Trustee

Action Duchenne

Remote

Unpaid role, expenses not paid

Voluntary

Disability ∙ Health ∙ Youth and Children

Actively Interviewing

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Job description

Join a charity where your expertise can make a life-changing difference.

Action Duchenne is seeking new Trustees to help guide the organisation through an exciting period of growth and development. Whether you're an experienced board member or considering your first trustee appointment, this is an opportunity to use your skills to support families affected by Duchenne muscular dystrophy and help shape the charity's future.

We are particularly interested in hearing from people with experience in:

Finance, reserves, audit or financial control
Fundraising, income generation or grant accountability
Impact measurement or community support
Communications, public affairs or stakeholder engagement

Is this you?

With or without trustee experience
A strategic thinker with sound judgement
Able to provide support and constructive challenge
Passionate about improving lives
Committed to strong governance and accountability

What's in it for you?

Help shape the future of a national charity
Develop your governance and leadership experience
Work alongside a passionate and committed Board
Make a meaningful difference to families affected by Duchenne
Most meetings are held remotely, with quarterly in-person meetings in London.

If you want to use your professional skills to create lasting impact, we'd love to hear from you. These unremunerated roles are open to all.

This role is subject to a DBS check, which will be carried out by the employer.

To apply for these exceptional opportunities, please submit your CV and supporting statement via the Charisma website. For more information, please contact Sandra Smith, Charisma Charity Recruitment.

Key dates

Closing date for applications: 4th November 2026
First Interview date: w/c 16th November 2026
Second Interview date: w/c 23rd November 2026

We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status, or other category protected by law.

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