Acting ceo jobs

To develop and implement a comprehensive reparations programme which furthers JRCT’s charitable purposes for the public benefit and to act as a member of the senior leadership team

Reports to: Chief executive 

Responsible for: External advisory group, intermediaries, community partners, legal advisors and other consultancy roles as required. 

An exceptional opportunity to lead, grow, and transform lives 

Home-Start Richmond, Kingston & Hounslow is seeking an inspiring and strategic Chief Executive Officer to lead our trusted local charity through its next stage of growth and innovation. 

This is a rare opportunity to make a tangible difference for children and families — by strengthening our community presence, driving income generation, and ensuring every child gets the best possible start in life. 

About Home-Start Richmond, Kingston & Hounslow 

We believe strong families make strong communities. 
Our trained volunteers provide emotional and practical support to parents of young children, helping them navigate the challenges of early childhood and family life. 

Operating across three London boroughs, we are a vibrant, values-driven charity and part of the wider Home-Start network — one of the UK’s leading family support movements. 

The Role 

As CEO, you’ll be both strategic leader and hands-on advocate, driving our fundraising and partnership agenda while overseeing operational excellence. 

You’ll lead our talented team, work closely with trustees, and represent our charity with energy and passion — ensuring we remain a visible and trusted voice for families across Richmond, Kingston and Hounslow. 

Key Responsibilities 

• Lead and inspire staff and volunteers to deliver high-impact family support services. 

• Develop and implement a bold, diversified fundraising and income generation strategy. 

• Build and nurture relationships with funders, corporates, philanthropists, and community partners. 

• Act as a confident ambassador, raising the organisation’s profile locally and regionally. 

• Work closely with the Board of Trustees on governance, strategy, and long-term sustainability. 

• Oversee service delivery, safeguarding, and operational compliance. 

About You 

You are: 

• A proven fundraiser and relationship builder who can secure sustainable income across multiple sources. 

• A confident and inclusive leader who inspires and empowers teams. 

• Skilled in partnership development and community engagement. 

• Experienced in charity governance, financial management, and service delivery. 

• Deeply committed to safeguarding, equality, and family wellbeing. 

Why Join Us? 

• Lead one of London’s most respected family charities. 

• Shape our strategy for growth and sustainability. 

• Join a passionate, values-led team and supportive board. 

• Enjoy flexible, hybrid working across three vibrant boroughs. 

How to Apply 

If you meet most but not all of our criteria and are passionate about giving children the best start in life we'd still like to hear from you.

Apply via CharityJob or reach our to our Chair for an informal conversation. 

Home-Start Richmond, Kingston & Hounslow is committed to equality, diversity, and inclusion. We welcome applicants from all backgrounds. 

At 21 Together, we believe every person with Down’s syndrome has the right to live a happy, rich and fulfilling life. Based in Maidstone and working across Kent, we support children and young people with Down’s syndrome, their families, and the professionals who work with them.

We are a small but impactful charity looking for an inspiring Chief Executive Officer to lead us through the next phase of our growth.

Job Title: Chief Executive Officer (CEO)
Organisation: 21 Together
Location: Maidstone, Kent (Hybrid working available)
Salary: From £48,561 FTE, dependent on experience 

Contract: Permanent or Fixed Term (flexible)
Working Hours: Part-time or Fractional (minimum 3 days per week)
Closing Date: 5th January 2026

Interview Date: Early January 2026

The Role

As CEO, you’ll provide strategic leadership, oversee operations, and drive income generation to ensure our long-term sustainability. You’ll work closely with our committed Board of Trustees, lead a passionate team, and act as the public face of the organisation.

We’re open to part-time or fractional working arrangements (minimum 3 days/week) to attract the right person.

Key Responsibilities

• Deliver our mission and long-term strategy
• Ensure strong financial oversight and fundraising success
• Lead and support staff and volunteers, fostering a positive and inclusive culture
• Maintain strong governance and ensure legal compliance
• Represent the charity externally and build key stakeholder relationships
• Monitor impact and promote continuous improvement

About You

We’re looking for someone who is:

• An experienced leader with a strategic mindset
• Financially astute, with a track record of managing budgets and securing income
• A confident communicator with excellent stakeholder engagement skills
• Committed to inclusion, learning, and supporting vulnerable communities

Desirable: Experience or understanding of Down’s syndrome and/or learning disabilities.

What We Offer

• Flexible working (minimum 3 days/week)
• Hybrid arrangements available
• Supportive and values-led culture
• Opportunity to make a meaningful, visible difference

The Stable Family Home Trust is a values-led organisation where people always come first. Our main purpose is to support adults with learning disabilities to develop the skills and confidence that enable them to live their lives as independently as possible; to participate in their local communities and be valued for the extraordinary contribution they make to our society. We run a varied and exciting day services programme from our three sites in Christchurch, Ringwood and Southbourne, and run supported living and residential living services in Southbourne and Ringwood.

We are looking for a modern people leader who will bring fresh thinking and inspire trust across the organisation; a forward -thinking person who will model the standards of behaviour expected from employees and effectively challenge any employee behaviour that falls below these standards. You will be a confident communicator and decision-maker with the ability to respond quickly and effectively to employee issues.

You will be part of the Senior Leadership Team and will have significant involvement in the development of the Trust across all areas, including future workforce development and organisational transformation.

Working closely with the Chief Executive you will be the trusted deputy in their absence, making key decisions relating to all aspects of the organisation’s operations and providing a consistent leadership approach that reflects our organisational values.

To be shortlisted for this role we require an application form to be completed and submitted.

To apply for the role, please click the button to be redirected to our website.

Harris Hill is delighted to be working with Safer Places to recruit its new Chief Executive Officer.

Safer Places is a specialist support service for individuals at risk of, fleeing from, or recovering from domestic abuse, sexual violence, and stalking. We provide a wide range of trauma-informed services to adults, children, and young people across Hertfordshire and Essex, with safe accommodation available to those in need from across the UK.

As Chief Executive, you will:

• Lead Safer Places into its next chapter. This includes enhancing the charity’s service delivery, forging new partnerships, and expanding its role as a Registered Social Landlord to better meet the evolving needs of our communities.
• Embed Safer Places’s vision across the organisation – ensuring it is understood, embraced, and translated into action at every level.
• Have an entrepreneurial mindset to leverage opportunities for the charity to grow. 
• Continue to ensure that Safer Places is recognised for the quality of its services, its commitment to inclusivity, and its highly trained, compassionate staff.

If you are inspired and excited by what Safer Places does, we’d love to hear from you.

Job title: Chief Executive Officer

Salary: £85,000 - £90,000 p.a.

Location: Hertfordshire/Essex – most working hours will be spent collaborating with colleagues and partners at our offices and service sites, with flexibility for some remote work.

Employment term: Permanent / full time.

How to apply:

Please review the recruitment pack for further information about Safer Places, the CEO position and for details on how to apply.

Closing date for applications: 9am, Friday 5th December 2025

Both Safer Places and Harris Hill operate an equal opportunity policy and commit to treating all of our candidates and jobseekers fairly. We welcome and encourage applications from everyone regardless of age, disability, sex, gender reassignment, sexual orientation, pregnancy and maternity, race, religion or belief and marriage and civil partnerships.

Anaphylaxis UK is seeking our next Chief Executive Officer. This is an opportunity to lead the UK’s only charity dedicated solely to people at risk of anaphylaxis, taking forward its mission at an exciting moment of development and growth.

About Us

Anaphylaxis UK is the UK’s leading charity supporting individuals, families and carers living with serious allergies and anaphylaxis. For over 30 years we have provided evidence-based information, training and advocacy to improve safety, inclusion and quality of life for people at risk of severe allergic reactions. Our services include a dedicated helpline, the AllergyWise® training portfolio (including the Safer Schools Programme), accredited factsheets, an expanding digital offer and partnerships with healthcare, research and industry partners. We champion research, influence policy and work directly with schools, businesses and healthcare settings to reduce risk and anxiety for people with allergies.

The Role

As Chief Executive Officer you will be the senior officer responsible for the strategic leadership, operational management, financial stewardship and external representation of Anaphylaxis UK. You will lead delivery of the charity’s strategic ambitions, grow and diversify income, and work collaboratively with a committed small staff team and an active Board of Trustees.

Key responsibilities

• Lead strategy delivery, balancing service quality and financial sustainability.

• Oversee governance, reporting, budgeting, risk and regulatory compliance.

• Grow and diversify income to strengthen financial resilience.

• Provide ethical leadership, manage senior staff and build an inclusive culture.

• Develop strategic partnerships and act as public representative.

• Deliver high-quality services and drive digital innovation.

Key details

• Job title: Chief Executive Officer

• Salary: £70,000–£75,000 per annum

• Contract: Permanent, full-time (35 hours per week)

• Location: Hybrid - home based with regular in-person staff and Board meetings (including an average of one weekly meeting with third-party agents in central London); travel across the UK as required.

• Hours / working pattern: Hybrid working with regular face-to-face commitments and attendance at relevant UK conferences.

As our next CEO, you will demonstrate:

Essential

• Minimum five years’ executive (CEO-level or equivalent) leadership with proven strategic and change delivery.

• Strong business development track record, including diversifying income (fundraising, commercial, grants/partnerships).

• Solid financial competence: budgeting, control, reporting and financial stewardship.

• Experience working with boards, good corporate governance and risk management.

• Proven ability to deliver and improve high-quality services.

• Excellent stakeholder engagement and influencing across government, health, research and industry.

• Collaborative, emotionally intelligent leader who builds trust with staff, trustees and partners.

• Willingness to travel sustainably as required.

Desirable

• Knowledge of allergy, health or education sectors, or experience in health-related charities.

• Experience developing digital services and improving accessibility of information.

• Experience with corporate partnerships, schools or training delivery.

• Degree or relevant professional qualification.

Please download the appointment brief for full details, including how to apply,

If you would like an informal conversation about this position, please contact in confidence our consultant, Jenny Hills, at Harris Hill via the apply button with suitable times to speak, and optional but appreciated, a CV or professional profile.

Closing date for applications: 9am, Monday 8th December

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Are you an inspiring leader with a passion for improving the lives of women and families in the perinatal period?

Are you ready to lead the next phase of growth and development of our established Perinatal Mental Health Support charity as Chief Executive?

About Light Peer Support

Light is a perinatal mental health support charity, set up in 2010, which has grown to support parents and their families across South Yorkshire through the provision of peer support and counselling. We’re led by our passion to support mental health during pregnancy and beyond for all families from all communities.  

From our hub in Sheffield as well as in Family Hubs across Sheffield, Rotherham, Doncaster and Barnsley, we work with families who are experiencing emotional and mental health difficulties in the perinatal period, working in partnership across the statutory and voluntary sector to raise awareness of perinatal mental health difficulties and the support available.

We’re committed to providing services that embrace diversity to support equity in service access and promote equality of opportunity. 

The role

Following the planned retirement of our current Chief Executive, we are seeking an exceptional leader to guide our grassroots charity through its next phase of growth and development. As our new Chief Executive, you will work closely with the Board of Trustees to build on a strong foundation of trusted services and demonstrable outcomes. You will provide inspiring strategic, financial, and operational leadership to ensure our services remain sustainable, evidence-based, trauma-informed, and responsive to the needs of parents and families from all communities.

We’re looking for a compassionate, visionary leader with proven senior-level experience who can balance day-to-day operational oversight with stakeholder engagement and longer-term strategic thinking.

This is a pivotal moment for our organisation. You will lead us into an exciting new chapter — strengthening partnerships, creating new collaborations, expanding our reach, diversifying income, and driving innovation in how we support families. As our lead ambassador, you’ll champion lived experience and the value of co-production, raise awareness of perinatal mental health challenges, and influence change locally and nationally to improve the experiences of families at a crucial time in their lives.

We looking to you to bring the following skills and experience:

Senior operational and strategic leadership with at least 3 years’ experience, including successful delivery of public or private sector contracts.

Service growth and development experience, including leading organisational expansion and managing performance, contracts, tenders, and funding or grant applications.

Financial and governance expertise, including budget management, financial oversight, reporting to governing boards, and strong knowledge of governance, compliance, safeguarding, and GDPR.

People leadership, with a track record of managing staff, building high-performing teams, and increasing volunteer involvement.

Stakeholder engagement and networking skills to advance awareness and investment in our mission.

Sector knowledge, including understanding of maternity, mental health and children’s services, and the challenges faced by women and families in the perinatal period, along with the value of timely intervention.

Equality at Light

We believe that every parent deserves understanding, compassion, and the right support at the right time and in the right place.

We’re proud to be a welcoming, inclusive charity, and we want our team to reflect the diverse communities we serve. We encourage applications from people of all backgrounds and life experiences, especially those with lived experience of perinatal mental health challenges. We're aiming for a workforce that is truly representative of the communities we serve.

We're a family friendly employer and open to discussion on flexible working subject to service needs.

If you’re an inspiring leader who shares our passion for supporting parents and families — and you’re ready to build on a proud 15-year legacy and shape the future of perinatal mental health support — we’d love to hear from you.

Please note full-time working is 35 hours/week

Closing date 23:59 Monday 1st December 2025

We are looking for a person who can lead LWPT through ongoing development of the organisation in coordination with both staff and trustees. The person needs to be able to maintain a clear strategic plan for the organisation that allows the organisation to stay focussed on what we plan to do to the benefit of both beneficiaries and supporters. The right person is able to maintain a healthy focus on income and expenditure in order to ensure that LWPT can meet the needs of all stakeholders.

Essential for the right applicant:
• A Christian with a good knowledge of the Christian communities in the UK.
• Someone who is an active member of a local church.
• Is able to affirm the historic creeds of the Christian church.
• A personal commitment to the development of the next generation of Christian Bible teachers in the UK.
• The ability to work from home with good wifi access.
• Ability to travel to the main office in Watford twice a month.

£60k pa FTE. This is a 0.8FTE role

Brunelcare is a highly regarded Bristol-based charity and housing association, with a proud 80-year history of supporting people to live well in later life. We employ over 1,100 dedicated colleagues and directly support more than 3,000 people with a wider impact on over 10,000 lives across the South West. Known for our compassionate, person-centred care and our commitment to social purpose, we provide award-winning services across care homes, extra care housing, sheltered housing, reablement, and community support. We are a values-led organisation, increasingly shaped by the voices of our customers and colleagues, and united by a shared belief in dignity, kindness and inclusion.

We are now seeking to appoint a new Chief Executive, following Oona Goldsworthy’s decision to step down after six years of transformative leadership. As our new Chief Executive, you will lead a talented Executive Team to deliver our ambitious 2030 strategy, inspiring our people, and ensuring that our values and behaviours are felt in every interaction. You will be a visible and motivating presence across the organisation, building trusted relationships and championing our culture. Key responsibilities include:

• Leading the development and delivery of Brunelcare’s long-term strategy in partnership with the Board.
• Embedding our listening culture, ensuring that customers are actively involved in shaping and improving services and their feedback informs our strategic decisions.
• Developing strong relationships with commissioners, regulators and sector partners to enhance Brunelcare’s opportunities for impact.
• Communicating effectively with internal and external stakeholders, acting as a spokesperson and advocate.
• Supporting the Board through agenda planning, strategic insight, and timely information sharing.
• Promoting our strong commitment to diversity, equality and inclusion, to ensure we meet the diverse needs of our customers and that our workforce is inclusive, representative, and supported to thrive.
• Advocating for older people and the importance of care, housing and support services

We are seeking a strategic and emotionally intelligent leader with experience in housing, care, health or a related sector. You will bring warmth, energy and credibility, with a collaborative style and a deep commitment to social purpose. You will be a natural communicator, able to build trust and motivate others, and you will understand the importance of culture, relationships and values in delivering impact.

In return, we offer you the opportunity to lead a trusted and highly regarded charity with a clear strategy, a strong team, and the chance to make a lasting difference to thousands of lives.

Brunelcare is committed to creating a diverse and inclusive environment. We welcome applications from all backgrounds and communities, and we are proud to be an organisation where everyone can thrive.

Susan’s Farm is an energetic organisation delivering a broad range of activities. Our charitable purpose is to transform people’s lives through learning and therapeutic experiences on an organic working livestock farm. After six years as a charity, and following a recent governance and staffing review, we are now seeking to appoint a dedicated managing director to oversee all aspects of the charity’s work. The Managing Director will join a small but committed staff team and report to enthusiastic board of trustees.

Susan’s Farm is based in Houghton, a small village 3 miles from Carlisle and delivers its educational activities on site as well as on the other half of our farm near Armathwaite and for a neighbouring farmer at Aglionby. We have a small learning centre at Houghton and also work closely with Cumbria Wildlife Trust whose Northern office is on land adjacent to our farm.

We have three main strands of delivery; primary school visits, alternative provision placements and care farmer placements and are certified by Social Farms & Gardens. We are a beef and sheep Organic and Pasture for Life certified Farm. We also have hens and geese and some horticultural activity. Our farm produce is sold direct to the customer.

Susan’s Farm is a registered charity converting from a CIC in 2019.   Before that our founder, Susan Aglionby ran educational activities on the farm over a period of more than 20 years. Over the last six years considerable effort has been devoted to professionalising the organisation and our delivery work and we are no ready for the next stage.

ROLE FOCUS: 

To support, manage and provide dynamic leadership to Susan’s Farm and its staff and services. Working with the Board of Trustees to ensure that Susan’s Farm meets its requirements, as a charity in delivering services, and to maintain its reputation as a national and local leader in working to provide services to its beneficiaries through the experience of a farm. To further develop the organisation and the services it offers promoting the charity’s principles. 

Closing Date 3rd December 2025. Interviews in the week commencing 15th December.

Application forms are available on our website.

For a conversation about the role or to arrange a visit please contact our office.

Role: Chief Executive

Hours: 35 Hours Per Week, Monday to Friday, 9am to 5pm

Salary:          £59,750 - £67,500 per year

Contract:        Permanent

Location:        Foundation House, Salford, and Hybrid Working

Closing Date: 30th November 2025 5pm

1st stage Interviews: 2nd or 3rd December 2025 

2nd stage interviews: Week commencing 8th December 2025

Opportunity

Are you passionate about Tackling Disadvantage and Changing Lives of people in Greater Manchester?

Do you have experience of developing high quality targeted and universal services for children, young people and adults?

About Us

We are a charity based in Salford, tackling disadvantage and changing lives.  We help over 12,000 children, young people and adult each year from the most deprived communities. Our vision is “Communities free of disadvantage, in which everyone has the opportunities and resources to change their lives and reach their full potential.”   

The Role

Salford Foundation is seeking a new Chief Executive to advance the charity’s strategic objectives and to implement our new 5 year strategy.   You will provide operational leadership on service development, future growth and direction of the charity. 

Key Tasks Include:

· Leading on strategic planning and implementation of the annual business plan

· Relationship management with funders and commissioners and partnership development public, private and VCSE

· Oversight of quality services for beneficiaries and performance management of contracts

· Creating sustainable income streams, oversight of funding strategy and creating bids and proposals

· Oversight of organisational effectiveness across Operations, Business & Finance

· Championing organisational values, culture, reputation and brand

About You

 You will have significant experience of effective stakeholder engagement at local and regional level.  With excellent interpersonal and communication skills, and ability to work collaboratively with Board Members, Commissioners, Funders Partners, and Senior Managers.  Please refer to the Job Pack available on our website for further information.

 What we offer:

· Work-based pension with 6% employer contributions

· 26 days annual leave plus 8 Bank Holidays

· Additional 1 day off for your birthday each year

· Flexi-time and flexible working

· Essential car user post with travel paid at 45p per mile

· Onsite free car parking

· Employee Assistance Programme and Medicash scheme

Application Process:

Please refer to our website for the full candidate job pack and Application Form

Registered Charity in England & Wales, Registered Charity Number 1002482

Love Squared exists because so many children are brave. Children who, despite overwhelming anxiety, still find the courage to support their friends, join therapeutic groups or offer kindness to others.

Location: Remote, with regular travel to London and the South West

Applications close at  9 a.m. Monday 24th November.

Bringing love, imagination and kindness to children and families’ services.

Love Squared exists because so many children are brave. Children who, despite overwhelming anxiety, still find the courage to support their friends, join therapeutic groups or offer kindness to others. We work with some of society’s most vulnerable children and young people, including those facing mental health challenges, trauma, special educational needs, disability and neurodivergence. Many cannot access school because there is no suitable place for their needs, or because school is not safe for them. Their families fight every day to get the help their children need, often while facing housing insecurity, exhaustion and systems that can feel indifferent or overwhelming.

At Love Squared, we believe that you have to care deeply if you want to transform outcomes. We bring love, imagination, nurture and bravery to everything we do, creating long-term change for children and families who need understanding most.

About the role

We are seeking an exceptional Chief Executive to lead Love Squared through its next stage of growth and development.

This is a role for someone who can lead with heart, head and hands, combining compassion with commercial acumen and creativity with operational rigour.

You will:

• Lead with courage, curiosity and care, empowering staff, volunteers and partners to deliver excellence.
• Shape and deliver a bold, forward-looking strategy that strengthens impact and secures financial sustainability.
• Be a visible and credible ambassador for Love Squared, helping to build our national profile and champion our values.
• Ensure safeguarding, governance and accountability remain at the heart of all we do.
• Build strong partnerships with funders, commissioners and collaborators across the statutory and voluntary sectors.

About you

You will bring:

• Proven senior leadership experience in a values-driven organisation, ideally within charity, education or social care.
• Strong strategic, operational and financial skills, with the ability to lead through change and growth.
• A collaborative leadership style that inspires trust and brings out the best in others.
• A genuine commitment to inclusion, safeguarding and trauma-informed practice.
• Imagination to see opportunities where others see obstacles and resilience to lead with warmth through uncertainty.

Above all, you will share our belief that love is not a soft word. It is a radical act that can transform the way children and families experience care, learning and hope.

Please click 'Redirect to recruiter’ to be redirected to the Peridot Partners website, where you can find full details of the job description and register your interest to apply.

Applications for this role close at 9 a.m. Monday 24th November.

Chief Executive Officer
£110,000 - £125,000 per annum + benefits
Hybrid / London

Prospectus is proud to be partnering with a leading UK music therapy charity. For over 60 years, the organisation has worked to ensure that music is accessible to all, not just as a creative outlet, but as a powerful tool for connection, communication and care. Its unique, evidence-based practice supports people facing some of life’s most complex challenges, from neurological conditions and developmental delays to mental health difficulties and life-limiting illnesses.

At the heart of the charity’s work is a clear mission: to use music to break down barriers and challenge injustice. With a bold new strategy and a clear national ambition, the organisation is calling for music therapy to be recognised, integrated and accessible as part of the UK’s health and care system.

The charity is now seeking a new Chief Executive Officer to lead the next phase of this journey. This is a significant leadership opportunity for an experienced, purpose-driven executive who can inspire teams, influence national conversations and ensure long-term impact and sustainability.

As CEO, you will be responsible for leading the organisation with clarity, compassion and strategic focus. You will work closely with the Board and Senior Leadership Team to ensure that the charity remains financially resilient, operationally effective and deeply aligned to its values. You will act as a key ambassador for the organisation, building strategic partnerships, engaging with government and funders, and championing the transformative power of music across a wide range of sectors. Internally, you will lead on organisational culture, team wellbeing and inclusive practice, ensuring the charity remains a values-led and mission-driven employer of choice.

We are looking for a leader who brings:

• Significant senior leadership experience, ideally at CEO or Executive Director level, within a complex, purpose-driven organisation

• A strong track record in strategic planning, income growth and organisational transformation

• Excellent communication and influencing skills, with experience representing an organisation at a national level

• Experience working with a Board of Trustees to ensure strong governance and long-term sustainability

• A deep personal commitment to equity, diversity, inclusion, wellbeing and social impact

While direct experience of music therapy is not essential, candidates must demonstrate a strong alignment with the mission and values of the organisation. You will understand the importance of creative expression, human connection and inclusive access to care, and bring the leadership skills to make these values a reality across the UK.

Please see the dedicated microsite located in the job advert on the Prospectus website for a more detailed outline of the role, along with additional information about the organisation and community.

How to Apply
Please apply by submitting an up-to-date CV and a supporting statement addressing the role requirements via the Prospectus website.

At Prospectus, we are committed to supporting all candidates through the recruitment process. The charity is a Disability Confident Employer and as such we are applying a Disability Confident approach. You will have the opportunity to provide further information regarding your disability or any reasonable adjustments you may require. We welcome candidates from all backgrounds and are particularly keen to hear from those with lived experience of the communities the charity serves.

Timeline
Application deadline: 19th November 2025
1st Interviews with Prospectus: w/c 24th November 2025
2nd interviews with the charity: w/c 1st December and w/c 8th December

CamRARE is celebrating a decade of progress and impact and is seeking a dynamic Managing Director to lead our next chapter of growth. 

As our Managing Director and founding member prepares for her planned retirement, Cambridge Rare Disease Network (CamRARE) is seeking a dynamic and visionary new leader to guide the charity into its next decade. You will drive strategic growth, strengthen partnerships, ensure long-term sustainability, and champion innovation, research, and community impact for people affected by rare and undiagnosed conditions. 

You will inspire and empower a passionate and talented team of staff, trustees, volunteers, families and partners, while building strong connections across our networks to expand our reach, visibility, and influence. As an energetic and forward-thinking leader, you will bring the drive and expertise to strengthen partnerships, grow income through innovative fundraising and strategic collaborations, and champion CamRARE as a trusted voice within the rare community and beyond.

Why choose a career at Cambridge Rare Disease Network?

#purpose – We’re on a mission to make life with a rare condition easier through community, collaboration and connections. Your role is to lead this mission to directly contribute to a better future for those living with rare conditions.

#growth – We’re a small, ambitious team where you’ll have opportunities to shape and grow with us. You will use your experience and knowledge to make a measurable impact.

#diversity and inclusion– We value the diversity and unique insights each person brings. We actively welcome applications from candidates of all backgrounds and lived experiences.

About Cambridge Rare Disease Network

There are over 10,000 rare conditions that affect 400 million people globally. Receiving a diagnosis can take years. Most rare diseases have no treatment. Coordination of care is often poor.

We’re on a mission to make life easier for those affected—uniting individuals, families, patient groups, researchers, industry, clinicians and policymakers to accelerate solutions and improve lives. Through knowledge-sharing, collaboration, and creativity, we aim to make the journey smoother for people living with rare and undiagnosed conditions and their families.

• CamRARE connects patients, advocates, research experts, and leaders—catalysing action to drive solutions and create lasting change
• Connects knowledge with lived experience to transform the journey toward better diagnosis, treatment, and support for individuals and their families
• Connects, educates, and supports the rare disease community - locally and globally - to improve outcomes and transform lives

Leading CamRARE

As Managing Director, you will provide strategic leadership for the charity, oversee governance and operations, develop and execute the strategy set by the Board of Trustees, and build key external partnerships. This role leads fundraising efforts and develops high-level external stakeholder relationships with Government bodies, including healthcare organisations/departments, Industry, patient and charity organisations, and Research Institutions involved in rare disease. This is a key role to build, strengthen and nurture the charity's connection with the rare disease community, empowering them and fostering an inclusive and supportive network.

We’re looking for someone who:

• Has a deep commitment to improving the lives of individuals and their families living with rare conditions.
• Has proven experience of 10+ years in a senior leadership role with a track record of delivering impact.
• Has experience in strategic planning, organisational development, and leading change.
• Brings creativity, adaptability and a “can-do” attitude.
• Has experience in income generation and managing stakeholder relationships.Has strong team management skills with a focus on development and building an inclusive workplace culture.
• Has experience in financial management and resource allocation.
• Has excellent interpersonal and communication skills, with the ability to influence and inspire.
• Has sound knowledge of issues affecting the voluntary sector
• Enjoys working independently, hands-on as part of a team and effectively with remote teams
• Experience in and enjoys networking and partnership building, can communicate effectively with a broad range of people
• Experienced in business delivery aligned to financial targets, core objectives and strategy implementation
• Has experience leading events and campaigns