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Top job
Bardet-Biedl Syndrome UK (BBS UK), Birmingham (Hybrid)
£40,000 - £45,000 per year (Full-Time Equivalent)
Lead BBS UK’s integrated support service, helping individuals and families living with BBS access compassionate, person-centred support.
Posted 1 day ago

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Your City and Metropolitan Hospitals Charity (Sandwell & West Birmingham NHS Trust), West Midlands (Hybrid)
£32,073 - £39,043 per year
Make a lasting difference. Support care beyond the NHS. Can you be our Legacy & In Memory Fundraising Officer?
Posted 1 day ago
Closing in 5 days
Army Cadet Charitable Trust UK, Remote
£38,465 per year
Are you passionate about Agile delivery, team facilitation, and helping digital products reach their full potential?
Posted 1 week ago Apply Now
Gordon Moody, Redditch (Hybrid)
£59,448 - £66,834 per year
Posted 1 day ago Apply Now
Cleft Lip and Palate Action (CLAPA), Remote
£34,750 FTE per annum, (Pro rata)
Posted 1 day ago Apply Now
Barnardo's, Remote
£52,265 - £73,927 per year plus £312 per annum Office at Home Allowance
Posted 6 days ago
AdviceUK, Remote
FTE £42,000–£47,000, depending on experience. (Actual salary £33,600-£37,600)
Posted 1 day ago Apply Now
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Birmingham, West Midlands (Hybrid)
London, Greater London
£40,000 - £45,000 per year (Full-Time Equivalent)
Part-time (30–35 hours per week, with flexibility depending on the successful candidate)
Permanent
Job description

We are looking for an experienced and compassionate Support Services Manager to lead BBS UK’s support services for children, adults and families living with Bardet-Biedl syndrome (BBS). 

BBS UK is a national charity supporting people affected by this rare genetic condition. We work closely with NHS specialist clinics and other services to help individuals and families access the support they need and navigate health, education, social care and welfare systems. 

This is an exciting opportunity to lead a small, dedicated team providing practical support, advocacy and guidance to people living with BBS and their families. 

The role includes team leadership, safeguarding responsibility and service development. You will help ensure people receive safe, responsive and person-centred support while continuing to improve and strengthen our services. 

About the Role 

As Support Services Manager, you will oversee BBS UK’s clinics support and advice services. Working closely with the CEO, NHS clinics and partner organisations, you will: 

  • Lead and support a small remote-working team

  • Provide supervision and safeguarding leadership to Patient Liaison Officers and Advice Workers

  • Act as Designated Safeguarding Lead (DSL) for the organisation

  • Oversee caseloads, service quality and risk management

  • Support staff wellbeing, learning and development

  • Build positive relationships with NHS and external partners

  • Help develop and improve BBS UK’s support services

This is a home-based role with travel to specialist clinics in London and Birmingham, plus occasional meetings and events. Travel expenses will be reimbursed in line with BBS UK policies. 

About You 

We are looking for someone who: 

  • Has experience managing a team within health, social care, welfare or voluntary sector services 

  • Has experience providing leadership, supervision or safeguarding oversight within a support service setting 

  • Has strong safeguarding knowledge and can make sound decisions in complex situations

  • Communicates well and builds positive working relationships

  • Can manage competing priorities and support a busy team

  • Is organised, practical and calm under pressure

  • Is reflective, approachable and supportive

  • Shares our commitment to inclusive, person-centred support

  • Wants to make a meaningful difference to people living with BBS

Why Join BBS UK? 

BBS UK is a small, supportive charity making a real difference to the lives of people affected by Bardet-Biedl Syndrome. By joining us, you will: 

  • Make a direct and meaningful difference to children, adults and families living with BBS

  • Be part of a supportive and values-driven team

  • Work flexibly from home while contributing to a nationally recognised rare disease support service

  • Receive ongoing training, supervision and professional development

  • Help shape the future of support services for people living with BBS 

Additional Information 

  • An enhanced DBS check is required for this role

  • Some evening or weekend work may occasionally be required, with time off in lieu provided

If you’re ready to use your skills and experience to make a meaningful impact, we’d love to hear from you. If you would like to discuss the role before applying, details can be found in the application pack. 

Application Deadline: Sunday 7th June 2026 (midnight) 

Interviews: Expected to take place in London on 16th and 18th June 2026 

Application resources
Organisation
Bardet-Biedl Syndrome UK (BBS UK) View profile Organisation type Registered Charity Company size 6 - 10

We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

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Refreshed on: 18 May 2026
Closing date: 07 June 2026 at 00:00
Tags: Advice / Information, Training / Learning, Advocacy, Blind, Health / Medical, Risk Management, Safeguarding, Wellbeing, Social / Support Work

The client requests no contact from agencies or media sales.