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As a Beat Programme Officer, you will deliver high quality coaching support and guided self-help to individuals experiencing eating disorders and/or their loved ones, fostering early intervention and promoting sustained long-term recovery.
You will effectively manage a caseload of beneficiaries, providing tailored support that fosters early intervention and promotes sustained recovery.
Programme Officers work collaboratively and in alignment with Beat’s values, ensuring the achievement of Beat’s goals and strategy, and facilitating the effective delivery of contracted programme places.
You will be part of a cohesive and high performing team based on the principles of trust, mutual respect and empowerment.
Founded in 1989 as the Eating Disorders Association, our mission is to end the pain and suffering caused by eating disorders.


Team: Research & Engagement (Philanthropy & Partnerships)
Location: Homebased
Work pattern: 35 hours per week, Monday to Friday
Salary: Up to £38,918.33 per annum
Contract: Fixed term for 3 months with possibility of extension
We are the UK’s largest cat welfare charity. All over the country, our enthusiastic employees, volunteers, and supporters are using their kindness and expertise to make life better for millions of cats and the people who care for them.
Will you join us and make life better for cats?
Responsibilities of our Senior Corporate Partnerships Communications Officer:
The successful candidate will be responsible for developing, coordinating and delivering strategic communications opportunities that magnify Cats Protection’s objectives and goals through our Corporate Partnerships.
The role will work closely with the Corporate Partnerships team to build innovative and impactful communication strategies and marketing plans for current and new partners, as well as generate creative ideas for prospects.
About the Research and Engagement team:
We sit within the Marketing & Income Generation directorate.
The Research and Engagement team sits within Philanthropy and Partnerships and brings together prospect research, communications and events to ensure a coordinated, insight-led and supporter-centred approach supporting fundraisers to grow pipelines, build meaningful relationships, and maximise long-term income for Cats Protection.
What we are looking for in our Senior Corporate Partnerships Communications Officer:
Significant corporate partnership account management experience with particular expertise in the creation and delivery of partner marketing communications
Extensive experience of developing strong relationships with supporters/ clients/colleagues
Experience of developing bespoke propositions/presentations/proposals
Experience of working with marketing teams to develop marcomms campaigns
Significant charity experience
What we can offer you:
range of health benefits
26 days’ annual leave plus bank holidays, increasing with length of service.
Salary Finance, which empowers you to take control of your financial wellbeing.
and much more, which you can learn about
Interested? Here’s how to apply:
Application closing date: 1st June 2026
Virtual interview date:TBC – Applications will be reviewed as they are received
Applications may close before the deadline, so please apply early to avoid disappointment. Please note, applications received after the closing date may not be responded to.
If successful, your recruitment journey will include:
1. Anonymised application form
2. Virtual interview via Microsoft Teams
Please note, the process may change slightly dependent on application numbers. We will inform you of any relevant changes.
Making a better life for cats, because life is better with cats
The chosen candidate will ideally be based in Hertfordshire, and any travel expenses from within the county will be covered.
This is a fixed-term contract for 9 months, with a possible 3 month extension.
About Us
Healthwatch Hertfordshire are an independent champion for people who use health and social care services. Being a values-driven organisation with a national reputation for our research and engagement work, we are here to find out what matters to local people and help ensure their views shape the support they need.
Our purpose is to help make care better for people by improving how services are run now and in the future. We have an ambitious vision to ensure that health and social care work for everyone.
The Role:
We are looking for someone who enjoys talking to people, listening to their experiences, and turning those conversations into meaningful change.
You will gather evidence from Hertfordshire residents about their experiences of health and social care services, analyse the findings, and produce clear insight driven reports that drive service improvement through insightful recommendations, and partnership with decision makers.
The broader health and social care landscape is actively changing around us, and we need someone who can work flexibly, respond to changing needs, and stay confident and calm during change – making sure our values and duties to the public are successfully delivered.
Responsibilities
Essential Criteria
Skills and Experience
If you do not meet the entire criteria but believe you have preferential experience and transferable skills, we welcome you to apply.
To Apply
Please submit your CV and a tailored covering letter to Louis Eastwell of Hire Purpose, before 23:59 on Sunday 31st May 2026.
You are welcome to initially submit a CV prior to completing a covering letter.
Louis is exclusively managing this recruitment campaign and will be speaking with all longlisted candidates prior to a formal interview with Healthwatch Hertfordshire.
Application Guidance:
A tailored covering letter highlighting how you meet the essential requirements of the role, outlining your relevant experience, skills, attributes, and your motivation for applying and supporting Healthwatch Hertfordshire’s mission.
Hire Purpose champions inclusive recruitment.
We welcome applications from people of all backgrounds and lived experiences. We uphold equal opportunity principles and challenge bias at every stage, partnering only with organisations that share our commitment to integrity, diversity, equity, and inclusion.
Hire Purpose is also proudly a B Corp certified business that has met B Lab UK’s high standards of social and environmental performance, transparency, and accountability.
Please submit your CV and a tailored covering letter to Louis Eastwell of Hire Purpose, before 23:59 on Sunday 31st May 2026.
You are welcome to initially submit a CV prior to completing a covering letter.
Louis is exclusively managing this recruitment campaign and will be speaking with all longlisted candidates prior to a formal interview with Healthwatch Hertfordshire.
Are you a creative digital campaigner who can turn powerful stories into content that sparks action, builds movements, and drives change to help save lives and stop economic abuse?
About the role
We are looking for an exceptional candidate to play a central role in the delivery of Surviving Economic Abuse’s new digital engagement strategy by producing high-quality, impactful communications and compelling campaigns to extend our reach and to engage, inform and mobilise our audiences.
You will be responsible for managing and growing our digital presence across social media and ensuring this translates into action through our website and newsletters. This will include creating content tailored to victim-survivors and their family and friends, financial services professionals, policymakers, funders and other stakeholders.
As part of this role, you will help us develop and deliver digital campaigns that amplify our campaigning and policy work, as well as deliver communications to support our fundraising, consultancy and training.
About you
We’re looking for someone with proven experience running social media for a brand, organisation or campaign, with demonstrable results such as audience growth, reach, engagement or conversion. You’ll understand how campaigning and activism work, and how to mobilise supporters from diverse backgrounds to help drive meaningful change.
You’ll be a confident digital campaigner who knows how to make an impact across multiple platforms, especially Instagram, TikTok and other video first channels. You’ll have a strong understanding of trends, formats and algorithms, and know how to use them to create scroll stopping content that motivates people to take action.
This role is ideal for someone with bags of initiative, strong creative instincts, and the ability to turn complex issues into compelling digital content tailored to engage and mobilise different audiences.
If you’re excited by the opportunity to use your creativity, storytelling and digital campaign skills to amplify survivor voices, drive real-world impact and help end economic abuse, we’d love to hear from you.
What we offer
To apply
Please apply via our website.
This post is only open to women applicants, as being a woman is considered a genuine occupational requirement under Schedule 9, Paragraph 1 of the Equality Act 2010.
Applications open from 6 May and close at 11.59pm on 26 May 2026. Interviews will take place week commencing 15 June 2026.
Direct applications only – no agencies please.
Surviving Economic Abuse (SEA) is committed to developing an inclusive team which reflects the diversity of the communities we support. Our culture celebrates diverse voices, and we particularly encourage applications from Black and minoritised applicants and disabled applicants who are under-represented at SEA.
SEA is a Disability Confident Committed, and Kinship Friendly Employer.
The client requests no contact from agencies or media sales.
This is a new role leading on engagement in the Transport for the South East area, playing a vital role in building and strengthening local networks, supporting grassroots campaigning, and ensuring that disabled people’s experiences inform both regional and national influencing work. You’ll organise campaigns and forums, represent Transport for All at events, and work with service providers and councils to make transport fairer and more equitable.
We are a small, committed and disabled-led team working to make sure that disabled people’s voices are heard in politics, the media and beyond. This role is central to ensuring lived experience drives systemic change in London’s transport system.
You must be disabled and live in the South East of England to apply for this role
This role has a genuine occupational requirement of lived experience of disability. This explicitly includes those of us who are Deaf, neurodivergent, chronically ill, have a mental health condition, have age-related impairments, and people with both visible and non-visible impairments. If you do not meet the genuine occupational requirement, your application will not be shortlisted for an interview.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
This role will support the development and delivery of our services and resources for young people born with a cleft lip and/or palate. Working closely with the Engagement & Services team to help us achieve our mission.
The Youth Engagement Coordinator will sit within the Engagement & Services Team. They will join a friendly and supportive team of seven colleagues who, together, are responsible for the delivery of CLAPA’s adult, family, children and young people and involvement services. The post holder will develop and deliver services for eight- to seventeen-year-olds, which will enable the young cleft community to connect, share experiences and access guidance and emotional support. Shaping what support looks like, creating positive impact and strengthening reach, this new role for CLAPA will make a real difference to the lives of children and young people born with a cleft.
If you think you have the talent, passion and experience to help us ensure we can always meet the needs of the community we serve, we want to hear from you.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
An exciting and unique opportunity has arisen to join Your City & Metropolitan Hospitals Charity, working in partnership with Dudley Group NHS Charity, in a newly created role during a period of growth.
We are seeking a Legacy & In‑Memory Fundraising Officer to lead the day‑to‑day delivery of legacy and in‑memory fundraising across both charities. This is a vital role focused on growing sustainable long‑term income while providing compassionate, sensitive support to donors and bereaved families.
To enhance the experience of everyone using our hospitals and healthcare services.



The client requests no contact from agencies or media sales.
About Adolescent Health Study
The Adolescent Health Study (AHS) (Registered Charity Number 1213337) is an ambitious new UKRI-funded initiative to establish a prospective, longitudinal population study that will generate a globally leading open science data platform and research resource. AHS aims to recruit at least 100,000 young people aged eight to 18 years from across the UK and to follow their mental and physical health and wellbeing over at least 10 years. It plans to collect data through questions and measures; to obtain bio-samples for a wide range of genomic and other high-throughput assays; and to capture linked data relevant to health and wellbeing from participants’ health, education and other administrative records.
There will be a strong emphasis on engaging with and involving young people, schools, parents and other relevant stakeholders in the design and delivery of the study, as well as on including young people that represent as wide as possible a range of backgrounds, experiences and characteristics. AHS will focus on enabling a wide range of research, including studies of the critical biological and social developments that occur during the transition from childhood to adulthood and the determinants of both mental and physical health and wellbeing in adolescents and young adults.
Purpose of the post
The Engagement and Involvement Lead will engage with young people, families, schools and other interest-holders in the process of designing, delivering and ensuring the best outputs from the Adolescent Health Study, and is critical for the success of the project. We are at the early stages of laying the foundations for this and in this new role we are seeking an experienced and passionate individual to co-ordinate and lead AHS’s cross-UK participant and public involvement and engagement activities.
This is a role that requires high levels of confidence, autonomy, enthusiasm and skill. The postholder will be responsible for delivering the project’s new Engagement and Involvement Strategy, including: coordinating a Young Persons’ Advisory Group for AHS; developing and delivering AHS public engagement and involvement activities; outsourcing and supervising engagement and involvement activities that are better provided by external partners; scoping and advising on which routes for involvement and engagement activities are best suited to different tasks.
Main responsibilities
Planning & strategy delivery
Practical engagement and involvement
Team support
Wider
Knowledge, skills and experience
Essential criteria
Engagement and involvement
Other essential criteria
Desirable criteria
Dimensions
Application Process
This post is subject to receipt of satisfactory references, an enhanced DBS check and right to work in the UK (visa sponsorship is not available).
Please apply via CharityJob, making sure to answer the screening questions in full.
The closing date for this position is midnight on Sunday 31st May.
Interviews are currently expected to be held Wednesday 1st/Thursday 2nd July.
Equal Opportunities Policy Statement
AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. It is our policy to provide employment equality to all, irrespective of age, disability, gender identity or expression, marital or civil partnership status, pregnancy or maternity, race, religion or belief, sex, or sexual orientation.
Beyond these protected characteristics, we acknowledge the importance of socio-economic background, childcare and caring responsibilities, educational background, neurodiversity, and any other factors that shape an individual’s identity and opportunities. We strive to create an environment where all colleagues feel valued, supported, and able to contribute fully.
Values
It is an exciting time for the Adolescent Health Study (AHS) as we establish our senior leadership team and begin to plan the pilot studies. As the senior executive team evolves, the AHS values will be grounded in inclusivity, integrity, accountability, and collaboration.
Please ensure you answer each screening question in full, while staying within the specified word limits.
Please note cover letters will not be accepted for this role.
About the Role
The Business Development Officer will play a dynamic and influential role within Sands’ Partnerships & Philanthropy team, helping to shape the charity’s growing presence across corporate, commercial, and digital landscapes. You’ll contribute directly to our income generating ambitions by uncovering new opportunities, building a healthy prospect pipeline, and supporting outreach that amplifies Sands’ profile across professional and online networks.
This role offers an exciting blend of creativity, insight gathering, and hands‑on development work. You’ll collaborate with colleagues across the organisation to elevate Sands’ visibility - including helping to craft engaging digital content, develop compelling partnership assets, and support targeted online marketing initiatives. With the space to work proactively and take ownership of your projects, you’ll play a meaningful part in strengthening our corporate partnerships and creating foundations for long‑term, high‑impact relationships.
Main Purpose of the Job
Principal Tasks and Responsibilities
1. Prospect Research & Pipeline Development
2. Outreach, Marketing & Engagement Support
3. Database, Reporting & Administration
4. Partnership Materials, Proposals & Case Studies
5. Internal Collaboration & Organisational Support
We are here to support everyone touched by pregnancy loss or the death of a baby. Always.


The client requests no contact from agencies or media sales.
Position: Policy and Public Affairs Officer (Scotland)
Hours: Full-time, 35 hours a per-week
Contract: Permanent
Location: Home Based in Scotland
Salary: Starting from £26,384 per annum plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You will start at our entry point salary of £26,384 per annum, increasing to £28,033 after 6 months service and satisfactory performance and to £29,682 after a further 6 months.
About us
We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.
Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.
Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.
Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.
About this job
We’re looking for an enthusiastic and talented policy and public affairs professional to join our team. You should have experience of working to develop policy and have the ability to communicate our position to a wide range of audiences across Scotland.
In this exciting role you will work with the MS community to influence change in public policy, continuing to make the case for improvements in the treatment, care and support of people affected by MS.
This is a fantastic opportunity for someone who understands the political and policy environment in Scotland, who has experience in external facing influencing roles, who is outcome-focused and delivers tangible results. The successful candidate will work closely with the MS community, the Scottish Policy and Communications team as well as key external partners such as MSPs and their teams.
Closing date for applications: 9:00 on Monday 1st of June
Interested?
PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.
Equal Opportunities
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.
We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application.
Disability Confident Employer
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.
You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.
If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.
More about our employee benefits:
We have a wide range of employee benefits including (but not limited to):
Encouraging work life balance
Caring for you and your family
Thinking about your finances
Enriching your life at work
Safeguarding
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.
This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.
We recognise our particular responsibility to make sure vulnerable adults and children are protected.
We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.
Your right to work in the UK
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.
You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.
No agencies please.
To fund world-leading research, share the latest information and campaign for everyone's rights. Together we are a community. Together we can stop MS
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Supporter Engagement & Fundraising Communications Manager — Go Beyond £35,000–£37,000 | Fully Remote | Permanent | Full-time
Go Beyond has given over 21,000 vulnerable children life-changing residential breaks since 1994. Young carers who spend their days looking after parents. Children living in poverty for whom a school holiday means hunger, not adventure. Kids who've been bullied or bereaved and need a week away from their ordinary life.
The charity is entirely self-funded. £1.8 million a year, every penny raised by supporters. No government money. Which means the work this fundraising team does is directly and specifically what makes those breaks possible.
This is the role that sits at the heart of that.
What makes this moment unusual:
Go Beyond's flagship campaign, Ice Cream Moments, launches this summer — backed by Louis Theroux, James Acaster, David Gower and Jenny Agutter. The trustees want to go viral. A legacy programme is built and ready to launch. An alumni programme connecting with 21,000+ former beneficiaries is research-complete and waiting for someone to open the door. And a loyal supporter base of 200–300 regular givers — many of whom have been giving for over a decade — is generating £90,000 a year with almost no stewardship behind it.
Sara, the Director of Fundraising, describes what's needed like this: "Think of this as your own company. Think of this income stream as your domain — you could make it something amazing."
What the role involves:
The Supporter Engagement & Fundraising Communications Manager will own the supporter communications function end to end. This is a project management and strategy role — not an execution role. The doing sits with two direct reports and a network of freelancers. Your job is to build the plan, manage the team, deliver the campaigns and make sure the data tells you what's working.
In practice that means:
What we're looking for:
This is not a pure fundraiser role or a pure marketing role. It's a hybrid — and the right person will see that as a feature, not a confusion.
Charity sector experience is welcome but not essential. Commercial direct marketing, agency-side or individual giving backgrounds are all genuinely considered.
What Go Beyond offers:
This role will suit you if:
You're energised by building rather than maintaining. You want to own a function, not just a job title. You think in income as well as engagement. And you want to be part of something where the work — the campaigns, the supporter journeys, the data — is directly connected to a child getting a break they wouldn't otherwise have had.
This role is being recruited exclusively through Raise + Recruit, an independent executive search adviser specialising in the charity sector. All enquiries are handled in complete confidence — including from your current employer.
To find out more or to express interest, contact John Austin. No lengthy application process at this stage — a conversation is all it takes.
Full candidate brief: https://go-beyond-roan.vercel.app/
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
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The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.
The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.
Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for
Pipeline development
Partnership management and stewardship
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.