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Closing in 6 days
RISE - Reimagining Industry to Support Equality, Remote
£50,000 - £100,000 per year
RISE is looking for an experienced MEL Consultant to lead the implementation of our MEL framework.
Posted 3 days ago Apply Now
Better Story, Remote
£27,500 per year
We help charities grow by providing first-class fundraising and communications services. Join us!
Posted 1 week ago Apply Now
Closing in 3 days
Bristol and South Gloucestershire Circuit of the Methodist Church, Remote
£14.00 - £15.00 per hour
Posted 3 weeks ago
Understanding Recruitment Ltd, Remote
£37,000 - £40,000 per year
Posted 3 weeks ago Apply Now
Population Matters, Remote
£55,000 - £62,000 per year
Population Matters is an environmental and human rights charity, working to ensure that our population can co-exist in harmony with nature.
Posted 4 days ago Apply Now
Closing in 4 days
Sleep Apnoea Trust, Remote
£30,000 (£50k FTE)
Be a part of our mission in working to improve the lives of sleep apnoea patients, their partners and families
Posted 1 week ago Apply Now
Scottys Little Soldiers, Remote
£32,000 - £36,000 per year
Scotty’s is seeking an experienced bereavement counsellor to join our small but effective team.
Posted 5 days ago
Sue Ryder, Remote
£38,000 - £41,000 per year
Posted 2 weeks ago
Closing in 3 days
Khulisa, Remote
£46,000 - £49,500 per year
Are you a fundraising professional looking for the right cause to inspire your next career move? This leadership role could be the one!
Posted 1 week ago Apply Now
Page 7 of 10
Remote
£30,000 - £33,000 per year
Full-time
Permanent

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Job description

Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time  
Salary: £30,000 - £33,000 
Reports to: Head of Insight & Advocacy 

About Us 

Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve. 

The Role 

We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations. 

Key Responsibilities 

Research (under supervision of the Head of Insight & Advocacy): 

  • Support the design, planning, and delivery of qualitative and quantitative research projects 

  • Conduct literature reviews, stakeholder mapping, and data analysis 

  • Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders 

  • Assist with analyses and write up findings in accessible and engaging ways for different audiences 

  • Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community 

Policy Monitoring and Response: 

  • Track developments in policy relevant to rare diseases and inherited metabolic conditions 

  • Summarise key policy updates for internal and external audiences 

  • Support the drafting of consultation responses, position statements, and policy briefings 

  • Contribute to campaigns, stakeholder engagement, and policy influencing activities 

  • Help ensure the voice of the IMD community is reflected in national and local policy discussions 

About You 

We are looking for someone who is: 

  • Organised, analytical, and enthusiastic about improving lives through research and policy 

  • A strong communicator – able to write clearly and concisely for different audiences 

  • Comfortable working with data, both qualitative and quantitative 

  • Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings) 

  • A team player who enjoys collaborating and supporting others 

Desirable experience: 

  • Background in public health, health policy, social research, or similar 

  • Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions 

  • Familiarity with the NHS, health inequalities, or rare disease policy 

What We Offer 

  • A chance to make a meaningful difference in a growing, agile charity 

  • A friendly and supportive team culture 

  • Flexible working arrangements 

  • Opportunities for learning and professional development 

Posted by
Metabolic Support UK View profile Organisation type Registered Charity Company size 6 - 10
Posted on: 12 May 2025
Closing date: 05 June 2025 at 17:00
Tags: Policy, Global Health, Health / Medical, Qualitative, Research