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Top job
Ataxia UK
N6, London
£37,000 per year
Seeking an experienced person to develop our ataxia community programme in England
The Prince's Trust
Multiple Locations
If based in London, band 5 £24,350 to £32,450 pro rata. If based in Manchester or Birmingham, band 5 £20,300 to £27,000 pro rata
Page 3 of 11
N6, London
£37,000 per year
Permanent, Full-time
Job description

Ataxia UK is the national charity for people with most types of ataxia. We support individuals with the condition, their families, carers and friends.  Ataxia UK is a leading membership led, support and research charity, committed to finding treatments and cures for the ataxias, whilst providing support services to those with the condition.

This new position is funded by the National Lottery Community Fund to deliver our Project aimed at tackling isolation and loneliness in the ataxia community in England through volunteering.

Community Programme Manager (England)
Based in London with extensive travel throughout England
£37,000 per annum, reviewed annually, initially for a fixed three year period
35 hours per week, with extensive travel and weekend work for which time off in lieu will be granted

Ataxia UK’s Strategic Plan has a simple overarching theme. We want people with ataxia, their family and carers to feel ‘in control’ of their lives, despite the challenge of ataxia. To achieve our aims, we are planning both short and longer-term service developments to improve our current services and create new ones.

Initially, through the Community Programme in England, we aim to support people affected by ataxia to combat their loneliness, isolation and social exclusion.

We will start by assessing the needs of the ataxia community through a comprehensive survey to establish the extent of the problem. Having done this, we want to encourage people affected by ataxia, many of whom have significant skills and professional experience of delivering the services we want to provide, to become involved in volunteering with Ataxia UK; to support the development our extensive Branches/Support Groups; become Ataxia Ambassadors; develop our 16-30’s community and social media platforms. These programmes are reflected in the Peer Support and Ambassador streams of work shown in a separate diagram.

We are also at an early stage in the development of a partnership with Scottish Huntingdons Association to deliver a Financial Inclusion (money advice) Service to people affected by ataxia in Scotland.

In the longer-term we will plan, develop and introduce our Ataxia Information Gateway, (shown top left in the diagram) which will provide access to a comprehensive range of information and support services to address the needs of the ataxia community; this includes helpline, advocacy and volunteer counselling and on-line services.

This post will place you at the centre of these exciting developments, helping transform the lives of people with ataxia whilst we work towards finding treatments and cures for the ataxias.

To be successful in obtaining this post you will need to demonstrate that you have the skills to initiate and deliver the current Community Programme project, and the experience of advice and information services to plan for and deliver these.

We are therefore seeking an individual with extensive experience of best practice in volunteer management and of developing volunteering training, programmes, policies and procedures. 

You will need to be able to lead strategically, developing people from all areas of the membership. You will be confident in coaching and supporting colleagues about volunteering and be comfortable in developing the relationships you need to position yourself as an expert advisor in this area.

You will be self-motivated, resilient and capable of developing and delivering a volunteering strategy, engaging colleagues, building partnerships and working closely with volunteers to take this work forward.

Proactive and well organised you will be a superb communicator with excellent presenting skills, including the ability to represent the charity in the media and events throughout England.

This post will be based at our Office in Highgate, London, with extensive travel. 

We already work with hundreds of volunteers each year in England, who make a huge and varied contribution to our work. We want to develop our Volunteer Programme in England to involve highly skilled volunteers in service provision such as our Helpline support service and develop our successful 16-30’s Group; Ambassadors Programme; Branches and Support Groups and fundraising, working directly with the people we support.

As Community Programme Manager, you will be responsible for driving change as we develop our strategic objectives, which aim to put all those with ataxia in control of their condition. You’ll work collaboratively with volunteers to pilot roles in areas new to working with volunteers, support colleagues, to scale currently successful programmes, embed the systems and resources which ensure a consistently high quality, person centred experience for everyone involved, and ensure the achievements of volunteers and the difference they make are widely recognised and celebrated.

This role is based in our offices in Highgate, North London.

About you 

A highly effective and experienced leader of volunteering, you’ll have a strong track record in delivering large scale, high quality volunteering activities across varied projects, services and areas.

You will be passionate and knowledgeable about how volunteers make a difference to individuals, services and communities and you’ll convey with authenticity and clarity the case for their involvement and the steps needed to do this to the very highest standards of practice and with the very best outcomes.

An exceptional communicator, you’ll thrive on working collaboratively with diverse individuals and teams and to building relationships and partnerships with individuals, families, colleagues and communities. 

You’ll be ready to take on the challenge of leading our organisation to the next stage of development in this area, and to share and [act on] our vision for how volunteers can make an even greater contribution.

About us

Ataxia UK is a proactive, vibrant, medium sized, London based charity that exists to support the ataxia community in the UK. Ataxia UK evolved from a small support group over 50 years ago and operates support services for those with ataxia, their family and friends, whilst working with other organisations globally to find treatments and a cure. The Trustee Board of Ataxia is formed of people directly elected by the membership of the Charity. The Charity consults regularly with the membership to determine its Strategic Plan and services needed. We believe that no one, no matter how complex their ataxia, should be isolated, left out, or unable to fulfil their potential.

Working at Ataxia UK can be incredibly rewarding; we offer the opportunity to work in a medium sized, diverse and successful charity where people can develop their skills, knowledge and careers in a supportive and flexible environment. In addition, we support excellent training and development and the opportunity for you to join our Personal Pension scheme.

Ataxia UK is committed to Equality of Opportunity and Diversity. We wish to encourage applications from all parts of the community irrespective of gender, race, colour, age, sexual orientation or disability. Appointments will be based on merit, following an open and clear selection process

Closing date for applications: 7 November 2019
Interviews will be held at Ataxia UK, Highgate, London 18 November 2019

Please send us your CV with a covering letter indicating why you would like to be considered for the job.

If you are interested in applying please click the 'Apply button' and send your CV along with a covering letter outlining why you’re suitable to the role. 

Additional documents
Community Programme Manager jd (.doc)
Community Programme Application Approved (.docx)
Ataxia development structure (.pdf)
Strategic Plan (.pdf)
Current structure (.pdf)
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Starting Address
Mode of transport
More about Ataxia UK
Ataxia UK

Ataxia UK is the only charity in the UK working to improve the treatment and care of people affected by all of the ataxias (a set of rare, life... Read more

Posted on: 21 October 2019
Closing date: 07 November 2019
Tags: Senior Management,Project Management

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