Event fundraising officer jobs

JRS UK is recruiting full-time Fundraising and Communications Officer as part of our Communications, Fundraising, and Advocacy team. 

You’ll be part of a mission that restores dignity, hope, and agency to people rebuilding their lives after displacement. Whether you're crafting a fundraising appeal, sharing stories on social media, or meeting with refugee friends to help supporters understand their experiences, your work will have real impact. If you're passionate about justice, creative in your communication, and eager to build meaningful relationships, this is your chance to make a difference every single day.

Job description 

1. Supporter engagement: 

• Thanking and recording donations; maintaining up-to-date supporter records 

• Supporting outreach through JRS UK events such as our Advent Service and report launches 

• Representing JRS UK at external events such as Greenbelt festival or the National Justice and Peace Network conference 

• Undertaking talks and appeals in parishes or school

2. Digital and Offline communications: 

• Producing and distributing printed materials (e.g. quarterly newsletters; publicity materials; parish resources) 

• Maintaining and developing JRS UK’s digital presence (e.g. website; social media; e-updates) 

• Capturing and managing digital assets (such as audio, photographs, and videos)

• Developing content for JRS UK’s website, newsletters, and social media – scoping and drafting content that champion refugee voices, shares our work, or engages supporters in our advocacy 

• Analysing web traffic and social media engagement to inform future activity 

3. Appeals 

• Supporting the delivery of JRS UK’s three direct-mail appeals (Advent, Lent, World Day of Migrants and Refugees) and our annual legacy appeal by: 

  • Researching and drafting content 

  • Curating and segmenting data 

  • Sourcing and producing visuals 

4. Trust fundraising  

• Stewarding relationships with some small and medium sized trusts 

• Drafting and submiting grant applications and reports 

5. Other duties as required by the Communications and Fundraising Manager or Head of Communications, Fundraising and Advocacy  

We’re looking for an exceptional Associate Director of Fundraising to lead one of the most ambitious and high-performing fundraising teams in the sector.  

At Blood Cancer UK, our fundraising is in a strong position. Over the last five years, we’ve doubled our income, achieved growth across every fundraising discipline, successfully launched new products, and reached new audiences.

We have fantastic momentum and the ambition to go even further. You would be joining us at an especially exciting time – we’re in the early stages of our first-ever major appeal and have already secured more than £8 million towards our £25 million target. Backed by a highly engaged and well-connected appeal board, this campaign has huge potential across Fundraising, but especially our high value audiences.

We’re looking for an experienced and confident high-value fundraiser — someone who can build authentic relationships with senior and influential supporters, open doors, and inspire people to be part of something transformative.

Alongside this, you’ll oversee our thriving mid-value and legacy fundraising programmes and help us deepen engagement with supporters across the UK.

Our community is the heartbeat of our organisation: passionate, determined people, often with a personal connection to blood cancer and a powerful desire to make a difference. With around five million people affected by blood cancer in the UK, the opportunity to grow our reach and impact is enormous.

You’ll bring ambition, passion and high standards, with the ability to lead and inspire a large, talented team of nearly 50 people. Collaboration will come naturally to you — you’ll build strong relationships across the organisation and be a key member of the Blood Cancer UK leadership team, creating a culture where people feel inspired to be their best.

Most importantly, you will make a real difference to the lives of people affected by blood cancer.

As a fundraising and grant-making charity, we bring to life projects that transform patient care - from sensory packs for children in A&E to a peaceful sanctuary garden for people living with dementia. We’re a small, ambitious and supportive team, and in just three years we’ve tripled our income. Our goal is to become the charity of choice for our local community in Islington and Haringey.

Over the past 18 months, this role has built community and challenge events income from the ground up, creating real momentum. There’s still huge untapped potential locally, offering an exciting opportunity to grow and innovate.

This is a varied and rewarding role where you’ll build meaningful relationships with clinicians, donors and the community, and see first-hand the impact of your work. You’ll lead on community fundraising, challenge events and volunteering, with real autonomy. It's a fantastic step up for someone ready to develop and make their mark.

The successful candidate will benefit from an NHS Agenda for Change salary and excellent NHS benefits, including a generous pension and annual leave.

Community Fundraising Officer (South)

 Full time - 35 hours per week

 Location – Hybrid Working with a minimum of one day a week working from Head Office

Join our friendly team

We have an exciting opportunity for a Community Fundraising Officer to join our team, covering the South region. Based within easy reach of our London Head Office, you’ll play a vital role in generating income and building lasting relationships to support families in need.

Our charity

The Sick Children’s Trust is the charity that provides a welcoming ‘Home from Home’ where families with a sick child in hospital can stay. But we’re more than bricks and mortar, our friendly, caring staff are there to support families when they really need it.

Hospital can be a lonely and scary place for anyone, but especially a child. Providing around 3,500 families a year with somewhere to stay together just minutes from the hospital means that they can be by their sick child’s side and have one less thing to worry about.

The Role

This is a varied and rewarding community fundraising role, focused on building strong relationships and delivering income growth across the South.

You will engage and support individuals, schools, community groups and local businesses to fundraise, delivering excellent stewardship and supporter care.

You’ll recruit participants for both ‘run your own’ and third-party events, while developing long-term relationships including with families connected to the charity.

Working collaboratively with House Teams and colleagues, you’ll help increase awareness, manage supporter activity, track income, and maximise opportunities through partnerships and communications.

You’ll also represent the charity at events and within the community.

This role requires a proactive and organised approach, with the ability to manage multiple projects and meet income targets.

 About you

 We’re looking for someone who is passionate about community fundraising and motivated by building meaningful relationships.

You will have strong interpersonal and communication skills. You will equally be as comfortable supporting families who stay with us who want to fundraise, as you are presenting to a room full of students, or potential volunteers.

You have good organisational skills and are comfortable working to objectives and targets. You are able to work with a level of autonomy and innovation to develop your fundraising portfolio and to increase our profile particularly in the areas close to our houses.

Ultimately this is a great role for anyone who loves community fundraising and understands that no two days are the same.

An enhanced DBS check for this role is required.

This is a great opportunity and we are reviewing applications as we receive them, so early application is advised. We may close this post earlier than advertised. 

The recruitment pack will provide you with more information about the role. If this role sounds like something you will excel in, we’d love to hear from you.

To apply please submit your CV with a covering letter demonstrating how you meet the criteria set out in the job description and person specification 

Closing date: 5th June 2026

About us

The Maypole Project supports children and young people with complex medical needs and their families, providing emotional, practical and social support. We are a small, values-driven charity making a meaningful and lasting difference to the families we work with.

About the role

We are looking for an experienced and motivated Business Development & Fundraising Manager to play a central role in strengthening and growing our income.

This is an opportunity to lead the development of a strategic and sustainable approach to fundraising, while continuing to deliver hands-on income across a diverse portfolio.

You will work closely with the CEO and colleagues across the organisation to identify new opportunities, develop partnerships, and build on existing income streams.

The role would suit someone who enjoys working in a small organisation where you can shape direction, take ownership, and see the direct impact of your work.

What you’ll be doing

· Lead the development and delivery of a multi-year fundraising and income strategy

· Grow and diversify income across corporate partnerships, community fundraising, events, individual giving and digital activity

· Identify, develop and secure new funding opportunities, including partnerships and collaborative projects

· Build and manage strong relationships with funders, partners and supporters

· Work with the CEO to explore and develop cross-sector opportunities (e.g. NHS, local authorities, voluntary sector partners)

· Line manage a part-time Fundraising Officer and support volunteers to maximise impact

· Strengthen systems, pipeline management and performance monitoring to support sustainable income growth

About you

We are looking for someone who can combine strategic thinking with practical delivery in a small charity environment.

You will bring:

· Experience of securing meaningful income and developing funding opportunities (e.g. five-figure grants or partnerships)

· A track record of building effective external relationships

· Confidence identifying new opportunities and turning them into tangible outcomes

· Strong communication skills, with the ability to create compelling cases for support

· The ability to manage multiple priorities and work both independently and collaboratively

· You may already be working at manager level, or ready to step up into a broader role with greater ownership and scope.

Why join us?

Play a key role in shaping the charity’s future sustainability and growth

Work closely with senior leadership and influence organisational direction

Be part of a supportive, collaborative and purpose-driven team

See the direct impact of your work on children and families

Flexible working arrangements

If you are looking for a role where you can take ownership, develop new ideas and make a meaningful difference, we would love to hear from you.

Are you an animal lover with strong data skills who wants to make a difference?
We’re looking for a Data and Information Officer to support our High Value Fundraising teams with the regular, accurate workflow of data information to help guide decision making, drive performance, and ultimately increase our fundraising income.

What does this role do?
As Data and Information Officer, you’ll:

• provide the High Value Fundraising team with accurate, easy to use and relevant data and information, from generating invite lists to special events to performance reports on team KPI’s, you’ll be the go-to person for data,
• regularly update and cleanse data to ensure it remains accurate,
• support with gift processing, working closely with Gift Processing teams and finance to ensure reconciliation is accurate,
• support with process improvements, from implementing new dashboards in Salesforce, supporting the effective use of the system and generally being curious about new ways to use data in the team.

This role is a fixed term contract until May 2027. Interviews for this role are provisionally scheduled for week commencing 1st June 2026, and will take place on Teams.

Could this be you?
To be successful in this role, you’ll need some experience of handling data, with the ability to extract, cleanse and manipulate large data sets to support decision making. You’ll need to be able to prioritise your workload, as you’ll likely have multiple requests from varied stakeholders, and the ability to understand the needs of different teams and translate them into data requests. Strong, proactive communication skills are essential, as well as a passion for the work we do.

About Dogs Trust
We love dogs. That’s why we do whatever we can to make sure every four-legged friend gets the love they deserve. We’ll never put a healthy dog down, so our work is focused on helping dogs in need, supporting owners every step of the walk, and creating a better world for dogs in the future. It’s what we’ve been doing since 1891 and how we’ve grown to become the UK’s leading dog charity, helping 12,000 loyal friends find their forever homes every year.

To apply for this position please click the APPLY NOW button. Our application process requires you submit a personal statement explaining your interest and suitability for the role.
 
Dogs are incredibly diverse, much like the humans that love them! At Dogs Trust we value diversity, and we're committed to fostering an inclusive culture. We actively encourage applications from people of all backgrounds, abilities, and cultures and believe that a diverse workforce helps us to achieve our mission. Our colleague networks give our people a voice, acting as vehicles for real and meaningful change within Dogs Trust. We truly want to see every candidate shine throughout the entire job application process, interview stages, and during their time with us. If there's anything on your mind or any adjustments you may need, don't hesitate to reach out to us. We're here to support you every step of the way.

Harris Hill are delighted to be working with a fantastic charity to recruit for the Events Fundraising Officer role in order to help deliver exceptional experiences for supporters taking part in fundraising challenges and events.

This is an exciting opportunity to join a collaborative and ambitious Income Generation team responsible for driving sustainable income growth and supporter engagement. You will play a key role in inspiring and supporting participants throughout their fundraising journey, ensuring they feel valued, motivated, and confident from sign-up to event day and beyond.

The role combines supporter stewardship, project coordination, data insight, and cross team collaboration. You will use insight driven engagement approaches to maximise supporter satisfaction, fundraising performance, and long term loyalty.

Key Responsibilities

• Deliver outstanding supporter experiences across a range of fundraising events and challenges
• Build strong, authentic relationships with supporters through personalised stewardship and communication
• Monitor and achieve fundraising, engagement, and performance KPIs
• Use supporter data and campaign insight to improve journeys, communications, and fundraising outcomes
• Coordinate and manage multiple projects simultaneously, ensuring deadlines and objectives are met
• Collaborate effectively with colleagues across teams to support shared organisational goals
• Contribute to an inclusive, positive, and supporter centred working culture

About You

We are looking for someone who is organised, proactive, and passionate about creating meaningful supporter experiences.

You will ideally have:

• Experience delivering peer-to-peer fundraising programmes and delivering memorable fundraising experiences for supporters
• Excellent interpersonal and relationship building skills
• Experience working to targets and KPIs
• Strong project management and organisational skills
• Confidence using data and insight to improve performance and engagement
• The ability to work independently and manage competing priorities
• Excellent written and verbal communication skills
• A collaborative and adaptable approach to teamwork

Salary & Benefits

• Salary: £35,702 per annum
• Contract type: Permanent, full time, 35 hrs a week
• Location: London, hybrid working  2 days a week in the office
• Closing date: ASAP
• Interview dates: w/c 15th June

Recruitment process: Cv and Supporting Statement to

If this sounds like you, then please do get in touch ASAP!

As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

As our Fundraising Officer (Community) you will be a key member of the income generation team for Winchester Hospice Fundraising Charity, joining at an exciting time following significant growth in revenue generation. You will drive our community fundraising efforts, delivering our ambitious plans and meeting financial targets.

You will lead innovative fundraising campaigns, foster and manage community relationships and ensure exceptional supporter experiences. Your role will encompass key community fundraising campaigns to maximise support and donations from both community groups and individuals.

In this role you will collaborate with the wider team to ensure a unified and effective approach to fundraising to ensure that the charity is financially sustainable and widely recognised by the local community. You will support the promotion and delivery of significant events, provide excellent stewardship and enhance supporter journeys. Your proactive, can-do attitude and dedication will play a crucial role in achieving substantial revenue growth and driving the success of our strategic initiatives.

As our Fundraising Officer (Corporate) you will be a key member of the income generation team for Winchester Hospice Fundraising Charity, joining at an exciting time following significant growth in revenue generation. You'll be driving our corporate fundraising efforts, delivering our ambitious plans and meeting financial targets.

You will lead innovative fundraising campaigns, foster and manage corporate relationships and ensure exceptional supporter experiences. Your role will encompass corporate campaigning and working with local and regional businesses to maximise support and donations to the charity.

In this role you will collaborate with the wider team to ensure a unified and effective approach to fundraising to ensure that the charity is financially sustainable and widely recognised by local organisations. You will support the promotion and delivery of significant events, provide excellent stewardship and enhance supporter journeys. Your proactive, can-do attitude and dedication will play a crucial role in achieving substantial revenue growth and driving the success of our strategic initiatives.

Senior Events and Community Fundraising Officer  

Salary: Band C, £32,106 - £38,460 (depending on experience) 

Hours: 35 per week with the option to work a compressed 9 day fortnight. Other types of flexible working would be considered. 

Contract: Permanent 

Location: Home based, with occasional travel to London area for team meetings and nationally to attend fundraising events and meet supporters

Reports to: Individual Giving Manager

Applicants must be UK-based and hold the right to work in the UK 

We’re looking for an enthusiastic, proactive community and events fundraiser with great project management and relationship building skills. You’ll be responsible for leading on a varied portfolio of fundraising activity, identifying new supporters, stewarding existing supporters and delivering community fundraising products and campaigns. 

Events and Community Fundraising is an established income stream at Breast Cancer UK but we know there is potential to grow, so we’re investing in proactively developing the area. This role is an opportunity for a talented fundraiser - with at least three years of experience working in Challenge Events and/or Community Fundraising and a strong track record of delivering results – to take a lead on these income streams and build something amazing. You’ll need a strong understanding of how to deliver excellent supporter experiences, and the ability to spot trends and opportunities aligned with our audiences and our brand, and capitalise on them. 

You will have opportunities to expand your skills and expertise and really own your area, as part of a small but mighty fundraising team. If you are highly motivated, collaborative, love building relationships and working as part of a friendly and supportive team, we want to hear from you!

What do we do? 

In the UK today, around 59,000 women and 420 men are diagnosed with breast cancer every year. 1 in 7 women will develop the disease at some point in their lives. 

But we believe in a future where fewer people have to face this devastating disease - because we know that at least 30% of breast cancer cases are preventable. 

By making changes to modifiable lifestyle and environmental risk factors, we can drive cases down. Our focus on prevention is unique - we are shining a light on the changes we can make at an individual and societal level to prevent breast cancer.

To achieve this, we: 

• Deliver an education programme - empowering individuals with trustworthy, science-backed information and guidance to help them understand and reduce their risk. 
• Fund research into the causes of breast cancer —while significant progress has been made in improving survival rates through new treatments, we are dedicated to ensuring fewer people ever receive a diagnosis.
• Run campaigns - to increase public understanding of the risk factors for breast cancer, such as Endocrine Disrupting Chemicals, and to influence policy-makers and industry, to protect consumers and provide safer alternatives. 

Not all breast cancers can be avoided, but we need a united movement for prevention, to tackle this devastating disease head on. We believe that everyone in society should be able to do something about breast cancer before it happens.

Why join us? 

• To be part of a fantastic supportive team. 
• Work for an organisation that values a positive and inclusive culture. 
• Fully remote working. 
• Competitive salary of £32,106 - £38,460 PA (depending on experience) 
• 29.5 Days Annual Leave Plus Bank Holidays. 
• Option for full time colleagues to compress hours and work a 9 day fortnight. 
• Healthcare cover and employee assistance programme. 
• Enhanced Sickness, Maternity and Paternity pay. 
• Great supportive culture with generous professional training and development programmes. 
• For full details see our website

How to apply 

The closing date for applications is Monday 1st June at 9am.

To apply for this position please complete the application form and a Equality and Diversity monitoring Form found on our website  The full Job Description can be found in the Recruitment Pack 

Interviews 

First round interviews will be held virtually w/c 8th June

We anticipate holding a second round w/c 15th June 

For further information on the charity see our website   

At Breast Cancer UK, we're dedicated to being a caring and welcoming place, where everyone feels supported and employees feel like they belong. Our aim is to create an inclusive culture where our employees can reach their full potential, without prejudice and discrimination. We value respect, understanding, and the richness that diversity brings. We welcome applications from candidates of all backgrounds, identities and abilities.  

The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.

The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.

Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.

Responsible for:

Trusts and foundations:

• Identify and research trusts and foundations that would support our organisational priorities and funding needs
• Develop high quality, compelling grant applications and cases for support
• Build and maintain a healthy pipeline of funding opportunities
• Lead funder relationship management and deliver high-quality stewardship
• Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
• Working closely with technology and delivery teams to build evidence-based cases for support for key projects
• Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
• Attending external events and meetings to support our fundraising strategy and learning

Major donors:

• Identify and research potential major donors whose interests and capacity align with our mission
• Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
• Build and maintain a healthy pipeline of potential major donors
• Develop tailored engagement and stewardship plans approaches for each donor
• Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
• Lead major gift conversations and negotiations, including face-to-face meetings
• Provide high quality, personalised stewardship to major donors
• Identify opportunities to grow or repeat giving through deeper donor engagement
• Deliver exceptional stewardship to major donors

Individual giving

• Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
• Maintaining and monitoring our individual giving platforms
• Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements

Application instructions

• Submit your CV and one-page cover letter via CharityJob
• Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
• You must answer the screening question on the application page
• Applications without a cover letter or screening question will not be considered
• Applications due: 23:30 Wednesday 27 May
• First round interviews (online): 4/5 June 2026
• Final interviews (online or in person) 10/11 June 2026

Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

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We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

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As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.
 

About you:

The Special Events Officer is an exciting role at MDUK, that will sit within the High Value Engagement, Fundraising team.​

You'll:​

• Support the Special Events team on a variety of tasks including sourcing prizes, managing guest lists, marketing, liaising with suppliers and thanking supporters. 
• Assist the Special Events manager in the research and delivery of new events.
• Lead on the delivery of third-party fundraising events.

About us:​

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically. ​​

This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.​​

Values and behaviours:​

• A positive attitude and approach that reflect the charity’s values.
   
• Seek opportunities to contribute to the development of the charity.
   
• A commitment to and an understanding of disability issues, equality, diversity and inclusion.
   
• Always demonstrate role model behaviour.​

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Benefits:​

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.

Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer range of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...
 

Location: We operate a hybrid model (home and office, London SE1). ​

Closing date: Friday 22nd May 2026​

NB Interviews likely to be held on the following dates:

• Wednesday 3rd June
• Thursday 4th June​

Please download the job description to see full role responsibilities

Yeldall Manor is a Christian residential treatment centre near Reading for men struggling with addiction to drugs or alcohol. We are seeking someone strategic and relational to strengthen and develop all aspects of fundraising for Yeldall Manor, and to lead a new marketing and fundraising campaign. The appointee will join our senior leadership team and shape the next chapter of our development as we are at a pivotal moment of opportunity, with an ambitious vision to build our Christ-centred identity and practice, pursue excellence and impact, and expand our reach.

We are looking for someone who will:

• Lead supporter acquisition activities and build the portfolio of individuals, churches, trusts, corporates and other organisations supporting the work of Yeldall Manor.
• Build deep, mission-aligned partnerships with donors and stakeholders.
• Lead and implement an effective marketing and communications strategy to help position Yeldall Manor within the top tier of UK residential rehab centres.
• Lead and execute a high-impact fundraising strategy across major gifts, individual giving, churches, trusts & foundations, corporates, and legacies.
• Work closely with the CEO and the Senior Leadership Team to align income generation with Yeldall Manor’s strategic vision and programme outputs.
• Lead the development of funding applications for trusts & foundations.
• Provide leadership and nurture staff working on supporter acquisition, fundraising and marketing activities, empowering them to deliver with excellence.
• Inspire a culture of philanthropy throughout the organisation, rooted in strong values and relational excellence

You will be working alongside the existing Administration and Supporter Relations Manager, and other staff assisting with marketing and administration, based mainly at Yeldall Manor, which means you will have daily contact with those men whom you are helping. They inspire and motivate us just as much as we seek to encourage and support them.

Please see the Job Description for full details and submit a covering letter along with your CV showing how you meet the requirements of the Person Specification. As this is a strategic post within an actively Christian setting, applications should be from committed Christians. Schedule 9, Part 1:3(a) of the Equality Act 2010 applies.

For an informal conversation about the role, please contact CEO, Maarten Fontein or Administration Manager, Sue Hedger - contact details available on our website, which is currently under development.

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About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.