Director of digital transformation volunteer roles

Epilepsy Action is a national charity with a bold vision: to create a world without limits for people with epilepsy. In 2024 we launched an ambitious new strategy to grow our income and extend the support we offer. After a successful start, we are ready for the next stage in the strategy, and we are looking for new trustees to join our Board and help turn our ambition into lasting impact.

You will bring the skills, values and perspective to help our charity thrive, whether that’s a track record of leading growth and transformation, the ability to open doors through your networks, experience in health or the medical sector, or expertise in law, digital technology or fundraising.

We are committed to building a diverse, inclusive and effective Board that reflects the communities we serve, and people affected by epilepsy. We welcome applications from everyone and are particularly keen to hear from people who are underrepresented on charity boards, including people from ethnically diverse backgrounds, disabled people, LGBTQ+ people, and people of different ages and socio-economic backgrounds. We believe greater diversity makes for better decisions.

If you want to help shape a world without limits for people affected by epilepsy, and use your voice and influence to raise understanding of the condition, then we would love to hear from you.

Purpose of the Role 

The role of a trustee is to share the Board’s collective responsibility for the effective governance and leadership of the charity, setting our strategic direction and major policies in accordance with our objectives, vision, mission and values.

Epilepsy Action (registered as the British Epilepsy Association) is both a registered charity and a company limited by guarantee. As such, trustees are both charity trustees and company directors and have the statutory and legal duties which these roles impose.

This is a voluntary (unpaid) role with a three-year term of office, renewable for up to two consecutive terms.

You need to be able to commit approximately 6–12 days per year, including: 

• Four Board meetings per annum, plus meeting preparation 

• Subcommittee meetings (if applicable) 

• Strategy days, training, and occasional events 

Meetings are a combination of hybrid and fully remote, with an annual in-person meeting in September in Leeds. Overnight accommodation will be booked for trustees and travelling expenses reimbursed for in–person meetings. 

To Apply 

For any questions in advance of your application please contact us via our recruitment email.

To make an application please send your CV and a supporting statement to our recruitment email.

Your supporting statement should answer the following questions:

· What has drawn you to apply to be a trustee for Epilepsy Action?

· What are the main skills and experience that you bring that could benefit the charity?

· How do you think your values align with Epilepsy Action’s values of being supportive, empowering, inclusive and ambitious?

We also ask candidates to fill in the Trustee Application Questionnaire as part of the recruitment process.  This form includes sections for diversity monitoring, as well as skills and experience.

If you need any adjustments to support you to apply or take part in the recruitment process, please let us know.

Shortlisted candidates will be invited for an informal meeting where they will have a chance to find out more about our work.

Formal interviews will be with the Chair, the CEO and relevant members of the Board and / or Advisory Panels will take place at the end of May and beginning of June.

The Membership Director is responsible for building, growing, and protecting the heart of the CIC:
our membership community. Membership is not a mailing list. It is a collective of people choosing to belong, contribute, and build together.
This role shapes:

• How people enter the organisation
• How they stay connected
• How they feel valued, informed, and aligned
• How community becomes sustainability

Experience Qualification and Requirements

Essential 

• Ability to commit grassroots full-time effort during the build phase (rest follows completion, not the clock)
• Comfort working unpaid while foundational systems and culture are established
• Deep alignment with community-led, anti-capitalist values and collective ownership
• High levels of consistency, focus, and self-direction in ambiguous, early-stage environments
• Clear understanding that meaningful change requires discipline, structure, and follow-through, not aesthetics or hype
• Commitment to always working through organisational values: Each One Teach One, Love As Law, Knowledge of Self
• Prior experience in one or more of the following: community building or stewardship, membership programmes or participation models , customer, supporter, or community experience roles, systems thinking and organisational design, digital platforms, CRMs, or data-informed engagement, purpose-driven, grassroots, or movement-led organisations
• Ability to balance strategic thinking with practical implementation
• Strong relational skills, including listening, facilitation, and respectful boundary-setting
• Comfort holding complexity, conflict, and accountability with care
• Willingness to be both architect and steward of culture
• Integrity, clarity, and long-term commitment

Desirable 

• (Intentionally left open for growth as the role evolves in an early-stage organisation)

Qualifications

• Formal qualifications not required

Main Responsibilities/ Key Duties

Membership Strategy & Structure

• Design and implement the CIC’s founding membership model, defining clear entry points, engagement pathways, and retention approaches rooted in participation rather than extraction.
• Shape intentional progression routes that support members to move from supporter → contributor → leader, ensuring growth in responsibility, agency, and influence over time.
• Align membership pathways with donor journeys, ambassador programmes, and volunteering routes, ensuring coherence across engagement, fundraising, and advocacy without conflating value with money.

Community Building

• Create a membership culture where people consistently feel seen, informed, included, and valued, regardless of role, status, or capacity.
• Establish sustainable rhythms of communication, updates, shared learning, and reflection that foster belonging, trust, and transparency.
• Enable decentralised participation by supporting member-led initiatives, peer leadership, and collective decision-making rather than top-down control.
• Act as a steward of healthy community dynamics, encouraging dialogue, accountability, and mutual care.

Systems & Data

• Oversee the setup and ongoing use of membership systems (e.g. CiviCRM or equivalent), ensuring they serve people rather than manage them.
• Track and interpret membership growth, engagement, and retention, using insight to strengthen participation and address disengagement early.
• Work collaboratively with Digital, Finance, and Social teams to maintain clean, accurate data and ensure ethical, transparent, and values-aligned data use.

Values & Culture

• Protect the integrity of the membership community by upholding CIC values in all structures, communications, and decisions.
• Identify and address misalignment early, clearly, and respectfully, prioritising restoration and learning over exclusion.
• Co-create and uphold community standards rooted in care, accountability, and shared responsibility—not surveillance or control.

Founding Responsibility

• Help design the future paid Membership Department, including roles, systems, and workflows that reflect collectivism and sustainability.
• Contribute to long-term organisational planning, ensuring membership is a pillar of resilience and shared ownership.
• Act as a culture carrier, modelling commitment, discipline, and collective leadership throughout the build phase.

This Role Is NOT for You If

• You want quick money
• You need external validation to stay motivated
• You prefer rigid hierarchies
• You are uncomfortable with responsibility
• You are only here for a title

What You Gain

• A founding leadership role in a growing CIC

The chance to help design:

• Future paid roles

• Income structures

• Working culture

• Deep personal transformation through meaningful work

• Real contribution to social and cultural change

• Collective success, not individual competition

As the CIC scales, this role is expected to evolve into a paid senior leadership position, shaped by those who built it.

A Final Word

We are not offering security.

We are offering possibility.

We are not promising ease.

We are building truth, structure, and collective power.

If you know the old world is ending —

and you want to help build what comes next —

This role is for you. 

Are you passionate about creating transformative learning experiences that empower individuals and communities? 

Tell My Truth and Shame the Devil C.I.C. is seeking a skilled Instructional Designer to join our founding volunteer team. This role is central to designing, structuring and delivering educational programmes that support survivors, young people and marginalised communities to access knowledge, develop skills and achieve personal and collective growth.

Purpose of the role:

The Volunteer Instructional Designer supports our mission by designing engaging, effective and learner-centred educational materials. In this role, you will collaborate with subject matter experts, program staff and other volunteers to transform ideas and content into structured learning experiences that are accessible, inclusive and impactful.

About the Role:

As Instructional Designer, you will work closely with the Membership Director, Book Club Coordinator, and Social & Digital Media Education Lead to develop structured learning pathways, modules, and resources for our membership programmes. Your work will ensure that all learning experiences are engaging, accessible, and aligned with our anti-capitalist, community-driven, and survivor-centred mission. This is a hands-on, impactful role combining strategy, creativity, and operational delivery.

Experience Qualification and Requirements

Essential Technical Competencies:

• Experience in instructional design, curriculum development or educational programme creation in formal or informal learning environments.
• Proven experience designing and delivering community-based education, training or learning programmes.
• Experience using content creation tools (e.g., Microsoft PowerPoint, Google Workspace, Canva).
• Basic familiarity with e-learning tools, learning management systems or content creation software is a plus.
• Ability to develop structured learning pathways with clear outcomes and assessments.
• Ability to translate complex or technical information into clear, accessible and inclusive learning materials.
• Knowledge of accessibility and inclusive design best practices.
• Hands-on experience contributing to open-source projects.
• Implementing security, accessibility or system optimisation practices in real-world projects.

Desirable / Can Be Developed:

• Experience in instructional design, learning design or educational content creation.
• Developing skills in structuring learning objectives, activities and simple assessments.
• Willingness to collaborate with facilitators, subject matter experts and community members.

Qualifications:

• Formal qualifications are not required but desirable.
• Experience in education, instructional design, learning and development or a related field is valued.

Main Responsibilities/ Key Duties

• Design and develop educational programmes, courses and learning resources for members and volunteers.
• Collaborate with subject matter experts, facilitators and leadership to ensure content is accurate, relevant and impactful.
• Structure learning experiences with clear objectives, assessments and progression pathways.
• Integrate digital platforms, multimedia resources and interactive tools to enhance accessibility and engagement.
• Evaluate learning outcomes and gather participant feedback to continuously improve programmes.
• Ensure all learning programmes comply with safeguarding, accessibility and data protection standards.
• Ensure all integrations follow best practices for security, data privacy and performance, maintaining
• compliance with GDPR and other relevant standards.
• Facilitate knowledge transfer by providing clear resources for onboarding new volunteers, team members and technical contributors.
• Maintain documentation of course materials, learning pathways and instructional guides for internal use.
• Support capacity-building by training facilitators, volunteers and community members in programme delivery.
• Collaborate with leadership, technical teams and stakeholders to define the long-term vision and goals for digital platforms and systems.
• Identify opportunities for innovation, including new features, technologies, tools or workflows that improve platform functionality, user experience and operational efficiency.
• Continuously monitor the open-source platform to ensure optimal performance, uptime and reliability, using monitoring tools, analytics, and performance metrics.
• Identify and diagnose technical issues, bugs, or system errors promptly, assessing root causes and prioritising fixes based on impact and urgency.

What This Role Offers You:

• Leadership experience in designing and delivering learning initiatives that directly impact communities.
• Personal and professional growth through hands-on instructional development and facilitation.
• The opportunity to shape transformative learning systems within a pioneering, values-led CIC.
• The satisfaction of empowering survivors, young people, and community members through education.

What This Role Is Not For:

• Individuals seeking purely administrative or content curation work without engagement.
• Those unwilling to adapt learning resources to diverse audiences and community needs.
• People expecting pre-packaged or rigid course structures—this role requires creativity, collaboration, and active problem-solving.

Next Steps

Shortlisted applicants will be invited to

• A values-led conversation.
• If you are ready to design meaningful learning experiences that empower communities and foster personal transformation, we want to hear from you. 
• Apply now and help build education systems that create lasting social impact.

A Final Word
Design learning turns knowledge into action. Shapes the path from curiosity to competence.

If you know that: Education is the bridge between knowledge and action.A bridge between knowing and doing

Ben is the charity supporting the health and wellbeing of people who work or have worked in the UK automotive industry. As the sector continues to transform, Ben is entering an ambitious new phase to significantly expand its reach, strengthen its role as the industry’s trusted wellbeing partner and deliver its goal to treble impact and double fundraising by 2030. With strong financial foundations and clear ambition for growth, we are now seeking new Trustees to help shape this next chapter.

Board of Trustees  (Voluntary)

As a Trustee, you’ll play a key role in guiding Ben’s strategy, championing good governance and supporting our senior team. You’ll help us stay connected to the needs of today’s workforce and ensure our impact keeps growing.

We’re particularly keen to bring fresh perspectives onto our Board, and we actively encourage younger people and early‑career leaders to apply - including those who may not have been a trustee before. If you’re motivated by improving wellbeing and want to build your leadership experience, we’d love to hear from you.

We are looking for Trustees who can bring insight in one or more of the following areas:

• Automotive industry (retail, manufacturing or aftermarket)
• Fundraising, philanthropy, income generation or business development
• Welfare, health and wellbeing
• Impact measurement, evaluation or outcomes frameworks
• Brand, marketing, communications, social media or customer experience
• Finance, audit and risk
• Technology, digital or data
• Research and development
• Governance

We’d especially love to hear from you if you:

• Are values‑driven and excited about helping others
• Bring a collaborative, open‑minded approach
• Want to develop board‑level experience
• Can offer a different generational or lived‑experience viewpoint

We welcome values driven leaders who bring strong judgement, collaboration and diverse perspectives, and who are motivated by improving wellbeing across the automotive industry.

The Board meets 4 times a year, with approximately 50% of those taking place in-person. 

Chair of the Board of Trustees and Trustee Opportunities (Voluntary)

Ben is the charity supporting the health and wellbeing of people who work or have worked in the UK automotive industry. As the sector continues to transform, Ben is entering an ambitious new phase to significantly expand its reach, strengthen its role as the industry’s trusted wellbeing partner and deliver its goal to treble impact and double fundraising by 2030. With strong financial foundations and clear ambition for growth, we are now seeking a new Chair and several Trustees to help shape this next chapter.

The Chair will provide strategic leadership to the Board, support and challenge the CEO, and ensure strong governance, financial sustainability and clarity of purpose. They will lead the Board in setting strategy, driving impact, stewarding significant reserves and acting as an ambassador across the sector.

We are looking for:

• Non-executive experience including as committee or board chair
• Strong governance and financial acumen
• Experience of organisational change or growth
• A collaborative, values driven leader who brings sound judgement, strategic insight and excellent relationship building skills.

The Board meets 4 times a year, with approximately 50% of those taking place in-person. The Chair will serve up to 4 years.

The food system is unsustainable and unjust, and it’s damaging the health of a generation. We are a youth activist movement set up to challenge a food system that’s been set up to fool us all. We're looking for a new Chair who shares our passion for empowering youth leadership and transforming our food system