Involvemnt Champion

Our challenge

Our community are at the heart of everything we do, and we are committed to working in genuine partnership with those affected by a brain tumour diagnosis. Together, we aim to accelerate positive change in how people with brain tumours are diagnosed, supported, and treated, moving towards our vision - for everyone diagnosed with a brain tumour to live longer and better lives.

We want our Involvement Champions to reflect our brain tumour community, including both those living with low and high-grade tumours. We welcome carers of people living with a brain tumour, as well as those who have cared for loved ones who have sadly passed away. We value hearing from all relationships, including partners, parents, and siblings, as each perspective is very important to our work.

How can you help?

This three-year role gives you the chance to influence decision making across The Charity and act as critical friends to ensure community voices are embedded in all we do. As an Involvement Champion, you will help shape the future of brain tumour care and research. You will work on projects both within The Charity and across the wider brain tumour community, in-person and online, collaborating with researchers, healthcare professionals, and partner organisations to make sure those affected are at the centre of every decision. By sharing your insight, you’ll help strengthen and amplify the voice of our community.

What we’re looking for

We are seeking passionate, collaborative members of our community who want to create change and improve outcomes for everyone affected by a brain tumour.

Person Specification

We welcome applications from anyone affected by a brain tumour (carers and patients), but it’s important this feels like the right time for you. By sharing your insight, you’ll help strengthen and amplify the voice of our community.

We’re looking for people who are:

• Passionate about improving outcomes for everyone affected
• Open to sharing their story while respecting different experiences
• Collaborative, empathetic, and supportive of others
• Able to balance involvement with their own wellbeing