Research communication officer jobs in Edinburgh

About Bipolar UK

Bipolar UK is the only national charity dedicated to supporting people affected by bipolar — including individuals, carers, families and loved ones. Over one million people in the UK live with bipolar disorder, yet many experience symptoms for years before receiving an accurate diagnosis.

We are entering an exciting new phase following the launch of our co-produced three-year strategy (2026–2029). Over the coming years, we will reach more people than ever before, expand access to self-management support, and build understanding of bipolar across workplaces, services and communities.

At the heart of our work is the belief that people affected by bipolar are the experts in their own lives. We are committed to equity, diversity and inclusion, and to ensuring our services are accessible, culturally responsive and shaped by lived experience.

 Purpose:  The Peer Support Officer role will work within Bipolar UK’s Peer Support Line team to support our community through telephone and email support across the UK.

The role involves using your skills and knowledge to support people affected by bipolar disorder with support requests and providing information and signposting to people via email and telephone. The successful applicant will also manage service reports in Salesforce, report back regularly to the management team, as well as developing links with other mental health services or appropriate agencies.

Though Bipolar UK does not offer Crisis Support, the successful applicant may have to direct members of our community experiencing a crisis to relevant services and will also be responsible for recognising and reporting Safeguarding incidents within the bounds of Bipolar UK’s Safeguarding Policies.

The position requires good personal interaction and the ability to empathise with service users while remaining calm and considered in sometimes difficult situations.  This is a varied and hands on role and we are looking for someone with good communication (verbal and written) along with good organisational skills. Bipolar UK will offer the successful applicant regular support and engagement with the team, as well as reflective practice sessions throughout their service with the charity.

The Peer Support Officer reports to the Services Manager who manages this service. This will be a home-based role with occasional travel, such as team days/meetings/training.

Why join us?

This is an opportunity to provide practical, non-clinical information and peer support to our community, including family and loved ones. Our Peer Support Line is often a first point of contact, offering a listening ear, helping to reduce isolation, and signposting people to relevant information, services, research and campaigns.

You will join a team of highly skilled colleagues who share the same passion to support our community in a safe and appropriate way.

Specific Responsibilities

• Act as an initial point of contact with the charity for all enquiries about our services
• Act as an initial point of contact for all people affected by bipolar disorder seeking support, information and signposting
• Direct enquiries for Bipolar UK’s additional services, including understanding Bipolar UK’s specific resources and training opportunities for workplaces and connections for research
• Build and maintain relationships with existing volunteers and with volunteers expressing interest in supporting Bipolar UK
• Ensure that all service provided by both the postholder complies operationally with Bipolar UK policies and procedures, including safeguarding and data protection postholder must handle personal/special category data confidentially and in line with policy/UK GDPR
• Contribute to the development and delivery of new formats of peer support in a spirit of co-production
• Ability to work flexibly and responsively, responding to urgent requirements
• To ensure that all support information and signposting options are kept up to date
• To complete all support records in a timely manner
• Reporting all Safeguarding concerns and crisis incidents in line with Bipolar UK’s relevant policies
• To work with community mental health teams and other interested stakeholders to promote the services of the charity
• To act as an advocate for Bipolar UK within your work
• Willing to travel within the UK as deemed appropriate by the organisation, reasonable adjustments are available.
• Other duties deemed appropriate by the Chief Executive to assist in achieving the aims and objectives of the charity

 Person Specification

The successful candidate will have:

• Understanding of lived experience and peer support
• Ability to work as part of a team and individually using own initiative
• An understanding and awareness of safeguarding
• Ability to work autonomously and at times remotely from line manager
• Experience of data collection and monitoring
• Excellent communication skills
• Excellent organisational skills
• Be competent in the use of Microsoft 365 products including Outlook and other Microsoft Office programmes
• Experience of delivering peer support in paid employment or as a volunteer

Our Commitment to Equality, Diversity & Inclusion

Bipolar UK is an equal opportunities organisation. We warmly welcome applications from people of all backgrounds and particularly encourage applications from people with lived experience of bipolar or other mental health conditions, people from under‑represented communities, and those whose voices are less often heard in mental health spaces.

All recruitment decisions are based solely on skills, experience and suitability for the role.

Data Protection

Any personal information you provide will be handled securely and used only for recruitment purposes, in line with UK data protection legislation.

Safeguarding

All employees are expected to work in line with Bipolar UK’s safeguarding policies, ensuring safe, respectful and empowering environments for everyone we work with.

The successful candidate will likely have:

• Experience of partnership working with statutory and third sector organisations
• Lived or professional experience supporting people affected by bipolar, or severe mental health conditions.

How to Apply

Bipolar UK operate a blind recruitment practice and advertise our roles via CharityJob.

Please submit your CV online to CharityJob with a covering letter (maximum two A4 pages). Your cover letter should clearly demonstrate how your experience meets the person specification and explains your motivation for working with Bipolar UK

Closing date is 9am on Monday 25 May 2026.

The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.

The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.

Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.

Responsible for:

Trusts and foundations:

• Identify and research trusts and foundations that would support our organisational priorities and funding needs
• Develop high quality, compelling grant applications and cases for support
• Build and maintain a healthy pipeline of funding opportunities
• Lead funder relationship management and deliver high-quality stewardship
• Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
• Working closely with technology and delivery teams to build evidence-based cases for support for key projects
• Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
• Attending external events and meetings to support our fundraising strategy and learning

Major donors:

• Identify and research potential major donors whose interests and capacity align with our mission
• Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
• Build and maintain a healthy pipeline of potential major donors
• Develop tailored engagement and stewardship plans approaches for each donor
• Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
• Lead major gift conversations and negotiations, including face-to-face meetings
• Provide high quality, personalised stewardship to major donors
• Identify opportunities to grow or repeat giving through deeper donor engagement
• Deliver exceptional stewardship to major donors

Individual giving

• Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
• Maintaining and monitoring our individual giving platforms
• Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements

Application instructions

• Submit your CV and one-page cover letter via CharityJob
• Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
• You must answer the screening question on the application page
• Applications without a cover letter or screening question will not be considered
• Applications due: 23:30 Wednesday 27 May
• First round interviews (online): 4/5 June 2026
• Final interviews (online or in person) 10/11 June 2026

The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.

The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.

Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.

Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.

Responsible for

 Pipeline development

• Researching potential prospects across the corporate and higher education sectors, including analysis of corporate ESG strategies and university access and participation plans
• Maintaining and enhancing our prospects database on our CRM
• Building and nurturing relationships with prospective partners
• Delivering pitch presentations to prospective partners
• Regular attendance at in-person prospect meetings or networking events to build strong relationships that develop into new partnerships
• Generating proposals that align partner priorities to Brightside’s aims
• Maintaining regular contact with prospects to stay on their radar and keep them up to date with Brightside activity
• Attending regular networking events and relevant contacts to build contacts across sectors

 Partnership management and stewardship

• Acting as the consistent relationship manager across the partnership lifecycle
• Stewarding partnerships beyond programme activity, maintaining relationships that reflect partners’ wider goals, values and organisational priorities
• Holding regular partnership check-ins focused on relationship health, strategic alignment and future opportunities
• Ensuring partners feel informed, valued and connected to Brightside’s broader mission and impact
• Working closely with the partnerships delivery team to stay up to date on delivery progress and partner milestones
• Identifying opportunities to deepen or broaden relationships, including multi-year partnerships or expanded engagement
• Delivering a consistent, high-quality partnership experience that strengthens long-term retention
• Attending partner events and conferences where relevant, becoming embedded within their communities
• Working with the Partnerships Lead to prepare for and initiate renewals conversations, including renewals proposals and monitoring

Application instructions

• Submit your CV and one-page cover letter via CharityJob
• Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria (listed in the job description) for the role with clear examples, specifically the items tested at application
• You must answer the screening questions
• Applications without a cover letter or screening questions answered will not be considered
• Applications due: 23:30, Wednesday 27 May 2026
• First interviews (online): 4/5 June 2026
• Second interviews (in person, London): 11/12 June 2026

What does it take to lead the national voice for special schools at a time of real change?

Chief Executive Officer (CEO) – National Association of Special Schools (NASS)

National – home-based, with regular travel across England and Wales, particularly London

£90,000–£110,000 per annum

Full-time, permanent.

About NASS 

The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.

We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.

This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.

As our next Chief Executive, you will:

• Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
• Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
• Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
• Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
• Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
• Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
• Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
• Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
• A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
• A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
• A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
• A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
• Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
• Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
• Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
• Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.

Why NASS?

• This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
• You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
• NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
• The organisation offers a genuinely influential platform, with strong connections across the sector and with government.

Application

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.

Closing date for applications: 9am, Monday 8th June 2026

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

We’re partnering with a leading national charity to recruit a Prospect Research Officer, a pivotal role supporting high-value fundraising growth across corporate, trusts, and philanthropy. This role will be the specialist behind the systems, insight and intelligence that power high-value fundraising success.
Working across multiple fundraising teams, you’ll identify and qualify new high-value prospects, deliver in-depth research and due diligence, and ensure robust pipeline management processes are embedded across the organisation. You’ll also play a key role in strengthening CRM use, improving reporting, and helping teams prioritise the opportunities with the greatest potential.

What you’ll do

• Lead prospect research activity across trusts, corporates and high-value fundraising
• Identify and qualify new prospects through data mining, desk research and network mapping
• Produce high-quality research profiles, stakeholder maps and event briefings
• Manage and improve pipeline tracking processes through the CRM system
• Develop dashboards and reports to support forecasting, KPIs and fundraising performance
• Support fundraisers with caseload reviews and prospect prioritisation
• Deliver due diligence checks and ensure compliance with GDPR and fundraising regulations
• Create training materials and support colleagues to embed best practice across teams
• Keep up to date with sector trends, tools and prospect research best practice

About you

• Tangible experience in prospect research, fundraising insight or high-value fundraising support
• Strong CRM/database skills, with experience managing pipelines and producing dashboards
• Excellent research and analytical skills, with strong attention to detail
• Experience delivering due diligence and understanding fundraising compliance/GDPR
• Confident communicator, able to present insight and influence colleagues across teams
• Experience improving systems and embedding new processes
• Highly organised, proactive and comfortable managing multiple priorities
• Passionate about using insight to drive fundraising success

To be considered for this position please apply with your CV as soon as possible, regrettably please note we may not be able to reply to each and every application.

We are committed to diverse and inclusive recruitment practices that ensure equal opportunity for everyone, regardless of race, sexual orientation, mental or physical disability, age or gender. We encourage applications from all backgrounds and will happily make reasonable adjustments to always ensure a fair process.

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast 

Salary: £32,750 per annum
Hours: 35 hours per week 

Closing date: Monday 19 May 2026 at midnight 

Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026 

This is a full time fixed-term position for one year (with possible extension subject to funding). 

Who we are looking for  

Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum. 

The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.  

You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.  

Experience required 

• Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse  

• Experience of leading public affairs delivery in one of more of the devolved nations  

• Experience in analysing Government policy in-depth and creating policy briefings   

• Experience of drafting briefings, reports and policy submissions   

• Experience of communicating across a range of parliamentary and professional stakeholders at all levels  

• Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment  

• Experience of organising stakeholder events  

About Breakthrough T1D 

Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia. 

You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1. 

Employee benefits 

As an employer we offer: 

• Hybrid working arrangements 

• Flexible working and will consider compressed hours 

• Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service 

• Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment 

• Season ticket and cycle loan 

• Pension scheme 

• Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates 

• Personalised training to suit your career aspirations and professional development 

Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age. 

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

This role forms a key part of a new Strategy & Insight Team at Bowel Cancer UK, which seeks to build core capabilities to enable us to be as effective as we can be for people affected by bowel cancer. The Audience Insight Specialist will be an internal leader, building our capability to understand our core audiences and the people we need to reach to achieve our strategic goals. You will support a cultural shift in how the charity takes an audience-led approach to planning, decision-making, and communications, as our CRM, data infrastructure, and Strategy & Insight functions continue to develop. Making best use of internal and external sources, you will distil data into meaningful insight, tailored to different audiences. You will support a consistent approach to audiences across the organisation, while flexing to meet the needs of different teams, ensuring that any understanding of audience is rooted in evidence.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.

Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:

• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.

• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.

• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.

• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.

• Championing our award-winning support services for disabled people.

• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.

You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.

We are looking for an all-round Communications Manager to join our small team.  You'll be able to build on your existing experience with some exciting upcoming projects that will have direct impact on the head and neck cancer community – as well as generating awareness across the general public.  We have a unique opportunity to develop our organisation to create maximum impact for head and neck cancer patients and their families while staying true to our origins.  There’s a lot of work to do.

Main responsibilities and duties:

• Contribute to a PR and communications strategy in conjunction with our Executive Director.
• Produce and rollout a new brand identity for the organisation.
• Manage and develop a new organisation website.
• Maximise media opportunities by identifying news angles and producing stong stories.
• Produce high quality materials – written, digital and visual – to promote the organisation and engage audiences to action.
• Use case studies and impact to develop our storytelling and create compelling copy to encourage financial support.
• Oversee literature production to support head and neck cancer patients and their families through their experience and work towards PIFtick accreditation.
• Co-ordinate production of a quarterly e-newsletter to keep our supporters informed of charity developments and that of the wider head and neck community.
• Regularly update our website to ensure all information is current and fit for purpose.
• Design and implement a social media plan to increase awareness of the charity and its activities.
• Produce monthly reports to track engagement and use these to improve our reach.
• Create campaigns to support our work in HPV awareness in line with the government’s target to increase vaccine take up.
• Identify opportunities to promote the organisation to those diagnosed with head and neck cancer and their families.
• Work with the Fundraising Manager, develop compelling fundraising campaigns that will appeal to the wider general public as well as our existing stakeholders.
• Liaise with the Executive Director to represent head and neck cancer patients with policymakers and raise awareness of the unique issues that affect this group.
• Act as the organisation’s spokesperson when required.
• Ensure that the charity meets all GDPR and data handling responsibilities in line with UK law.

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

Job Description:

We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research. 

RESPONSIBILITIES:

Health information management and quality:

• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms

• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance

• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance

• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need

Content development and user need:

• Identify gaps in current provision and lead the development of new information resources

• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences

• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.

Research and science communication:

• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)

• Improve how information is presented and accessed across the website and other platforms

• Stay up to date with best practice in health information and digital engagement Research and science communication

• Monitor developments in PKD research, treatments, and clinical trials

• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences

• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.

• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.

• Work with colleagues to increase awareness, understanding and interest in PKD research.

Building engagement with research:

• Help create a culture of interest and engagement in research across the PKD community

• Develop content that builds understanding of how research works and why it matters

• Support communication around studies and clinical trials to ensure patients feel informed.

Collaboration and stakeholder engagement

• Work collaboratively across the organisation to ensure consistency and alignment in messaging

• Build relationships with healthcare professionals, researchers, and external partners

• Involve patients and volunteers meaningfully in content development and review

Quality, monitoring and impact:

• Monitor the reach and effectiveness of health information and research communications

• Maintain accurate records of content review cycles and updates in line with PIF requirements

• Use insight and evaluation to continuously improve content and delivery 

ABOUT YOU:

• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.

• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.

• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.

• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.

• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.

• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.

• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.

HOW TO APPLY:

For information on how to apply, please read the job pack for further details.

About Us
The National Landscapes Association represents and supports the UK’s National Landscapes (Areas of Outstanding Natural Beauty) – places where we want nature and people to flourish together. These living, protected landscapes are vital to the UK’s nature recovery, climate resilience, sustainable farming and wellbeing.

We work collaboratively and inclusively to ensure these treasured places are protected, restored, and accessible to all. Our policy work is central to this mission – and we’re looking for a proficient and motivated individual to help shape and drive it forward.

About the Role

You’ll be motivated by working to help National Landscapes, along with the other protected landscapes, be the backbone of nature recovery within the UK through national commitments such as the Protected Landscapes Targets and Outcomes Framework and 30by30. With experience of working in the environmental or social sectors, you’ll be skilled at using evidence and knowledge when building positive relationships and supporting our partners in using resources effectively.

Based within the National Landscapes Association, you will work closely with colleagues from across Association, the individual National Landscapes and the Protected Landscapes Partnership.

Key Responsibilities

• Working with individual National Landscapes, develop a framework for a Vision of Nature in 2050 in the National Landscapes
• Support work on a standardised framework for valuing natural capital across the protected landscapes
• Maintain and update the National Landscape Association GIS system
• Support Big Chalk in developing a spatial prioritisation tool and potentially sitting on the panel for reviewing applications to the Big Chalk Nature Recovery Fund
• Contribute to the development of the National Landscapes Association as the leading voice on protected and designated landscapes in the UK

See the role description for more information.

Why Join Us?
At the National Landscapes Association, you’ll be part of a passionate and forward-thinking team making a meaningful impact. You’ll gain exposure to a wide range of high-profile policy issues, work alongside experts across the UK, and help shape the future of our most valued landscapes.

How to Apply
To apply, please attach a CV and a covering letter (maximum two pages) outlining how you meet the criteria in the person specification included in the role description.

Sight Scotland is Scotland’s leading charity providing specialist care, education and research for people with vision impairment. The charity has been in existence for over 230 years, and offer a variety of services in the community as well as education, transcription into alternative formats and residential care for adults and children. Their vision is of an inclusive Scotland where people of all visual abilities have the opportunity to thrive. To achieve their mission they are looking for a Fundraising Manager focused on trusts and grants who will cultivate a pipeline of opportunities and ensure an excellent funder experience, to provide Sight Scotland with sustainable income.  

The Trusts and Grants Fundraiser is a new role brought in to support with this growing income stream. This is an initial 2 year fixed term contract with the potential to become a permanent position.

The fundraiser will work beneath and with the Fundraising Manager – Trusts to develop trust income. Specifically the post holder will manage the small trust portfolio, support with reporting on KPIs and impact, create engaging cases for support, and support the Manager with various tasks, freeing them up to develop larger, strategic bids.

This role would suit someone who has experience of trusts and grants, either at an officer or fundraiser level, who can demonstrate experience of developing a trust and grants pipeline, creating compelling applications and directly delivering income success.

Application notes

Please download the Candidate Info Pack provided for further information about the role, timelines and next steps.

To progress your application, please contact THINK Recruitment using the details within the Candidate Pack to organise an informal screening call. Please note, we cannot shortlist candidates who have not had a screening call so please allow enough time to have a call before the closing date.

If you need assistance with downloading the pack, please contact the THINK Recruitment team for support.

Closing date for applications: Midnight Tuesday 19th May 2026

Interviews are expected to be held on Thursday 28th May 2026