Lived Experience Board Member - Wheelchair Users

Lived Experience Board Member (Advisory Role)

About the Role
At Living Reasons, we believe that real change comes from lived experience. To make sure everything we do is relevant, effective, and grounded in the realities of people’s lives, we are creating a Lived Experience Advisory Board.

This is a non-executive, advisory role. Board members do not carry trustee responsibilities but instead play a vital part in shaping and guiding the organisation. The insights and perspectives of our board members will directly inform the decisions of our trustees, helping us stay focused on what truly matters to the people we support.

How the Board Works

• The board is made up of different lived experience groups, each focusing on particular areas.

• Members can meet in their groups to share experiences, support one another, and identify key issues.

• Groups can also set up their own sub-groups where needed.

• Each group decides what information it wants to share with Living Reasons — members are always in control of their voice.

• From time to time, the full board meets together to discuss wider themes, shared experiences, and how these can guide the direction of Living Reasons.

What You’ll Do

• Share your lived experience in a safe, respectful group setting.

• Take part in discussions, focus groups, and community support activities.

• Contribute to shaping campaigns, policies, and services.

• Review materials, research, and proposals and give feedback to help the organisation grow.

• Be part of a supportive community that uses lived experience to drive meaningful change.

Who We’re Looking For

• People with lived experience of wheel chair use, either:

  • through your own personal experience, or

  • as a supporter, caregiver, guardian, or family member.

We will keep these as two separate groups (personal experience, and supporter/caregiver) so that conversations can be open and relevant to each perspective.

Why Join?

• Your experience will drive real change — in Living Reasons and in wider society.

• You’ll be part of a community where lived experience is valued, respected, and heard.

• You’ll have a direct line to trustees and a say in how resources, campaigns, and priorities are shaped.

What is the plan?

The person who is starting the charity up is autistic, has ADHD, CPTSD and also multiple physical conditions that effect daily life and is part of the LGBTQ+ community and has faced a lot of issues in life because of these things.

Living Reasons is being created to fix what we think is a challenging situation that is getting harder to achieve every week, month and year in the current economic, political, environmental and societal landscape. It is not easily defined but we hope the charity objects below will help put context to what we want to achieve, what we can say is that below are the issues we are trying to address, how we do this will change as quickly as society does, but the issues we want to tackle are these:

1) Outdated and damaging employment practices

2) Accessibility to services

3) Limited employment, training and education opportunities

4) Lack of support during times of crisis or need

5) Lack of equity and agency for many people in society

6) Institutional discrimination that is not challenged

7) Abuse of the legal system at all levels

8) Abuse of power in government bodies

9) Poor access to healthcare

10)  Unequal treatment of many people in society by large corporations

11)  Assumptions made by wider society based on incorrect, outdated or discriminatory rhetoric that is used in daily life

12)  Outdated company engagement with the public

13)  Lack of support that is not talked about and not being addressed

Our Living Values -

Creativity

1) Imaginative Development (Individual)

2) Instilled Collaboration (Internal)

3) Changing The Status Quo (External)

Prospectivity

1) What Can You Do (Individual)

2) What Can We Do (Internal)

3) What Can They Do (External)

Revolutionary 

1) Inspire With Confidence (Individual)

2) Boundaryless Innovation (Internal)

3) Challenge Traditions (External)

Attentivity

1) Analyse and Redesign (Individual)

2) Rebel and Reform (Internal)

3) Enquire and Reimagine (External)