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VHL UK/Ireland
Remote
Unpaid role, expenses paid
Voluntary

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

Secretary of Trustees

Location: Remote (UK/Ireland-based)

Time Commitment: Approx. 1–2 days per month

Term: 3 years (renewable)

Voluntary Role (Unpaid)

The Role

We are seeking a new Secretary of Trustees to support the governance and administration of the charity. This is a vital role that ensures the smooth running of trustee meetings and compliance with legal and regulatory requirements.

The Secretary will work closely with the Chair, Treasurer, and other trustees to maintain accurate records and facilitate effective communication.

Key Responsibilities

Governance & Compliance

  • Ensure the charity complies with statutory and regulatory requirements, including filing with the Charity Commission.
  • Maintain up-to-date records of trustee appointments and declarations of interest.

Meeting Administration

  • Organise and schedule trustee meetings and the Annual General Meeting (AGM).
  • Prepare and circulate agendas, minutes, and supporting documents.
  • Record accurate minutes and actions from meetings.

Communication & Coordination

  • Act as the main point of contact for trustee communications.
  • Support the coordination of trustee activities and follow-up on agreed actions.
  • Liaise with external stakeholders as needed (e.g. Charity Commission, VHL Alliance).

Documentation & Record-Keeping

  • Maintain the charity’s governing documents and policies.
  • Ensure secure and accessible storage of key documents and records.

Person Specification

We are looking for someone who:

  • Has strong organisational and administrative skills.
  • Is detail-oriented and reliable.
  • Communicates clearly and professionally.
  • Has experience of minute-taking and document management (not necessarily in a charity setting).
  • Is committed to the values and mission of VHL UK/Ireland.
  • Ideally has lived experience of VHL or a related condition (not essential).
Organisation
VHL UK/Ireland View profile Organisation type Registered Charity Company size 11 - 20

Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.

Posted on: 14 February 2026
Closing date: 14 April 2026 at 10:48
Tags: Campaigns, Communications, Project Management, Advocacy, Cancer, Entry level / Graduate, Information Management, Governance / Management