• Are you looking for volunteer roles ?

    Go to volunteering section

47

Research communication officer jobs in edinburgh

Job Alerts On

Get job alerts sent straight to your inbox.

By clicking 'Create alert' you agree to the Terms and Conditions applicable to our service and acknowledge that your personal data will be used in accordance with our Privacy and Cookie Policy and you will receive emails and communications about jobs and career related topics.

You will now get the latest from this search sent to your inbox.

You can manage your job alerts by clicking here:

Pathfinders Neuromuscular Alliance, Remote
£35,000 - £39,000 per year
Posted 2 days ago Apply Now
Closing in 5 days
Shared Assets, Remote
£32,500 per year
Posted 3 weeks ago
Lifelites, Remote
£32,000 - £39,000 per year pro rata
Seeking a talent corporate fundraiser to secure significant and sustainable income from corporate partnerships.
Posted 1 day ago Apply Now
International China Concern, Remote
£32,000 - £42,000 per year
Seeking a Fundraising Manager to join our small, agile team to develop & lead fundraising strategy as we embark on a new, exciting chapter!
Posted 2 days ago Apply Now
Parentkind, Remote
£35,000 - £45,000
Join Parentkind at this exciting time!
Posted 3 days ago Apply Now
Closing in 2 days
The ME Association, Remote
£25,000 - £27,000 per year
Posted 2 weeks ago Apply Now
Rights and Security International, Remote
£33,990 per annum pro rata
Posted 1 week ago Apply Now
GFS (Girls Friendly Society), Remote
£38,250 per year
We're looking for a strategic and organised Trusts and Foundations Manager to maintain and expand our trusts and foundations portfolio
Posted today
Page 1 of 4
Remote
£35,000 - £39,000 per year
Part-time (16-18 hours per week)
Permanent
Job description

About Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance is a national, user-led charity run by and for people with muscle-weakening conditions. We empower adults with neuromuscular conditions to live fulfilling lives through peer support, information, advocacy, and co-produced research and campaigns. Our work brings together lived experience and academic insight to influence health, social care, and disability policy.

About the Role

We are seeking a Research Officer to support a series of user-led research projects exploring:

  • Access to social care and support

  • Healthcare access and inequalities

  • Sexual health and relationships for people with neuromuscular conditions

This is an exciting opportunity to contribute to cutting-edge, lived-experience research that aims to improve quality of life and influence national policy and practice.

You will work closely with the CEO, Research Manager, and members of our lived experience research advisory group. You’ll be involved in all aspects of the research cycle — from design to dissemination — and will ensure that our research is ethical, inclusive, and grounded in co-production principles.

Key Responsibilities

Research Design & Ethics

  • Support the design of research studies in collaboration with the lived experience team and academic partners.

  • Support the preparation of ethics applications, participant information sheets, and consent materials.

  • Develop interview schedules, focus group guides, and surveys.

Participant Engagement

  • Recruit participants through Pathfinders’ network, social media, and partner organisations.

  • Ensure accessibility and inclusivity in participant communication and data collection.

  • Support co-production activities (e.g., advisory groups, workshops, testing materials).

Data Collection & Analysis

  • Conduct qualitative interviews and/or focus groups with participants.

  • Support data transcription, coding, and thematic analysis (using NVivo or similar).

  • Maintain accurate, confidential records and data management systems.

Reporting & Dissemination

  • Contribute to research reports, briefings, and peer-reviewed papers.

  • Present findings to internal and external audiences, including at conferences or stakeholder meetings.

  • Work with communications staff to translate research findings into accessible outputs for our community and policymakers.

Collaboration & Co-Production

  • Embed lived experience leadership throughout the project lifecycle.

  • Liaise with academic partners and other charities to strengthen our research and advocacy work.

  • Contribute to a culture of inclusive, ethical, and participatory research practice.

Person Specification

Essential

  • Experience managing or delivering a research project from start to finish (e.g., Master’s dissertation, PhD, or equivalent applied research).

  • Strong understanding of qualitative research methods (interviews, focus groups, thematic analysis).

  • Ability to plan and manage multiple tasks, meet deadlines, and work independently.

  • Excellent written and verbal communication skills, including report writing.

  • Commitment to co-production, lived experience leadership, and inclusive research practices.

  • Awareness of issues affecting disabled people and/or people with long-term conditions.

Desirable

  • Lived experience of disability, chronic illness, or neuromuscular conditions. Applications will be prioritised where they meet this criteria.

  • Experience of working with disabled people or people with neuromuscular or muscle-weakening conditions.

  • Familiarity with ethical approval processes (university or NHS).

  • Experience with NVivo or similar qualitative analysis software.

  • Experience working in a small charity or community-based research context.

What We Offer

  • Flexible, remote working arrangements.

  • A supportive, inclusive environment led by people with lived experience.

  • Opportunities for co-authorship, conference presentations, and career development in inclusive research.

  • The chance to shape evidence that can drive change in health and social care policy.

Application Instructions

In your cover letter, please demonstrate with examples how you meet the person specifications in the job description.

Posted by
Pathfinders Neuromuscular Alliance View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 20 October 2025
Closing date: 14 November 2025 at 18:00
Tags: Data Analysis, Engagement / Outreach, Health / Medical, Qualitative, Research, Science, Sexual Health, University

The client requests no contact from agencies or media sales.