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Position title: Health and Wellbeing Lead
Reports to: Head of Shed Development and Sustainability
Direct reports: None currently
Location: Remote (with regular travel)
Key stakeholders: UKMSA Volunteers, Sheds and Shedders, Head of Shed Development and Sustainability and team, Head of Volunteering
Salary: Level 3 – £30,000-£35,000
As Health and Wellbeing Lead, the purpose of your role will be to work with volunteers and colleagues to support Sheds and Shed Networks to improve men’s health and wellbeing across the UK. This work is within the context of informal, peer-led, self-determined spaces, where the emphasis is on activity not health prevention, which suits many men and works well for them.
This role involves engaging directly with Sheds and Shed Networks, supporting them to foster partnerships with local health and social care organisations, as well as supporting local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.
You will work with volunteers, colleagues and external experts to gather and share accurate, accessible and relevant resources, information and case studies related to men’s health and wellbeing with Sheds and Shed Networks. This will include developing and engaging with digital health tools, information and training, as well as taking an empowering and capacity building ‘train the trainer’ approach to the design and delivery of all training and workshops related to men’s health and wellbeing.
You will work closely with the Head of Volunteering to support volunteers to promote the role of Men’s Sheds in preventative and community-based health locally and will work with colleagues to support volunteers to actively contribute to promoting the role of Men’s Sheds in preventative and community-based health at a national level.
You’ll be the main contact for volunteers, Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing.
Key responsibilities:
1. Sheds and Shed Networks
· Be the main point of contact for all Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing – ensuring you are approachable, responsive and consistent.
· Empower volunteers and colleagues to support Sheds and Shed Networks to foster partnerships with local health and social care organisations.
· Empower volunteers, colleagues and the wider Shed community to support local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.
2. Information and resources
· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to continuously gather, develop and update relevant resources, information and case studies related to men’s health and wellbeing. Regularly share clear and accessible information and resources with Sheds and Shed Networks.
· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to build knowledge and understanding of relevant organisations and services related to men’s health and wellbeing. Regularly share clear and accessible information about organisations and services with Sheds and Shed Networks.
· Work with Sheds and volunteers to gather case studies and develop resources highlighting Sheds that demonstrate innovation and best practice in the field of health and wellbeing.
3. Training and workshops
· Work with volunteers, colleagues and external partners to develop an empowering train the trainer model to enable Shed Leaders and Shedders to plan, deliver and evaluate training and workshops related to men’s health and wellbeing.
· Work with volunteers, colleagues and external partners to co-design and deliver training and workshops related to men’s health and wellbeing at UKMSA events.
· Support peer-to-peer learning amongst Sheds and Shed Networks through regional events, online forums, and learning networks.
4. Digital health and wellbeing
· Work with volunteers and colleagues to test and empower Sheds and Shed Networks to use digital platforms for hybrid training, remote participation, or digital inclusion efforts.
- Work with volunteers and colleagues to utilise and adapt data tools (e.g. CRM, health analytics and dashboards) for monitoring health and wellbeing related outcomes and for reporting impact.
5. Monitoring and Reporting
· Work with volunteers, Sheds and Shed Networks to collect and report data in relation to men’s health and wellbeing to demonstrate the role and impact of Men’s Sheds in preventative and community-based health.
· Work with volunteers, colleagues, Sheds and Shed Networks to contribute to relevant evaluation and research projects relating to Sheds and men’s health and wellbeing.
6. Stakeholder Engagement
- Work with volunteers to build relationships with local and regional health, community, and voluntary sector organisations.
- Represent UKMSA at relevant networks, events, and conferences.
- Contribute to the planning and delivery of the annual Shedfest and other key events, coordinating and supporting volunteer involvement in relation to men’s health and wellbeing.
- Work with colleagues, including the CEO, to build effective working partnerships across the UK men’s health sector
Key expertise required:
- Knowledge, skills and experience in men’s health and wellbeing.
- Some knowledge of how to effectively improve men’s health and wellbeing in the Shedding context, and a willingness and interest in working with volunteers to develop and share expertise in this area.
- An understanding of the importance of taking an empowering train the trainer approach to planning, delivering and evaluating training and workshops related to men’s health and wellbeing.
- Ability to build relationships with local and regional health, community, and voluntary sector organisations, and to support others to do so.
- Skilled at actively collaborating with volunteers and subject matter experts.
- Confident communicator - able to build rapport, deliver training, and manage sensitive conversations.
· Strong relationship builder - able to connect with people, build trust and maintain long term engagement.
· Willing, able and confident to travel to meet volunteers and attend Shed events regularly.
· Confident working with data and systems - including CRM tools and digital tools.
· Proactive and creative - always looking for ways to improve how things are done.
· Self-motivated and able to manage your own workload without needing close supervision.
· An understanding of the nuances and limitations of how Sheds can support health and wellbeing
What success looks like:
- Strong, collaborative relationships established between Sheds, Shed Networks and local health and community partners.
- Demonstrable improvements in the health and wellbeing of Shedders through supported activities and case studies.
- Volunteers, Sheds and Shed Networks feel empowered and equipped to deliver activities that support mental and physical health.
- Health and care organisations view Men’s Sheds as trusted, valuable partners in preventative health and social prescribing pathways.
- Resources, training, and support materials are well-received, practical, and widely adopted in Sheds and across Shed Networks.
- Clear and impactful reporting informs and supports UKMSA’s work at a national level.
This job is not:
- An expert, clinical or therapeutic health role—you will not be expected to deliver personal care, therapy, or counselling.
- Solely office-based or desk-bound—this is a varied, outreach-focused role that involves relationship-building, travel, and hands-on support.
- Focused only on one region—this is a national role, requiring awareness of regional variations across the UK.
- A short-term fixer—you’ll be building capacity and confidence in communities for long-term sustainability, not quick fixes or prescriptive solutions.
This job description is intended to outline the general responsibilities and expectations of the role. It may be reviewed and updated as the organisation evolves, and from time to time you may be asked to take on other reasonable tasks that fall outside this scope - we’re a small team, and flexibility is part of how we work.
Closing date: 9th October 1200 hrs
Interview: 17th October
We are the support body for Men’s Sheds across the UK. We work hard to inspire and support the development of Men's Sheds.





The client requests no contact from agencies or media sales.
Charity Support Officer
Location: Remote, with regular meetings in London, applicants must be based in or around London
Salary: £27,700 - £29,000 per year
Contract: Full-time with opportunities to work flexibly over 4 days
Reporting to: CEO
About AWN
All Ways Network (AWN) is a UK-registered charity dedicated to empowering non-profits that support diverse Muslim communities across the UK, particularly those with an annual income under £1 million towards becoming fundable.
We provide grassroots organisations with vital services from bid-writing and application reviews to webinars, training, and tailored charity support. This helps them access funding, strengthen governance, build capacity, and adopt best practices in a challenging funding landscape.
Committed to equitable grant-making and a stronger civil society, AWN champions the vision of: “Thriving non-profits empowering Muslim communities to enrich UK society.”
Role Overview: Knowledge in grant-funding, capacity building, organisational support
We are seeking a proactive and collaborative Charity Support Officer to help deliver AWN’s mission. You will be the first point of contact for grassroots charities, supporting them to strengthen their organisations and improve their chances of securing grant funding by offering practical guidance, signposting, and building trusted relationships that help them grow in confidence and resilience. The role includes helping organisations strengthen governance and compliance, sharing information on grant-funding opportunities, and supporting them to identify challenges and develop practical solutions.
The non-profits you will support work across a wide range of areas for example: women, health and wellbeing, youth, homelessness and poverty, family services, sports, faith groups, crime and gangs, prisoners and ex-offenders, refugees and asylum seekers, drug addiction, older people and rehabilitation, and many more.
Bringing a strong awareness of the barriers facing small charities particularly Muslim-led groups, will be key to helping them build long-term sustainability and impact.
Key Responsibilities:
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Act as the first point of contact for charities and community groups, managing a varied caseload and balancing priorities.
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Carry out needs assessments to understand organisations strengths, challenges, and funding needs, and develop clear action plans.
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Provide tailored support, including health checks on governance, compliance, finances, and funding readiness, offering recommendations and signposting to specialist services (e.g., Cranfield Trust, CVS, Charity Excellence etc).
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Advise on funding opportunities, strategy, and application readiness, with referrals to bid-writing support where needed.
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Deliver workshops, webinars, events, and one-to-one sessions to build skills, knowledge, and confidence of UK grassroots organisations.
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Work collaboratively with organisations and AWN colleagues (including via the triage and referral system) to identify challenges and develop practical, sustainable solutions.
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Build and maintain strong relationships with charities, funders, and sector partners across the voluntary, public, and charity sectors.
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Represent AWN at external events, conferences, and meetings, helping to organise and deliver events linked to your work.
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Keep accurate records on the CRM, gather feedback, write case studies, and contribute to monitoring, evaluation, and service development.
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Support AWN’s communications by contributing updates for the website and social media.
What We’re Looking For
We’re looking for someone who is approachable, empathetic, and motivated to make a difference. You’ll have a natural ability to listen, build trust, and meet people where they are, while offering constructive and practical support. Patience, curiosity, and cultural awareness will help you understand the diverse realities of grassroots charities and the communities they serve.
Alongside these personal qualities, you’ll bring a good understanding of the charity sector and the challenges facing small non-profits across the UK, for UK Muslim-led organisations. You’ll have exceptional knowledge of governance, compliance, and funding pathways, and the confidence to guide organisations towards growth, resilience, and long-term impact.
Essential Criteria
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3+ years’ experience within the UK charity sector (domestic, not solely international).
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Strong understanding of charity governance, compliance, and the UK funding and grant-making landscape.
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Insight into the needs and challenges of small and grassroots non-profits, with awareness of the systemic barriers affecting Muslim-led organisations.
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Experience supporting or advising charities, community groups, or local networks to build capacity and resilience.
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Ability to work collaboratively with organisations, offering constructive and practical guidance.
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Excellent communication and interpersonal skills with confidence in public speaking and engaging a wide range of stakeholders.
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Strong organisational and administrative skills with attention to detail and the ability to manage multiple priorities.
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Demonstrated ability to work independently, take initiative, and adapt in a fast-paced environment.
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Comfortable working autonomously and as part of a small team, with minimal supervision.
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Confident using technology to deliver support and manage work effectively, including CRM systems, Microsoft Teams, and other digital tools.
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Experience in one or more of the following areas:
- Community engagement and outreach
- Event or project coordination (online and in-person)
- Delivering presentations, workshops, or training sessions
- Monitoring, evaluation, and learning activities
Recruitment Process
Interviews will take place early October 2025.
The process will include two stages: one online and one in-person (to be held in the City of London).
Exact dates will be confirmed before the application deadline.
The client requests no contact from agencies or media sales.
Key Responsibilities:
Corporate Partnerships & Relationship Management:
- Build, manage, and steward relationships with corporate supporters, focusing on the healthcare, legal, insurance, and life sciences sectors.
- Develop and implement AvMA’s corporate partnerships offer, including sponsorship packages and bespoke opportunities.
- Identify and research new corporate prospects, working with colleagues to make approaches and secure partnerships.
- Lead the ongoing development of AvMA’s corporate fundraising strategy and toolkit, ensuring they reflect best practice and meet organisational needs.
Workplace Giving & Employee Engagement:
- Support and promote employee fundraising initiatives, matched giving, payroll giving, and workplace events.
- Provide companies and staff teams with engaging fundraising materials, advice, and digital resources.
- Develop case studies and impact content to showcase corporate and employee fundraising.
Digital Fundraising & Content Development:
- Create and maintain engaging digital content for the corporate fundraising section of AvMA’s new website.
- Use online platforms and digital channels to promote corporate giving opportunities and events.
- Work with our communications team to integrate corporate messaging into wider campaigns.
Data & Reporting
- Maintain accurate records of all corporate activity and income using Microsoft Dynamics CRM.
- Monitor, analyse, and report on performance against targets.
- Use data insights to improve supporter journeys and maximise income
General
- Attend in-person meetings and events as required (travel expenses covered).
- Contribute to AvMA’s wider fundraising strategy and cross-team projects.
- Undertake other reasonable duties as required.
The client requests no contact from agencies or media sales.
Position title: Communications Manager
Reports to: Director of Operations
Direct reports: None currently
Key stakeholders: UKMSA staff, members and volunteers, Board of Trustees, Sheds and Shedders, the public
Location: Remote (with occasional UK travel)
Salary: Level 4 – £35,000-£45,000
The Communications Manager plays a vital role in shaping how UK Men’s Sheds Association (UKMSA) communicates, both internally and externally, and with the community at its heart. Operating with a high degree of autonomy and professional expertise, the postholder leads the development and delivery of communication strategies that connect, inform, and inspire.
This is not just a messaging role. Rather, it’s about building trust, clarity, and connection across UKMSA communities. Internally, the Communications Manager helps staff feel informed, included, and united across a remote-working environment. The post holder will coordinate internal communications, shape the tone and culture of how information flows, and ensure the brand is consistently and professionally represented.
With volunteers, especially UKMSA’s Ambassadors, the Communications Manager plays a key part in ensuring people feel heard, valued, and kept in the loop, especially during moments of change or challenge. They will work closely with the Head of Volunteering and the wider team to keep the voices and experiences of Shedders, Sheds and Shed Networks at the centre of UKMSA’s communications.
Externally, the postholder curates and amplifies the stories, impact, and energy of the Shedding movement. They manage the website and social media channels, support the CEO and Chair in their digital visibility, and respond to external enquiries with professionalism and purpose.
This is a mission-driven role that sits at the heart of how UKMSA connects with the world. It requires emotional intelligence, editorial judgement, and a deep appreciation for the unique volunteer-led spirit of the movement. The postholder will be confident working across staff, volunteers, trustees, and media, joining the dots, finding the story, and ensuring communications always reflect UKMSA’s values and community.
Key responsibilities:
1. Internal communications
· Develop and deliver internal communication approaches that ensure staff across a remote-working environment are kept informed, connected, and engaged.
· Coordinate and facilitate regular team meetings, updates, and communications, including all-staff briefings, newsletters, and shared messaging.
· Work with the CEO and senior team to plan in-person staff meetings, designing the content, format and approach so the sessions align with staff and organisational requirements.
· Design and implement mechanisms that foster internal cohesion and trust, drawing on ideas and good practice for remote working teams.
· Work closely with the senior team to ensure that important updates - strategic, operational, or cultural - are communicated in a timely, consistent, and accessible way.
· Uphold and promote a consistent tone of voice across all internal messaging, ensuring that staff understand and reflect UKMSA’s values and identity in how they communicate.
· Working with the Operations Officer, support the creation and internal rollout of branded materials and ensure consistency in logo use, templates, formatting, and professional standards across the organisation.
2. Community and organisational communications
· Act as a key link between staff, trustees, volunteers (particularly Ambassadors), and other internal stakeholders to ensure information is shared clearly, consistently, and inclusively.
· Collaborate with the Head of Volunteering to ensure that UKMSA’s volunteers are kept informed and involved, particularly during organisational updates, change, or key moments.
· Help embed a culture of openness and two-way communication, ensuring volunteers and trustees feel heard, recognised, and informed, and that their contributions are visible and valued.
· Coordinate messaging across staff and teams so that different groups across UKMSA receive the right information, in the right way, at the right time.
· Support senior leaders in maintaining effective communication with the Board of Trustees, including updates, briefings, and key documents.
3. External communications
· Manage and maintain the UKMSA website and social media channels, working with our external web designer to ensure content is accurate, up to date, and aligned with the organisation’s values and tone.
· Source, shape, and share stories from Shedders, volunteers, and communities to celebrate and amplify the impact of the Shedding movement.
· Lead on the production of UKMSA’s regular newsletter Shoulder2Shoulder, Review and develop the newsletter on a regular basis, in collaboration with staff and volunteers.
· Collaborate with staff and volunteers to collect and develop case studies and lived experience content and ensure these are shared meaningfully and respectfully.
· Support the Membership Manager and Director of Income and Investments to ensure any promotional activity for external partners is aligned with UKMSA’s communications strategy, delivers clear value, and is proportionate.
· Support Director of Income and Investments to shape and deliver marketing campaigns and communications aimed at generating income and supporter engagement
· Support the CEO and Chair in their digital communications - drafting content, advising on tone and timing, and increasing the visibility of their leadership voices, in the service of UKMSA.
· Respond to media and external communications queries, draft press releases where appropriate, and act as the first point of contact for general communications enquiries.
· Monitor UKMSA’s external presence and ensure consistency in messaging, tone and branding, across platforms and partners.
Key expertise required:
· Professional communications experience, with a strong track record in planning and delivering internal and external communications in a mission-led or purpose-driven organisation.
· Excellent writing and editing skills, with the ability to tailor tone, structure, and content for different audiences: from staff and volunteers to trustees, partners, and the wider public.
· Confidence leading internal communications across a remote or distributed team, including experience developing engaging formats, regular updates, and a shared organisational voice.
· Experience working with or alongside volunteers, trustees, or community stakeholders, and a strong appreciation for the importance of inclusive, two-way communication.
· Brand and tone-of-voice awareness, with the ability to maintain consistency and quality across channels, platforms, and contributors.
· Digital confidence, with experience managing websites (e.g. WordPress), social media channels, and email communications tools (e.g. Mailchimp), and using them strategically to reach different audiences.
· Storytelling and content development skills, with the ability to source, sensitively shape, and amplify stories that reflect lived experience and community impact.
· Strong organisational and planning skills, able to manage multiple priorities, coordinate with colleagues across teams, and deliver work to deadline with attention to detail.
· Collaborative mindset, with the confidence to influence tone, content, and strategy while also being hands-on in delivery and responsive to others’ needs and input.
· Judgement and discretion, with experience handling sensitive information, managing risk in communications, and supporting senior leaders with professional external representation.
· Genuine connection to UKMSA’s mission, with a respectful, values-led approach that centres the role of volunteers and champions the voice of the Shedding movement.
What success looks like:
· Staff feel informed, connected, and part of a shared organisational culture, even while working remotely. Internal updates are timely, engaging, and reflect a consistent tone that supports clarity, trust, and inclusion.
· Volunteers and trustees feel included and valued; they know what’s happening, understand UKMSA’s direction, and feel that communication is a two-way conversation, not a broadcast.
· The organisation’s public-facing communications are professional, values-led, and consistent. Social media, the website, and external content reflect the tone, mission, and energy of the Shedding movement.
· The CEO and Chair have visible, coherent digital profiles, supported with high-quality content and strategic messaging that reflects the voice and values of UKMSA.
· Good news stories from Shedders and communities are regularly shared, boosting the visibility of the movement and building pride and momentum across the network.
· Communications activity is intentional and well-prioritised. There is a clear rhythm to communications, and reactive work is handled without pulling focus from core messaging and strategy.
· The Communications Manager is seen as a trusted and thoughtful voice, able to advise colleagues, manage sensitive messaging, and champion quality and consistency in how UKMSA speaks.
· Volunteers remain central, not just as recipients of messages, but as contributors to and shapers of UKMSA’s communication story.
This job is not:
· This is not a campaigning or advocacy role. The Communications Manager will not be responsible for policy development, public affairs, political engagement, or influencing strategy.
· This is not a research or insight role. While storytelling and community voice are central to this role, the postholder will not be responsible for conducting research, writing reports (although the post-holder will support staff to get their reports right), or managing evaluation processes.
· This is not a marketing or income generation role. Although the postholder will support the visibility and professionalism of UKMSA’s public-facing presence, they will not lead fundraising, product marketing, or commercial campaigns. They will work with the Membership Manager and Director of Income and Investment if this is required.
· This is not a senior strategic leadership role. While the postholder contributes to strategy within their area and works closely with senior colleagues, they are not expected to set or lead cross-organisational strategy.
· This is not a purely reactive or administrative role. The Communications Manager is expected to take initiative, bring ideas, and shape how UKMSA communicates - internally and externally - in proactive and creative ways.
Closing date:-9th October 1200hrs
Interview: 22nd October
We are the support body for Men’s Sheds across the UK. We work hard to inspire and support the development of Men's Sheds.





The client requests no contact from agencies or media sales.
You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025.
Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.
Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising.
This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.
Key duties
Major Donor Fundraising
• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+
• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.
• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships
• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.
• Be responsible for our Breakthrough-ME Group with high quality proposition development. Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.
• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.
• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.
• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.
• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.
• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.
• Create adequate systems and processes to support the major donor programme.
• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.
• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.
• Provide regular feedback and internal reporting to line management.
• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.
• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.
• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity
• Occasional travel to London, Bristol & events
Other duties
• To positively promote the work and activities of Action for M.E. at all times.
• To contribute to the team’s overall, ongoing and annual planning and budgeting.
• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.
• Act as an advocate for the Charity and its work.
• To work in accordance with Action for ME’s values of collaboration, equity and empathy.
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.