284 Engagement and data officer jobs

Job Title: Church Engagement and Events Officer 

Responsible to: Senior Fundraising Manager 

Salary: £29,706 – £31,908 

Location: USPG, 5 Trinity Street, London, SE1 1DB 
 

Hours of work: Full time – 35 hours per week (Minimum two days per week in the London office). Occasional weekend and evening work with time off in lieu. The post involves up to 20% travel within Britain and Ireland.Permanent contract. 

The package also includes 

• 8% employer contribution to a pension 

• 25 days annual leave, plus bank holidays and additional discretionary leave during the Christmas week 

• Season Ticket Loan 

USPG is the Anglican mission agency that partners with churches and communities worldwide in God’s mission to enliven faith, strengthen relationships, unlock potential and champion justice. You can find out more about our work by visiting our website.

The Job 

Reporting to the Senior Fundraising Manager, this role sits within the Communications, Engagement and Fundraising team. The Church Engagement and Events Officer will play a key role in building relationships with churches, supporters and volunteers across Britain, Ireland and Europe, helping them engage more deeply with USPG's vision and mission. 

You will lead the planning and delivery of USPG's events programme, including the USPG Conference, Founder's Day, In Conversation Dinners and the annual Carol Service, as well as supporting the organisation's presence at festivals, synods and other national events. Working closely with colleagues across the organisation, you will help create inspiring and engaging experiences that raise awareness of USPG's global mission. 

As the first point of contact for many church supporters, you will provide excellent stewardship, support and resources that inspire churches and communities to engage through prayer, giving and action. You will also contribute to the development of USPG's church engagement activity, helping to strengthen supporter relationships and increase engagement across the church year. 

About You  

You are a confident and proactive relationship builder with experience in planning events and working with churches, supporters, volunteers or Christian organisations. You are passionate about helping people engage with mission, justice and the global Church. 

An organised and effective communicator, you can manage multiple projects and events, build strong stakeholder relationships and work independently while contributing to a collaborative team. You are comfortable engaging with clergy, church leaders, volunteers and supporters, and are motivated by USPG's mission and Christian ethos. 

This is an exciting opportunity for someone looking to develop a career in church engagement, events and supporter relations within a respected international mission agency. If you have the skills, enthusiasm and commitment to help churches connect with God's mission around the world, we'd love to hear from you. 

How to apply 

Please download and complete the attached application form and email it to HR as indicated on the document.

If you would like to discuss the role, please feel free to contact Natasha Bourne, HR Manager. 

Please not that we are not able to offer visa sponsorship for this post, so you must have right to work in the UK.

Closing Date: 25th October 2026

Provisional Interview Date: 4th November 2026 (although we may hold interviews earlier, depending on the volume of suitable applications received)

This vital role within the Landmark Trust’s fundraising team focuses on delivering excellent supporter engagement across the Landmark Friends, Lundy Friends and Marisco Club supporter schemes. You will manage the day-to-day administration of these groups with the highest standards of supporter care and deliver a programme of small events and communications to engage and retain these supporters. Working closely with the Development Manager (Patrons) and other colleagues in Development, you will also support the delivery of events for the Landmark Patrons, and other supporters as needed.

We are looking for someone who takes pride in giving high-quality customer service, with strong communication skills and a keen attention to detail. You will be comfortable speaking to supporters on the phone and at in-person at events, drafting personalised letters and emails, and managing various administrative tasks. While fundraising experience isn’t essential, you will bring experience of a customer-facing or supporter-focused role, excellent organisational skills and, ideally, of working with databases. An interest in the charity sector, and heritage in particular, would be an advantage.

This is a varied and hands-on role, ideal for someone looking to develop a career in fundraising and supporter engagement within a unique heritage organisation.

MAIN DUTIES AND RESPONSIBILITIES

Supporter engagement, stewardship and recruitment

• Deliver excellent supporter care, responding to enquiries, welcoming new Friends and Lundy supporters and building relationships to ensure that all supporters feel valued and appreciated, and to grow and retain the Landmark and Lundy supporter base.
• Support donor stewardship activities, including drafting timely thank-you communications, responding to email and telephone enquiries, assisting with the production of regular newsletters, and impact stories.
• Work alongside the Development Manager (Patrons) to promote all the Landmark Trust’s supporter schemes to existing Landmark contacts and new audiences.
• Work alongside the Development Manager (Patrons) and the Lundy Managing Director on Lundy supporter recruitment, promoting the Lundy schemes to the islands’ visitors, followers, and new audiences.

Event coordination and delivery

• Work alongside the Development Manager (Patrons) to:

1. coordinate the regular programme of online talks for all supporter schemes
2. plan, coordinate and deliver the regular programme of in person events for Landmark Friends, including site visits to Landmark properties and other places of interest.

• Support the Development Manager (Patrons) with the delivery of the Patrons event programme.
• Work within the wider Development team to assist with the planning and delivery of other supporter events, as required e.g. during the fundraising phase of a project.
• Manage event logistics including invitations, RSVPs, guest lists, internal safety and briefing materials and liaising with venues.
• Represent the Landmark Trust, with other members of the Development team, at events.

Data management and administration

• Maintain accurate supporter records within the CRM system, ensuring that data held is accurate, up to date and in line with current best practice in the sector.
• Assist with reporting on fundraising performance and campaigns.

Communications

• Support the creation of engaging content for all supporter schemes across email, digital, and print channels.
• Work collaboratively with colleagues in the Marketing and Engagement teams to support social media posts and wider Landmark communications relating to the supporter schemes.
• Work collaboratively with colleagues in Marketing, and external agencies, as required, to produce the annual Landmark calendar.

General

• To work closely and harmoniously with colleagues in all respects
• To comply with the Key Principles and Behaviours of the Fundraising Regulator’s Code of Fundraising Practice, and other aspects of the Code pertinent to this role.
• To appreciate, and work within, the organisation’s culture, values and behaviours.
• To conduct all activities in a manner which promotes and enhances the Landmark Trust’s character and reputation.
• Landmark is an equal opportunities employer. All staff are expected to conduct themselves in accordance with the Equality Act 2010.
• All staff are expected to fulfil their duties with due regard to their own health and safety and that of others.
• To undertake any other duties as may be reasonably required in the post.

At The Royal Marsden Cancer Charity, accurate, accessible and well-managed data underpins everything from supporter stewardship to the delivery of ambitious fundraising campaigns. We are looking for a proactive and solutions-focused Senior Database Officer to help colleagues get the best from our fundraising CRM, strengthen data quality and support our ongoing transition to Raiser’s Edge NXT.

This is an exciting opportunity to join a collaborative Data and Fundraising Operations team at a time of significant growth. You will combine technical database work with stakeholder support, training and process improvement, helping colleagues use our systems confidently and effectively.

You do not need to know every system we use from day one. If you have strong data manipulation skills, enjoy solving complex problems and can quickly develop expertise in new technology, we would love to hear from you.

What makes this opportunity different

This role offers more than traditional database administration.

Our Data and Fundraising Operations team acts as the technical lead for many of the Charity’s systems and technical projects. Alongside developing your knowledge of Raiser’s Edge NXT, you’ll have opportunities to broaden your experience across Excel, Access, SharePoint, APIs, data integrations, reporting, automation and system implementation.

You’ll be joining a collaborative and supportive team where you can deepen your CRM expertise while developing a broader understanding of data, systems and digital processes within fundraising.

What you’ll be doing

You’ll help colleagues across the Charity get the best from our fundraising CRM and data by:

• Providing day-to-day support and troubleshooting for Raiser’s Edge NXT users
• Supporting fundraising teams as they move from Raiser’s Edge 7 to NXT
• Delivering clear training, guidance and practical support to CRM users
• Managing data imports, cleansing, audits and database administration
• Monitoring data quality and improving how supporter information is recorded
• Working with stakeholders to understand their needs and improve systems and processes

About you

You may already be working as a Database Officer, CRM Officer or charity data specialist and be ready to take the next step in your career.

You’re curious, proactive and solutions-focused. You enjoy investigating data and system issues, working with complex datasets and finding practical ways to improve processes. Just as importantly, you enjoy working with people and can explain technical information clearly to colleagues with different levels of confidence and experience.

You’ll bring:

• Proven ability to learn new systems quickly and develop advanced knowledge
• Strong data manipulation skills using Excel, Access or comparable tools
• Highly developed problem-solving skills
• The ability to investigate data or system issues methodically
• Experience managing several stakeholders and competing requirements
• The ability to draw out requirements and translate them into practical improvements
• Strong communication skills and the ability to explain technical information clearly
• A proactive approach and a high level of initiative

It would be helpful, but not essential, if you have

• Experience of working within a charity
• Advanced knowledge of Raiser’s Edge 7 or Raiser’s Edge NXT
• Experience using ImportOmatic or a similar data import tool
• Experience designing and delivering systems training
• Experience creating user guidance or process documentation
• Experience supporting CRM adoption or system change 

Benefits:

• Hybrid working, with approximately 40% of your time in the office and 60% working from home each month
• 27 days’ annual leave plus bank holidays, rising to 29 days after five years
• A contributory pension scheme with employer contributions of up to 6%
• Life insurance for eligible pension scheme members
• Enhanced maternity and adoption leave and pay
• Employee assistance and confidential counselling services
• Flexible working options
• Subsidised on-site canteens
• A bright, modern Chelsea office close to South Kensington station
• The technology and equipment needed to work effectively from home

Our Commitment to Inclusion

We are committed to building a diverse and inclusive workplace where everyone feels valued and supported. We welcome applications from candidates of all backgrounds and are dedicated to ensuring equitable opportunities for all

Remote/London (must be able to attend the London office at least twice per month if remote working)

Permanent | Part-time (4 days / 28 hours per week)

£44,358 (London-based) / £39,587 (non-London-based) FTE + excellent benefits

Join our Research & Outcomes team at the Royal College of Speech and Language Therapists (RCSLT) and help shape the future of speech and language therapy. You’ll plan, deliver and evaluate projects that strengthen research capacity, capability and culture across the profession, champion evidence-based practice, and support members in making the most of outcomes, health informatics and data.

Who we are

The RCSLT is the professional body for speech and language therapists across the UK. The RCSLT has over 24,000 members and employs around 65 staff predominately based in a London office. The RCSLT also has offices in Belfast, Edinburgh, and Cardiff.

Our mission is to improve the lives of people with communication and swallowing needs by facilitating and promoting research, producing guidance, holding events, and influencing government. We aim to promote better education and training for speech and language therapists and provide information to our members and the public about speech and language therapy.

The role

As a Research & Outcomes Officer, you’ll play a key role in shaping and delivering the RCSLT’s research and outcomes work, helping to strengthen research culture, champion evidence-based practice and support the profession to make better use of evidence and data.

You’ll take operational responsibility for a varied portfolio of projects and initiatives, from research priority setting and engagement, to collecting and analysing data, supporting evidence synthesis and monitoring impact. You’ll also help bring this work to life through engaging communications across RCSLT research channels, as well as presentations, webinars, conferences and events.

Working closely with RCSLT members, colleagues and external stakeholders, you’ll provide expert, evidence-based advice on research, outcomes, clinical and professional issues, while responding to enquiries and supporting teams across the organisation to identify, understand and apply research evidence.

This is an exciting opportunity for someone who enjoys combining research, project delivery, data, communication and stakeholder engagement, and who wants to make a tangible difference to the future of speech and language therapy.

What we are looking for

We’re looking for a qualified Speech and Language Therapist and current RCSLT member with strong clinical and professional knowledge and a passion for research and evidence-based practice. You’ll have experience of literature searching, critical appraisal and evidence synthesis, alongside knowledge of research, evaluation, outcome measures and data analysis.

You’ll be confident turning complex evidence and data into clear, accessible insights and communicating these effectively to a range of audiences.

You’ll be highly organised, analytical and adaptable, with the ability to manage multiple projects and competing priorities. A collaborative approach is essential, as you’ll work with members, colleagues and external stakeholders to provide expert guidance and support. Above all, you’ll be committed to using research and evidence to improve practice and outcomes, championing equality, diversity and inclusion, and contributing positively to the RCSLT’s aims and values.

What we can offer you

• A competitive starting salary
• Generous annual leave entitlement
• Excellent staff training and development opportunities
• Supportive and flexible working environment including, hybrid working arrangements
• Generous Pension scheme
• Life insurance cover
• Season Ticket Loan scheme
• Eye care voucher scheme
• Family friendly employer including enhanced maternity and paternity leave
• Cycle to Work scheme
• Access to an Employee Assistance Programme and more!

How to apply

For more information and to apply, please visit our careers portal.

Closing date: 9.00am on Monday, 19 October 2026.

Interview date: w/c Monday 2 November 2026 (held virtually).

There may be a task that will be needed to be completed as part of the interview process.

We are committed to a fair, transparent, and inclusive recruitment process. All applications are handled with strict confidentiality to protect your privacy and encourage openness throughout the process.

The RCSLT is committed to fostering an inclusive and equitable workplace where everyone feels valued and a sense of belonging. We aim to embed equity, diversity, and belonging practices throughout our recruitment and selection procedures. We strive to ensure everyone is valued equally for their contribution, experience, knowledge, and skills. We welcome applications from candidates of all different backgrounds.

This is an exciting opportunity to help shape and grow St Luke's corporate partnerships programme.  The Corporate Partnerships Officer will play a leading role in generating new income and developing relationships with businesses whose values align with our mission. Working closely with the Head of Corporate Partnerships, this role will identify, cultivate and secure new corporate partnerships that support St Luke's work through sponsorship, charitable giving, employee fundraising, volunteering and wider social value initiatives.

This role will focus primarily on new business development and income generation while supporting the development of long-term, mutually beneficial corporate relationships.

Key Responsibilities:

Corporate Partnership Development

· Identify, research and prioritise prospective corporate partners whose values, CSR, ESG and social value objectives align with St Luke's mission

· Build and maintain a strong pipeline of corporate prospects using effective prospect research, networking and outreach activities

· Develop, cultivate and convert relationships with business decision-makers and corporate stakeholders

· Secure new corporate partnerships and sponsorship opportunities that generate sustainable income and community impact

· Deliver agreed income targets and partnership KPIs

· Generate new opportunities through networking, referrals, events and direct engagement

Proposal Development and Income Generation

· Develop compelling and tailored partnership proposals, sponsorship packages, presentations and pitches

· Create funding opportunities across St Luke's programmes and services including digital inclusion, employment and skills, health and wellbeing, food security and social isolation initiatives

· Negotiate partnership agreements and secure financial support from businesses

· Work with colleagues to develop innovative and attractive corporate engagement opportunities

Relationship Management

· Support the successful onboarding of newly secured partners

· Work collaboratively with colleagues to ensure partners receive an excellent experience and achieve their partnership objectives

· Identify opportunities to increase partner engagement through employee fundraising, events and volunteering

· Support partnership renewals and the longer-term development of corporate relationships

Marketing and External Engagement

· Contribute to the development and continuous improvement of St Luke's corporate partnerships offer

· Produce engaging partnership materials, impact reports, case studies and promotional content

· Represent St Luke's at networking events, business forums, conferences and stakeholder meetings

· Act as an ambassador for St Luke's and promote the organisation's values and impact

Monitoring and Reporting

· Maintain accurate records of partnerships, prospects, meetings and income activity using CRM and reporting systems

· Monitor progress against agreed targets and KPIs

· Provide regular reports on pipeline development, income generation and partnership activity

· Gather and communicate impact data and stories that demonstrate the value of corporate support

General Responsibilities

· Promote equity, diversity and inclusion throughout all aspects of the role

· Ensure compliance with safeguarding, health and safety, GDPR and organisational policies

· Attend meetings, events and occasional evening/weekend engagements as required

· Undertake other duties commensurate with the level and responsibilities of the post 

Person Specification

We are looking for an individual who can demonstrate the following competencies to a high level. We will be looking for evidence of all of the following key competencies during the selection process if you are shortlisted.

Essential Experience and Skills:

· Experience of generating income, securing partnerships, winning new business or delivering against sales targets.

· Experience building and managing relationships with external stakeholders.

· Experience producing persuasive proposals, funding applications, presentations or business pitches.

· Excellent written and verbal communication skills.

· Strong interpersonal and relationship-building abilities.

· Ability to identify opportunities and take initiative.

· Strong organisational skills with the ability to manage multiple projects and priorities.

· Experience using databases, CRM systems or fundraising platforms.

· Ability to work independently while contributing effectively within a team.

Essential Knowledge and Attributes:

· Understanding of, or strong interest in, corporate fundraising, business development, sponsorship or partnerships.

· Understanding of, or interest in, CSR, ESG and social value agendas.

· Commitment to the values and mission of St Luke's.

· Genuine interest in community development and social impact.

· Professional, enthusiastic and results-focused approach.

Desirable:

· Experience within the charity, voluntary or community sector.

· Experience of corporate fundraising or sponsorship.

· Knowledge of the London business community.

· Experience organising networking or stakeholder engagement events.

· Experience supporting employee volunteering or community engagement programmes.

We’re the UK’s specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research, provide information and support to patients and their loved ones, and raise awareness of blood cancer.

We’re looking for an enthusiastic and relationship-focused Researcher Engagement Officer to join our Research team and strengthen relationships with the researchers and Fellows we fund.

You’ll develop and deliver a programme of researcher engagement and stewardship, creating opportunities for collaboration, learning and long-term partnership. From webinars and conferences to researcher visits and events, you’ll help ensure our research community feels supported and connected throughout their journey with Blood Cancer UK.

You’ll build strong relationships with grant holders, Fellows and key research stakeholders, plan and deliver engagement activities, develop insight into the blood cancer research community and represent Blood Cancer UK at conferences and research events. You’ll also support research impact activity, contribute to funding rounds and partnerships, and work collaboratively across Research, Engagement and Fundraising.

We’re looking for someone with experience in the charity or research sector, an understanding of how research funding translates into impact, and excellent relationship-building and communication skills. You’ll be organised, proactive and comfortable managing multiple projects, analysing research information and using technology, data and insight to deliver results.

The role involves 1–2 days of travel per week, including meetings with researchers, conferences, team workshops and away days, as well as two all-staff away days each year. There will also be occasional evening and weekend work.

We’re committed to promoting equality, diversity and inclusivity and welcome applications from people from underrepresented groups, including minority communities and people with disabilities, to better reflect the communities we serve and broaden our perspectives.

Who we are:

Muslim Aid is a UK faith-based international development organisation that provides support to communities around the world affected by disasters, conflict, or endemic poverty without regard to their social, religious, or ethnic background. 

Established in 1985, Muslim Aid has facilitated the engagement of the British Muslim and non-Muslim community in support of its work in a variety of ways. Over the years, its humanitarian work has included responses to major crises around the world including famine in East Africa, earthquakes and flooding in Pakistan and Bangladesh as well as conflicts in Syria and Yemen. 

We place strong emphasis on long-term development projects that build the capacity of local people to help themselves. In addition to our 5 country offices worldwide, we also work with multiple partner offices focusing on sustainable development programmes and providing humanitarian relief during times of crisis.

Summary of the role:

The Data, Risk and Compliance Officer will coordinate Muslim Aid’s organisational approach to data protection, risk management, compliance and assurance coordination. The role will provide oversight of key registers, trackers, records, reports and action plans, including the corporate risk register, compliance obligations register, policy review schedule, data protection records, information-rights requests, breach records, audit action trackers and assurance follow-up.

The postholder will work directly with the COO, leadership team and functional owners across the organisation to strengthen governance, ensure risks and compliance actions are actively managed, support timely escalation and drive continuous improvement in organisational controls and accountability.

The postholder will own coordination, tracking, records, follow-up and administrative support for these areas, while supporting senior colleagues with design, judgement, quality assurance and insight.

About the Role:

1. Maintain the corporate risk register and ensure risks, controls, actions, owners and deadlines are kept up to date.
2. Gather regular updates from functional owners and support teams to articulate and record risks clearly and consistently.
3. Maintain the compliance obligations register, policy review schedule and evidence of compliance activity.
4. Work with departments to record legal, regulatory, donor, funding agreement, data protection and internal policy requirements.
5. Maintain data protection policies, procedures, templates, records of processing activities (ROPAs), data-flow records and information asset registers.
6. Prepare regular reports, exception reports, committee updates, action summaries and briefing notes on risk, compliance, data protection, audit actions and overdue matters.

About You:

You must currently hold the right to work in the UK. Muslim Aid is not offering sponsorship for this role.

This role operates on a hybrid working basis, with a current requirement to work from the office for two/three days per week, and additional days where required to meet organisational needs.

To be successful in this role, you will need:

1. Law degree, equivalent legal qualification or equivalent experience in legal, compliance or regulatory matters.
2. Significant experience in data protection, risk, compliance, governance, assurance or a related area, including responsibility for improving organisational processes and controls.
3. Experience managing risk registers, compliance trackers, policy schedules, action logs and organisational records, with responsibility for quality, timeliness and escalation.
4. Strong organisational and coordination skills, with the ability to prioritise competing demands, oversee several trackers, manage deadlines and deliver high-quality reports.
5. Ability to influence and follow up actions firmly and professionally, make sound judgements, identify issues requiring escalation and handle sensitive information with discretion.
6. Ability to write clear reports, updates, guidance, action summaries and recommendations for managers, the Leadership Team, committees and the Board..

Why you should apply:

Join Muslim Aid as our Data, Risk & Compliance Officer and play a key role in strengthening our approach to data protection, risk management, compliance and organisational assurance. Working closely with the COO, Leadership Team and colleagues across the organisation, you’ll help ensure key risks, compliance obligations and data protection responsibilities are effectively monitored, managed and addressed. You’ll oversee essential registers, records and action plans, support audit and assurance activity, and help strengthen organisational controls and accountability. If you’re passionate about good governance, effective risk management and using robust processes to drive continuous improvement, we would love to hear from you.

Benefits you will enjoy working for us: 

• 25 days annual leave + 4 Privilege days
• Hybrid working – 2/3 days per week in the office
• Paid time off for medical appointments 
• 2 hours lunch break on Fridays 
• Time Off in Lieu (TOIL)
• Pension scheme

How to apply:

To apply please submit your cover letter (no more than 1 page) and CV.

Pre-employment Checks:

Due to the nature of our work with children and vulnerable communities, Muslim Aid operates rigorous safeguarding and Protection from Sexual Exploitation and Abuse (SEA) procedures in our recruitment process. We are committed to the prevention of sexual abuse and exploitation and adopts a zero-tolerance approach to SEA, as a result, any employment with Muslim Aid is subject to the following checks prior to your start date:

• Satisfactory professional references, including safeguarding-specific enquiries.
• A Basic Disclosure and Barring Service (DBS) check and/or an International Criminal Record Check where applicable.
• A review of right-to-work documentation for the country in which the role is based. 

We will do everything possible to ensure that only those who are suitable to work with children and vulnerable people are recruited to work for us.

We are an equal opportunities employer and welcome applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, or age. 

Only shortlisted candidates will be contacted. Applications will be accepted until the closing date, however, Muslim Aid reserves the right to initiate interviews and the selection process on a rolling basis with the aim of identifying an appropriate candidate as quickly as possible

Lord’s Taverners 

The Lord’s Taverners exists to positively impact the lives of young people facing the challenges of inequality. Through inclusive and transformative cricket programmes, we empower young people with disabilities and from disadvantaged communities across the UK and beyond. 

We are now seeking an energetic team player to join the People and Programmes directorate. You will play a collaborative role in strengthening how data is collected, governed, analysed and communicated. This is a fixed term contract until 30 September 2027 and is available as an immediate start for the right candidate. 

The Role 

The Data and Insight Co-ordinator will enable Lord’s Taverners to make confident, evidence-led decisions by transforming programme and organisational data into meaningful insight; developing accessible reporting and dashboards; and work across teams and delivery partners to improve data quality, demonstrate impact and support continuous improvement, sustainable growth and strategic priorities. 

About You 

You will be an organised, proactive and people focused individual who enjoys supporting others, producing accurate records and has a keen eye for detail. You’ll bring strong communication skills, confidence managing key information, and a positive, can‑do approach to working as part of a busy team. 

You will bring: 

• Strong knowledge and understanding of data administration and ability to produce high-quality outputs. 

• Strong knowledge and understanding of data management systems and strong numerical skills. 

• Strong data digital technology capability (preferable Upshot and Power BI) with growing adoption of AI capabilities 

• Ability to design effective and easily interpreted data dashboards. 

• Ability to train others in an easy to understand and engaging environment. 

• Ability to understand and interpret data problems and find and implement solutions. 

• Understanding of data governance practices and policies. 

At Lord’s Taverners, sport is a means to an end. We are looking for people who share our belief in sport’s power to change lives, and who are motivated by impact,inclusionand opportunity for young people. 

Above all, youwill be motivated by our mission and aligned with our values:We Include, We Inspire, We Empower. 

Safeguarding 

Our organisation is committed to safeguarding and promoting the welfare of children and young people, and we expect all staff and volunteers to share this commitment. 

This role requires an enhanced DBS check and is exempt from the Rehabilitation of Offenders Act 1974. In line with statutory guidance, applicants do not need todiscloseyouth cautions or any protected convictions or cautions. 

As part of our safer recruitment practices, an online search will be carried out on all shortlisted candidates. 

Benefits 

• 25 days annual leave + Bank Holidays 

• Fiveadditionaldays between Christmas and New Year 

• 6% pension contribution 

• Group income protection 

• Critical illness cover 

• Life assurance 

• Health Cash Plan 

• Enhanced maternity and paternity pay 

• Employee Assistance Programme 

• Two volunteering days 

• Birthday day off 

• Season ticket loan 

• Flexible working 

• Wellbeing plan 

Application Instructions 

Please read the application instructions carefully and completely. 

Please submit your CV, and a written response (maximum 350 words) to the following question: 

“Please describe a time when you had to translate complex, technical data into a simple, compelling story for a non-technical audience. What communication format or visual tools did you choose, and what challenges did you have to overcome?” 

We will not accept applications that do not complete this task, or applications that upload a cover note in place of the required written response. 

 
Please upload your written response where the application form asks for a cover note. 

Key Dates 

Applications open: Tuesday 15th September 2026 
Application deadline: Sunday 27th September 2026 

Please note we may close the vacancy early if we receive exceptional applications. Should this occur, all applicants will be notified. 

First Round - Interviews scheduled: Friday 2nd October 2026 

Second Round - Interviews scheduled: Friday 9th October 2026 

Interview Process 

First Stage (Online) 

The first stage will take place online and will last 45 minutes in total. The session will include: 

• 20-minute (max) task/activity 

• 25-minute debrief and questions with the hiring managers 

Second Stage (In Person) 

Shortlisted candidates who progress to second stage will be invited to a 60-minute in person interview, comprising: 

• 45 minutes of competency-based questions 

• 15 minutes for further conversation about the role 

Interview questions will be shared with shortlisted candidates in advance to support preparation. 

Accessibility 

We want every candidate to feel comfortable and able to perform at their best. If you require any adjustments or support to take part in the interview process, please let us know and we will be happy to accommodate. 

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis is a UK charity. We bring people together to drive change so that everyone affected by pulmonary fibrosis can live well for longer.

We provide support, information and education, raise awareness, campaign for better diagnosis and care, and invest in research. Our strategy, For Every Breath, Every Journey, Every Future, is shaped by lived experience and supported by stronger organisational foundations and sustainable income.

The role

Reporting directly to the Chief Executive, you will lead APF's communications, marketing and engagement function. You will turn organisational priorities into an integrated plan, set clear standards and measures, advise senior leaders and ensure that marketing, media, content, digital and internal communications work together.

You will lead three managers: the Senior Marketing and Communications Manager, the Press, PR and Stories Manager, and the Communications Operations and Engagement Manager. The Digital Marketing Coordinator will report to the Senior Marketing and Communications Manager. This structure gives you the scope to shape the whole function while delegating specialist delivery clearly.

Your early work will include establishing the team operating model and annual plan, moving PF Together to quarterly publication, strengthening email marketing, leading a complete website content rewrite, creating clearer supporter journeys and building a proactive media and story pipeline. You will also work closely with fundraising so that strong propositions and campaigns reach the right audiences and contribute to acquisition, retention and income growth.

The role will lead APF's approach to communications data, performance reporting and responsible use of AI and connected systems. Human judgement, data protection and information security will remain central to how these tools are used.

About you

You are an organised, practical and adaptable administrator who is confident working with both administrative and data systems. You have strong attention to detail and can manage a varied workload, maintain accurate records and make sure routine systems and processes work effectively.

You are comfortable working with digital systems and data, including maintaining databases or CRM, monitoring or evaluation systems, checking the quality and completeness of information and supporting colleagues to use systems consistently. Bhip will be using Upshot as its data collection & evaluation system, you do not need to have used Upshot before, although experience in using Upshot would be an advantage. You are confident learning new systems and working with system providers where changes or improvements are needed.

You communicate clearly, work well with colleagues across different roles and are comfortable following up when information or actions are outstanding. You can work independently within your responsibilities while knowing when something needs to be referred to your manager or another member of the team.

You understand the importance of confidentiality, accurate record keeping and secure handling of information, particularly when working with information provided by communities and programme participants.

The Opportunity

This is an opportunity to join Happy Healthy You (HHU) and be part of a dynamic new team delivering the Bradford Health Inequities Programme (Bhip), an ambitious five-year programme working with communities to create fairer health and care.

You will provide essential administration across HHU and take day-to-day responsibility for Bhip’s data system, making sure information is accurate, complete and accessible. Working closely with colleagues across the programme, you will be an integral part of the team, supporting effective systems, data quality, monitoring and reporting, and helping the team understand progress and demonstrate the difference Bhip is making.

About us
The Microbiology Society is a membership charity for scientists interested in microbes, their effects, and their practical uses. It has a worldwide membership based in universities, industry, hospitals, research institutes, schools, and other organisations.

Our members have a unique depth and breadth of knowledge about the discipline. The Society’s role is to help unlock and harness the potential of that knowledge.

Our commitment to anyone who studies microbes is “whoever you are, wherever you are, we will amplify your voice”.

About you
The Head of Engagement and Storytelling leads communications and engagement across the organisation.                      This role involves working with members and colleagues to develop and curate scientific content designed for impact across our wide-ranging audiences, including members, the wider scientific community, the media, influential stakeholders and the public in order to achieve the Society’s ambitious vision of a world in which the science of microbiology provides maximum benefit to society.

The postholder will have experience working within science communication, displaying strong scientific knowledge while delivering high impact engagement campaigns. It is essential to have experience in People Management as this role oversees the different branches of the Engagement and Storytelling theme covering Communication, Policy and Membership.

Please note that the organisation operates a hybrid working policy.

For more information about the Society, please visit our website.

Our generous benefits package includes;
• Flexible working hours
• Highly competitive salaries with an annual cost of living increase
• 23 days holiday + eight bank holidays and three additional days over the Christmas break
• 10% employer pension contribution
• Life insurance including free (health and wellbeing) employee support services
• Enhanced maternity pay to include 26 weeks of fully paid maternity leave and 13 weeks of statutory maternity pay
• Enhanced Adoption pay to include 26 weeks of fully paid adoption leave and 13 weeks of statutory adoption pay
• Season Ticket Loan Scheme
• Cycle to Work Scheme
• £50 contribution towards eye care

To Apply

Please attach your CV and Cover Letter.

Please note that only shortlisted candidates will be contacted.

Interviews will be held in-person at the Microbiology Society Office.

Closing date: 25th September 2026

It is important that you DO NOT include your Personal Information i.e. name and contact details in your CV or Cover Letter. This is because the Microbiology Society is an equal opportunities employer and welcomes applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation, or age. We value, promote, and seek diversity.

The Society also takes the security of your data seriously. It has internal policies and controls in place to ensure that your data is not lost, accidentally destroyed, misused, or disclosed, and is not accessed except by our employees in the proper performance of their duties.

Please note that due to limited resources, only shortlisted candidates will be contacted therefore, if you do not hear from us within two weeks of the closing date, please assume that your application has been unsuccessful on this occasion.

“We are interested in every candidate who is eligible to work in the United Kingdom. However, we are not able to sponsor visas.”

As an Officer in ImpactEd Evaluation you will project manage evaluation partnerships with schools, trusts and education organisations, from Theory of Change and evaluation design through data collection and analysis to reporting, with the support of a project sponsor. You will work directly with partners, keep projects on track and in scope, and help partners understand and act on what their data is telling them.

We are open to a range of experience and backgrounds. Prior experience in any of consultancy and partnership management, data analysis and report writing, research and evaluation, or the UK education system is likely to be particularly useful. What matters most is a curiosity about what works for young people and the discipline to get things done well.

Officers lead the delivery of specific projects and engagements with support, contribute to revenue generation and service delivery, and mentor junior colleagues.

Partnerships and delivery Project manage evaluation partnerships, coordinating delivery and often leading much of it, with support from a project sponsor. Drive partnerships forward through proactive communication and follow-up, build partner buy-in by involving different stakeholders, and manage scope and the risk of over- or under-delivery.

Evaluation design Facilitate evaluation design with partners: create Theories of Change, design research questions, identify outcome measures and measurement tools, and bring these together in an evaluation framework.

Data collection and analysis Identify suitable approaches to recruiting research participants and facilitate quantitative and qualitative data collection (surveys, existing school data, focus groups and interviews), using our School Impact Platform. Carry out simple inferential statistics independently and more advanced analysis with support, including the data cleaning and matching needed to get data ready.

Reporting and insight Engage with partners to understand the context and purpose of a report and agree the output accordingly. Synthesise the key messages from a complex set of data and report them in an accessible, concise way that fits the partner's context and helps them act.

Colleagues, practice and Group Plan and manage your time, give and act on constructive feedback, communicate openly about progress and blockers, and mentor junior colleagues. There is no direct business development target, but you will contribute to proposals and renewals, and take part in Group-wide work, residentials and professional development.

About the team

The Philanthropy Team raises income for Impetus and for Impetus partner charities. The team consists of 15 staff. Impetus has an annual income of c.£11 million which we are looking to grow significantly within the next few years. The team is led by two Directors of Philanthropy and Partnerships. 

The Philanthropy Team works with major donors, corporates and grant making trusts, as well as collaboratively with colleagues across the organisation to ensure we make a compelling case to generate new financial commitments and wider support for our work. The team also deliver a high-quality engagement programme of volunteering and pro bono for Impetus’s corporate supporters.   

Impetus is driven by a shared belief in tackling the barriers that hold back young people from disadvantaged backgrounds in education and employment. Alongside investing extensive financial and non-financial support in our charity partners through our Investment Team we also seek to influence decision makers to design and implement evidence led policy and direct new resources to get young people the support they need through our Public Affairs team. We are resolutely focused on outcomes, driven by quality evidence.

You would be joining a team that is passionate, ambitious, determined and warm. We care deeply for our colleagues, our charity partners and the young people we serve. 

About this role

The Head of Engagement is a strategically significant and high-impact role within the Philanthropy team, responsible for leading and developing Impetus’ engagement programme across both volunteering and pro bono support.

At Impetus, volunteering refers to opportunities for employees of our donor firms to engage directly with the young people supported by our portfolio partners, helping to inspire, motivate and broaden horizons through meaningful interactions.

Pro bono support is a core element of our capacity-building approach and a key way in which we strengthen the organisations we back. It involves skilled volunteers and partners contributing professional expertise to address strategic challenges and opportunities within our charity portfolio, helping to build capability, resilience and long-term impact.

The Head of Engagement will shape the strategic direction and lead the delivery of a high-quality programme of volunteering and skilled pro bono support, creating meaningful outcomes for portfolio partners while delivering engaging and rewarding experiences for supporters. The postholder will ensure that engagement opportunities align with Impetus’ investment priorities and organisational objectives, respond to donor interests, and maximise impact for the young people and charities we serve.

The role combines strategic leadership, relationship management, programme innovation and operational oversight. Working closely with colleagues across Philanthropy and Investment, and engaging regularly with Public Affairs and senior leaders, the Head of Engagement will build, steward and deepen relationships with a wide network of corporate partners, major donors, and highly skilled volunteers.

The postholder will also lead and develop the Engagement team, comprising the Engagement Manager and Engagement Officer, fostering a collaborative, inclusive and high-performing culture that enables exceptional delivery, continuous improvement and professional growth.

As a key member of the Philanthropy leadership team, the Head of Engagement will play a central role in expanding and strengthening Impetus' supporter network, developing innovative opportunities for supporters to contribute their time and expertise, and ensuring our volunteering and pro bono programmes continue to evolve in response to the changing needs of young people, charities and partners.

This is an exciting opportunity to shape and grow a critical area of Impetus’ work, harnessing the expertise, networks and commitment of supporters to help more young people from disadvantaged backgrounds succeed in school, work and life.

Key responsibilities

Strategy and Leadership 

• Develop and deliver the engagement strategy and operational plan for the pro bono and volunteering functions
• Set and monitor KPIs, targets and budgets for engagement activity in line with organisational frameworks, securing approval from senior leadership where appropriate
• Lead the continued growth and development of volunteering and pro bono activity in alignment with organisational strategy and portfolio partner needs
• Work collaboratively with senior colleagues across Philanthropy and Investment to align engagement opportunities with organisational priorities
• Lead prospecting for the pro bono function, understanding the needs of our Investment Team and portfolio partners, identifying gaps in supporter skills and expertise and onboarding new organisations and specialisms 
• As the organisational lead for volunteering and pro bono engagement, advise senior leadership on engagement trends, sharing insights, learning and volunteering best practice internally and externally
• Lead, develop and coach the Engagement Team, creating a collaborative, inclusive and high-performing culture and ensuring clear objectives, development opportunities and succession planning 
• Provide guidance, support and oversight of delivery to the Engagement Team, line managing the Engagement Manager and supporting the development of the Engagement Officer

Volunteering programme 

• Lead the strategic development and continuous improvement of a high-quality volunteering programme, ensuring it delivers value for portfolio partners, corporate and donor partners and young people.
• Oversee programme quality and effectiveness across all volunteering activities.
• Build capability and strong relationships with portfolio organisations to support the design and delivery of high-quality volunteering opportunities
• Monitor participation, impact and quality across the volunteering programme, using data and feedback to drive improvements.
• Work closely with account managers in the Philanthropy and Partnerships team to drive and steward donor engagement.
• Develop new models of volunteering in collaboration with the Engagement Team, including governance and trustee pathways, skills-based workshops and intensive challenge clinics.

Pro Bono programme 

• Lead the development of the organisation’s pro bono programme and oversee the delivery of activities, ensuring high-quality support for portfolio partners.
• Set annual pro bono targets (including project value, number of projects, and supporter engagement) and lead the team to deliver on these
• Oversee the maintenance of a strong pipeline of projects from portfolio partners and supporters that meet the needs of portfolio partners.
• Source and cultivate new pro bono supporters, including companies and highly skilled individual professionals.
• Oversee and contribute to business development activity including prospect research, outreach, relationship building and partnership development.
• Steward existing strategic supporter relationships and create compelling supporter journeys that communicate impact and strengthen long-term engagement.
• Work closely with the Investment Team to identify, scope and prioritise pro bono projects, and work with the team to improve quality and impact in project delivery. 
• Ensure an effective team approach to project identification, prioritisation and matching across the programme.
• For select high-priority projects, directly match portfolio partner needs with appropriate supporters, ensuring an effective and high-quality project experience, with support from the Engagement Manager.
• Support select high-priority project kick-off meetings and maintain oversight of project delivery, stakeholder management and follow-up processes.
• Ensure appropriate evaluation processes are in place to capture project impact, supporter feedback and learning.
• Own quality assurance, review programme outcomes and impact data to drive continuous improvement
• Collaborate with the Events team to design and run relevant supporter engagement events.

Relationship Management and Donor Engagement 

• Develop and maintain strong relationships with both new and existing corporate partners, major donors, volunteers, pro bono supporters and charity / sector stakeholders.
• Lead strategic account management of donors and supporters.
• Act as a key Account Manager for strategic engagement partnerships, notably the most high-value Pro Bono relationships.
• Work closely with account managers and senior stakeholders to maximise supporter engagement and long-term partnership opportunities.
• Contribute to the creation of compelling communications and marketing materials that demonstrate the value and impact of engagement activity.
• Represent Impetus externally at meetings, events and networking opportunities building effective and inclusive partnerships.

Operations, Systems and Reporting 

• Oversee the effective administration and operational delivery of the engagement function.
• Ensure accurate data management and reporting through Salesforce and related systems by the Engagement team.
• Maintain oversight of engagement pipelines, financial tracking and programme reporting.
• Lead quarterly reviews and reporting processes through the analysis and presentation of engagement data.
• Develop and improve systems, processes and operational efficiency across the engagement function.
• Ensure all activities comply with organisational policies, procedures and best practice.

Cross-Organisational Working

• Form part of the Philanthropy and Partnerships Leads group to lead and drive performance against fundraising targets and strategy.
• Collaborate closely with the Investment Team to identify opportunities for volunteering and pro bono support, especially driving innovation for both programmes.
• Build strong internal relationships to ensure engagement activity is coordinated and effectively communicated across teams.
• Attend and support Impetus events where required.
• Represent the Philanthropy team on internal projects, working groups and committees.
• Support wider team priorities and contribute to a collaborative and inclusive working culture.

Person specification

Essential

• Excellent relationship management skills with experience across a range of sectors, and track record working productively with senior stakeholders in corporate and charity organisations, including internally.
• Strong business development skills, with experience identifying and developing new relationships, partnerships, and engagement opportunities.
• Experience translating strategic priorities into operational plans, objectives and delivery.
• Strong project and programme management skills, including managing multiple priorities, budgets, timelines and stakeholders.
• Experience and understanding of how to design and implement inclusive, accessible and engaging experiences for a range of audiences, including young people and corporate supporters.
• Experience managing line reports or leading teams including coaching, supporting and enabling others to deliver high-quality outcomes.
• Strong analytical and organisational skills.
• Ability to identify opportunities, solve complex problems and contribute innovative and creative ideas.
• Excellent written and verbal communication skills.
• Ability to influence and build credibility with senior audiences internally and externally through clear, confident and evidence led communication.
• A collaborative and flexible working style with the ability to work cross-functionally.
• Commitment to the mission and values of Impetus.
• A strong commitment to equality, diversity and inclusion.
• Experience working in, or closely with, the charity, youth, education or employment sectors.

Desirable

• In depth understanding of the corporate donor and philanthropy landscape.
• Experience in corporate fundraising or donor engagement, in particular with the financial services and investment sectors.
• Significant experience overseeing either a large corporate volunteering programme or a pro bono programme (e.g. 50+ projects).
• Experience working with Salesforce.
• Expertise in evaluation or impact measurement.
• In-depth understanding of the education and/or youth employment sectors in the UK.

About Impetus

At Impetus, our focus is on helping young people achieve positive education and employment outcomes to increase their chance of leading fulfilling and successful lives, irrespective of their background.

We tackle the three most difficult challenges that affect a young person’s ability to succeed in life in Britain today:

• Lost learning through absence, suspensions, exclusions from school
• Stagnation in education attainment outcomes, which means many are missing out on key qualifications like GCSE English and maths
• The large numbers of young people out of education, training and employment

We use our deep expertise and high calibre networks to give the best non-profits working in these sectors the essential ingredients to have a real and lasting impact on the young people they serve.

Through a powerful combination of long-term funding, direct capacity building support from our experienced team and our pro bono partners, alongside research and policy influencing to drive lasting systems change, we work towards a society where all young people can thrive in school, pass their exams and unlock the doors to sustained employment, for a fulfilling life.

We are resolutely focused on outcomes and impact, driven by quality evidence.

You would be joining a team that is passionate, rigorous, determined, creative and warm. We care deeply for our colleagues, our portfolio partners and the young people we serve.

Impetus is a registered charity and our charity number is 1152262.

Our Values

In 2022 the Impetus staff agreed the following set of Values to act as our guiding principles as an organisation and help us to remain focused on achieving our mission to support young people from disadvantaged backgrounds.

We are brave and curious

We are bold and brave in our pursuit of better outcomes for young people. We lead with curiosity and stay open to new perspectives. We support one another to take considered risks and learn together.

We bring high trust, high challenge

We build strong, long-term relationships through honesty, kindness, integrity, and respect. We create the space for open, constructive challenge, where colleagues, partners and supporters feel safe to speak up, hold each other to account, and bring their best in pursuit of our mission.

We are evidence led and results driven for young people

We pursue excellence for the young people we work with, are wholly committed to better outcomes, unapologetically results driven, and accountable for our actions.

We thrive through diversity

We seek to embed diversity of thought, background and experience in every aspect of our work. We are open, thoughtful and proactive in better understanding and challenging our assumptions to better deliver the change we seek.

We always seek collaboration

We will not succeed alone. We seek meaningful, productive partnerships with others to achieve our mission and drive systems change for young people.

Our commitment to equality, diversity and inclusion

We believe that a diverse workforce leads to an organisation that is more open, creative and gets better results.

We want our team at Impetus to represent the diversity of the people and communities we serve. We also want our team to be one where different experiences, expertise and perspectives are valued, and where everyone is encouraged to grow and develop.

We want to reach a diverse pool of candidates. We are happy to consider any reasonable adjustments that potential employees may need to in order to be successful.

We recognise the importance of a good work/life balance. We do everything we can to accommodate flexible working, including working from home, working part-time job shares and other arrangements.

Please just let us know in your application or at any stage throughout the process (and beyond) if these are options you’d like to explore.

Impetus is an equal opportunity employer and is determined to ensure that no applicant or employee receives less favourable treatment on the grounds of age, disability, gender reassignment, marriage and civil partnership, race, religion or belief, sex and sexual orientation. We value diversity and welcome applications from people of all backgrounds.

Our employee benefits

Impetus appreciates the invaluable contribution made by all employees and wishes to encourage and reward loyalty, motivation and experience. We therefore offer a range of benefits and policies which aim to assist employees during various stages of their lives and careers. For more information on these, please download the job information pack from our website.

How to apply

Please click on the "Apply for this job" button.

You will need to:

• Complete the online form (including the equal opportunities monitoring form).
• Upload a comprehensive CV and supporting statement.

The supporting statement should be no more than two sides of A4 and should address the criteria in the person specification.

You should also include the contact details of two referees, one of whom must be your current or most recent employer. Referees will only be approached with your express permission.

As part of our commitment to flexible working we will consider a range of options for the successful applicant. All options can be discussed at interview stage.

The deadline for applications is Sunday 20th September 2026, 11:59pm.

Interviews:

1st Interviews will take place on w/c 28th September 2026.

2nd Interviews will take place on w/c 5th October 2026.

You will also be required to provide proof of your eligibility to work in the UK.

Personal Data

Your personal data will be shared for the purposes of the recruitment exercise. This includes our HR team, interviewers (who may include other partners in the project and independent advisors), relevant team managers and our IT service provider if access to the data is necessary for performance of their roles. We do not share your data with other third parties, unless your application for employment is successful and we make you an offer of employment. We will then share your data with former employers to obtain references for you. We do not transfer your data outside the European Economic Area.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.