supported.  We want our workforce to achieve their potential, understand their contribution and feel proud of their impact by creating a culture and organisation that is genuinely inclusive by advancing equality, diversity, inclusion, and belonging through our policies and practices.

We believe diversity drives great outcomes by encouraging the different points of view that come from a diverse workforce. We want to hear from and engage with people whose experience of dealing with this disease may be very different depending on their individual circumstances and background. We can think of no better way to do this than by making sure this role fully represents our intent; therefore, we are especially keen to consider applications from suitable applicants who consider themselves to be in areas that appear underrepresented within the charity sector. 

Safeguarding

Pancreatic Cancer UK is committed to safe and fair recruitment processes that safeguard and protect those we work with, support and serve. We make sure all our staff are selected, vetted (DBS/Criminal record checks where appropriate), trained, and supervised fairly and to a high standard so that they can provide safe, effective, and compassionate care. Where we work with volunteers, we extend the same support in order to ensure that they are working within our ethos and standards.

How to apply 

• You can download the Job Description and Person Specification for full details of the role on our website. If you have any questions about this role that we’ve not answered, please get in touch with Victoria Woodward (contact details are on our website)
• To apply, please complete the online application form, setting out why you are interested in the role and how you meet the person specification criteria. This information will be used to select candidates for interviews. 
• The closing date is 11:59 am on 18 June 2025. However, we reserve the right to close this vacancy earlier should we receive a high number of suitable applications. Please apply early to avoid disappointment.
• You will need to have the right to work in the UK, as we are not able to provide sponsorship for this role.
• Please note that interviews will be held in person on 2nd and 3rd July 2025.

No agencies/sales call please – as a charity we work hard to keep our costs down and therefore will not be engaging agencies to support this recruitment. 

Do you have experience in health or research policy development and advocacy? Great Ormond Street Hospital Charity are hiring a Head of Policy to develop our first ever policy and advocacy function. As Head of policy, you will be a key spokesperson for the charity and will ensure that we are using our brand and our voice to advocate for the needs of seriously ill children and their families at Great Ormond Street Hospital and beyond.  

Salary

The salary for this position is £72,000 per annum and we operate a hybrid working policy of a minimum of 2 days in the office per week.
 

In line with our EDI strategy and Total Reward policy, we calculate our salaries based on benchmarking data across the charity sector. To ensure fairness for existing staff and new joiners, we do not offer salaries above the advertised rate. 

Key Responsibilities

This is a varied position where you’ll be responsible for:

Strategic policy leadership 

• Developing and implementing a comprehensive policy agenda, in line with our high level strategy for advocacy. 
• Overseeing the development of position papers, key policy messaging and response to government consultations. 
• Identifying emerging policy trends, analysing potential impacts and developing responses. 

Creating and leading a team

• Recruiting and developing a small team.
• Owning the policy and advocacy budget and work plan. 

Relationship building

• Developing relationships with the Charity’s local partners at the Trust and Institute of Child Health (ICH) to ensure alignment and engagement on key policy & advocacy initiatives.
• Building relationships with key parliamentarians and policy makers. 
• Representing the charity at key political or government events. 

Please refer to the full job description for more information. 

Skills, Knowledge and Expertise

• Significant experience in policy development / strategic advocacy within a charitable organization, think tank, or public sector organisation.
• Previous success in shaping and influencing public policy.
• In-depth knowledge of the healthcare, research, paediatric care, or relevant public health policy landscape.
• Exceptional strategic and analytical thinking, with the ability to interpret complex policy issues and translate them into clear, actionable strategies.
• Excellent communication and interpersonal skills, including public speaking, stakeholder management, and the capacity to engage effectively with diverse audiences.
• Leadership qualities with strong team management skills and the ability to foster collaboration across departments.
• Ability to work under pressure and manage multiple priorities in a fast-paced environment.

Benefits

• 30 days annual leave (plus bank holidays)  
• A flexible approach to working arrangements.  
• Access to our enhanced pension scheme  
• Life assurance 
• Access to various health and wellbeing schemes, including the employee assistance programme.