Charity care calling manager jobs in Belfast

The Business Development Team provides a specialist support function to enable the organisation to achieve its growth objectives. We promote the strategic growth of the organisation by supporting the retention of existing work and securing new contracts via competitive tender and business proposals.

This is an exciting opportunity for a Bid Writer with demonstratable writing experience and knowledge to join us and write applications that fully articulate Family Action’s offer.  Experience relevant for your effectiveness in the role might be from various sectors.  If you are passionate about supporting us to submit high-quality tenders and applications, achieving success rates whilst engaging with our services to contribute and evidence the impact of their work for inclusion in submissions then we would like to hear from you.

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

Senior Administration Officer - FTC

When registering to this job board you will be redirected to the online application form. Please ensure that this is completed in full in order that your application can be reviewed.

Senior Administration Officer - ftc - 9 Months

Home-based – Working Remotely- London & South East

£25,101 per annum + £750 Home Working Allowance per annum + £4,184 London weighting per annum- (if eligible) 

Salary will be pro-rated based on a 9-month fixed-term contract

35 hours | Monday –Friday |  Fixed Term Contract - (9 Months)

Why Join TACT?

• Top 5 UK Charity to Work For (2024)
• 97% proud to work at TACT | 92% love working here
• Not-for-profit – every surplus reinvested into children, carers & staff
• Children’s voices shape every decision, system, and improvement we make at TACT.
• Flexible homeworking
• Trauma-informed, values-led organisation

Benefits

• 31 days annual leave + 8 bank holidays (pro rata as ftc)
• 45p per mile business mileage
• Stakeholder Pension (salary sacrifice)
• Family-friendly & flexible working policies
• Volunteer days

Wellbeing & Non-Salary Benefits

• Homeworking IT bundle + home office loan
• Help@Hand EAP (24/7 GP, CBT, physio, mental health support)
• Over 35 hours a year of access to on line wellbeing events and team wellbeing days
• Menopause Policy + free clinician appointments
• Regular team wellbeing & connection events

Training & Career Development

• Excellent learning & development programme
• Opportunity to grow therapeutic & trauma-informed practice
• Supportive leadership and clear career progression pathways
• Involvement in innovative projects (e.g. TACT Connect, Health, Education)

The Role

You’ll work closely with foster carers and social work colleagues to deliver high-quality, trauma-informed support and improve outcomes for children and young people. 

The Senior Admin Officer will be responsible for general administrative functions within the London & South East region and will report to the Administrative Manager.  In some instances, the Senior Admin Officer may be required to deputise for the Admin Manager in the post holder’s absence in relation to day to day matters.

The Senior Admin Officer will specialise in a particular area (s), such as Panels, statutory paperwork, minute-taking, training, and maintaining the in-house database (Charms). As a charity we are commited to ensuring that our resources are directed toward supporting our children.  For this reason, we can only consider applicants who live within the required geographical areas listed above, as supporting roles outside these areas would incur additional costs.

Key Responsibilities:

• Providing an administration service to the London & South-East region to help meet the service objectives of increased foster carer recruitment
• Organise and prepare all panel papers for approvals and reviews.
• Minute panels and prepare ADM paperwork
• Timely and accurate record keeping on Charms (in house system).
• Responding to telephone calls and allocating these to staff as appropriate. When necessary, take messages for staff members and ensure that these are passed on.
• Communicating professionally with a wide range of stakeholders, including colleagues, carers, and third-party agencies to establish professional working relationships which focus on the best outcomes for the children and young people in our care.
• Working flexibly within the team and autonomously as needed to manage your time and duties.

What You’ll Need

• GCSE in English & Maths or equivalent
• Experience of working in a busy administrative setting in a social care-related field.
• Ability to obtain, extract and analyse information from various systems.
• Confidence in using all Microsoft Office applications, including Outlook & OneDrive.
• Experience of using a software system to record, retrieve and maintain records
• Excellent communication skills to suit a broad range of professional relationships
• The ability to work to deadlines, with accuracy and flexibility, sometimes dealing with conflicting priorities
• Familiarity with handling confidential and sensitive information in line with relevant regulations and legislative requirements
• A tendency to think creatively, exhibit resourcefulness, work with enthusiasm, compassion, and commitment
• Evidence of an understanding and commitment to equality, diversity, and anti-discriminatory practices
• Enhanced DBS / PVG (processed by TACT)

Travel

• Home-based role
• Required to attend monthly face-to-face meetings and other occasional meetings in London and surrounding counties
• Additional travel for training, team and carer events

Key Dates

• Closing Date: Monday, 25th May 2026 (midnight)
• Interviews: Thursday, 4th June 2026 (Microsoft Teams)

Safeguarding Commitment

Safeguarding is everyone’s business, and TACT believes that only the people with the right skills and values should work in social work.  As part of TACT’s commitment to safeguarding, we properly examine the skills, experience, qualifications, and values of potential staff in relation to our work with vulnerable young children.  We use rigorous and consistent recruitment approaches to help safeguard TACT’s young people.  All our staff are expected to work in line with TACT’s safeguarding policies. 

Apply early - we may close the role if we receive a high volume of applications.

Role Overview 

You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health. 

You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life. 

The role is home or hybrid based; member contact is predominantly via phone and video calls. 

This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.

There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.

Benefits to working at Shine  

• Competitive salary: Review due April 2027  

• Regular working hours, and no shift work (some occasional weekends or evenings)    

• 3% pension contribution  

• 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year   

• Additional annual leave awarded for ‘long service’  

• Opportunity to purchase additional annual leave  

• Broadband allowance for home-based roles  

• Life insurance after 12 months’ employment    

• Access to our Employee Support Programme and Mental Health First Aiders   

• Reimbursement for HCPC registration 

• Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision. 

How to apply   

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.   

If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.

To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria

*Please note applications without a supporting statement will not be accepted*

We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications. 

Closing date: Monday 18th May at 11pm 

Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.    

Interviews (virtual): Thursday 28th May 2026 

Please see full details of the job description and person specification below and on our website.

About the role

Our exciting three year strategy sets out our ambitious goals to drive impact at scale for victim-survivors. We are now looking for an exceptional candidate to lead some of our financial services relationships and consultancy work and support SEA in its mission to raise awareness of economic abuse and transform responses to it within the financial services sector.

Working closely with colleagues across SEA, you will foster and maintain relationships across the financial services sector, seeking opportunities to generate income for the charity and supporting our Head of Financial Services to deliver lasting change and impact.

Together we can transform frontline financial services, in practice, product and process, and save lives.

About you

At SEA we put the lived experience of victim-survivors at the heart of all that we do, including our work with financial services firms. You will be a subject matter expert on customer vulnerability and financial services firms’ regulatory requirements, as well as having a thorough understanding of industry rules and good practice. You will combine this with experience of working with vulnerable customers, including victim-survivors and bring expertise on economic abuse to ensure this is embedded within financial services’ firms’ responses.

About SEA

We are the only UK charity dedicated to raising awareness of economic abuse and  transforming responses to it. We work to save lives and stop economic abuse forever.

Our vision is a world in which all women and girls achieve economic equality and can live their lives free of abuse and exploitation. Not only surviving but thriving.

Our mission is to raise awareness of economic abuse and transform responses to it.

To achieve this, we must ensure that the policies and practices of financial services firms, domestic abuse support services, public services and government reflect the needs of all victim-survivors of economic abuse.

We are  committed to centring victim-survivors in all that we do and broadening our understanding of the needs of survivors, particularly those who are marginalised within society. We work alongside the Experts by Experience - a group of victim-survivors whose voices and experiences shape our work.

Our primary focus is on influencing the women’s, public and financial services sectors, to create a model for improved support for victim-survivors of economic abuse, calling on government to facilitate these changes and work with them to improve their systems and practice.

What we offer

• 25 days annual leave plus Statutory Bank Holidays
• Home working (UK based)
• Flexible working 
• 5% Employer Pension Contribution 
• 5 Wellbeing Days
• Reflective practice
• Employee Assistance Programme 
• Enhanced sick pay, family leave and carer’s leave 
• The chance to be part of our highly professional, supportive team

To apply

Please apply via our website

Applications open from 9 April and close at 11.59pm on 20 May 2026. Interviews will take place virtually, week beginning 1 June.

Direct applications only – no agencies please.

Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.

SEA is a Disability Confident Committed, and Kinship Friendly Employer.

Do you have experience in supporting vulnerable adults and empowering them to move forward with their journey?

Walking With the Wounded (WWTW) supports those who have served in the British Armed Forces and their families, specialising in developing pathways to independence.

We currently have an exciting opportunity for a Veterans Liaison and Officer (VLSO) to join a team providing support to ex-armed forces personnel.  You will be home-based, with a caseload spread across Hertfordshire and occasionally adjoining counties.

We are looking for a dedicated individual who will empower ex-service personnel to regain their independence after a period of Mental Health (MH) Crisis, supporting them to thrive and contribute to our communities.  This role will join a team of existing VLSOs across the  East of England as part of a wider collaborative team within NHS England’s Op Courage - the Veterans’ Mental Health and Wellbeing service, and will work with other service charities and local support services. You will be home based with daily travel around your local region to support your clients and build relationships in the community, whilst working as part of the wider regional WWTW and NHS clinical teams.

We are looking for a highly motivated self-starter with prior experience of working with vulnerable adults; an individual who can work independently to set priorities that accurately reflect the client’s needs.  Your role will be to work with clients in the community (or their homes), facilitating intense support and analysing individual needs to create a support plan that will break down barriers to a successful stabilisation, whilst navigating their mental health pathway.

In return, we will provide you with the opportunity to demonstrate and develop your skills and career as a Veterans Liaison and Support Officer in a supportive, inclusive environment. In this role, no two days are the same and every day will bring new challenges. Internal training will be provided, and we encourage our staff to develop their own personal and professional skills. 

For an informal discussion please contact Anne Germany 07935-065716.

Are you a creative digital campaigner who can turn powerful stories into content that sparks action, builds movements, and drives change to help save lives and stop economic abuse?

About the role

We are looking for an exceptional candidate to play a central role in the delivery of Surviving Economic Abuse’s new digital engagement strategy by producing high-quality, impactful communications and compelling campaigns to extend our reach and to engage, inform and mobilise our audiences.

You will be responsible for managing and growing our digital presence across social media and ensuring this translates into action through our website and newsletters. This will include creating content tailored to victim-survivors and their family and friends, financial services professionals, policymakers, funders and other stakeholders.

As part of this role, you will help us develop and deliver digital campaigns that amplify our campaigning and policy work, as well as deliver communications to support our fundraising, consultancy and training.

About you

We’re looking for someone with proven experience running social media for a brand, organisation or campaign, with demonstrable results such as audience growth, reach, engagement or conversion. You’ll understand how campaigning and activism work, and how to mobilise supporters from diverse backgrounds to help drive meaningful change.

You’ll be a confident digital campaigner who knows how to make an impact across multiple platforms, especially Instagram, TikTok and other video first channels. You’ll have a strong understanding of trends, formats and algorithms, and know how to use them to create scroll stopping content that motivates people to take action.

This role is ideal for someone with bags of initiative, strong creative instincts, and the ability to turn complex issues into compelling digital content tailored to engage and mobilise different audiences.
If you’re excited by the opportunity to use your creativity, storytelling and digital campaign skills to amplify survivor voices, drive real-world impact and help end economic abuse, we’d love to hear from you.

What we offer

• 25 days annual leave, plus 5 Wellbeing Days and Statutory Bank Holidays
• Home working
• Flexible working
• 5% Employer Pension Contribution
• Reflective practice
• Employee Assistance Programme
• Enhanced sick pay, family leave and carer’s leave
• The chance to be part of our highly professional, supportive team

To apply

Please apply via our website.

This post is only open to women applicants, as being a woman is considered a genuine occupational requirement under Schedule 9, Paragraph 1 of the Equality Act 2010. 

Applications open from 6 May and close at 11.59pm on 26 May 2026. Interviews will take place week commencing 15 June 2026.

Direct applications only – no agencies please.

Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.

SEA is a Disability Confident Committed, and Kinship Friendly Employer.

The Charity and Our Vision.  

For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces.  We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035. 

Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.  

We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.   

Role Mission. 

To be an integral part of the delivery of Scotty’s new navigating entitlements casework (START) Programme, a single point of contact service designed to support anyone affected by military-connected bereavement. 

This is a hands-on, and vital role within a brand new team. You’ll be the first step in ensuring that everyone in the bereaved military community receives compassionate, personalised, and well-coordinated support. 

The key responsibilities of this role are:  

Service Design & Delivery  

Working closely with the Head of START, contribute to the planning and rollout of the START Programme  

In many cases be the first port of call for Scotty’s families, and be a welcoming and inclusive contact for all those families

Implement the new service model, workflows, triage process and beneficiary journey 

Ensure the service you deliver is trauma-informed, inclusive, and responsive to beneficiary feedback 

Manage your own caseload with support from Head of START programme 

Team Leadership & Development  

Once your experience has grown, provide peer support to any further caseworkers joining the team in 2027 and beyond (depending on demand) 

Ensure an ongoing focus on your own learning and development, always creating space for reflective practice  

Ensure that you live the culture that reflects The Scotty’s Way and encourages your own personal growth

 Be an active part of the wider Families team contributing to Daily Huddles and team plans and objectives 

Collaboration & Partnership  

Build and maintain, alongside the Head of START strong referral pathways with external organisations (military & non-military charities, NHS, social care) 

Build your expertise on navigating entitlements for the bereaved community to ensure that Scotty’s families receive the best possible support. 

Work collaboratively with other Programme teams to ensure consistency, shared learning & efficient internal referrals 

Monitoring & Evaluation  

Ensure that you are reporting consistently on beneficiary engagement, support outcomes, and follow-up actions 

Work with your direct support to use evidence and insights gathered to adapt and improve the service over time 

Ensure CRM records are complete, accurate, so they can be used to inform delivery decisions  

Contribution to Charity-Wide Goals  

Feed into cross-functional projects including Outreach, Fundraising, and Strategy 

Act as a representative of Scotty’s at sector events or external meetings where appropriate 

Support content development by sharing anonymised stories, insights, and themes  

The 30-day goals for this role are: 

Built a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction. 

Worked closely with the Head of START and other programme Heads to understand the history of Scotty’s helping families navigate entitlements, including reviewing current and recent cases.  

Become familiar with the key stakeholders, partners and organisations (including statutory, charitable and others) for casework in the START Programme.  

The 60-day goals for this role are: 

Built confidence and knowledge around the START programme aims and objectives, and the needs of Scotty families.  

Supported the Head of START to implement the new casework programme and beneficiary journeys.   

Built understanding of the processes that are in place to monitor the outcomes and impact of the new START Programme. 

Contributed to the design of a light CRM for initial use in START casework.   

Supported the development of and started to build understanding of the necessary processes and procedures for casework including safeguarding, triage, wait time limits etc.   

Started the training plan for new START caseworkers.  

The 90-day goals for this role are: 

Supported the launch of the new START Programme alongside Scotty’s team members.   

Welcomed the first families to Casework following the processes and framework that the Head of START has implemented.   

Worked with the Head of START to set a clear plan for the remainder of 2026 and beyond for the START programme, establishing it as a quality Scotty’s service for families.  

Starting to provide outcomes and data that enable the programme’s outcomes to be evidenced. 

About You: 

Must-Have 

Experience in service delivery, casework, and personalised support services 

Ability to work independently and manage a busy, varied caseload 

A compassionate and person-centred approach to casework 

Excellent organisational and communication skills 

A clear understanding of safeguarding vulnerable adults 

Nice-to-Have  

Familiarity with military family life or bereavement support 

Background in information, advice and guidance within the charity or statutory sector 

An understanding of the importance of service co-design with users or lived experience groups 

Additional Information

The role will require some evening or weekend work

Enhanced DBS check required

Travel will be required to events and team training days

The Scotty’s Way

At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:

Families Come First

Everyone a Supporter, Every Supporter a VIP

Love What You Do

Remember, Every Day

Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.

Closing date: 15th May 2026. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for an interview. 

Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.

We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.

We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.

 Senior Fundraiser (Part-time)

This is an exciting opportunity to take a leading role in shaping Sift's future at a pivotal moment in our journey. 

We support people affected by self-harm with compassionate, non-judgemental services, and demand for our work is growing. As we look ahead to the next phase of development, we are investing in fundraising to help us reach more people who need support. 

We are looking for an experienced, values-led fundraiser who is excited by the opportunity to build, influence, and make a tangible difference. 

Working closely with the CEO, you will lead our fundraising efforts and help us move from a reactive to a more proactive, strategic approach to income generation. 

What you’ll do 

You will play a key role in developing our fundraising including: 

• Leading on fundraising for trusts and foundations fundraising

• Building and managing a strong pipeline of funding opportunities

• Supporting the development of a major donor pipeline

• Overseeing delivery of targeted appeals and up to two campaigns per year

• Strengthening funder relationships and long-term stewardship

Why this role matters 

This role is central to our future. 
Your work will directly increase access to safe, compassionate support for people affected by self-harm and enable us to widen our influence across systems and communities. 

Why join us? 

• Real impact: Work that makes a tangible impact

• Flexibility: A part-time role with flexibility to work 16 hours per week, remotely. 

• Autonomy: Scope to shape and develop our fundraising approach 

• Purpose-driven culture: A small, collaborative team that puts people first

• A pivotal moment: Be part of an organisation evolving and growing its reach

What we’re looking for 

We’re looking for someone who brings both experience and a strong alignment with our values: 

• Proven fundraising experience (particularly trusts and foundations)

• Ability to work independently and prioritise effectively

• Strong writing skills and the ability to tell compelling stories

• Confidence in building and managing relationships

• A thoughtful, proactive approach with a high level of self-direction

If you’re looking for a role where you can shape strategy, work with purpose, and see the real-world impact of your work, we’d love to hear from you. Download the full recruitment pack for more details. We look forward to your application. 

Please note: Although we are based in Bristol, the role can be remote for the right candidate and the 16 hours per week can be flexibly split throughout the week or worked across 2 days. 

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).